Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Marcia, I wonder if you contacted distributors of autism products (such a Super Duper Publications, etc), if they would have recommendations as to what publisher produces a lot of the other special needs based books? The other one I can think of off hand would be Future Horizons. Just a thought. -Sharon **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Hi Marcia, I'm SOOOOOOO glad you've written these books! I can't wait to read them! I noticed the other day on Amazon.com they have a link at the bottom of each page to " self publish " . I don't know anything about it. I also have a friend who has published a few books like yours (and she has two adopted children with special needs). I am forwarding your post to her to ask her to contact you if she can. She is out of town for a few days. And, I'm wondering if you can help me with how I can determine if my partially-verbal son with ASD/ is gifted (we have several gifted family members, including myself). We have an outstanding school district (great for special needs), but surprisingly they do not have a gifted program. Kristy From: [mailto: ] On Behalf Of Marcia Hinds Sent: Saturday, July 19, 2008 11:14 AM Subject: Help with publication This time I need help. Kathy on co-authored a book called, My Friends Have Autism. We need an agent or publisher for our book and advice or contacts any of you have to help with publication would be greatly appreciated. As parents of children with Autism, all of our children experienced first-hand the bullying and unkind behavior that occurs in our schools as a result of a lack of understanding. Our goal is for this book to be used in classrooms across the nation by teachers and parents to promote understanding and acceptance for children who face the challenges of Autism. Hopefully, this will pave the way for our next book How to Survive the Autism Diagnosis . After publication a percentage of the sale price of these books would be donated to Autism medical facilities. As parents we know these children can be helped medically, behaviorally and educationally and we need to get the word out. This needs to become accepted medical practice for all children with Autism. My nineteen year old son is living proof about the success possible for our kind of kids. We can make the example of my son's recovery from Autism and others like him the norm rather than the exception. Summary of My Friends Have Autism and Ben have Autism. As a result, they sometimes don't act like the other kids in school. By accepting, understanding and just being their friends, their classmates learn to make a difference in Ben and 's lives. This book can be used by both teachers and parents as an educational tool to start the Autism discussion in the classroom. It includes rules for being a good friend and friendship games. Summary of How to Survive the Autism Diagnosis Our family survived the Autism diagnosis; but there were many times I thought we weren't going to make it. My son, , was diagnosed when he was three by the leading authority on Autism in the Twin Cities. At the time I was told he would never be " normal, " and would probably need to be institutionalized. When my son entered kindergarten at age six, he was in the third percentile for speech. By that time we had been seeing a medical doctor who specializes in Autism and treating the immune system for about a year. By the third grade, my son tested in the 85th percentile for speech. Even so, my son had an aide in the classroom through fifth grade to help with organization and social situations. After the fifth grade, his special education file was closed and he no longer received any assistance at school. But he still wasn't " normal. " Although he was no longer looked like he had Autism and was ahead academically, socially he was still behind and didn't act like other kids. At the time, I couldn't imagine him living a productive life complete with independence, a wife, a job and kids. Most of what I did was so I wouldn't have guilt later when placement might have to be considered. Thank god for guilt. Today drives, has friends, and does all the things the doctors told me he would never do. , a freshman at Santa Clara University on a half-ride merit scholarship, studies Mechanical Engineering. The school doesn't know he was ever diagnosed with Autism. He loves it there and has a 3.8 GPA. fits in quite nicely with all the other nerds, is president of Hillel, and has a ton of friends. (Who would have seen that one coming?) There is no magic pill to help children with Autism. Trust me, we searched everywhere for it. It took years for these kids to become sick and it takes years to recover. You don't wake up one morning and BAM they are better. Even if one could wave a magic wand and make their bodies normal, they would have to learn everything they missed while they were sick. My son is truly a success story and what I learned over the years will save parents valuable time when trying to help their children. We need to make this happen for all kids with Autism because there are thousands of kids NOT getting better every day. We can't give up on these kids no matter how much they try to make you. They can get better. Marketing Plan These book will be marketed to all the countless Autism organizations, doctors, educators, and school districts that deal with helping families. We have contacts all over the Autism world to help get this book in the hands of the people who need it. Personal appearances, book signings, and talk/morning shows featuring two moms that have lived this and are also professionals in the field will ensure success. About the Authors E. on RN, an army nurse who retired at the rank of Lieutenant Colonel, currently serves as the Director of the New York Autism Center, Black River, NY. This clinic specializes in a medical approach for the treatment of autism. Kathy has forty years of experience working with children with disabilities. She is the skating, and swimming coach for Special Olympics as well as the Girl Scout Leader for a troop of Juniors, Cadettes, and Seniors with special needs. Kathy is the mother of nineteen-year old daughter recovering from Autism. Kathy's is published in the American Journal of Nursing, Maternal Child Nursing, Ladycom, and the 7th MEDCOM Medical Bulletin. She facilitates workshops on the Bio-Medical treatment of Autism to Health Care Professionals and parents in the US and Canada. In addition, she is a contributing editor for the Journal of Nursing Jocularity and writes a weekly Health Care Advice Column in the US Army newspapers. As a credentialed K-12 teacher, Marcia Hinds has extensive experience with both gifted and special education children. Her degrees include a B.A. in Psychology and Sociology from UCLA. Her son was born with Autism. As a result of medical, behavioral and educational interventions, her son now attends a major University and is doing all the things the doctors said would not be possible. Her writing credits include the book Killer Bees, part of a high interest/low level reading series for Capstone Press and Grolier Publishing. She has also written articles on topics of Immune Dysfunction, Autism and ADHD and continues to develop educational curriculum. Thanks in advance for your help and I look forward to hearing from you. Marcia Hinds 805 497-8202 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 > How about Sentient Publications, they published JepsonĀ¹s book Changing the > Course of Autism > > Natasa > > > Marcia, > > I wonder if you contacted distributors of autism products (such a Super > Duper Publications, etc), if they would have recommendations as to what > publisher > produces a lot of the other special needs based books? The other one I can > think of off hand would be Future Horizons. > > Just a thought. > > -Sharon > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Hi Kristy, Thanks with the assist with the publication of our books. As for the gifted stuff, most of our kids are gifted even if they have trouble communicating that. Our kids are brillant and need to be challenged and encouraged to succeed, but I don't think a gifted program is necessary for that to occur. My is now tutoring other college kids in Calculus 4 and was never in a gifted program. All they need is a great program not necessarily a gifted one. Thanks in advance for sending the post for publication to your friend. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Hi Marcia, What I have been wondering specifically to my son is that his teachers have all reported - since preschool and he just finished kindergarten - is that sometimes it is nearly impossible to get his attention (it does not matter if he's in a classroom, small group or one-on-one, he still has the same issue) and I'm wondering if it's because his mind is on something else. I know sometimes I become very distracted when " the wheels are turning " in my mind and I've moved on. I know, too, that the classroom was very difficult for me at times when I wanted to be doing one thing, but the class was supposed to be working on something else (ESPECIALLY if I was not interested in what they were doing). I'm wondering how I can find out if this is the case with my son, and if it is the case, what our SD can do about it. Any ideas? Thanks, Kristy From: [mailto: ] On Behalf Of Marcia Hinds Sent: Sunday, July 20, 2008 12:14 PM Subject: Re: Help with publication Hi Kristy, Thanks with the assist with the publication of our books. As for the gifted stuff, most of our kids are gifted even if they have trouble communicating that. Our kids are brillant and need to be challenged and encouraged to succeed, but I don't think a gifted program is necessary for that to occur. My is now tutoring other college kids in Calculus 4 and was never in a gifted program. All they need is a great program not necessarily a gifted one. Thanks in advance for sending the post for publication to your friend. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Marcia My son was diagnosed with Bi-lateral hear lost. -NOT TRUE_-he just was not processing audio sounds. No attention. Yes his mind was elsewhere but do to a lack of stimuli's. > From: Kristy Nardini <krnardini@...> > Subject: RE: Re: Help with publication > > Date: Sunday, July 20, 2008, 5:27 PM > Hi Marcia, > > > > What I have been wondering specifically to my son is that > his teachers have > all reported - since preschool and he just finished > kindergarten - is that > sometimes it is nearly impossible to get his attention (it > does not matter > if he's in a classroom, small group or one-on-one, he > still has the same > issue) and I'm wondering if it's because his mind > is on something else. I > know sometimes I become very distracted when " the > wheels are turning " in my > mind and I've moved on. I know, too, that the classroom > was very difficult > for me at times when I wanted to be doing one thing, but > the class was > supposed to be working on something else (ESPECIALLY if I > was not interested > in what they were doing). I'm wondering how I can find > out if this is the > case with my son, and if it is the case, what our SD can do > about it. Any > ideas? > > > > Thanks, > > > > Kristy > > > > From: [mailto: ] On > Behalf Of Marcia > Hinds > Sent: Sunday, July 20, 2008 12:14 PM > > Subject: Re: Help with publication > > > > Hi Kristy, > Thanks with the assist with the publication of our books. > As for the gifted > stuff, most of our kids are gifted even if they have > trouble communicating > that. Our kids are brillant and need to be challenged and > encouraged to > succeed, but I don't think a gifted program is > necessary for that to occur. > My is now tutoring other college kids in Calculus 4 > and was never in a > gifted program. All they need is a great program not > necessarily a gifted > one. Thanks in advance for sending the post for publication > to your friend. > Marcia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Kristy, Thanks for Ellen. She was a wealth of information. And to answer the question of why your son seems like he is not paying attention to the teachers is one of the hardest for me to understand when I was going through it with my . There is a lot going on in their sick little bodies and this lack of attention gets better as they become better. What you need to tell the teachers that your son is listening even though he doesn't act like that is the case. Your son needs to be taught and told things that other kids just pick up or learn. If they are making inappropriate noises at school, the teacher needs to say while I'm talking you need to not make noises. This message needs to be delivered just matter of fact with no anger but rather kind of informational. When was little he did not know how to sit in a circle and learn at Kindergarten. So we played school at home. I gathered my daughter, my husband, and even the dog. I was the teacher and of course my husband was the bad kid at school who did not look at the teacher or do the things he needed to do. My daughter set the correct example and eventually learned all the subtle things he needed to know to do circle time correctly. Sit still, raise his hand, look like he was paying attention etc. I thought we were done with this problem until the communication notebook told me how badly acted when the librarian read the class a story at the library. What surprised me was that even though knew the correct way to act during circle time, he didn't know is that the rules for reading a book at the library were the same as for circle time in the classroom. So we played Library at home and soon the information transferred to the Library setting. It was hard to have to teach what other kids just learn naturally, but that is what you have to do until they know enough to start learning like other kids without the pre-learning or role-playing. Another problem that adds to this attention problem is their lack of functional language. Some kids have very extensive vocabularies but don't know the meanings or rules for conversation and listening. For our kids English can sometimes be a foreign language. Even though my son sometimes used advanced words in his speech, he had holes in his vocabulary. In first grade he had no idea what a " hood " was. It always surprised me when we would come across a word that was so simple that he had no clue as to what it meant. I was constantly asking him to explain words to me just so I knew he understood their meanings. I would have trouble paying attention to a Calculus lesson because I wouldn't understand the language the teacher would be using. Also, our kind of kids misses the nonverbal communication because they don't look at the person who is speaking. And that can be a real problem because I have been told 90% of communication is nonverbal. Hope this helps. Please call me if you need to ask anything else. I am just a mom but I have lived this and through hindsight understand some of what I didn't get when it was happening. Marcia Hinds 805 497-8202 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.