Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 I realize that this is going to seem like a cop-out, but I don't know how to get my son on the gfcf diet. He has severe eating difficulties. Although he is not diagnosed autism or spectrum disorder (if you are familiar with my post you might remember that he is a confusing case) but we are sure there is something going on, whether its ADHD, sensory integration issues, what have you. He has had two sessions of neurofeedback. One specifically to target his eating behaviors. He does not express signs of hunger. I can only get him to eat 2-3 different kinds of food...all high in gluten and casein, of course. I keep him off sugar fairly well. I limit his juice and give him lots of water. He will eat organic cereal that is gf and uses soy milk, but I have tried replacing his Farm chicken nuggests with gf ones and he won't go near them. I am positive that his diet is negatively effecting his behavior, but I am afraid to start the gfcf diet. In the past, when I have tried to modify his diet to incorporate a wider, healthier variety of food he has not eaten. I know this may sound like an exaggeration, (my mother certainly thought so until she saw it first hand) but he will NOT eat for days! I finally gave in after 3 days or so. And its not like he rejects the food and demands another kind of food, one that he wants. No, he is simply content to not eat. But I get scared. And his sensory issues are so severe that he barely feeds himself. I make him a bowl of cereal for breakfast and if the milk drips on him, he yells that he needs a wipe to clean it up and then he is done feeding himself, I need to feed him. He eats very little as it is, I supplement his diet with veggie caps, a multi, calcium. I also hide mag, zinc, L-theanine, B6 in yogurt drinks...I have tried putting the caps in everything under the sun. When he wouldn't drink the apple juice I put it in, I had to use a syringe to make him take it. Then he threw up on me. I really am not trying to sound like I am giving up, I know I am the adult and responsible for what I give him, but I don't want to see him starve. He maintains a healthy weight 35 pounds at 39 inches, but he is skinny. I have decided not to see Dr. G yet. It seems like Dr. G uses meds we are not ready to try yet. We want to try everything naturally first and see if we can get results before moving on. A gfcf diet is the last thing I have not yet altered. I am really, honestly quite scared to make the jump, afraid that he just won't eat. Has any encountered this? I would love suggestions and stories. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 I would definitely take him off soy, too, because the soy protein is almost identical to milk protein (casein). www.tacanow.com has a GREAT guide to going GFCF. Dr. G will have you take him off all supplements. Kristy From: [mailto: ] On Behalf Of dimcgowen22 Sent: Thursday, September 18, 2008 7:53 AM Subject: HELP with DIET!!! I realize that this is going to seem like a cop-out, but I don't know how to get my son on the gfcf diet. He has severe eating difficulties. Although he is not diagnosed autism or spectrum disorder (if you are familiar with my post you might remember that he is a confusing case) but we are sure there is something going on, whether its ADHD, sensory integration issues, what have you. He has had two sessions of neurofeedback. One specifically to target his eating behaviors. He does not express signs of hunger. I can only get him to eat 2-3 different kinds of food...all high in gluten and casein, of course. I keep him off sugar fairly well. I limit his juice and give him lots of water. He will eat organic cereal that is gf and uses soy milk, but I have tried replacing his Farm chicken nuggests with gf ones and he won't go near them. I am positive that his diet is negatively effecting his behavior, but I am afraid to start the gfcf diet. In the past, when I have tried to modify his diet to incorporate a wider, healthier variety of food he has not eaten. I know this may sound like an exaggeration, (my mother certainly thought so until she saw it first hand) but he will NOT eat for days! I finally gave in after 3 days or so. And its not like he rejects the food and demands another kind of food, one that he wants. No, he is simply content to not eat. But I get scared. And his sensory issues are so severe that he barely feeds himself. I make him a bowl of cereal for breakfast and if the milk drips on him, he yells that he needs a wipe to clean it up and then he is done feeding himself, I need to feed him. He eats very little as it is, I supplement his diet with veggie caps, a multi, calcium. I also hide mag, zinc, L-theanine, B6 in yogurt drinks...I have tried putting the caps in everything under the sun. When he wouldn't drink the apple juice I put it in, I had to use a syringe to make him take it. Then he threw up on me. I really am not trying to sound like I am giving up, I know I am the adult and responsible for what I give him, but I don't want to see him starve. He maintains a healthy weight 35 pounds at 39 inches, but he is skinny. I have decided not to see Dr. G yet. It seems like Dr. G uses meds we are not ready to try yet. We want to try everything naturally first and see if we can get results before moving on. A gfcf diet is the last thing I have not yet altered. I am really, honestly quite scared to make the jump, afraid that he just won't eat. Has any encountered this? I would love suggestions and stories. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 and I'm not sure if this form of soy is even good, especially for boys. i would not give a boy soy milk just in general. will your son eat pasta? there are lots of rice pastas out there and even a rice lasagna noodle that you don't have to cook first. i like to load my sauces with tons of veggies. it's easy and tastes good. dawn HELP with DIET!!! I realize that this is going to seem like a cop-out, but I don't know how to get my son on the gfcf diet. He has severe eating difficulties. Although he is not diagnosed autism or spectrum disorder (if you are familiar with my post you might remember that he is a confusing case) but we are sure there is something going on, whether its ADHD, sensory integration issues, what have you. He has had two sessions of neurofeedback. One specifically to target his eating behaviors. He does not express signs of hunger. I can only get him to eat 2-3 different kinds of food...all high in gluten and casein, of course. I keep him off sugar fairly well. I limit his juice and give him lots of water. He will eat organic cereal that is gf and uses soy milk, but I have tried replacing his Farm chicken nuggests with gf ones and he won't go near them. I am positive that his diet is negatively effecting his behavior, but I am afraid to start the gfcf diet. In the past, when I have tried to modify his diet to incorporate a wider, healthier variety of food he has not eaten. I know this may sound like an exaggeration, (my mother certainly thought so until she saw it first hand) but he will NOT eat for days! I finally gave in after 3 days or so. And its not like he rejects the food and demands another kind of food, one that he wants. No, he is simply content to not eat. But I get scared. And his sensory issues are so severe that he barely feeds himself. I make him a bowl of cereal for breakfast and if the milk drips on him, he yells that he needs a wipe to clean it up and then he is done feeding himself, I need to feed him. He eats very little as it is, I supplement his diet with veggie caps, a multi, calcium. I also hide mag, zinc, L-theanine, B6 in yogurt drinks...I have tried putting the caps in everything under the sun. When he wouldn't drink the apple juice I put it in, I had to use a syringe to make him take it. Then he threw up on me. I really am not trying to sound like I am giving up, I know I am the adult and responsible for what I give him, but I don't want to see him starve. He maintains a healthy weight 35 pounds at 39 inches, but he is skinny. I have decided not to see Dr. G yet. It seems like Dr. G uses meds we are not ready to try yet. We want to try everything naturally first and see if we can get results before moving on. A gfcf diet is the last thing I have not yet altered. I am really, honestly quite scared to make the jump, afraid that he just won't eat. Has any encountered this? I would love suggestions and stories. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Hi - I'm late in reading this one ... but I just wanted to respond ... Your son's sensory problems will certainly make the diet harder. I would urge you not to fret so much about gluten right now. I'd stick to chicken nuggets that he'll eat and not try to change it. Protein is a priority. I agree w/Kristy on the soy issues - my son was a very sensory child and very resistant to diet changes, and like yours, could not be made to eat if he didn't want it. I also have had years where I would go days without eating. Our experience has been that antifungals have a huge impact on sensory problems. That may be the first thing you'd want to seek for your child. That, and get him a lot of occupational therapy. There is a lot you can do that is great fun for OT, and in the long run, it would help w/diet stuff too. I sought natural therapies for myself for years. They truly made it worse. I had never completed an antibiotic course until I was 25. I hated meds. But diflucan (and nizoral for one kid) has been a miracle in my family for 3 of us. My eating problems - I think - are closely associated w/yeast. Food would make me nauseas and was very unpleasant going down. I think I had a chronic low-grade yeast infection in my esophageous. The first time I finally took diflucan for a couple of days, I couldn't believe the pain relief in my gut, my stomach, the relief from the chronic nausea, complete absence of appetite. When my son started diflucan, the dramatic thing w/him was in 3 days on it, he dropped all of his echolalia and rapidly developed spontaneous speech. But also, his sensory problems dropped almost immediately, and he did 20 new things in the course of days. He had never ridden on a ride-on toy - suddenly he was zipping thru the house wildly, laughing with joy. He was almost 3 and had never climbed up onto the couch - he had to be picked up and put on it and taken down .... suddenly he was climing up and down. He was in love with movement, and a hundred tantrums over everything involving touch just vanished. He let me hold him in my lap. He didn't strip off all his clothes. It was unbelievable the difference. If you could address the sensory stuff before struggling too much longer with diet, you may have an easier time w/it later. In the meantime, accept that for the next few months, his diet isn't going to be great, but as long as you're getting in protein and giving a regular multivitamin, he'll be ok. It's amazing what kids can survive on. We want healthy diets for our kids, but right now, maybe he can't really absorb the healthiest parts anyway. Dr Goldberg doesn't recommend GFCF - believes the replacement foods can be even more allergenic and set off the immune system more. He's mainly focused on low allergy, high protein, but no dairy. The soy is often questionable - about 50/50. Do his pupils look a little bit dilated in good lighting? Just a little bigger than they should be? That's a clue it may not be best.  (It makes my son incredibly aggressive too, in addition to stirring up sensory dysfunction.) Dr G doesn't really approve rice milk, but I would trade it (over cereal) for soy for the time being if he'd accept it. It's really yummy over corn flakes. BTW - you may want to not supplement calcium. If in doubt, you can have him off calcium a couple of weeks and just have his calcium levels checked. (Calcium supplements make me feel really sick - always have.) Despite the emphasis always put on making sure they get enough calcium, our nids kids just rarely have low calcium in their labs.   I gave my son B6 - I think it was recommended for migraines? Can't remember why - and he got really dark circles under his eyes.  Hang in there. My son's diet is still quite restricted but he's expanded it before, but off antifungals it slipped back for a while. He's still skinny, not as skinny as his brother who will eat far better than he does, but he looks healthy right now. And all he eats at the moment is oatmeal (used to be grits), cold hamburger patties w/ketchup, roast w/gravy, Mc's chicken fingers (not nuggets) bread, Subway meatball sandwich, graham crackers occasionally, and the occasional plain sandwich. I'm not pushing it w/him right now - it's not worth the war and it's technically healthier than many kids his age. Yet at 9 he is thriving, his hair is shiny, his skin looks beautiful, he has good energy, etc - a lot different than his brother who eats well but (having a CFIDS bout) is pale, his hair is dry, and he's tired all of the time .... but hey, at least he eats his veggies for whatever good that does. My brother is over 30 and has never eaten anything but beef, occasional rare chicken, ketchup, bread, rice, and buttered pasta in his whole life, until the last 2 years where he has allowed a couple of sauces. And he has a yeast issue and eczema- chronic thrush lately. The first time he treated it w/diflucan, he felt an overall change in his well-being and in his anxiety and irritability. And food started smelling better to him and he tried a few new things (still not a veggie). It even helped his eczema, as it also did my sister's.  It went back to the usual when the meds were finished, and now he's asking me if I think a doc would give him more.  Hope some of that helps - I've been there, done that, and regret that I allowed so much distress over what I couldn't control at the time.  Good luck, HELP with DIET!!! I realize that this is going to seem like a cop-out, but I don't know how to get my son on the gfcf diet. He has severe eating difficulties. Although he is not diagnosed autism or spectrum disorder (if you are familiar with my post you might remember that he is a confusing case) but we are sure there is something going on, whether its ADHD, sensory integration issues, what have you. He has had two sessions of neurofeedback. One specifically to target his eating behaviors. He does not express signs of hunger. I can only get him to eat 2-3 different kinds of food...all high in gluten and casein, of course. I keep him off sugar fairly well. I limit his juice and give him lots of water. He will eat organic cereal that is gf and uses soy milk, but I have tried replacing his Farm chicken nuggests with gf ones and he won't go near them. I am positive that his diet is negatively effecting his behavior, but I am afraid to start the gfcf diet. In the past, when I have tried to modify his diet to incorporate a wider, healthier variety of food he has not eaten. I know this may sound like an exaggeration, (my mother certainly thought so until she saw it first hand) but he will NOT eat for days! I finally gave in after 3 days or so. And its not like he rejects the food and demands another kind of food, one that he wants. No, he is simply content to not eat. But I get scared. And his sensory issues are so severe that he barely feeds himself. I make him a bowl of cereal for breakfast and if the milk drips on him, he yells that he needs a wipe to clean it up and then he is done feeding himself, I need to feed him. He eats very little as it is, I supplement his diet with veggie caps, a multi, calcium. I also hide mag, zinc, L-theanine, B6 in yogurt drinks...I have tried putting the caps in everything under the sun. When he wouldn't drink the apple juice I put it in, I had to use a syringe to make him take it. Then he threw up on me. I really am not trying to sound like I am giving up, I know I am the adult and responsible for what I give him, but I don't want to see him starve. He maintains a healthy weight 35 pounds at 39 inches, but he is skinny. I have decided not to see Dr. G yet. It seems like Dr. G uses meds we are not ready to try yet. We want to try everything naturally first and see if we can get results before moving on. A gfcf diet is the last thing I have not yet altered. I am really, honestly quite scared to make the jump, afraid that he just won't eat. Has any encountered this? I would love suggestions and stories. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Regarding diet, I have a question. What the story with Vance's Dairy Free? It's potato based; would it be acceptable on the diet? We're going through about 3-4 quarts of goat's milk per week and we're going to be adding another kid to the protocol. TIA, Robyn > From: <thecolemans4@...> > Subject: Re: HELP with DIET!!! > > Date: Friday, September 19, 2008, 9:13 PM > Hi - > I'm late in reading this one ... but I just wanted to > respond ... > Your son's sensory problems will certainly make the > diet harder. I would urge you not to fret so much about > gluten right now. I'd stick to chicken nuggets that > he'll eat and not try to change it. Protein is a > priority. I agree w/Kristy on the soy issues - my son was > a very sensory child and very resistant to diet changes, and > like yours, could not be made to eat if he didn't want > it. I also have had years where I would go days without > eating. > Our experience has been that antifungals have a huge impact > on sensory problems. That may be the first thing you'd > want to seek for your child. That, and get him a lot of > occupational therapy. There is a lot you can do that is > great fun for OT, and in the long run, it would help w/diet > stuff too. > I sought natural therapies for myself for years. They > truly made it worse. I had never completed an antibiotic > course until I was 25. I hated meds. But diflucan (and > nizoral for one kid) has been a miracle in my family for 3 > of us. > My eating problems - I think - are closely associated > w/yeast. Food would make me nauseas and was very > unpleasant going down. I think I had a chronic low-grade > yeast infection in my esophageous. The first time I > finally took diflucan for a couple of days, I couldn't > believe the pain relief in my gut, my stomach, the relief > from the chronic nausea, complete absence of appetite. > When my son started diflucan, the dramatic thing w/him was > in 3 days on it, he dropped all of his echolalia and rapidly > developed spontaneous speech. But also, his sensory > problems dropped almost immediately, and he did 20 new > things in the course of days. He had never ridden on a > ride-on toy - suddenly he was zipping thru the house wildly, > laughing with joy. He was almost 3 and had never climbed > up onto the couch - he had to be picked up and put on it and > taken down ... suddenly he was climing up and down. He was > in love with movement, and a hundred tantrums over > everything involving touch just vanished. He let me hold > him in my lap. He didn't strip off all his clothes. > It was unbelievable the difference. > If you could address the sensory stuff before struggling > too much longer with diet, you may have an easier time w/it > later. In the meantime, accept that for the next few > months, his diet isn't going to be great, but as long as > you're getting in protein and giving a regular > multivitamin, he'll be ok. It's amazing what kids > can survive on. We want healthy diets for our kids, but > right now, maybe he can't really absorb the healthiest > parts anyway. > Dr Goldberg doesn't recommend GFCF - believes the > replacement foods can be even more allergenic and set off > the immune system more. He's mainly focused on low > allergy, high protein, but no dairy. The soy is often > questionable - about 50/50. Do his pupils look a little > bit dilated in good lighting? Just a little bigger than > they should be? That's a clue it may not be best.  > (It makes my son incredibly aggressive too, in addition to > stirring up sensory dysfunction.) Dr G doesn't really > approve rice milk, but I would trade it (over cereal) for > soy for the time being if he'd accept it. It's > really yummy over corn flakes. > BTW - you may want to not supplement calcium. If in > doubt, you can have him off calcium a couple of weeks and > just have his calcium levels checked. (Calcium supplements > make me feel really sick - always have.) Despite the > emphasis always put on making sure they get enough calcium, > our nids kids just rarely have low calcium in their > labs.   I gave my son B6 - I think it was recommended > for migraines? Can't remember why - and he got really > dark circles under his eyes. >  > Hang in there. My son's diet is still quite > restricted but he's expanded it before, but off > antifungals it slipped back for a while. He's still > skinny, not as skinny as his brother who will eat far better > than he does, but he looks healthy right now. And all he > eats at the moment is oatmeal (used to be grits), cold > hamburger patties w/ketchup, roast w/gravy, Mc's > chicken fingers (not nuggets) bread, Subway meatball > sandwich, graham crackers occasionally, and the occasional > plain sandwich. I'm not pushing it w/him right now - > it's not worth the war and it's technically > healthier than many kids his age. Yet at 9 he is > thriving, his hair is shiny, his skin looks beautiful, he > has good energy, etc - a lot different than his brother who > eats well but (having a CFIDS bout) is pale, his hair is > dry, and he's tired all of the time .... but hey, at > least he eats his veggies for whatever good that does. My > brother is over 30 and has never > eaten anything but beef, occasional rare chicken, ketchup, > bread, rice, and buttered pasta in his whole life, until > the last 2 years where he has allowed a couple of sauces. > And he has a yeast issue and eczema- chronic thrush > lately. The first time he treated it w/diflucan, he felt > an overall change in his well-being and in his anxiety and > irritability. And food started smelling better to him and > he tried a few new things (still not a veggie). It even > helped his eczema, as it also did my sister's.  It went > back to the usual when the meds were finished, and now > he's asking me if I think a doc would give him more. >  > Hope some of that helps - I've been there, done that, > and regret that I allowed so much distress over what I > couldn't control at the time. >  > Good luck, > > > > > HELP with DIET!!! > > I realize that this is going to seem like a cop-out, but I > don't know > how to get my son on the gfcf diet. He has severe eating > difficulties. Although he is not diagnosed autism or > spectrum > disorder (if you are familiar with my post you might > remember that he > is a confusing case) but we are sure there is something > going on, > whether its ADHD, sensory integration issues, what have > you. He has > had two sessions of neurofeedback. One specifically to > target his > eating behaviors. He does not express signs of hunger. I > can only > get him to eat 2-3 different kinds of food...all high in > gluten and > casein, of course. I keep him off sugar fairly well. I > limit his > juice and give him lots of water. He will eat organic > cereal that is > gf and uses soy milk, but I have tried replacing his > Farm > chicken nuggests with gf ones and he won't go near > them. I am > positive that his diet is negatively effecting his > behavior, but I am > afraid to start the gfcf diet. In the past, when I have > tried to > modify his diet to incorporate a wider, healthier variety > of food he > has not eaten. I know this may sound like an exaggeration, > (my mother > certainly thought so until she saw it first hand) but he > will NOT eat > for days! I finally gave in after 3 days or so. And its not > like he > rejects the food and demands another kind of food, one that > he wants. > No, he is simply content to not eat. But I get scared. And > his > sensory issues are so severe that he barely feeds himself. > I make him > a bowl of cereal for breakfast and if the milk drips on > him, he yells > that he needs a wipe to clean it up and then he is done > feeding > himself, I need to feed him. He eats very little as it is, > I > supplement his diet with veggie caps, a multi, calcium. I > also hide > mag, zinc, L-theanine, B6 in yogurt drinks...I have tried > putting the > caps in everything under the sun. When he wouldn't > drink the apple > juice I put it in, I had to use a syringe to make him take > it. Then > he threw up on me. I really am not trying to sound like I > am giving > up, I know I am the adult and responsible for what I give > him, but I > don't want to see him starve. He maintains a healthy > weight 35 pounds > at 39 inches, but he is skinny. I have decided not to see > Dr. G yet. > It seems like Dr. G uses meds we are not ready to try yet. > We want > to try everything naturally first and see if we can get > results before > moving on. A gfcf diet is the last thing I have not yet > altered. I > am really, honestly quite scared to make the jump, afraid > that he just > won't eat. Has any encountered this? I would love > suggestions and > stories. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Yes, you can use DariFree. Cheryl On Sep 20, 2008, at 7:25 AM, Robyn & Greg Coggins wrote: > Regarding diet, I have a question. What the story with Vance's > Dairy Free? It's potato based; would it be acceptable on the > diet? We're going through about 3-4 quarts of goat's milk per week > and we're going to be adding another kid to the protocol. > > TIA, > > Robyn > > > > >> From: <thecolemans4@...> >> Subject: Re: HELP with DIET!!! >> >> Date: Friday, September 19, 2008, 9:13 PM >> Hi - >> I'm late in reading this one ... but I just wanted to >> respond ... >> Your son's sensory problems will certainly make the >> diet harder. I would urge you not to fret so much about >> gluten right now. I'd stick to chicken nuggets that >> he'll eat and not try to change it. Protein is a >> priority. I agree w/Kristy on the soy issues - my son was >> a very sensory child and very resistant to diet changes, and >> like yours, could not be made to eat if he didn't want >> it. I also have had years where I would go days without >> eating. >> Our experience has been that antifungals have a huge impact >> on sensory problems. That may be the first thing you'd >> want to seek for your child. That, and get him a lot of >> occupational therapy. There is a lot you can do that is >> great fun for OT, and in the long run, it would help w/diet >> stuff too. >> I sought natural therapies for myself for years. They >> truly made it worse. I had never completed an antibiotic >> course until I was 25. I hated meds. But diflucan (and >> nizoral for one kid) has been a miracle in my family for 3 >> of us. >> My eating problems - I think - are closely associated >> w/yeast. Food would make me nauseas and was very >> unpleasant going down. I think I had a chronic low-grade >> yeast infection in my esophageous. The first time I >> finally took diflucan for a couple of days, I couldn't >> believe the pain relief in my gut, my stomach, the relief >> from the chronic nausea, complete absence of appetite. >> When my son started diflucan, the dramatic thing w/him was >> in 3 days on it, he dropped all of his echolalia and rapidly >> developed spontaneous speech. But also, his sensory >> problems dropped almost immediately, and he did 20 new >> things in the course of days. He had never ridden on a >> ride-on toy - suddenly he was zipping thru the house wildly, >> laughing with joy. He was almost 3 and had never climbed >> up onto the couch - he had to be picked up and put on it and >> taken down ... suddenly he was climing up and down. He was >> in love with movement, and a hundred tantrums over >> everything involving touch just vanished. He let me hold >> him in my lap. He didn't strip off all his clothes. >> It was unbelievable the difference. >> If you could address the sensory stuff before struggling >> too much longer with diet, you may have an easier time w/it >> later. In the meantime, accept that for the next few >> months, his diet isn't going to be great, but as long as >> you're getting in protein and giving a regular >> multivitamin, he'll be ok. It's amazing what kids >> can survive on. We want healthy diets for our kids, but >> right now, maybe he can't really absorb the healthiest >> parts anyway. >> Dr Goldberg doesn't recommend GFCF - believes the >> replacement foods can be even more allergenic and set off >> the immune system more. He's mainly focused on low >> allergy, high protein, but no dairy. The soy is often >> questionable - about 50/50. Do his pupils look a little >> bit dilated in good lighting? Just a little bigger than >> they should be? That's a clue it may not be best. >> (It makes my son incredibly aggressive too, in addition to >> stirring up sensory dysfunction.) Dr G doesn't really >> approve rice milk, but I would trade it (over cereal) for >> soy for the time being if he'd accept it. It's >> really yummy over corn flakes. >> BTW - you may want to not supplement calcium. If in >> doubt, you can have him off calcium a couple of weeks and >> just have his calcium levels checked. (Calcium supplements >> make me feel really sick - always have.) Despite the >> emphasis always put on making sure they get enough calcium, >> our nids kids just rarely have low calcium in their >> labs. I gave my son B6 - I think it was recommended >> for migraines? Can't remember why - and he got really >> dark circles under his eyes. >> >> Hang in there. My son's diet is still quite >> restricted but he's expanded it before, but off >> antifungals it slipped back for a while. He's still >> skinny, not as skinny as his brother who will eat far better >> than he does, but he looks healthy right now. And all he >> eats at the moment is oatmeal (used to be grits), cold >> hamburger patties w/ketchup, roast w/gravy, Mc's >> chicken fingers (not nuggets) bread, Subway meatball >> sandwich, graham crackers occasionally, and the occasional >> plain sandwich. I'm not pushing it w/him right now - >> it's not worth the war and it's technically >> healthier than many kids his age. Yet at 9 he is >> thriving, his hair is shiny, his skin looks beautiful, he >> has good energy, etc - a lot different than his brother who >> eats well but (having a CFIDS bout) is pale, his hair is >> dry, and he's tired all of the time .... but hey, at >> least he eats his veggies for whatever good that does. My >> brother is over 30 and has never >> eaten anything but beef, occasional rare chicken, ketchup, >> bread, rice, and buttered pasta in his whole life, until >> the last 2 years where he has allowed a couple of sauces. >> And he has a yeast issue and eczema- chronic thrush >> lately. The first time he treated it w/diflucan, he felt >> an overall change in his well-being and in his anxiety and >> irritability. And food started smelling better to him and >> he tried a few new things (still not a veggie). It even >> helped his eczema, as it also did my sister's. It went >> back to the usual when the meds were finished, and now >> he's asking me if I think a doc would give him more. >> >> Hope some of that helps - I've been there, done that, >> and regret that I allowed so much distress over what I >> couldn't control at the time. >> >> Good luck, >> >> >> >> >> HELP with DIET!!! >> >> I realize that this is going to seem like a cop-out, but I >> don't know >> how to get my son on the gfcf diet. He has severe eating >> difficulties. Although he is not diagnosed autism or >> spectrum >> disorder (if you are familiar with my post you might >> remember that he >> is a confusing case) but we are sure there is something >> going on, >> whether its ADHD, sensory integration issues, what have >> you. He has >> had two sessions of neurofeedback. One specifically to >> target his >> eating behaviors. He does not express signs of hunger. I >> can only >> get him to eat 2-3 different kinds of food...all high in >> gluten and >> casein, of course. I keep him off sugar fairly well. I >> limit his >> juice and give him lots of water. He will eat organic >> cereal that is >> gf and uses soy milk, but I have tried replacing his >> Farm >> chicken nuggests with gf ones and he won't go near >> them. I am >> positive that his diet is negatively effecting his >> behavior, but I am >> afraid to start the gfcf diet. In the past, when I have >> tried to >> modify his diet to incorporate a wider, healthier variety >> of food he >> has not eaten. I know this may sound like an exaggeration, >> (my mother >> certainly thought so until she saw it first hand) but he >> will NOT eat >> for days! I finally gave in after 3 days or so. And its not >> like he >> rejects the food and demands another kind of food, one that >> he wants. >> No, he is simply content to not eat. But I get scared. And >> his >> sensory issues are so severe that he barely feeds himself. >> I make him >> a bowl of cereal for breakfast and if the milk drips on >> him, he yells >> that he needs a wipe to clean it up and then he is done >> feeding >> himself, I need to feed him. He eats very little as it is, >> I >> supplement his diet with veggie caps, a multi, calcium. I >> also hide >> mag, zinc, L-theanine, B6 in yogurt drinks...I have tried >> putting the >> caps in everything under the sun. When he wouldn't >> drink the apple >> juice I put it in, I had to use a syringe to make him take >> it. Then >> he threw up on me. I really am not trying to sound like I >> am giving >> up, I know I am the adult and responsible for what I give >> him, but I >> don't want to see him starve. He maintains a healthy >> weight 35 pounds >> at 39 inches, but he is skinny. I have decided not to see >> Dr. G yet. >> It seems like Dr. G uses meds we are not ready to try yet. >> We want >> to try everything naturally first and see if we can get >> results before >> moving on. A gfcf diet is the last thing I have not yet >> altered. I >> am really, honestly quite scared to make the jump, afraid >> that he just >> won't eat. Has any encountered this? I would love >> suggestions and >> stories. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Robyn, We¹re using it on one of our boys with D. G¹s approval as well. You may have to remind him of the ingredients to get him to OK it! Caroline From: Robyn & Greg Coggins <rngcoggs@...> Reply-< > Date: Sat, 20 Sep 2008 07:25:02 -0700 (PDT) < > Subject: Re: HELP with DIET!!! Regarding diet, I have a question. What the story with Vance's Dairy Free? It's potato based; would it be acceptable on the diet? We're going through about 3-4 quarts of goat's milk per week and we're going to be adding another kid to the protocol. TIA, Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hi all have any of you parents with teenagers had problems with their children getting Crohns disease . Please reply worried Mum !!!!!!!!!!!! From: Caroline Glover <sfglover@...> Subject: Re: HELP with DIET!!! Received: Sunday, 21 September, 2008, 2:58 PM Robyn, We¹re using it on one of our boys with D. G¹s approval as well. You may have to remind him of the ingredients to get him to OK it! Caroline From: Robyn & Greg Coggins <rngcoggssbcglobal (DOT) net> Reply-<groups (DOT) com> Date: Sat, 20 Sep 2008 07:25:02 -0700 (PDT) <groups (DOT) com> Subject: Re: HELP with DIET!!! Regarding diet, I have a question. What the story with Vance's Dairy Free? It's potato based; would it be acceptable on the diet? We're going through about 3-4 quarts of goat's milk per week and we're going to be adding another kid to the protocol. TIA, Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Thanks! I'll do that when we go on Oct. 1. Robyn > > From: Caroline Glover <sfglover@...> > Subject: Re: HELP with DIET!!! > > Received: Sunday, 21 September, 2008, 2:58 PM > > > > > > > Robyn, > > We¹re using it on one of our boys with D. G¹s approval as > well. You may have > to remind him of the ingredients to get him to OK it! > > Caroline > > From: Robyn & Greg Coggins <rngcoggssbcglobal (DOT) > net> > Reply-<groups (DOT) com> > Date: Sat, 20 Sep 2008 07:25:02 -0700 (PDT) > <groups (DOT) com> > Subject: Re: HELP with DIET!!! > > Regarding diet, I have a question. What the story with > Vance's Dairy Free? > It's potato based; would it be acceptable on the > diet? We're going > through about 3-4 quarts of goat's milk per week and > we're going to be > adding another kid to the protocol. > > TIA, > > Robyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 I do not know anything about this and teens, but know the Body Ecology Diet has helped adults with Chrons quite a bit. It allows for alot of intestinal healing. There is a webiste for this diet. I know someone for who it was very worthwhile to follow this diet. Angie > > From: Caroline Glover <sfglovermac (DOT) com> > Subject: Re: HELP with DIET!!! > groups (DOT) com > Received: Sunday, 21 September, 2008, 2:58 PM > > > > > > > Robyn, > > We¹re using it on one of our boys with D. G¹s approval as > well. You may have > to remind him of the ingredients to get him to OK it! > > Caroline > > From: Robyn & Greg Coggins <rngcoggs@sbcglobal . > net> > Reply-<groups (DOT) com> > Date: Sat, 20 Sep 2008 07:25:02 -0700 (PDT) > <groups (DOT) com> > Subject: Re: HELP with DIET!!! > > Regarding diet, I have a question. What the story with > Vance's Dairy Free? > It's potato based; would it be acceptable on the > diet? We're going > through about 3-4 quarts of goat's milk per week and > we're going to be > adding another kid to the protocol. > > TIA, > > Robyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 The website does not have the actual diet, unless it’s been added in the last few months. You have to buy the book, but it’s easy to find in health food stores and online. Kristy From: [mailto: ] On Behalf Of angie huiz Sent: Sunday, September 21, 2008 5:29 PM Subject: Re: HELP with DIET!!! I do not know anything about this and teens, but know the Body Ecology Diet has helped adults with Chrons quite a bit. It allows for alot of intestinal healing. There is a webiste for this diet. I know someone for who it was very worthwhile to follow this diet. Angie > > From: Caroline Glover <sfglovermac (DOT) com> > Subject: Re: HELP with DIET!!! > groups (DOT) com > Received: Sunday, 21 September, 2008, 2:58 PM > > > > > > > Robyn, > > We¹re using it on one of our boys with D. G¹s approval as > well. You may have > to remind him of the ingredients to get him to OK it! > > Caroline > > From: Robyn & Greg Coggins <rngcoggs@sbcglobal . > net> > Reply-<groups (DOT) com> > Date: Sat, 20 Sep 2008 07:25:02 -0700 (PDT) > <groups (DOT) com> > Subject: Re: HELP with DIET!!! > > Regarding diet, I have a question. What the story with > Vance's Dairy Free? > It's potato based; would it be acceptable on the > diet? We're going > through about 3-4 quarts of goat's milk per week and > we're going to be > adding another kid to the protocol. > > TIA, > > Robyn > > Quote Link to comment Share on other sites More sharing options...
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