Re: immune modulators and progress

May 18, 2008

Hi ,

We started seeing results within the first several days.

Warning: die-off with the introduction of the anti-virals and anti-fungals

was new to us and a bit hard. Also, I had a very hard time accepting that

SSRI's are part of the protocol.

Giving my son so many meds is a bit worrisome. I know he needs them, but I

also wonder what they are doing to his body for when he is much older.

All that said, we have seen huge gains and we have also seen what happens

(big regression) when my son's meds need tweaking. He is a very fragile

little ecosystem and Dr. G really knows how to help him be at his very best.

He used to be sick ALL the time (a cold would turn into something else and

he would be sick for MONTHS at a time), but not anymore.

My son is fully included in a regular K class. We still have a ways to go in

terms of catch up, but without Dr. G I would have little hope for his

future. Now, I foresee friendships, marriage, college - i.e. a full life.

Kristy

From: [mailto: ] On Behalf Of

Caroline

Sent: Sunday, May 18, 2008 8:13 AM

Subject: immune modulators and progress

We are about to go see Dr. G next week and I had a couple questions for

this group.

I looked at the archives and saw that he used to use Kutapressin and it

seemed like that was really successful but then it was taken off the

market. I was wondering if people from this group have experienced as

much progress from other medications and which ones have you experienced

to help? Where is he in finding a new immune modulator? What does he

say about the new drug that was released in place of Kutapressin, nexavir?

And, it also seemed like many people talked about it taking until the

second year on the protocol to see results. Is it common for it to take

that long? I would love to hear some people's experiences on how long

it took before progresses was seen.

Thanks for any information you can give us on your experiences!!

May 18, 2008

Kristy,

How old was he when you started ? Did he start the SSRI's right

away? How long did the die off last?

Kristy Nardini wrote:

> Hi ,

>

> We started seeing results within the first several days.

>

> Warning: die-off with the introduction of the anti-virals and anti-fungals

> was new to us and a bit hard. Also, I had a very hard time accepting that

> SSRI's are part of the protocol.

>

> Giving my son so many meds is a bit worrisome. I know he needs them, but I

> also wonder what they are doing to his body for when he is much older.

>

> All that said, we have seen huge gains and we have also seen what happens

> (big regression) when my son's meds need tweaking. He is a very fragile

> little ecosystem and Dr. G really knows how to help him be at his very

> best.

> He used to be sick ALL the time (a cold would turn into something else and

> he would be sick for MONTHS at a time), but not anymore.

>

> My son is fully included in a regular K class. We still have a ways to

> go in

> terms of catch up, but without Dr. G I would have little hope for his

> future. Now, I foresee friendships, marriage, college - i.e. a full life.

>

> Kristy

>

> From: <mailto:%40>

> [mailto: <mailto:%40>] On Behalf Of

> Caroline

> Sent: Sunday, May 18, 2008 8:13 AM

> <mailto:%40>

> Subject: immune modulators and progress

>

> We are about to go see Dr. G next week and I had a couple questions for

> this group.

>

> I looked at the archives and saw that he used to use Kutapressin and it

> seemed like that was really successful but then it was taken off the

> market. I was wondering if people from this group have experienced as

> much progress from other medications and which ones have you experienced

> to help? Where is he in finding a new immune modulator? What does he

> say about the new drug that was released in place of Kutapressin, nexavir?

>

> And, it also seemed like many people talked about it taking until the

> second year on the protocol to see results. Is it common for it to take

> that long? I would love to hear some people's experiences on how long

> it took before progresses was seen.

>

> Thanks for any information you can give us on your experiences!!

>

May 18, 2008

We saw results within days.

Cheryl

On May 18, 2008, at 8:12 AM, Caroline wrote:

> We are about to go see Dr. G next week and I had a couple questions

> for

> this group.

>

> I looked at the archives and saw that he used to use Kutapressin

> and it

> seemed like that was really successful but then it was taken off the

> market. I was wondering if people from this group have experienced as

> much progress from other medications and which ones have you

> experienced

> to help? Where is he in finding a new immune modulator? What does he

> say about the new drug that was released in place of Kutapressin,

> nexavir?

>

> And, it also seemed like many people talked about it taking until the

> second year on the protocol to see results. Is it common for it to

> take

> that long? I would love to hear some people's experiences on how long

> it took before progresses was seen.

>

> Thanks for any information you can give us on your experiences!!

>

May 18, 2008

I have two of my three boys are seeing Dr. G--my mild/mod son Noah started at

the end of January and my Aspie kiddo started in April. So far we've seen

results with both boys. The diet has been helpful, as well as the Valtrex.

With Noah we saw results from the Valtrex in about 14 days. Nizoral has also

been a tremendous help. With Noah, the results were more attention, more

awareness of events and people around him, and some increased verbal, especially

spontaneous verbal. The most amazing thing with Noah is the state of his overall

health. We had spent the last two years going from doctor to doctor trying to

find out why he had excruciating migraines and intense vomiting on a monthly

basis. The migraines happened before and after 2-3 day vomiting session. These

episodes were occurring every month and sometimes as close together as every two

weeks. Last September after extensive testing at UCLA, he was diagnosed with

Cyclical Vomiting Syndrome (he also has a

seizure disorder--both condition are neurological in nature). We were told that

he'd probably have it the rest of his life and there wasn't much we could do but

nasal Imitrex for the migraines and Zofran for the vomiting. Since about mid

February, Noah has had no episodes of CVS and only one migraine. This is nothing

short of a miracle for him. This had gone on for years and now it's gone.

Needless to say, Noah is much happier and healthier since starting Dr. G's

protocol.

As for , he was diagnosed with a seizure disorder a couple of years ago

as well. We thought that was the cause of is inattention in school and

inconsistent grades. This was so aggravating because he's such a smart kid.

After seeing Noah's results, we decided to take him to see Dr. G. He started on

Valtrex and we saw an overall improvement in about 10-14 days. He doesn't get as

tired as he used to and he seems to sleep better at night. The real proof is in

his grades. They are consistently high now and more reflective of his abilities.

We are by no means at the end of our journey though. Both boys, especially

Noah, have a long way to go, but finally, we feel as if we're on the right path.

All the best and good luck with your appointment.

Robyn

Caroline <carrieps@...> wrote:

We are about to go see Dr. G next week and I had a couple questions

for