Re: Pain!

[Guest guest]

Hi, Francine. I'm new to this group, but not to other message boards

and definitely not to Lyme! I moved from NY to FL a year ago. My

pcp referred me to a Pain Managent MD (anethesiologist) for chronic

back pain. He also knows about the pain I have from Lyme. I of

course had to educated him, but it was worth it. See if your LLMD or

Primary MD can give you a referral to a Pain doc. A year ago I

couldn't walk, now I'm walking. I saw him yesterday and he

prescribed massage therapy 3x's a week. As far as the burning pain

goes, I needed something very strong to take the edge of that. He

prescribed Oxycontin (a strong narcotic). It helped. Now for the

past 4 months or so he has me on the Duragesic Patch which contains a

strong pain medication called fentanyl. These drugs are used for

chronic pain and they are narcotics. I'm not thrilled about taking

them, but I have to function! The Duragesic doesn't make me sleepy

or groggy. I can drive and go about daily life. He prescribed the

message therapy because my right shoulder started burning so bad, the

patch and a Vicodin didn't help. I started the therapy this morning

and my therapist knows all about Lyme (thank heavens...he's from NJ,

too) and he understands the difference between my " normal " aches and

pains, and the " Lyme " aches and pains. After one session this

morning I feel better. I'm hoping this is going to work in the long

run. I take Neurontin and Elavil also. It's amazing I can think and

talk straight! Guess you get use to it. In any event, please feel

free to e-mail at Viana2@... and I can give you more info. I

have found a way to manage this pain to the point where I almost feel

pre Lyme, Babs, and Ehrlichia! Hope this helped, and like I said e-

mail me anytime.

Debbie

> How do all of you deal with the pain? I have severe burning pain

as

> well as joint pian but the burning is horrible. What to do are

many

> on narctics? Sometimes the pain is so much I can't concentrate.

> Also how to dal with family whi don't seem to understand the mental

> changes of lyme or have a hard time dealing with it.? I am

> desperate! Didn't sleep all night from worrying about this and of

> course the pain. I am alredy on Neurontin and several anti

> depressants. FrancineNJ

[Guest guest]

How do you get docs to understand this? Do you have any literature on severe

pain with lyme?

Patty

[Guest guest]

Dear Ann,

You are doing just fine. I think the fear is really a big one in this

journey. These unfamiliar and sharper pains scare us to death. Well, not

literally. This pain may jump anywhere on your body. You may have pain in areas

you never had pain before. It may last there a while or move to another area.

I referred to this type of pain in my journal/story at the rheumatic site as if

there were a circus of fleas moving around all over my body. One day it would

be in my elbow and the next day it would be elsewhere. Terrible pain. And then

it began to subside and I came out of it.

My sister has SD like me and she has just come through a PORTION of her

first big herx. She ended up in the ER one week and the hospital the next as

she was so frightened and the pain so intense. I think she will be able to

handle it now once she completes this first herx and knows this is normal

progress. Even when the pain goes away, you may still be left with a terrific

case of FATIGUE. Also normal.

Best of luck, Ann, and have a wonderful holiday season knowing you are

on a very positive road, just a difficult one. And when I say that, it is still

partially tongue in cheek as I think the MOST difficult journey would be without

this treatment knowing this type of getting worse is not temporary but forever.

Love,

[Guest guest]

Ann, It sounds like the minocycline is working and you are experiencing

the two steps back. Hopefully it won't last much longer and the one step

forward will soon begin.

Merry Christmas,

Carol/Piney

rheumatic Pain!

> Hello to All,

> And Merry Christmas!! I would like to know if anyone else has experienced

> much more pain after being on the Antiobiotics? I have been taking

> Minocycline 100mg. a day since Oct.30th, and it seems like this week I

have

> had much more pain all over my body. Is this Normal to do that?

> Would like for you all to comment on this, as I really don't know what to

do

> anymore, I sometimes feel that the AP is making me worse instead of

better.

> Thanks,

> Happy Holidays!

> Ann

> maryannbell@...

>

>

[Guest guest]

Hi Ann,

I'm on Minocin 100 mg MWF and started in the middle of Oct. I developed

flu-like symptoms and generalized " extreme " pain a couple of weeks after

starting. The recommendation by some of the more experienced on this

board, was to reduce the Minocin to 50 mg MWF for awhile and then

increase slowly (I'll do the increasing after Christmas). I did attempt

to add a 4th day of 50 mg a couple of weeks ago and ended up in that

" extreme " pain zone again. Now I'm back to my normal pain level, but can

function a bit.

I believe that what I experienced was a herxheimer reaction.

Have you tried decreasing Minocin to see if that helps to relieve the

pain?

I know some of the more experienced will come along and help, I just

wanted to let you know that you're not alone.

Robyn

rheumatic Pain!

Hello to All,

And Merry Christmas!! I would like to know if anyone else has

experienced

much more pain after being on the Antiobiotics? I have been taking

Minocycline 100mg. a day since Oct.30th, and it seems like this week I

have

had much more pain all over my body. Is this Normal to do that?

Would like for you all to comment on this, as I really don't know what

to do

anymore, I sometimes feel that the AP is making me worse instead of

better.

Thanks,

Happy Holidays!

Ann

maryannbell@...

[Guest guest]

Hi Ann,

The thing to remember is this - if someone without infection takes

minocycline, there is no reaction. There is no infection for the

antibiotic to attack, therefore no toxins to release, therefore no

reaction.

The fact that you react with pain to taking the antibiotic means that

you have an infection. The antibiotic is attacking that infection,

releasing toxins which are travelling around your body, resulting in

the pain. This is the herxheimer reaction. That is a good sign that the

antibiotic is going to work for you and yes, it does make you feel

worse before you're going to feel better.

If the pain is more than you can tolerate, try dropping the dose back

to 100mg Monday through Friday with weekends off or 100mg on Monday

Wednesday and Friday and see if you feel better. The amount of herx

reaction, i.e. the amount of pain you experience, is directly related

to the dose of the antibiotic. As someone just posted, Dr. Brown

started his patients on only 50mg Mon and Fri or Mon Wed and Fri.

Let us know how you get on. Also have a look at Dr. Stuart Weg's page

at rheumatic.org/weg.htm - Dr. Weg is a specialist in pain management

with a special interest in the herxheimer reaction.

Chris.

On Sunday, December 22, 2002, at 01:39 AM, maefolk wrote:

> Hello to All,

> And Merry Christmas!! I would like to know if anyone else has

> experienced

> much more pain after being on the Antiobiotics? I have been taking

> Minocycline 100mg. a day since Oct.30th, and it seems like this week I

> have

> had much more pain all over my body. Is this Normal to do that?

> Would like for you all to comment on this, as I really don't know what

> to do

> anymore, I sometimes feel that the AP is making me worse instead of

> better.

> Thanks,

> Happy Holidays!

> Ann

> maryannbell@...

>

>

[Guest guest]

Dear Ann, Robyn, and all,

Ann I read your post this morning and was so taken aback. You

were expressing exactly the way I have been feeling this week. I

started AP on October 31, 100 mg, 2X a day, MWF. I, too, have been

discouraged, wondering if the generic Minocyclin is working or if my

disease is progressing. It was somehow consoling to me to think we

must be on the right track if we are progressing in such a similar

manner.

I know I have been over-doing this week. I'm sure most of us have

during this busy holiday season. The demands of a family with 8

young children and a mother who doesn't feel well but is still

unable to admit I am not SuperMom...This can be a heavy cross at

times.

I do wish you all much peace and happiness. I am grateful to the

Lord for all of you. I also wish you a healthy and happy new year.

Your friend,

Ibby

[Guest guest]

Hi Ann! Geoff here.

You wrote:

> And Merry Christmas!! I would like to know if anyone else has experienced

> much more pain after being on the Antiobiotics? I have been taking

> Minocycline 100mg. a day since Oct.30th, and it seems like this week

> I have had much more pain all over my body. Is this Normal to do that?

Sometimes I think the term used by Physicians, " healing crisis, " is a much

easier to understand and descriptive term than, " J. Herx, " " Herx, " " herx, "

and " Herxheimer " reaction. While Mr. Herxheimer aptly described the healing

crisis, to understand it by term using his name in honor is a tad confusing.

A " healing crisis " is one precipitated by the healing process in which there

is an abrupt worsening of symptoms. It is expected to lead to healing and

lessening of the disease process, but it can be decidedly uncomfortable.

hth

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

[Guest guest]

Geoff, so glad to see you back here a tad bit more. I enjoyed and agreed

with both of your letters.

One positive kudu for Dr. DeWet in Tyler, Texas is that he DOES spend

that kind of time with a patient. I am sure he is thought of in

not-too-kindly fashion by the medical community there, however.

[Guest guest]

> Hi Ann,

>

> The thing to remember is this - if someone without infection takes

> minocycline, there is no reaction. There is no infection for the

> antibiotic to attack, therefore no toxins to release, therefore no

> reaction.

Assuming this is so, what if you don't have pain from taking

minocin, yet obviously have RA? Does that mean one's RA is from

some other source? Or does it just mean that minocin is not the

drug of choice for that particular individual, who instead, may have

a different type of mycoplasma, which is not susceptible to minocin,

as Geoff pointed out?

Mark

[Guest guest]

Mark wrote:

" ...what if you don't have pain from taking minocin, yet obviously have RA?

Does that mean one's RA is from some other source? Or does it just mean

that minocin is not the drug of choice for that particular individual, who

instead, may have a different type of mycoplasma, which is not susceptible

to minocin... "

It could certainly give one a clue to investigate if the therapy were

ineffective or stalled.

Another problem, unfortunately, is the variation in strains. A victim can

be hosting multiple strains of the same antagonist, and those strains may

entertain differing weaknesses. For example, lets assume the following

names: mycoplasma Pneumonia-strain A (mPA) and mycoplasma Pneumonia-strain B

(mPB.) Knowing what little we do about antagonists, and it is precious

little compared to the totality, it would not be odd to see a successful lab

report something like this:

Found mPA 10K/L norm 0-6K/L doxycycline, zythromyacin,

clindamyacin

Found mPB 40K/L norm 0-18K/L minocycline, clindamyacin

In this example one could take doxy and have, perhaps, incomplete relief.

(I say perhaps because while one " bug " is addressed, the other multiplies

freely, thus the victim may perceive no relief whatsoever!) Then the

patient could switch to mino, and still have, perhaps, incomplete relief.

Not until the patient happens upon, in this example, clindamyacin, do they

begin to achieve success. And the issue is multiplied by the exquisite

difficulty in " finding " mycoplasma via laboratory tests, they are

notoriously difficult to locate.

Obviously the illustration is simplistic, mycoplasma are widespread, varied

and of many types. It is not unusual to find mycoplasma in seemingly

perfectly healthy people, nor is it unusual to find multiple types, e.g.,

pneumonia, fermentans, etc., and within these types strain variability.

Two comments come to mind:

Ugh! and Oh goody!

You may have other, more colorful phrases jump out.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

[Guest guest]

Hi Mark,

> Assuming this is so, what if you don't have pain from taking

> minocin, yet obviously have RA? Does that mean one's RA is from

> some other source? Or does it just mean that minocin is not the

> drug of choice for that particular individual, who instead, may have

> a different type of mycoplasma, which is not susceptible to minocin,

> as Geoff pointed out?

That's a good question and one that I don't have a ready answer for.

Certainly people who get a herxheimer reaction have a good indication

that the antibiotic has found a target and the therapy is likely to work

well for them.

Then we have the added complication that about 20% of patients don't

react to the antibiotic but still get benefit. My daughter didn't react

either,

but then she has scleroderma and scleroderma patients, for some reason,

get herxes less often than, say, RA patients.

Personally it makes sense to me that if there is no reaction to a

particular

antibiotic after several months, then another antibiotic might be tried

in

case there is a different type of organism present as you suggest.

Chris.

[Guest guest]

>

> > Assuming this is so, what if you don't have pain from taking

> > minocin, yet obviously have RA? Does that mean one's RA is from

> > some other source? Or does it just mean that minocin is not the

> > drug of choice for that particular individual, who instead, may have

> > a different type of mycoplasma, which is not susceptible to minocin,

> > as Geoff pointed out?

>

> That's a good question and one that I don't have a ready answer for.

> Certainly people who get a herxheimer reaction have a good indication

> that the antibiotic has found a target and the therapy is likely to work

> well for them.

>

> Then we have the added complication that about 20% of patients don't

> react to the antibiotic but still get benefit. My daughter didn't react

> either,

> but then she has scleroderma and scleroderma patients, for some reason,

> get herxes less often than, say, RA patients.

>

> Personally it makes sense to me that if there is no reaction to a

> particular

> antibiotic after several months, then another antibiotic might be tried

> in

> case there is a different type of organism present as you suggest.

>

> Chris.

>

We need to remember that mycoplasmas (which respond to the tetracyline

drugs) are not the only organisms causing these problems. It could be strep

or one of the variant L forms that are usually treated with Amoxicillin or

ampicillin. You need to use the antibiotic sensitive to the specific

organism causing the problem. Many of us have tested positive for both

mycoplasma and strep.

Last Friday Dr. Coker-Vann and her husband came to town and spent the

afternoon and had dinner with us, and she was telling me Dr. Brown was even

looking at Brucella which would be treated with streptomycin or

erythromycin.

Here is something else we have often mentioned in the past but needs

repeating. Dr. Lida Mattman, probably the world's expert on stealth

pathogens, tell us that sometimes these organisms overlay one another. You

may need to treat the top organisms with one antibiotic and the bottom one

with a different antibiotic.

So if you aren't getting response from an antibiotic, this may be the

problem. Your doctor should consider testing or probing by trying another

antibiotic.

Ethel

[Guest guest]

Hi

Well I am not sure how long on minocin you are.I know I had a

transient type of arthritis for that frist year and maybe even into

the second year. It all resolves. Actually sounds good that it

hurts after the minocin as maybe its going after something.

How much are you on as if it is very bad, then cut your dose down as

a herxheimer( if you began not long ago can be controlled by lowering

the dose.

I know for the the peroxide baths were a huge help and the benedryl

at night helped with the histimine release and when i slept better, I

woke up feeling better.

Hang in there

Love

Marge

> Hello,

> If someone in this group has leg pain are pain that travels around

in different places, please let me know. I have pain in my fingers,

back legs and some time the bottom of my left foot.Just Weird, seems

it gets even worse after taking my Minocin. Just wondering if anyone

else is having anything like this, or am I on my way to the funny

farm? Thanks, Hope everyone is feeling better.

> Warm Hugs!

> freetogo_2@y...

>

>

>

>

[Guest guest]

vj-

I've heard talk on some boards about MSM and glucosamine

chondroitin. These are non-prescription supplements you can

get at a chiropractor's office or possibly GNC. I'd read up

on them before taking them.

You might want to ask your doctor aboue Elavil (Amitryptiline)

which relaxes your muscles a bit at bedtime.

Also, sleeping with a bolster (sturdy pillow) under your knees

can relieve some of the pressure on your lower back at night.

It might be time to talk to your NS about getting an

Epidural Steroid Injection series to block the pain to the

brain coming from the nerves affected.

joe

Pain!

> Hello People,

> Does anyone know if there is any medicine are supplement for Spinal

> Stenosis, without having surgery? I just feel like if I don't get

> some kind of relief I will have to give in and have surgery. I am

> having so much leg pain and tingling it is driving me crazy. This has

> just destroyed my life---. If anyone can help me in any way please

> let me know. I need some relief so bad.

> God Bless

> vjeemt2@...

>

>

>

>

>

>

>

[Guest guest]

I'm not sure if this would apply, but my sister in law used to have terrible

" growing pains " when she'd go through a growth spurt.

Another thing to look at is the possibility of magnesium defficiency. After

an over-exposure to chemical spraying many years ago, I had terrible

stiffness/pain in my legs and sometimes strange pains in my arms. When the

doctor

mineral level blood testing showed extremely low magnesium levels. The

addition of a magnesium supplement took care of the problem. This could be

easily

tested at most labs.

Gaylen

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

[Guest guest]

My one son who is now 15 had complaints of pain in knees, ankles, and legs in

general.  They would happen off and on.  He has hypermobility in his joints,

also.  So, I thought it was due to that and also to growing.  He no longer

complains of it.  It stopped around 2 years ago. 

Barb Katsaros

barbkatsaros@...

From: Argie Olivo <golivo@...>

Subject: Pain!

Date: Tuesday, July 15, 2008, 1:06 PM

Hi everyone,

My son is finally over his urinary issues. Now we have a another

problem. Our daughter has always had issues with her bones hurting,

especially her shins, knees, legs and sometimes her arms, since she

was about 5 years old, she'll be 13 in October. All the lab work is

normal, even for

arthritis. The sports medicine/ Orthopedic doctor also said she's okay.

Now my son started with the same issues, he's complained in the past

that his right arm hurts( last couple of months), and yesterday and

today it's his left knee.

We are doing great on the protocol, but the bone pain is worrying

us. Has anyone experienced that same issues, and how do they treat

it? What doctor did you go see?

We have any appointment with Dr. G next week I'll ask him then as well.

Thank you in advance everyone!

Argie

[Guest guest]

All of this joint pain info. is very interesting to me!  A few years ago, I had

horrible pain/stiffness in my knees and went through arthritis testing, which

didn't show up.  Then, it sort of " went away " .  It has reared it's ugly head a

time or two since then.  What are you saying is the cause of this pain exactly? 

Very interested--  Is it viral?

From: Argie Olivo <golivo@...>

Subject: Pain!

groups (DOT) com

Date: Tuesday, July 15, 2008, 1:06 PM

Hi everyone,

My son is finally over his urinary issues. Now we have a another

problem. Our daughter has always had issues with her bones hurting,

especially her shins, knees, legs and sometimes her arms, since she

was about 5 years old, she'll be 13 in October. All the lab work is

normal, even for

arthritis. The sports medicine/ Orthopedic doctor also said she's okay.

Now my son started with the same issues, he's complained in the past

that his right arm hurts( last couple of months), and yesterday and

today it's his left knee.

We are doing great on the protocol, but the bone pain is worrying

us. Has anyone experienced that same issues, and how do they treat

it? What doctor did you go see?

We have any appointment with Dr. G next week I'll ask him then as well.

Thank you in advance everyone!

Argie

[Guest guest]

My husband has had a lot of joint pain like this too. I had wonder if

this is a symptom of Chronic Fatigue, I thought I saw it was, because he

also has a lot of unexplained brain fog and fatigue, as well as an

auto-immune thyroid disease.

Curtis and Hackler wrote:

> All of this joint pain info. is very interesting to me! A few years

> ago, I had horrible pain/stiffness in my knees and went through

> arthritis testing, which didn't show up. Then, it sort of " went

> away " . It has reared it's ugly head a time or two since then. What

> are you saying is the cause of this pain exactly? Very interested--

> Is it viral?

>

>

>

> From: Argie Olivo <golivo@... <mailto:golivo%40cox.net>>

> Subject: Pain!

> groups (DOT) com

> Date: Tuesday, July 15, 2008, 1:06 PM

>

> Hi everyone,

>

> My son is finally over his urinary issues. Now we have a another

>

> problem. Our daughter has always had issues with her bones hurting,

>

> especially her shins, knees, legs and sometimes her arms, since she

>

> was about 5 years old, she'll be 13 in October. All the lab work is

>

> normal, even for

>

> arthritis. The sports medicine/ Orthopedic doctor also said she's okay.

>

> Now my son started with the same issues, he's complained in the past

>

> that his right arm hurts( last couple of months), and yesterday and

>

> today it's his left knee.

>

> We are doing great on the protocol, but the bone pain is worrying

>

> us. Has anyone experienced that same issues, and how do they treat

>

> it? What doctor did you go see?

>

> We have any appointment with Dr. G next week I'll ask him then as well.

>

> Thank you in advance everyone!

>

> Argie

>

>

[Guest guest]

All this joint pain is so intriguing to me because the last few days

my knees have been killing me! My little one can't talk yet, but I'm

wondering if she is experiencing the same thing. I remember being

young and having pain that was so excruciating, it would wake me up

and I would have to take tylenol and a super hot bath to numb the

sensation.

I was thinking about getting blood drawn for CFS b/c I have been

exhausted. Does joint pain coincide with CFS?

[Guest guest]

My oldest son complains about knee, bone and shin pain every few months or so.

I've always labeled it as growing pains, but it will wake him up from a sound

sleep and I have to give him some Advil. He doesn't like either Advil or

Tylenol, so it really has to hurt for him to request a pain killer.

Robyn

Barb Katsaros <barbkatsaros@...> wrote:

My one son who is now 15 had complaints of pain in knees, ankles, and

legs in general. They would happen off and on. He has hypermobility in his

joints, also. So, I thought it was due to that and also to growing. He no

longer complains of it. It stopped around 2 years ago.

Barb Katsaros

barbkatsaros@...

From: Argie Olivo <golivo@...>

Subject: Pain!

Date: Tuesday, July 15, 2008, 1:06 PM

Hi everyone,

My son is finally over his urinary issues. Now we have a another

problem. Our daughter has always had issues with her bones hurting,

especially her shins, knees, legs and sometimes her arms, since she

was about 5 years old, she'll be 13 in October. All the lab work is

normal, even for

arthritis. The sports medicine/ Orthopedic doctor also said she's okay.

Now my son started with the same issues, he's complained in the past

that his right arm hurts( last couple of months), and yesterday and

today it's his left knee.

We are doing great on the protocol, but the bone pain is worrying

us. Has anyone experienced that same issues, and how do they treat

it? What doctor did you go see?

We have any appointment with Dr. G next week I'll ask him then as well.

Thank you in advance everyone!

Argie

[Guest guest]

I had a very debilitating juevy arthrtis as a tennager that may relate.

I got this afer a camping trp that we drank surface water but it relates to a

gastro illlness. Agian mmunue related, had me in a wheel chair for months at

sixteen and twenty-on, Joint pain, eye irritation so on.

Reactive Arthritis (Reiter's Syndrome)

WERNER F. BARTH, M.D., and KINIM SEGAL, M.D.

Washington Hospital Center

Washington, D.C.

A patient information handout on reactive arthritis, written by the authors of

this article, is provided on page 507.

Reactive arthritis, also called Reiter's syndrome, is the most common type of

inflammatory polyarthritis in young men. It is sometimes the first manifestation

of human immunodeficiency virus infection. An HLA-B27 genotype is a predisposing

factor in over two thirds of patients with reactive arthritis. The syndrome most

frequently follows genitourinary infection with Chlamydia trachomatis, but other

organisms have also been implicated. Treatment with doxycycline or its analogs

sometimes shortens the course or aborts the onset of the arthritis. Reactive

arthritis may also follow enteric infections with some strains of Salmonella or

Shigella, but use of antibiotics in these patients has not been shown to be

effective. Reactive arthritis should always be considered in young men who

present with polyarthritis. Symptoms may persist for long periods and may, in

some cases, cause long-term disability. Initial treatment consists of high doses

of potent

nonsteroidal anti-inflammatory drugs. Patients with large-joint involvement may

also benefit from intra-articular corticosteroid injection. (Am Fam Physician

1999;60:499-507.)

> From: pslocali <pslofton@...>

> Subject: Re: Pain!

>

> Date: Wednesday, July 16, 2008, 6:52 PM

> All this joint pain is so intriguing to me because the last

> few days

> my knees have been killing me! My little one can't

> talk yet, but I'm

> wondering if she is experiencing the same thing. I

> remember being

> young and having pain that was so excruciating, it would

> wake me up

> and I would have to take tylenol and a super hot bath to

> numb the

> sensation.

>

> I was thinking about getting blood drawn for CFS b/c I have

> been

> exhausted. Does joint pain coincide with CFS?

[Guest guest]

After finding the article on Lyme Disease and Autism, I have done some

research and have read that joint pain is also found in people who

carry Lyme. I am going to have both my daughter and I tested. It

won't hurt and it would be better to rule out. I have just been so

tired and am not waking up refreshed. The joint thing is new and

rather annoying. Just thinking out loud.

>

> > From: pslocali <pslofton@...>

> > Subject: Re: Pain!

> >

> > Date: Wednesday, July 16, 2008, 6:52 PM

> > All this joint pain is so intriguing to me because the last

> > few days

> > my knees have been killing me! My little one can't

> > talk yet, but I'm

> > wondering if she is experiencing the same thing. I

> > remember being

> > young and having pain that was so excruciating, it would

> > wake me up

> > and I would have to take tylenol and a super hot bath to

> > numb the

> > sensation.

> >

> > I was thinking about getting blood drawn for CFS b/c I have

> > been

> > exhausted. Does joint pain coincide with CFS?

>

[Guest guest]

I am no expert on Lyme and don't even suspect it for my family, but if you

do suspect it and the first test comes back negative, try and try again. I

have heard the first test(s) often (is) are false positives.

Kristy

From: [mailto: ] On Behalf Of

pslocali

Sent: Wednesday, July 16, 2008 11:17 PM

Subject: Re: Pain!

After finding the article on Lyme Disease and Autism, I have done some

research and have read that joint pain is also found in people who

carry Lyme. I am going to have both my daughter and I tested. It

won't hurt and it would be better to rule out. I have just been so

tired and am not waking up refreshed. The joint thing is new and

rather annoying. Just thinking out loud.

>

> > From: pslocali <pslofton@...>

> > Subject: Re: Pain!

> > <mailto:%40>

> > Date: Wednesday, July 16, 2008, 6:52 PM

> > All this joint pain is so intriguing to me because the last

> > few days

> > my knees have been killing me! My little one can't

> > talk yet, but I'm

> > wondering if she is experiencing the same thing. I

> > remember being

> > young and having pain that was so excruciating, it would

> > wake me up

> > and I would have to take tylenol and a super hot bath to

> > numb the

> > sensation.

> >

> > I was thinking about getting blood drawn for CFS b/c I have

> > been

> > exhausted. Does joint pain coincide with CFS?

>

[Guest guest]

Sorry, I meant false negatives.

Kristy

From: [mailto: ] On Behalf Of Kristy

Nardini

Sent: Wednesday, July 16, 2008 11:31 PM

Subject: RE: Re: Pain!

I am no expert on Lyme and don't even suspect it for my family, but if you

do suspect it and the first test comes back negative, try and try again. I

have heard the first test(s) often (is) are false positives.

Kristy

From: <mailto:%40>

[mailto: <mailto:%40> ] On Behalf Of

pslocali

Sent: Wednesday, July 16, 2008 11:17 PM

<mailto:%40>

Subject: Re: Pain!

After finding the article on Lyme Disease and Autism, I have done some

research and have read that joint pain is also found in people who

carry Lyme. I am going to have both my daughter and I tested. It

won't hurt and it would be better to rule out. I have just been so

tired and am not waking up refreshed. The joint thing is new and

rather annoying. Just thinking out loud.

>

> > From: pslocali <pslofton@...>

> > Subject: Re: Pain!

> > <mailto:%40>

<mailto:%40>

> > Date: Wednesday, July 16, 2008, 6:52 PM

> > All this joint pain is so intriguing to me because the last

> > few days

> > my knees have been killing me! My little one can't

> > talk yet, but I'm

> > wondering if she is experiencing the same thing. I

> > remember being

> > young and having pain that was so excruciating, it would

> > wake me up

> > and I would have to take tylenol and a super hot bath to

> > numb the

> > sensation.

> >

> > I was thinking about getting blood drawn for CFS b/c I have

> > been

> > exhausted. Does joint pain coincide with CFS?

>