RE: [SPAM]Re: should we keep hoping??

[Guest guest]

I have two sons with Dr. G. They are both 12 years old. We started with

Dr. G when they were 9. I had heard about Dr. G and when they were

6-1/2 but didn't want to go the 'med' route until I had exhausted all other

non-med options. Well, I continued to look into, and talked with, other

doctors, therapists, teachers, programs, etc., over a period of almost two

more years. The bottom line was - if the body's neurological system is not

functioning well, or limited, at a basic level then the level of maximum

achievement will be lower. All non-med approaches we tried were improving

my boy's abilities, but were maxing out far below what I wanted for them.

It became very clear to me that the brain needed to improve its neurological

functionality before my boys could maximize theirs. That meant that I had to

be sure that I trusted the protocol, and Dr. G. With each med I needed

to know not how it chemically worked, but definitely what it was, why it was

being prescribed, history (5, 10, 15+ years) of its use with other children,

possible side effects, etc. In essence, did I trust Dr. G to safely and

effectively heal my children? Three years later, there have been many, many

baby steps forward. Nothing earth shattering, or even 'big'. Sometimes I

don't even realize the progress that has been made until a situation

presents itself that one, or both, of my boys weren't able to handle, or

handle well, three months earlier. Progress in therapy (OT, speech)

sessions has improved 60%. Socialization has improved about 30%.

Organizational abilities (verbal, motor planning, procedural, etc.) have

taken the longest to observe in most areas, but I've seen these skills

improve 25%. I'm comparing these skills and abilities to 'normal', which

would be 100%. My one son just finished his second year in mainstream

academics and first year in middle school. With less and less guidance from

me throughout the year, he ended the year with great success on the Honor

Roll (3.5 - 3.9). My other son, who is affected with much more

severely, also successfully finished his first year in middle school, being

taught to grade academic standards but in a special day environment with a

3.2 GPA. I am soooo proud of them both!

If I had known then what I know now, I would have started my boys with Dr. G

when they were 6-1/2, when I first heard about . Not going the

route earlier has meant that my children had an additional almost 3 years to

continue to learn what they needed to do to get through, and along in this

world, with their disease dictating their limits and progress. This has

lead them to develop and rely on many 'bad habits', limiting behaviors,

academic truncating, and educational labels. We are doing a lot of 'do

overs' trying to fill in empty or partially filled developmental and

academic patches.

I hope this helps.

Patti

_____

From: [mailto: ] On Behalf Of Dawn

Dolan

Sent: Saturday, June 21, 2008 11:55 PM

Subject: [sPAM]Re: should we keep hoping??

Thanks for the responses. It is encouraging. We have not started with Dr.

G and don't know if we will. I'm trying to gather information and see if

this is a direction we should go. I find all your info helpful but still

feel like I'm jumping in the middle of an ongoing conversation. Please bear

with me if I sound ignorant to this whole thing, but I am. Can anyone share

why they decided on the Dr. G route and what it looks like in your child's

life? And, did you try a DAN protocol first and it didn't work or just

straight to Dr. G?

My concern is that it is real meds, no natural stuff correct? But maybe

that is what is needed. I don't trust the pharmaceutical companies so I'm

always leery of potential long lasting side effects, etc. Just wondering

how you deal with that or has it not been a concern?

Thanks!

dawn

Re: Aggressive Behavior

> >

> > Marcia,

> >

> > Just like many other parents on this chat list, you have given OUR

> > family so much hope as well. Would you mind sharing with the group,

> > how long your son was on medication, or if he still is? My son will

> > be 5 next month and we have been seeing small but steady improvements

> > since we started seeing Dr. G 1 1/2 years ago.

> >

> > Just over the last 2-3 weeks, we have seen HUGE gains and are feeling

> > so " justified " in the protocol. To all parents out there, hang

> > in there! About the time we start to question the protocol, within a

> > week or two, we see what we call a " burst " in awareness, social

> > behavior, speech and more.

> >

> > I realize every child is different, but I am thrilled with the

> > results so far!

> >

> >

> >

> > >

> > > May,

> > >

> > > We don't know each other but my son has been going to Dr. G since

> > he was almost 5. At that time I was told by the " experts " that he

> > would never be okay and would probably end up in an institution. He

> > was in the 3rd percentile for speech when he entered Kindergarten.

> > Most of what I did was so I wouldn't have guilt later when placement

> > might have to be considered. Thank god for guilt.

> > >

> > >

> > >

> > > He now is recovered, and attends a major university. They don't

> > know he ever had Autism and gave him a half ride. He has friends,

> > drives and does all the things the doctors said would never be

> > possible. After you help them physically you have to teach them

> > everything they missed. In the beginning we have to teach our kids

> > everything that other kids just learn on their own. That used to

> > make me so mad. We used ABA in the until he could learn like other

> > kids. But be careful many ABA providers are just there to take your

> > money and aren't really doing it correctly.

> > >

> > >

> > >

> > > Hang in there medically. It sounds like you are experiencing die-

> > off which actually as weird as it sounds is a good thing. It means

> > your kid can get better.. A die-off reaction is when the yeast or

> > virus is being killed off. It usually kicks up some severe reactions

> > before exiting the body. I know you are never going to believe this

> > because your child is acting so much more autistic, but it really is

> > great news. It means your child will be helped tremendously by the

> > meds. You probably feel like you are going backwards at this time,

> > and it is hard to know that you are doing the right thing. However,

> > when die-off is over, you will see a new kid. More focused and

> > alert. You will be amazed by the change in your child. So hang on.

> > After die-off it will be wonderful! The hyper,silly, aggressive and

> > drunken behavior start to go away. Now they can learn to stop

> > pinching or biting. (Or whatever the behavior is that your child

> > does. Behaviors that make you crazy now, will be possible to get rid

> > of with teaching.)

> > >

> > >

> > > To help with die-off, you can give your child some activated

> > charcoal (can get at the pharmacy without a prescription) to absorb

> > the yeast that is being killed off. But be careful when you give it,

> > because in addition to absorbing the yeast that is existing the body,

> > it will absorb medicines. So don't give it shortly after giving

> > meds. Die-off doesn't usually last more than a week but can be as

> > long as ten days. If it is really bad, call Dr. G. He may tell you

> > to either increase or decrease the dosage of the anti-fungal.

> > >

> > >

> > > Once I tried the pills myself just to see what die-off felt like.

> > You feel like PMS times twenty. During that time we didn't do any

> > thing complicated. We hung out and did things he found relaxing like

> > watching his favorite videos. It wasn't a time I would try to teach

> > my son anything new. They feel very sick. Tylenol every three and a

> > half hours helps. Hang in there. This short terrible time will

> > bring great things,

> > > It took years for our kids to be sick and it takes years to

> > recover. Even if

> > > you could wave a magic wand and make their bodies normal, you would

> > have to

> > > teach them everything they missed while they were sick.

> > >

> > >

> > > You don't wake up one morning and BAM they are better. It takes

> > time and it is usually ten steps forward and two steps back. When my

> > son was little, the hardest thing was to keep talking to this kid who

> > gave me no indication one way or another that he cared about anything

> > I said or did. You have to keep treating them like they are normal

> > even though they don't act normal. Don't change the world to make

> > their lives easier, make them change to fit in the world. Some good

> > advice I received from Maurice was to use everything they

> > like to motivate them.

> > >

> > >

> > >

> > > It is possible for our kids to be " normal " and lead happy

> > productive lives if they have parents that don't give up on them.

> > You know that kid is in there, you just have to make them come out

> > before they make you so mad you want to kill them. Hang in there and

> > don't give up on them no matter how much they try to make you. They

> > can get better.. Call me if I can help.

> > >

> > > Marcia Hinds

> > >

> > > 805 497-8202

> > >

> > >

> > >