Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Thank you so much for posting this. My oldest son, , had an EEG that showed seizure activity. His neurologist prescribed Lamictal. The only problem is that I have a major problem with giving him the meds. The meds only come in tablet or chewable tablet form. Any ideas? My neurologist emphasized the importance of these meds because without them, it is like have a light switch going on and off inside his head. All the best, Jill From: <jrodrig6605@...> Subject: ABC News article: The Answers to Autism May Be Inside the Mind Date: Tuesday, July 15, 2008, 11:34 AM Hi, Below is a message that I initially sent to the parents in the ABA center my son goes to. I think you might find it interesting. It explains and it also help us understand why Dr. Goldberg's protocol works. Thanks, ------------ --------- --------- --------- --------- --------- -\ ------------ --------- - Hi all, I just found the following article that it is very interesting. It talks about how MRIs and EEGs are helping diagnose autism. It is also very interesting that they mention how seizure activity can be detected by performing an EEG study in a child. The Answers to Autism May Be Inside the Mind http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> I like the following line in the article " One doctor in California is arguing that trying to diagnose autism without looking at the brain is like trying to diagnose a heart condition without looking at the heart, though the established autism community isn't so sure. " It is also very interesting how some parents interviewed gave anti-seizure medication to their children and now they're are mainstreamed in regular schools. Miranda put Beckett on anti-seizure medicine and the results have been astounding. " Within a period of 60 days his vocabulary went from maybe two or three words to about 300 words, " Miranda said. To watch Beckett today, you might think he has a bit of trouble speaking, but it's minor. You'd never think he was autistic. He's being mainstreamed in kindergarten, in a school that he attends with his brother. We did an EEG study on in April 2007, guess what??? The results came positive to seizure activity in his brain. I will post 's EEG results tonight for you to see. I was curious to know why and how the anti-seizure medications worked in these children so I did some research. The anti-seizure medication helps neutralize the neurotransmitters similar to the SSRIs. How interesting! We have done several lab tests that show that 's neurotransmitters are imbalanced. I have posted some results in the links section of the group for you to see. Now, what causes seizures? One of the causes for seizures is temporal lobe inflammation. Very interesting, 's brain SPECT scan shows that. What causes the neurotransmitter imbalance? The brain inflammation. That is why the anti-seizure medication and SSRIs work. I have including links below that explains how brain inflammation causes seizures. I am sure that you all know McCarthy's story by now. Her son Evan had live-threatening seizures when he was diagnosed with " autism " . Please notice how she mentions, " My completely healthy 2-year-old " - children with regressive autism were not borned with this disease. http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> " I didn't know what was going on with my son Evan. One day he was a completely healthy 2-year-old and the next he kept having life-threatening seizures. " - McCarthy Anti-seizure medication list http://www.efwp. org/programs/ side_effects. shtml <http://www.efwp. org/programs/ side_effects. shtml> How the anti-seizure medications work? They help balance the neurotransmitters in the brain. I took one medication from the list above and went to the drugs.com website to get more information about it. Diastat/epam http://www.drugs. com/ppa/diazepam .html <http://www.drugs. com/ppa/diazepam .html> Diastat pharmacology Potentiates action of GABA, inhibitory neurotransmitter, resulting in increased neural inhibition and CNS depression <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system and reticular formation. The only thing that it is not talked about in the article is the brain inflammation that causes the seizures. That is the information I sent yesterday from the Merck pharmaceuticals Co. article. Innate Immunity and Inflammation in Temporal Lobe Epilepsy http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> Brain Inflammation and Seizures http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> Temporal lobe seizure http://www.cnn. com/HEALTH/ library/DS/ 00266.html <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> Hope this helps you put all the puzzle pieces together, Thanks, and 's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Have you got a brain SPECT scan done in you oldest son? We haven't tried any anti-seizure medications. We hope that the protocol can lower the inflammation and therefore reduce the seizure activity in my sons brain. I will get another EEG done once we are 6 months into the protocol, we are also planning to get another brain SPECT scan done at the same time. Thanks, > From: <jrodrig6605@...> > Subject: ABC News article: The Answers to Autism May Be Inside the Mind > > Date: Tuesday, July 15, 2008, 11:34 AM > > > > > > > > > > > > > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > > > Thanks, > > > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > > > Hi all, > > > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > > > I have including links below that explains how brain inflammation causes > > seizures. > > > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year- old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > > > Hope this helps you put all the puzzle pieces together, > > > > Thanks, > > > > and 's dad > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 You could get your son's medications compounded by a compounding pharmacy. Compounding http://en.wikipedia.org/wiki/Compounding Here is a website that has information about some compounding pharmacies http://www.healthy.net/professionals/compound.asp Hope this helps, > From: <jrodrig6605@...> > Subject: ABC News article: The Answers to Autism May Be Inside the Mind > > Date: Tuesday, July 15, 2008, 11:34 AM > > > > > > > > > > > > > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > > > Thanks, > > > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > > > Hi all, > > > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > > > I have including links below that explains how brain inflammation causes > > seizures. > > > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year-old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > > > Hope this helps you put all the puzzle pieces together, > > > > Thanks, > > > > and 's dad > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hello Jill-my son is a patient of Dr. G's and he also has seizures. The neurologist tried Lamictal at first, but after a few weeks my son became agitated and aggressive. The teacher noticed it in school and we also noticed his changing behavior at home. The neurologist switched him to Keppra and he has been on it for a long time now with no problem behaviors. He hasn't had any seizures with Keppra. I just thought you might like to know how it affected my son. All the best to you and your son, Gayle ABC News article: The Answers to Autism May Be Inside the Mind Date: Tuesday, July 15, 2008, 11:34 AM Hi, Below is a message that I initially sent to the parents in the ABA center my son goes to. I think you might find it interesting. It explains and it also help us understand why Dr. Goldberg's protocol works. Thanks, ------------ --------- --------- --------- --------- --------- -\ ------------ --------- - Hi all, I just found the following article that it is very interesting. It talks about how MRIs and EEGs are helping diagnose autism. It is also very interesting that they mention how seizure activity can be detected by performing an EEG study in a child. The Answers to Autism May Be Inside the Mind http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> I like the following line in the article " One doctor in California is arguing that trying to diagnose autism without looking at the brain is like trying to diagnose a heart condition without looking at the heart, though the established autism community isn't so sure. " It is also very interesting how some parents interviewed gave anti-seizure medication to their children and now they're are mainstreamed in regular schools. Miranda put Beckett on anti-seizure medicine and the results have been astounding. " Within a period of 60 days his vocabulary went from maybe two or three words to about 300 words, " Miranda said. To watch Beckett today, you might think he has a bit of trouble speaking, but it's minor. You'd never think he was autistic. He's being mainstreamed in kindergarten, in a school that he attends with his brother. We did an EEG study on in April 2007, guess what??? The results came positive to seizure activity in his brain. I will post 's EEG results tonight for you to see. I was curious to know why and how the anti-seizure medications worked in these children so I did some research. The anti-seizure medication helps neutralize the neurotransmitters similar to the SSRIs. How interesting! We have done several lab tests that show that 's neurotransmitters are imbalanced. I have posted some results in the links section of the group for you to see. Now, what causes seizures? One of the causes for seizures is temporal lobe inflammation. Very interesting, 's brain SPECT scan shows that. What causes the neurotransmitter imbalance? The brain inflammation. That is why the anti-seizure medication and SSRIs work. I have including links below that explains how brain inflammation causes seizures. I am sure that you all know McCarthy's story by now. Her son Evan had live-threatening seizures when he was diagnosed with " autism " . Please notice how she mentions, " My completely healthy 2-year-old " - children with regressive autism were not borned with this disease. http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> " I didn't know what was going on with my son Evan. One day he was a completely healthy 2-year-old and the next he kept having life-threatening seizures. " - McCarthy Anti-seizure medication list http://www.efwp. org/programs/ side_effects. shtml <http://www.efwp. org/programs/ side_effects. shtml> How the anti-seizure medications work? They help balance the neurotransmitters in the brain. I took one medication from the list above and went to the drugs.com website to get more information about it. Diastat/epam http://www.drugs. com/ppa/diazepam .html <http://www.drugs. com/ppa/diazepam .html> Diastat pharmacology Potentiates action of GABA, inhibitory neurotransmitter, resulting in increased neural inhibition and CNS depression <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system and reticular formation. The only thing that it is not talked about in the article is the brain inflammation that causes the seizures. That is the information I sent yesterday from the Merck pharmaceuticals Co. article. Innate Immunity and Inflammation in Temporal Lobe Epilepsy http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> Brain Inflammation and Seizures http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> Temporal lobe seizure http://www.cnn. com/HEALTH/ library/DS/ 00266.html <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> Hope this helps you put all the puzzle pieces together, Thanks, and 's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Gayle, Have you done a brain SPECT scan in your son? I am wondering how the brain SPECT scan results relate to the seizures. Thanks, > From: <jrodrig6605@...> > Subject: ABC News article: The Answers to Autism May Be Inside the Mind > > Date: Tuesday, July 15, 2008, 11:34 AM > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > Thanks, > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > Hi all, > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > I have including links below that explains how brain inflammation causes > > seizures. > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year- old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > Hope this helps you put all the puzzle pieces together, > > Thanks, > > > > and 's dad > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Thanks so much Gayle. I was going to write back earlier and completely forgot. My kids do not see Dr. G but I am a HUGE believer in . I have an aunt and my dad's cousin have CFIDS. On top of that, my children's father has a sister with CFIDS. So, my children have something in their genes from BOTH sides of the family. I am a single mother now and the only insurance they have is medicaid. However, I read these posts carefully and try my best to follow the diet. Strange, had a bad reaction last year when I was able to give him the Lamictal (?sp), he was sick. I will try again and see what happens and then go back to the neurologist. She is top notch and has a very open mind. All the best, Jill From: <jrodrig6605@ hotmail.com> Subject: ABC News article: The Answers to Autism May Be Inside the Mind groups (DOT) com Date: Tuesday, July 15, 2008, 11:34 AM Hi, Below is a message that I initially sent to the parents in the ABA center my son goes to. I think you might find it interesting. It explains and it also help us understand why Dr. Goldberg's protocol works. Thanks, ------------ --------- --------- --------- --------- --------- -\ ------------ --------- - Hi all, I just found the following article that it is very interesting. It talks about how MRIs and EEGs are helping diagnose autism. It is also very interesting that they mention how seizure activity can be detected by performing an EEG study in a child. The Answers to Autism May Be Inside the Mind http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> I like the following line in the article " One doctor in California is arguing that trying to diagnose autism without looking at the brain is like trying to diagnose a heart condition without looking at the heart, though the established autism community isn't so sure. " It is also very interesting how some parents interviewed gave anti-seizure medication to their children and now they're are mainstreamed in regular schools. Miranda put Beckett on anti-seizure medicine and the results have been astounding. " Within a period of 60 days his vocabulary went from maybe two or three words to about 300 words, " Miranda said. To watch Beckett today, you might think he has a bit of trouble speaking, but it's minor. You'd never think he was autistic. He's being mainstreamed in kindergarten, in a school that he attends with his brother. We did an EEG study on in April 2007, guess what??? The results came positive to seizure activity in his brain. I will post 's EEG results tonight for you to see. I was curious to know why and how the anti-seizure medications worked in these children so I did some research. The anti-seizure medication helps neutralize the neurotransmitters similar to the SSRIs. How interesting! We have done several lab tests that show that 's neurotransmitters are imbalanced. I have posted some results in the links section of the group for you to see. Now, what causes seizures? One of the causes for seizures is temporal lobe inflammation. Very interesting, 's brain SPECT scan shows that. What causes the neurotransmitter imbalance? The brain inflammation. That is why the anti-seizure medication and SSRIs work. I have including links below that explains how brain inflammation causes seizures. I am sure that you all know McCarthy's story by now. Her son Evan had live-threatening seizures when he was diagnosed with " autism " . Please notice how she mentions, " My completely healthy 2-year-old " - children with regressive autism were not borned with this disease. http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> " I didn't know what was going on with my son Evan. One day he was a completely healthy 2-year-old and the next he kept having life-threatening seizures. " - McCarthy Anti-seizure medication list http://www.efwp. org/programs/ side_effects. shtml <http://www.efwp. org/programs/ side_effects. shtml> How the anti-seizure medications work? They help balance the neurotransmitters in the brain. I took one medication from the list above and went to the drugs.com website to get more information about it. Diastat/epam http://www.drugs. com/ppa/diazepam .html <http://www.drugs. com/ppa/diazepam .html> Diastat pharmacology Potentiates action of GABA, inhibitory neurotransmitter, resulting in increased neural inhibition and CNS depression <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system and reticular formation. The only thing that it is not talked about in the article is the brain inflammation that causes the seizures. That is the information I sent yesterday from the Merck pharmaceuticals Co. article. Innate Immunity and Inflammation in Temporal Lobe Epilepsy http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> Brain Inflammation and Seizures http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> Temporal lobe seizure http://www.cnn. com/HEALTH/ library/DS/ 00266.html <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> Hope this helps you put all the puzzle pieces together, Thanks, and 's dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 My daughter had seizures and yes the brain is inflamed. She does not have them any more, she is 22 living a normal life. ABC News article: The Answers to Autism May Be Inside the Mind > > Date: Tuesday, July 15, 2008, 11:34 AM > > > > > > > > > > > > > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > > > Thanks, > > > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > > > Hi all, > > > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > > > I have including links below that explains how brain inflammation causes > > seizures. > > > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year- old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > > > Hope this helps you put all the puzzle pieces together, > > > > Thanks, > > > > and 's dad > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Hi , Did your daughter overcome her seizures with the protocol, HBOT, or both? Thanks, Kristy From: [mailto: ] On Behalf Of Rapid Recovery Hyperbarics Sent: Friday, July 18, 2008 7:54 PM Subject: Re: Re: ABC News article: The Answers to Autism May Be Inside the Mind My daughter had seizures and yes the brain is inflamed. She does not have them any more, she is 22 living a normal life. ABC News article: The Answers to Autism May Be Inside the Mind > <mailto:%40> > Date: Tuesday, July 15, 2008, 11:34 AM > > > > > > > > > > > > > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > > > Thanks, > > > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > > > Hi all, > > > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > > > I have including links below that explains how brain inflammation causes > > seizures. > > > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year- old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > > > Hope this helps you put all the puzzle pieces together, > > > > Thanks, > > > > and 's dad > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Hi, Kristi. I know this question isn't directed at me, but both my boys have seizure disorders. We've successfully reduced Noah's seizure meds down to one dose per day and hope to eliminate them completely at his next visit. is still on two doses per day of Zarontin, which we will reduce to one dose per day in 10 days. We recently adjusted another med and want to note changes before altering anything else. So far, no signs of seizure activity in Noah, and as I've said before, his other two neuro problems--cyclical vomiting syndrome and migraines--have completely disappeared about 6 weeks into the protocol, and we'd been experiencing that for two years. Robyn Kristy Nardini <krnardini@...> wrote: Hi , Did your daughter overcome her seizures with the protocol, HBOT, or both? Thanks, Kristy From: [mailto: ] On Behalf Of Rapid Recovery Hyperbarics Sent: Friday, July 18, 2008 7:54 PM Subject: Re: Re: ABC News article: The Answers to Autism May Be Inside the Mind My daughter had seizures and yes the brain is inflamed. She does not have them any more, she is 22 living a normal life. ABC News article: The Answers to Autism May Be Inside the Mind > <mailto:%40> > Date: Tuesday, July 15, 2008, 11:34 AM > > > > > > > > > > > > > > Hi, > > Below is a message that I initially sent to the parents in the ABA > > center my son goes to. > > > > I think you might find it interesting. It explains and it also help us > > understand why Dr. Goldberg's protocol works. > > > > Thanks, > > > > > > ------------ --------- --------- --------- --------- --------- -\ > > ------------ --------- - > > > > Hi all, > > > > I just found the following article that it is very interesting. It talks > > about how MRIs and EEGs are helping diagnose autism. It is also very > > interesting that they mention how seizure activity can be detected by > > performing an EEG study in a child. > > > > The Answers to Autism May Be Inside the Mind > > http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1 > > <http://abcnews. go.com/GMA/ OnCall/story? id=4882297 & page=1> > > > > I like the following line in the article " One doctor in California is > > arguing that trying to diagnose autism without looking at the brain is > > like trying to diagnose a heart condition without looking at the heart, > > though the established autism community isn't so sure. " > > > > It is also very interesting how some parents interviewed gave > > anti-seizure medication to their children and now they're are > > mainstreamed in regular schools. > > > > Miranda put Beckett on anti-seizure medicine and the results have been > > astounding. " Within a period of 60 days his vocabulary went from maybe > > two or three words to about 300 words, " Miranda said. To watch Beckett > > today, you might think he has a bit of trouble speaking, but it's minor. > > You'd never think he was autistic. He's being mainstreamed in > > kindergarten, in a school that he attends with his brother. > > > > We did an EEG study on in April 2007, guess what??? The results > > came positive to seizure activity in his brain. I will post 's EEG > > results tonight for you to see. > > > > I was curious to know why and how the anti-seizure medications worked in > > these children so I did some research. The anti-seizure medication helps > > neutralize the neurotransmitters similar to the SSRIs. How interesting! > > We have done several lab tests that show that 's neurotransmitters > > are imbalanced. I have posted some results in the links section of the > > group for you to see. > > > > Now, what causes seizures? One of the causes for seizures is temporal > > lobe inflammation. Very interesting, 's brain SPECT scan shows > > that. What causes the neurotransmitter imbalance? The brain > > inflammation. That is why the anti-seizure medication and SSRIs work. > > > > I have including links below that explains how brain inflammation causes > > seizures. > > > > I am sure that you all know McCarthy's story by now. Her son Evan > > had live-threatening seizures when he was diagnosed with " autism " . > > Please notice how she mentions, " My completely healthy 2-year- old " - > > children with regressive autism were not borned with this disease. > > http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html > > <http://www.cnn. com/2007/ US/09/24/ jenny.autism/ index.html> > > > > " I didn't know what was going on with my son Evan. One day he was a > > completely healthy 2-year-old and the next he kept having > > life-threatening seizures. " - McCarthy > > > > Anti-seizure medication list > > http://www.efwp. org/programs/ side_effects. shtml > > <http://www.efwp. org/programs/ side_effects. shtml> > > > > How the anti-seizure medications work? They help balance the > > neurotransmitters in the brain. > > I took one medication from the list above and went to the drugs.com > > website to get more information about it. > > > > Diastat/epam > > http://www.drugs. com/ppa/diazepam .html > > <http://www.drugs. com/ppa/diazepam .html> > > > > Diastat pharmacology > > Potentiates action of GABA, inhibitory neurotransmitter, resulting in > > increased neural inhibition and CNS depression > > <http://www.drugs. com/ppa/diazepam .html> , especially in limbic system > > and reticular formation. > > > > The only thing that it is not talked about in the article is the brain > > inflammation that causes the seizures. That is the information I sent > > yesterday from the Merck pharmaceuticals Co. article. > > > > Innate Immunity and Inflammation in Temporal Lobe Epilepsy > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 2384155> > > > > Brain Inflammation and Seizures > > http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665 > > <http://www.pubmedce ntral.nih. gov/articlerende r.fcgi?artid= 531665> > > > > Temporal lobe seizure > > http://www.cnn. com/HEALTH/ library/DS/ 00266.html > > <http://www.cnn. com/HEALTH/ library/DS/ 00266.html> > > > > Hope this helps you put all the puzzle pieces together, > > > > Thanks, > > > > and 's dad > > > > Quote Link to comment Share on other sites More sharing options...
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