DAN

[Guest guest]

I just returned from the DAN! conference. Dr. Holmes spoke at a

Kirkman's sponsored forum on Friday evening, but did not present at

her scheduled time during Saturday's Advanced Parents Workshop. Dr.

Cave filled in for her and reported that Dr. Holmes had gone home

because she had become ill, or something to that effect. Nobody

asked for any details, at least in public.

Max in VA

> did anyone on this list go to the DAN conference? Did Dr. Holmes

speak? I

> just was informed that she is stopping her practice due to medical

reasons.

> I hope she's ok.

>

>

>

>

[Guest guest]

I didn't attend but it is my understanding via the rumor mill that Dr.

Amy routinely takes an innocuous medication for a minor problem and

the last time the pharmacy refilled it they goofed and dispensed a

super duper incredibly powerful sedative/antiseizure medication in an

elephant tranquilizer dosage. She picked up her new bottle at the

pharmacy on the way to the airport, was fine at the Friday meeting,

then took her first pill from the new bottle and ZOWIE!!!!!!!! So

presumably she should be fine but had to go home and recover for a few

days.

No guarantees this is completely accurate information but it is the

best I have and I do think it is likely to be at least close.

Andy . . .. . . . . . . .

>

> I just returned from the DAN! conference. Dr. Holmes spoke at a

> Kirkman's sponsored forum on Friday evening, but did not present at

> her scheduled time during Saturday's Advanced Parents Workshop. Dr.

> Cave filled in for her and reported that Dr. Holmes had gone home

> because she had become ill, or something to that effect. Nobody

> asked for any details, at least in public.

>

> Max in VA

>

>

> > did anyone on this list go to the DAN conference? Did Dr. Holmes

> speak? I

> > just was informed that she is stopping her practice due to medical

> reasons.

> > I hope she's ok.

> >

> >

> >

> > [Non-text portions of this message have been

[Guest guest]

Can anyone recommend a DAN doctor in philly for me? My son's dr. doesn' t

see any improvement in children that go to DAN doctor's. Please give me your

opinion.

I want to start giving my son enzymes to improve his hyperactivity and

attention span. I am now using the epsom salt cream, and I use melatonin 1.

Are DAN doctor''s treatments costly?

Please advise.

Thank you.

[Guest guest]

> Can anyone recommend a DAN doctor in philly for me? My son's dr.

doesn' t

> see any improvement in children that go to DAN doctor's. Please

give me your

> opinion.

> I want to start giving my son enzymes to improve his hyperactivity

and

> attention span. I am now using the epsom salt cream, and I use

melatonin 1.

>

> Are DAN doctor''s treatments costly?

DAN doctors vary, like all doctors. I'd recommend that you

call all the ones in your area (or drivable distance) and

ask them how much they charge. Some will give more details

than others. But it is a reasonable question. You can

make it more detailed, like:

how much is an initial visit?

how long is an initial visit?

how often does Dr x usually have follow up visits?

how much are follow up visits?

how long are follow up visits?

do you take x insurance plan?

do you bill insurance?

etc.

/files/HOW_TO_find_doctor

best wishes,

Moria

[Guest guest]

Has anyone used the Dan doctors in philly

Henry Sadek

or Fisher

[Guest guest]

where can you find a doctor who is DAN?

Selena

Re: [ ] Re: my son's burst of speech this weekend

DAN! stands for Defeat Autism Now! There are a number of physicians that

consider themselves to be DAN! doctors in that they follow a certain biomedical

protocol and may " specialize " in treating children on the autism spectrum. At

this time, many of the treatments are not considered to be a part of mainstream

medicine and most are not endorsed by the American Medical Association. The

problem is is that a physician only has to attend one DAN! conference and can

advertise him/herself as a DAN! doctor.

All that being said, a lot of them are wonderful resources for children with

ASD, and offer treatments that are extremely beneficial. Many of the

recommendations that a DAN! doctor would make may not be ones that a regular

pediatrician would make, but should! Our DAN! doctor has truly been a Godsend.

Renn

[Guest guest]

Hi

just use your search function - the ARI website has lists of Dan Drs

according to your location.

If you get the name of a Doctor near you then post on a couple of

informed autism websites ( like autismchelation or autism mercury )

you can post asking for anyone with experiemce of Dr X to contact you

privately- it is always so helpful to get other parents feedback.

(limited use in the UK though where we have a total of THREE !!!)

if your search doesn't help let me know and i will find the full link

for you - don't have it to hand..........

Regards

Deborah

--- In , " selelk " <selelk@w...>

wrote:

> where can you find a doctor who is DAN?

> Selena

>

> Re: [ ] Re: my son's burst of

speech this weekend

>

>

> DAN! stands for Defeat Autism Now! There are a number of

physicians that consider themselves to be DAN! doctors in that they

follow a certain biomedical protocol and may " specialize " in treating

children on the autism spectrum. At this time, many of the

treatments are not considered to be a part of mainstream medicine and

most are not endorsed by the American Medical Association. The

problem is is that a physician only has to attend one DAN! conference

and can advertise him/herself as a DAN! doctor.

>

> All that being said, a lot of them are wonderful resources

for children with ASD, and offer treatments that are extremely

beneficial. Many of the recommendations that a DAN! doctor would

make may not be ones that a regular pediatrician would make, but

should! Our DAN! doctor has truly been a Godsend.

>

> Renn

>

>

[Guest guest]

Selena: I found Dr. Hicks by luck. I was having a discussion with

my hair-dresser and we were talking about how her daughter is 10

years old with learning difficulties, ADD issues, etc. She said that

her daughter did not say a word until she was 3 years old...but it

was her first kid and she didn't know there was a problem. I

mentioned to her about my son with apraxia and all that we

were doing for him. Then, she told me of her co-worker who had an

autistic son and of that mom's experience with Dr. Hicks. Then, as

fate would have it....there was a magazing, right there in her hair

shop...about mercury poisoning, yeast treatments and the whole bio-

medical thing. Weird? YES!

Her co-worker with the autistic son said that her son is doing very

well, she can take him out of the house now and doing well in school

and that he has recovered through diet, and many supplements,

including the metal free spray that Dr. Hicks uses for chelation.

His brochure states that he works with ADD/ADHD kids also, so we both

made an appointment. We have compared test results and are

amazed. (he is really expensive though).

The rest is history. I will also say that my local health store

also was advertising Dr. Hicks practice...perhaps you could go to

your health store. I also know that Dr. Hicks main office is in

Lake Delevan, Wisconsin, with offices in 4 other states...and I know

of people who drive from Iowa to see him in his wisconsin office.

Good luck, Kim

--- In , " selelk " <selelk@w...>

wrote:

> where can you find a doctor who is DAN?

> Selena

>

> Re: [ ] Re: my son's burst of

speech this weekend

>

>

> DAN! stands for Defeat Autism Now! There are a number of

physicians that consider themselves to be DAN! doctors in that they

follow a certain biomedical protocol and may " specialize " in treating

children on the autism spectrum. At this time, many of the

treatments are not considered to be a part of mainstream medicine and

most are not endorsed by the American Medical Association. The

problem is is that a physician only has to attend one DAN! conference

and can advertise him/herself as a DAN! doctor.

>

> All that being said, a lot of them are wonderful resources

for children with ASD, and offer treatments that are extremely

beneficial. Many of the recommendations that a DAN! doctor would

make may not be ones that a regular pediatrician would make, but

should! Our DAN! doctor has truly been a Godsend.

>

> Renn

>

>

[Guest guest]

I know the words DAN stand for Defeat Autism Now. I wished it

now was defeat, lack of speech , ADD, ADHD, ASD, bio medical health

issues. Many autistic kids have these issues, and when the underlying

health issues are addressed and corrected, so goes the labels these

kids get early on.

I think its a good place to check out, to see if there are other underlying

issues, that could be causing a speech delay.

DAN

Hi, and ___ -

DAN! is Defeat Autism Now! Practitioners, some of whom are MDs or ODs,

nurses, etc. go through a training in the DAN! protocol. We're just about to

embark on the journey with our Josh (probably in July or August) - not on the

autism spectrum but with verbal/oral apraxia, global apraxia/dyspraxia,

hypotonia, sensory integration dysfunction, dysarthria, some cognitive delays -

but

there are a lot of people here who have very strong opinions - good and bad -

about the treatment.

Sherry

[Guest guest]

Hi, and ___ -

DAN! is Defeat Autism Now! Practitioners, some of whom are MDs or ODs,

nurses, etc. go through a training in the DAN! protocol. We're just about to

embark on the journey with our Josh (probably in July or August) - not on the

autism spectrum but with verbal/oral apraxia, global apraxia/dyspraxia,

hypotonia, sensory integration dysfunction, dysarthria, some cognitive delays -

but there are a lot of people here who have very strong opinions - good and bad

- about the treatment.

Sherry

nlop68feb <nlop68feb02@...> wrote:

DITTO TO TRACY ?

[Guest guest]

I so wholeheartedly agree. Enzymes have been another big source of help for

us, specifically Houston enzymes. Someone who used to post often on this list,

Josie, wrote about them and the amazing impact they had on her daughter, and

it was because of her that I read the book Enzymes for Autism and Other

Neurological Conditions ( DeFelice) and began using enzymes. Turns out,

enzymes

can be helpful for many syndromes - like migraines, etc. - not just autism.

The author re-released the book with a title that left out the word autism

since enzymes are applicable to so many other disorders, but the public freaks

by

the word autism. No one wants to be " too close " to Autism.

Here is how I view autism: Although my son' s DX is dyspraxia, he has

neurological issues that have been helped by the same interventions that have

benefitted autistic kids. At one point, much of my anxiety was fixated on

getting a

DX for that did not include autism or mental retardation. I was

convinced he would test poorly when tested, but as luck would have it the

developmental pediatritian who tested him took his deficiencies into account and

he tested

well overall. It may have helped that she was the former head of a regional

center and had a special interest in autism. It made her better able to view

the big picture, I think. Having gotten the DX behind me, though - and I need to

mention that many on this list were extremely helpful, especially Sherry,

during that mind-numbingly terrible time - I now realize that his DX was far

less

important than the issue of simply getting him help. Autistic kids are

' distant cousins, in my opinion. Their issues overlap with my kid's

issues.

We need to focus on getting our kids help, and determining what interventions

are most helpful to neurological deficits that impact speech and motor skills.

We also need to make sure our kids are seen ASAP by well-trained developmental

peditricians and/or another medical doctor - neurologist, etc. capable of

ruling out more serious disorders. Once that's done, though, we need to get to

work. In other words, don't be afraid of getting " too close " to autism.

The getting to work part is where DAN is helpful, in my opinion - autism in

its title or not. Having said that, I also believe that interventions like OT,

ST, ABA, vision therapy, cranial sacral therapy, etc. are extremely important

pieces of the puzzle - how important being based on each individual child's

issues. I won't say that DAN docs are infallible and that it is the only way to

go for everyone - I do think everyone should be aware of it as an option and

look into it. There are a couple issues - the implications of allergy testing,

being one - that came out of our appointment on Tuesday that I'm wrestling

with now. For example, I still don't feel that I understand what the

significance of a level 2 reaction really means - if I were tested, or if the

general

population was tested, would most of us register a level 2 reaction to milk and

wheat and any number of things, and does a relatively high functioning kid who

is making progress really need to have his diet completely changed -

especially when that change will result in him standing out in school and, my

gut tells

me, messing with his sense of fitting in? My DAN says diet MUST happen - I

say perhaps enzymes are good enough - especially if it means keeping the

incredibly important aspect of fitting in safely intact. Plus, our DAN reacted

oddly

when I suggested it would be helpful if she could give us a note for school

explaining his milk allergy - that reaction puzzled me. Is it really an

" allergy " and, if so, then why was there no reaction to cheese? These are things

I

need to research thoroughly and become more comfortable with. Bottom line is, I

won't ever blindly follow any one intervention as the be all, end all - I

know my kid best, and if something causes me to feel uneasy, I'll follow that

feeling where I need to until I'm satisfied with the answer. DAN forms the

cornerstone of our approach right now and has given us the most hope for change

and

a kind of blueprint for implementing that change - I feel incredibly lucky to

have it, but I will always question it and every other intervention we employ.

In a message dated 4/27/2005 11:28:34 AM Pacific Standard Time,

DeGiustis@... writes:

> know the words DAN stand for Defeat Autism Now. I wished it

> now was defeat, lack of speech , ADD, ADHD, ASD, bio medical health

> issues. Many autistic kids have these issues, and when the underlying

> health issues are addressed and corrected, so goes the labels these

> kids get early on.

> I think its a good place to check out, to see if there are other underlying

> issues, that could be causing a speech delay.

> DAN

[Guest guest]

DAN stands for Defeat Autism Now.

On 9/27/05, jacquelinevfernandez <jacquelinevfernandez@...> wrote:

>

> I have a dumb questions: What does DAN stand for?

> What kind of doctor is it? Who should go

> to them>

>

> thank you

>

>

>

>

>

>

>

>

[Guest guest]

Here is a link to Autism Research Institute (ARI) that explains what DAN stands

for and the

DAN protocol and it lists the DAN doctors that are nearest to you.

http://www.autismwebsite.com/ari/dan/dan.htm

Ana

> I have a dumb questions: What does DAN stand for?

> What kind of doctor is it? Who should go

> to them>

>

> thank you

[Guest guest]

Should a child with apraxia see a DAN doctor? What benefits would there be for

us to see one? just curious to know if there is any apraxic children seeing a

DAN doctor,the only other issues that she has is she has left ear microtia.

Thanks

Amy

anatopper <anatopper@...> wrote:

Here is a link to Autism Research Institute (ARI) that explains what DAN stands

for and the

DAN protocol and it lists the DAN doctors that are nearest to you.

http://www.autismwebsite.com/ari/dan/dan.htm

Ana

> I have a dumb questions: What does DAN stand for?

> What kind of doctor is it? Who should go

> to them>

>

> thank you

[Guest guest]

Yes. DAN! treats the whole child.

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

what does DAN! stand for? any suggestions on finding a good DAN!

doctor? what kind of questions should be asked and so on.

~Dylan~

God loves you just the way you are,

And he loves you too much to let you stay that way.

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for

testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

go to the TACAnow site they should be listed there. As for questions, are

they homeopathic or MD,

what success stories have they had, what protocols are they following?

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for

testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

thanks. i did look, nothing in my area, closest is five hours away,

i'll keep digging.

~Dylan~

God loves you just the way you are,

And he loves you too much to let you stay that way.

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for

testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

go. who cares how far they are

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for

testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

Hi Dylan,

You and I live in the same city.....and I've been to two different practicioners

in the area. The first doctor was not a good fit for me. I like the second one,

but my husband had reservations at first. The second one is located near UC

Med Ctr and teaches at the MIND Institute. He's also suposed to be #2

rated doctor in certain types of therapies. There's also quite a few in the Bay

Area. If you'd like to email me offline, I can talk to you about some of my

experiences, give you the information that I have, etc.....

hanagan_8@...

@...: msdylan@...: Tue, 22

Jan 2008 12:53:58 -0800Subject: RE: [ ] DAN

thanks. i did look, nothing in my area, closest is five hours away,i'll keep

digging. ~Dylan~God loves you just the way you are,And he loves you too much to

let you stay that way.

[ ] DANI have read some posts mention DAN. Do they see

children who are notautistic as well? Would that be the first step to go in

order fortesting? Thanks,, age 10, Dyspraxic, SID, ADHD[Non-text

portions of this message have been removed][Non-text portions of this message

have been removed]

[Guest guest]

Dylan,

There are good doctors and there are not so good doctors. Many families

'travel' to find a good doctor that they trust. That being said I actually

found an environemental doctor (who is amazing) that follows the DAN protocol

via one of the moms at the special education class my son used to attend.

Sometimes the people you see all of the time have the best information!

The best DAN doctors are not necessarily the ones who charge the most! If it

feels like a rip-off, generally it is. I think that it is important to check

the boards/moms when you locate a doctor that you think that your going to make

an appointment with.

I originally went to one naturopath..... nice guy and he started us on a great

diet and did some preliminary testing but my 'gut' told me that he didn't have

enough experience working with kids...... I am so glad that I went with my

'gut' feeling for I have since found my current doctor who is 'bang-on' with my

son.

You are putting your child's into the hands of your doctor and you really have

to have that 'trust'. A lot of the moms will visit their DAN only once or twice

a year and travel; the rest is done over the phone.

So..... research well. The more you research and the more you become informed,

the better you can do.

That said..... Mark is 13 and we did many years of therapy for his dyspraxia but

it was not great therapy. I then found NACD and did two years of 'at home'

therapy that was GREAT and made a substantial amount of head-way. In the end

though, after most of the therapy was done, I could see that my child was

actually 'ill' and lacked energy and vitality. We started a diet in June and

did testing in September (when I located my current doctor), did supplements in

October and did round one of DMSA a couple of weeks ago.

My son responded fabulously with DMSA (he is toxic in lead), probably because he

had already come soooooo far in therapy and also because of the prep. work we

had already done for his stomach and via supplements. 13 is considered old to

get much benefit from chelation work but we did fabulously well..... my son lost

all of his remaining issues of dyspraxia (he didn't have many left but.... the

gains he made were impressive and I will outline them sometime). He did regress

this week but we do another round this weekend and I hope to get the complete NT

boy back next week again! Not every child will necessary need this work or will

every family decide to do this type of work for it is extremely individual and

personal to everyone but the testing is really beneficial because then you get

to see what you're dealing with.

So.... while you are looking for a good doctor, if you don't have them already,

read some of the biomedical 'bibles' such as " Children with Starving Brains " by

McCandless and " Healing the New Childhood Epidemics: Autism, Asthma,

Alergies and ADHD " by Dr. Bock and begin to 'understand' the different

items to work with.

Good luck and remember sometimes the best doctors are found at the most unusual

places. Don't hestitate to talk to the parents of other kids with affected

children, particularly the ASD moms since many of them are well-connected to the

biomedical world. They often know their stuff....

Janice

[ ] DAN

I have read some posts mention DAN. Do they see children who are not

autistic as well? Would that be the first step to go in order for

testing?

Thanks,

, age 10, Dyspraxic, SID, ADHD

[Guest guest]

actually, i care how far they are. i have a house full of kids who

depend on me, who all have school and a husband who has to work his tail

off to support that family. a doctor down in souther california

unrealistic if i can find one closer.

~Dylan~

God loves you just the way you are,

And he loves you too much to let you stay that way.

RE: [ ] DAN

go. who cares how far they are

[Guest guest]

Thanks . I figured there were closer one's than SoCal, not very

realistic for us to try that, I just hadn't had a chance to look

elsewhere. I'll drop you a line and we can chat. In the meantime I'm

going to look into a couple of books the ladies suggested.

~Dylan~

God loves you just the way you are,

And he loves you too much to let you stay that way.

[Guest guest]

In reference to finding a DAN! practitioner, please realize that

there are many who are skilled in this area, yet are not registered

on the DAN! list. You might want to consider someone who is not

exclusive to autism, but who practices a wholistic approach to

health. One who has experience in developmental pediatrics would be

preferential. I think it important to speak by telephone first to

make sure the person is experienced and comfortable/capable of

engaging with your child. You might want to try going through the

diagnostic testing companies. Their customer service reps often know

the doctors at least by telephone, and by profile of which tests that

doctor often orders. Some may have a listing of practitioners on

their website. Doctors Data Inc, Genova, Sage Medical Laboratory,and

MetaMetrix, etc. are home to many of us who embrace the wholistic

approach.

Best wishes.

[Guest guest]

Some will see you once and do teleconferences from there.

>

> actually, i care how far they are. i have a house full of kids who

> depend on me, who all have school and a husband who has to work his

tail

> off to support that family. a doctor down in souther california

> unrealistic if i can find one closer.

>

> ~Dylan~

> God loves you just the way you are,

> And he loves you too much to let you stay that way.

>

> RE: [ ] DAN

>

>

>

> go. who cares how far they are

>