Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Dr. Goldberg just (well beginning of June) switched my son to Prozac, which we had tried in the past with... not so good effect. Well, as Dr. G does, he decided that we should revisit this med this summer. When we started him on it, I didn't think it was going to work out. My son was crying and emotional and not sleeping well. So what else? Dr. G upped the dose. Because of a 5 year relationship where I've observed that Dr. G has amazing insight, I trusted and tried the slightly higher dose. All I can say is WOW! The earlier ill effects of the Prozac diminished and now It's like my son's auditory processing problems just melted away. This has been one of my largest concerns for him and it's gone? (Oh I hope it's gone! Somebody pinch me!) My son can be playing on the computer while I ask him a question and he ANSWERS me right away! The computer used to just suck him in. Now he can accept input from multiple places. That's the best way I can describe it anyway. This just supports that the SSRI's are not being used for behavior modification. My son's brain function has improved as a result of the SSRI's. I know that the meds are scary, but Dr. G does not prescribe them lightly. Wishing all of you the best, April RE: Re: New and have been scared to death about the ssris by other groups....advice If a parent decides to go the pharm route, being scared is totally understandable. Although I myself went the " natural " route first and understand why parents might initially choose this for their child (and some do benefit from this), the way I best know how to describe choosing the protocol and SSRI's is the thought that if my child had cancer I wouldn't be giving him enzymes. If my child had cancer, I would be at the best doctor known to treat this horrid disease and use any medication, even with side effects, if I knew it gave him a shot at life. Dr. G is one of the best doctors to treat " autism " and SSRI's are among the best medications to treat this disease that affects our precious children's brain and immune system. Reminding ourselves that this is a disease helps. Sincerely, L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist On Fri, Jul 4, 2008 at 10:34 AM, diatplay wrote: Thank you so much for the reassurance. We don't trust the DAN stuff - it was all over the place at least in our experience. We had some misgivings about the PTC stuff too...so hopefully this will bit it for Matt. Is your child doing well? DI >> >> Other parents have tried to discourage us from G's care bc of the ssri >> component even saying that " how can he mesure how much or little is >> there - giving an ssri to kids who have too much seratonin si >> disastrous - psychiatrists have been doing it for years to our kids. >> Not always pretty. " >> Great. We do not really understand - at least I do not - how or if >> this will work for our 3 yr old...we are actually hoping that the head >> of the FDA, a family friend, will look at some go G's research on our >> behalf and give his opinion. We are going fwd though and have started >> Famvir as of yesterday. Our son,matt is not on an antiviral... it is >> going to be really hairy until he finally is... >> Any encouragement would be greatly appreciated. Matt was a responder to >> valtrex and nizoral but plateuaed and the DAN did not know what to do >> next....so we pulled it until Dr.G and watched as so many o fhis gains >> faded away... >> Di > <mailto: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 April, That is AWESOME! We are right there with Prozac and your story is very inspirational. Especially since I think auditory processing is one of my son's biggest challenges. Kristy From: [mailto: ] On Behalf Of April Jagnow Sent: Wednesday, July 09, 2008 6:19 AM Subject: SSRI success! Dr. Goldberg just (well beginning of June) switched my son to Prozac, which we had tried in the past with... not so good effect. Well, as Dr. G does, he decided that we should revisit this med this summer. When we started him on it, I didn't think it was going to work out. My son was crying and emotional and not sleeping well. So what else? Dr. G upped the dose. Because of a 5 year relationship where I've observed that Dr. G has amazing insight, I trusted and tried the slightly higher dose. All I can say is WOW! The earlier ill effects of the Prozac diminished and now It's like my son's auditory processing problems just melted away. This has been one of my largest concerns for him and it's gone? (Oh I hope it's gone! Somebody pinch me!) My son can be playing on the computer while I ask him a question and he ANSWERS me right away! The computer used to just suck him in. Now he can accept input from multiple places. That's the best way I can describe it anyway. This just supports that the SSRI's are not being used for behavior modification. My son's brain function has improved as a result of the SSRI's. I know that the meds are scary, but Dr. G does not prescribe them lightly. Wishing all of you the best, April RE: Re: New and have been scared to death about the ssris by other groups....advice If a parent decides to go the pharm route, being scared is totally understandable. Although I myself went the " natural " route first and understand why parents might initially choose this for their child (and some do benefit from this), the way I best know how to describe choosing the protocol and SSRI's is the thought that if my child had cancer I wouldn't be giving him enzymes. If my child had cancer, I would be at the best doctor known to treat this horrid disease and use any medication, even with side effects, if I knew it gave him a shot at life. Dr. G is one of the best doctors to treat " autism " and SSRI's are among the best medications to treat this disease that affects our precious children's brain and immune system. Reminding ourselves that this is a disease helps. Sincerely, L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist On Fri, Jul 4, 2008 at 10:34 AM, diatplay wrote: Thank you so much for the reassurance. We don't trust the DAN stuff - it was all over the place at least in our experience. We had some misgivings about the PTC stuff too...so hopefully this will bit it for Matt. Is your child doing well? DI >> >> Other parents have tried to discourage us from G's care bc of the ssri >> component even saying that " how can he mesure how much or little is >> there - giving an ssri to kids who have too much seratonin si >> disastrous - psychiatrists have been doing it for years to our kids. >> Not always pretty. " >> Great. We do not really understand - at least I do not - how or if >> this will work for our 3 yr old...we are actually hoping that the head >> of the FDA, a family friend, will look at some go G's research on our >> behalf and give his opinion. We are going fwd though and have started >> Famvir as of yesterday. Our son,matt is not on an antiviral... it is >> going to be really hairy until he finally is... >> Any encouragement would be greatly appreciated. Matt was a responder to >> valtrex and nizoral but plateuaed and the DAN did not know what to do >> next....so we pulled it until Dr.G and watched as so many o fhis gains >> faded away... >> Di > <mailto: <mailto:%40> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 April, Thanks for sharing this story. Two of my boys are Dr G's patients and we've had some gains with Paxil, but Zoloft was a disaster for us. Lots of self stim behavior and hyperactivity. It's interesting to me that upping the meds eliminated the negative behaviors and gave your son so much success. It's even more amazing that you'd tried the drug before with not so great results. Dr. G really knows what he's doing. All the best and continued success, Robyn Kristy Nardini <krnardini@...> wrote: April, That is AWESOME! We are right there with Prozac and your story is very inspirational. Especially since I think auditory processing is one of my son's biggest challenges. Kristy From: [mailto: ] On Behalf Of April Jagnow Sent: Wednesday, July 09, 2008 6:19 AM Subject: SSRI success! Dr. Goldberg just (well beginning of June) switched my son to Prozac, which we had tried in the past with... not so good effect. Well, as Dr. G does, he decided that we should revisit this med this summer. When we started him on it, I didn't think it was going to work out. My son was crying and emotional and not sleeping well. So what else? Dr. G upped the dose. Because of a 5 year relationship where I've observed that Dr. G has amazing insight, I trusted and tried the slightly higher dose. All I can say is WOW! The earlier ill effects of the Prozac diminished and now It's like my son's auditory processing problems just melted away. This has been one of my largest concerns for him and it's gone? (Oh I hope it's gone! Somebody pinch me!) My son can be playing on the computer while I ask him a question and he ANSWERS me right away! The computer used to just suck him in. Now he can accept input from multiple places. That's the best way I can describe it anyway. This just supports that the SSRI's are not being used for behavior modification. My son's brain function has improved as a result of the SSRI's. I know that the meds are scary, but Dr. G does not prescribe them lightly. Wishing all of you the best, April RE: Re: New and have been scared to death about the ssris by other groups....advice If a parent decides to go the pharm route, being scared is totally understandable. Although I myself went the " natural " route first and understand why parents might initially choose this for their child (and some do benefit from this), the way I best know how to describe choosing the protocol and SSRI's is the thought that if my child had cancer I wouldn't be giving him enzymes. If my child had cancer, I would be at the best doctor known to treat this horrid disease and use any medication, even with side effects, if I knew it gave him a shot at life. Dr. G is one of the best doctors to treat " autism " and SSRI's are among the best medications to treat this disease that affects our precious children's brain and immune system. Reminding ourselves that this is a disease helps. Sincerely, L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist On Fri, Jul 4, 2008 at 10:34 AM, diatplay wrote: Thank you so much for the reassurance. We don't trust the DAN stuff - it was all over the place at least in our experience. We had some misgivings about the PTC stuff too...so hopefully this will bit it for Matt. Is your child doing well? DI >> >> Other parents have tried to discourage us from G's care bc of the ssri >> component even saying that " how can he mesure how much or little is >> there - giving an ssri to kids who have too much seratonin si >> disastrous - psychiatrists have been doing it for years to our kids. >> Not always pretty. " >> Great. We do not really understand - at least I do not - how or if >> this will work for our 3 yr old...we are actually hoping that the head >> of the FDA, a family friend, will look at some go G's research on our >> behalf and give his opinion. We are going fwd though and have started >> Famvir as of yesterday. Our son,matt is not on an antiviral... it is >> going to be really hairy until he finally is... >> Any encouragement would be greatly appreciated. Matt was a responder to >> valtrex and nizoral but plateuaed and the DAN did not know what to do >> next....so we pulled it until Dr.G and watched as so many o fhis gains >> faded away... >> Di > <mailto: <mailto:%40> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Ah so cool! I love you you put " What else? He upps the dose! " LOL> Figures. I used to think " WHAT? " But like you said, trust, repeated episodes of insight that I just couldn't have guessed. My favorite (most beneficial to myself) experience with his insight - often casual - was apologizing on a phone consult because I was coughing and wheezing and didn't have an inhaler handy (not that they helped much)... apologized that my asthma was acting up, and he said " That's not asthma ... that's a mycoplasma cough. Get you some doxycycline. " And so my world changed. 'Cause he was right. 15 plus years of trying to treat asthma with no results. So simple - he barely gave it a thought, yet it has helped not only me, but several people I've passed it on to - not just with their chronic infections that they didn't know were infections, but with their cognitive function too. Well that was off-topic ... but I love those wonderful discoveries! Your experience will be very helpful to the next person who reports awful results on an SSRI and falls over when he tells THEM to up the dose and they think he's crazy lol. Been there too! RE: Re: New and have been scared to death about the ssris by other groups....advice If a parent decides to go the pharm route, being scared is totally understandable. Although I myself went the " natural " route first and understand why parents might initially choose this for their child (and some do benefit from this), the way I best know how to describe choosing the protocol and SSRI's is the thought that if my child had cancer I wouldn't be giving him enzymes. If my child had cancer, I would be at the best doctor known to treat this horrid disease and use any medication, even with side effects, if I knew it gave him a shot at life. Dr. G is one of the best doctors to treat " autism " and SSRI's are among the best medications to treat this disease that affects our precious children's brain and immune system. Reminding ourselves that this is a disease helps. Sincerely, L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist On Fri, Jul 4, 2008 at 10:34 AM, diatplay wrote: Thank you so much for the reassurance. We don't trust the DAN stuff - it was all over the place at least in our experience. We had some misgivings about the PTC stuff too...so hopefully this will bit it for Matt. Is your child doing well? DI >> >> Other parents have tried to discourage us from G's care bc of the ssri >> component even saying that " how can he mesure how much or little is >> there - giving an ssri to kids who have too much seratonin si >> disastrous - psychiatrists have been doing it for years to our kids. >> Not always pretty. " >> Great. We do not really understand - at least I do not - how or if >> this will work for our 3 yr old...we are actually hoping that the head >> of the FDA, a family friend, will look at some go G's research on our >> behalf and give his opinion. We are going fwd though and have started >> Famvir as of yesterday. Our son,matt is not on an antiviral... it is >> going to be really hairy until he finally is... >> Any encouragement would be greatly appreciated. Matt was a responder to >> valtrex and nizoral but plateuaed and the DAN did not know what to do >> next....so we pulled it until Dr.G and watched as so many o fhis gains >> faded away... >> Di > <mailto:groups (DOT) com> Quote Link to comment Share on other sites More sharing options...
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