Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 I know this can be a sensitive issue, but please see a doc and RULE OUT sexually transmitted diseases....I had one, and got it frm a greasy doorknob....I dont care whaT they say...the germs were warm and there. another lady I know...a widow too almost lost her foot before they found the same thing --a std!!!!! also--sometimes men and docs think it is bladder or kidney, and it is PROSTATE problems. luv 'Rica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 In a message dated 7/16/2006 8:27:14 AM Eastern Standard Time, coss@... writes: Many women have found that taking medical grade aloe vera greatly reduced the symptoms of IC.Lynda Wow! Thank you!!! I will check it out. Brigite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 Many women have found that taking medical grade aloe vera greatly reduced the symptoms of IC. Lynda At 05:46 AM 7/16/2006, you wrote: >Brigite, > >Actually, I have noticed alot of women coming here complaining of >IC. I haven't had problems with it myself, but I had never heard of >it until I came to this site, and it seems to be a common >complaint. > >Sis > > > > > > Does anyone have Interstitial Cystitis of the bladder? (The >bladder and > > urethra fill up with painful cysts, and chronically inflame.) > > > > To make a LONG story short, I've been thought based on symptoms >and urine > > tests by a urologist to have it for about 4 years, but I'm afraid >to do the > > " scope " that confirms it. (Cystoscopy, I think.) I scheduled and >canceled out of > > fear over and over, because I've been told it's painful after >being scoped. > > Plus there's not much they do to treat this anyway -so I don't >see where it > > would be worth going through just for confirmation. > > > > My urethra actually " fell " into my vaginal canal a few years ago, >and they > > can literally feel marble sized cysts all along it upon pelvic >exam. (I'm > > sorry if that is too much info, but I'm trying to compare with >anyone else.) I'm > > used to it, but it's worsening and I may look into it more when I >look into a > > hysterectomy ---BUT I'm holding all this until later. I want to >get through > > the breast explant first. > > > > Anyway, I'm having some painful issues with it and it made me >think to ask > > about that, too ---since you gals have confirmed everything else >for me having > > been related to these " toxic bags. " LOL > > > > Thanks, > > Brigite > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 I have IC but I have never had cysts with it. I have never heard of that before. I know that some women develop ulcers, which I have had. I think if you have cysts, you really do need to have the scope done. The scope is slightly uncomfortable but filling your bladder, generally under anesthesia, is the only way to confirm the diagnosis. I have always had improvements in symptoms following the scope because stretching the bladder improves IC symptoms for some women. I have had IC for 25 years and was diagnosed by one of the top docs, Dr. Parsons, in California. I have been all kinds of drugs, been in drug trails and have found the only drug that works for me is heparin injections. Heparin brought on a nearly complete remission of symptoms for 10 years. Unfortunately those 10 years are up now and my symptoms are intensifying again. Since I moved 20 years ago, I can't see Dr. Parsons. My new doc refuses to prescribe heparin! He said the drug is too risky because of bleeding problems. Amazing that Dr. Parsons didn't think so. I'm going to find a new urologist! Kenda > Does anyone have Interstitial Cystitis of the bladder? (The bladder and > urethra fill up with painful cysts, and chronically inflame.) > > To make a LONG story short, I've been thought based on symptoms and urine > tests by a urologist to have it for about 4 years, but I'm afraid to do the > " scope " that confirms it. (Cystoscopy, I think.) I scheduled and canceled out > of > fear over and over, because I've been told it's painful after being scoped. > Plus there's not much they do to treat this anyway -so I don't see where it > would be worth going through just for confirmation. > > My urethra actually " fell " into my vaginal canal a few years ago, and they > can literally feel marble sized cysts all along it upon pelvic exam. (I'm > sorry if that is too much info, but I'm trying to compare with anyone else.) > I'm > used to it, but it's worsening and I may look into it more when I look into a > hysterectomy ---BUT I'm holding all this until later. I want to get through > the breast explant first. > > Anyway, I'm having some painful issues with it and it made me think to ask > about that, too ---since you gals have confirmed everything else for me having > been related to these " toxic bags. " LOL > > Thanks, > Brigite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 I'm one of them! I tried liquid from the health food store but it didn't help. Desert Harvest sells online and has a specific protocol for IC patients. It does help me. Kenda > Many women have found that taking medical grade aloe vera greatly > reduced the symptoms of IC. > > Lynda > > > At 05:46 AM 7/16/2006, you wrote: > >> Brigite, >> >> Actually, I have noticed alot of women coming here complaining of >> IC. I haven't had problems with it myself, but I had never heard of >> it until I came to this site, and it seems to be a common >> complaint. >> >> Sis >> >> >>> >>> Does anyone have Interstitial Cystitis of the bladder? (The >> bladder and >>> urethra fill up with painful cysts, and chronically inflame.) >>> >>> To make a LONG story short, I've been thought based on symptoms >> and urine >>> tests by a urologist to have it for about 4 years, but I'm afraid >> to do the >>> " scope " that confirms it. (Cystoscopy, I think.) I scheduled and >> canceled out of >>> fear over and over, because I've been told it's painful after >> being scoped. >>> Plus there's not much they do to treat this anyway -so I don't >> see where it >>> would be worth going through just for confirmation. >>> >>> My urethra actually " fell " into my vaginal canal a few years ago, >> and they >>> can literally feel marble sized cysts all along it upon pelvic >> exam. (I'm >>> sorry if that is too much info, but I'm trying to compare with >> anyone else.) I'm >>> used to it, but it's worsening and I may look into it more when I >> look into a >>> hysterectomy ---BUT I'm holding all this until later. I want to >> get through >>> the breast explant first. >>> >>> Anyway, I'm having some painful issues with it and it made me >> think to ask >>> about that, too ---since you gals have confirmed everything else >> for me having >>> been related to these " toxic bags. " LOL >>> >>> Thanks, >>> Brigite >>> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 The woman I learned this from is Jill Wood, and you can reach her at: jillmarie@... She can probably tell you brands and everything. Lynda At 07:46 AM 7/16/2006, you wrote: >In a message dated 7/16/2006 8:27:14 AM Eastern Standard Time, >coss@... writes: > >Many women have found that taking medical grade aloe vera greatly >reduced the symptoms of IC. > >Lynda > >Wow! Thank you!!! I will check it out. > >Brigite > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2006 Report Share Posted July 16, 2006 In order to diagnose IC, the bladder must be distended to see if the bladder hemorrhages. In some cases, this must be done under an anesthetic because it is painful for some women to have their bladder stretched that far. It didn't bother me, but my urologist did tell me it does bother some. Kenda > Brigite, > I was having some problems my doctor thought were potential bladder > issues - or at least she wanted to rule it out. Such as > incontinence that became acutely worse, microscopic hematuria. > Among other things, I had the cystoscopy and it did not hurt at > all. It is an " in office " procedure and it reminded me of a pelvic > exam. Actually the pelvic is more unpleasant than this was...at > least for me anyway. So is a mammogram. LOL They put a little > scope up there and look around to see " what they can see " . In my > case they saw nothing and the cancer screening came back negative > too! > Please don't be afraid.. > . > > >> >> Does anyone have Interstitial Cystitis of the bladder? (The > bladder and >> urethra fill up with painful cysts, and chronically inflame.) >> >> To make a LONG story short, I've been thought based on symptoms > and urine >> tests by a urologist to have it for about 4 years, but I'm afraid > to do the >> " scope " that confirms it. (Cystoscopy, I think.) I scheduled and > canceled out of >> fear over and over, because I've been told it's painful after > being scoped. >> Plus there's not much they do to treat this anyway -so I don't > see where it >> would be worth going through just for confirmation. >> >> My urethra actually " fell " into my vaginal canal a few years ago, > and they >> can literally feel marble sized cysts all along it upon pelvic > exam. (I'm >> sorry if that is too much info, but I'm trying to compare with > anyone else.) I'm >> used to it, but it's worsening and I may look into it more when I > look into a >> hysterectomy ---BUT I'm holding all this until later. I want to > get through >> the breast explant first. >> >> Anyway, I'm having some painful issues with it and it made me > think to ask >> about that, too ---since you gals have confirmed everything else > for me having >> been related to these " toxic bags. " LOL >> >> Thanks, >> Brigite >> > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.