Immune System

[Guest guest]

In a message dated 3/28/2007 3:05:29 PM Eastern Daylight Time,

moniquesauve@... writes:

using benicar to lower Vit D so imm syst can work

better

I thought Benicar was actually a blood pressure medicine. How does it lower

vitamin D and how does a lower level of vitamin D allow the immune system to

work better?

Thanks, Jill

************************************** See what's free at http://www.aol.com.

[Guest guest]

i didn't notice increased pain from taking antibiotics. my pain went

down consistently until after 1 year i was in remission. but then after

3 years had to stop ap because i got so sick - dizzy nausea, chronic

fatigue. then RA came back worse. i think 200 mg minocin a day actually

suppresses your immune system. the MP with pulsed low dosing of

antibiotics plus using benicar to lower Vit D so imm syst can work

better seems to make more sense. going to start that this summer.

monique

[Guest guest]

hi jill

benicar is normally a bp med but used in high doses 40 mg every 8 h -

don't worry that doesn't lower your bp anymore than 10 pts as it does at

the regular 40 mg dose - it lowers D levels in the body which new

research is showing when too high - act as a secosteriod which is why

when you take cod liver oil initially it can make you feel better - but

later can make things worse just as pred does. check out the marshall

prot site which explains this all in detail much better than i can as i

am new to all this. am starting MP this summer as after a few yeas ap no

longer works for me and i've tried adjusting dosage treating yeast diff.

antibiotics. i know 5 ppl with RA on MP and all are doing better now

than when they started. 4 were on ap before MP.

monique

[Guest guest]

Hi ;

I did get in touch with the doctor in Vancouver and he did tell me he

is having excellent resullts using MP for RA.He did not have much info

on it;s use for SD but figures it should work well for me as I am over

the worst of the SD by using my doctor's protocol whoch is quite similar

but does not use nearly as much Benicar..My 1,25 to 25D ratio is 3 times

too high.Have you had your vit.D levels checked yet?I will be starting

MP this fall when light levels are down.Having a greenhouse that is my

sole source of income makes it impossible right now.I do cover up and

wear light grey sun NoIR glasses but I know that is not enough.A couple

of people from the Roadback site are now on it for SD posts as

Elijah and I will be watching her postings to see how she progresses.Her

SD is very bad so it may take a while. Lynne G/SD

Sauve wrote:

> hi jill

>

> benicar is normally a bp med but used in high doses 40 mg every 8 h -

> don't worry that doesn't lower your bp anymore than 10 pts as it does at

> the regular 40 mg dose - it lowers D levels in the body which new

> research is showing when too high - act as a secosteriod which is why

> when you take cod liver oil initially it can make you feel better - but

> later can make things worse just as pred does. check out the marshall

> prot site which explains this all in detail much better than i can as i

> am new to all this. am starting MP this summer as after a few yeas ap no

> longer works for me and i've tried adjusting dosage treating yeast diff.

> antibiotics. i know 5 ppl with RA on MP and all are doing better now

> than when they started. 4 were on ap before MP.

>

> monique

>

>

[Guest guest]

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to

me means eating correctly (that's a loose term because people are all so

different that what one can eat another can't.) so, that's an experimental

thing and also done by testing for G.I. diseases which could be overlapping.

Most people can tell how they feel after eating certain foods. I'm diabetic and

lactose intolerant. So, dairy and sugar are out for me. Lately it has also

been chinese food not agreeing with me either. Secondly, drinking good water is

a healthy way to flush out the system. We bought one of those machines that

filters the water and we get water delivered. Again, that depends on where you

live and where your water supply comes from. 3rd. Rest, lay down when you're

tired, don't push yourself. During sleep, we repair and refresh our bodies.

Think of it as getting your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people

use to boost your immune system. Thanks

[Guest guest]

Hey Dolores. First off, I really appreciate the knowledge you bring to this

board. Plus you seem like a nice lady too! How are you doing on the Marshall

Protocol? Sorry I also forget which disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love

the taste too but stopped eating it as much as I could because I scored 100 on

my allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs,

3 on wheat and 1.5 on corn. Although the only way I will ever get off wheat is

if it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no

immunosuppressants. Suppressants and boosting knock each other out. Boosting the

immune system to me means eating correctly (that's a loose term because people

are all so different that what one can eat another can't.) so, that's an

experimental thing and also done by testing for G.I. diseases which could be

overlapping. Most people can tell how they feel after eating certain foods. I'm

diabetic and lactose intolerant. So, dairy and sugar are out for me. Lately it

has also been chinese food not agreeing with me either. Secondly, drinking good

water is a healthy way to flush out the system. We bought one of those machines

that filters the water and we get water delivered. Again, that depends on where

you live and where your water supply comes from. 3rd. Rest, lay down when you're

tired, don't push yourself. During sleep, we repair and refresh our bodies.

Think of it as getting your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Hi, thanks for the compliment. I have not yet started on the Marshall. Waiting

for the days to grow shorter to start. That way, I can go out after 5p.m. to do

grocery shopping etc. We are supposed to eliminate all sorts of Vit D as it is

considered a steroid hormone. So, I'm preparing to live like a mole for a while.

Hopefully when I start Phase 2, I'll be able to tolerate some light. And phase 3

is the longest. They predict from 12-36 months. Phase 1 is from 3-6 months.

Phase 2 is about a year more or less. I'm also still shopping for a doc who is

knowledgable and will follow me thru the M/P process so I don't end up teaching

them. As far as foods, well I'm no expert. I just listen to my body.

Sometimes, I get a little hard of hearing and then my body screams at me and

then I have to listen. But tell me, why are you taking the allergy shots for

foods? Why not just eliminate the foods? Dolores

Vicki <genuinelysweet2002@...> wrote: Hey Dolores. First off, I

really appreciate the knowledge you bring to this board. Plus you seem like a

nice lady too! How are you doing on the Marshall Protocol? Sorry I also forget

which disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love the

taste too but stopped eating it as much as I could because I scored 100 on my

allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs, 3

on wheat and 1.5 on corn. Although the only way I will ever get off wheat is if

it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to me

means eating correctly (that's a loose term because people are all so different

that what one can eat another can't.) so, that's an experimental thing and also

done by testing for G.I. diseases which could be overlapping. Most people can

tell how they feel after eating certain foods. I'm diabetic and lactose

intolerant. So, dairy and sugar are out for me. Lately it has also been chinese

food not agreeing with me either. Secondly, drinking good water is a healthy way

to flush out the system. We bought one of those machines that filters the water

and we get water delivered. Again, that depends on where you live and where your

water supply comes from. 3rd. Rest, lay down when you're tired, don't push

yourself. During sleep, we repair and refresh our bodies. Think of it as getting

your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Hi Dolores. The reason I did the food allergy shots rather than just stay away

from the foods is because of 2 things. First, I was already getting allergy

shots for environmental things I am allergic to and I figured I may as well do

the food ones at the same time. But also, the foods I am allergic to are so

common and VERY hidden in many foods. In my case, I was 1.5 on corn, 3 on wheat

(yet not gluten!), 30 on eggs (HIGH!) and 100 on garlic (SUPER HIGH!). Anything

over 1 is allergy reaction I was told. So I thought if these were aggravating my

immune system even in tiny trace amounts, maybe my auto immune disease symtoms

would improve with the food and environmental allergy shots. So far no such luck

with the Sjogren's or the chronic motion sickness.

I am debating if I should do the Marshall Protocol or another protocol that

does not include removing vit d, taking hyertensive drug, nor staying away from

the sun. Of course, I dont know which is more effective I am going off of which

I hope will be less grueling in the long run.

mike rosner <martysfolks2004@...> wrote:

Hi, thanks for the compliment. I have not yet started on the Marshall.

Waiting for the days to grow shorter to start. That way, I can go out after

5p.m. to do grocery shopping etc. We are supposed to eliminate all sorts of Vit

D as it is considered a steroid hormone. So, I'm preparing to live like a mole

for a while. Hopefully when I start Phase 2, I'll be able to tolerate some

light. And phase 3 is the longest. They predict from 12-36 months. Phase 1 is

from 3-6 months. Phase 2 is about a year more or less. I'm also still shopping

for a doc who is knowledgable and will follow me thru the M/P process so I don't

end up teaching them. As far as foods, well I'm no expert. I just listen to my

body. Sometimes, I get a little hard of hearing and then my body screams at me

and then I have to listen. But tell me, why are you taking the allergy shots for

foods? Why not just eliminate the foods? Dolores

Vicki <genuinelysweet2002@...> wrote: Hey Dolores. First off, I really

appreciate the knowledge you bring to this board. Plus you seem like a nice lady

too! How are you doing on the Marshall Protocol? Sorry I also forget which

disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love the

taste too but stopped eating it as much as I could because I scored 100 on my

allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs, 3

on wheat and 1.5 on corn. Although the only way I will ever get off wheat is if

it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to me

means eating correctly (that's a loose term because people are all so different

that what one can eat another can't.) so, that's an experimental thing and also

done by testing for G.I. diseases which could be overlapping. Most people can

tell how they feel after eating certain foods. I'm diabetic and lactose

intolerant. So, dairy and sugar are out for me. Lately it has also been chinese

food not agreeing with me either. Secondly, drinking good water is a healthy way

to flush out the system. We bought one of those machines that filters the water

and we get water delivered. Again, that depends on where you live and where your

water supply comes from. 3rd. Rest, lay down when you're tired, don't push

yourself. During sleep, we repair and refresh our bodies. Think of it as getting

your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Hi Dolores. The reason I did the food allergy shots rather than just stay away

from the foods is because of 2 things. First, I was already getting allergy

shots for environmental things I am allergic to and I figured I may as well do

the food ones at the same time. But also, the foods I am allergic to are so

common and VERY hidden in many foods. In my case, I was 1.5 on corn, 3 on wheat

(yet not gluten!), 30 on eggs (HIGH!) and 100 on garlic (SUPER HIGH!). Anything

over 1 is allergy reaction I was told. So I thought if these were aggravating my

immune system even in tiny trace amounts, maybe my auto immune disease symtoms

would improve with the food and environmental allergy shots. So far no such luck

with the Sjogren's or the chronic motion sickness.

I am debating if I should do the Marshall Protocol or another protocol that

does not include removing vit d, taking hyertensive drug, nor staying away from

the sun. Of course, I dont know which is more effective I am going off of which

I hope will be less grueling in the long run.

mike rosner <martysfolks2004@...> wrote:

Hi, thanks for the compliment. I have not yet started on the Marshall.

Waiting for the days to grow shorter to start. That way, I can go out after

5p.m. to do grocery shopping etc. We are supposed to eliminate all sorts of Vit

D as it is considered a steroid hormone. So, I'm preparing to live like a mole

for a while. Hopefully when I start Phase 2, I'll be able to tolerate some

light. And phase 3 is the longest. They predict from 12-36 months. Phase 1 is

from 3-6 months. Phase 2 is about a year more or less. I'm also still shopping

for a doc who is knowledgable and will follow me thru the M/P process so I don't

end up teaching them. As far as foods, well I'm no expert. I just listen to my

body. Sometimes, I get a little hard of hearing and then my body screams at me

and then I have to listen. But tell me, why are you taking the allergy shots for

foods? Why not just eliminate the foods? Dolores

Vicki <genuinelysweet2002@...> wrote: Hey Dolores. First off, I really

appreciate the knowledge you bring to this board. Plus you seem like a nice lady

too! How are you doing on the Marshall Protocol? Sorry I also forget which

disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love the

taste too but stopped eating it as much as I could because I scored 100 on my

allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs, 3

on wheat and 1.5 on corn. Although the only way I will ever get off wheat is if

it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to me

means eating correctly (that's a loose term because people are all so different

that what one can eat another can't.) so, that's an experimental thing and also

done by testing for G.I. diseases which could be overlapping. Most people can

tell how they feel after eating certain foods. I'm diabetic and lactose

intolerant. So, dairy and sugar are out for me. Lately it has also been chinese

food not agreeing with me either. Secondly, drinking good water is a healthy way

to flush out the system. We bought one of those machines that filters the water

and we get water delivered. Again, that depends on where you live and where your

water supply comes from. 3rd. Rest, lay down when you're tired, don't push

yourself. During sleep, we repair and refresh our bodies. Think of it as getting

your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Hi Vicki, You know what, I forgot to tell you what disease I have. I was

diagnosed in 2005 with Diffuse, Speckeled, Systemic Scleroderma and Rheumatoid

Arthritis and now discover that I have the Lupus anticoagulant antibody as does

my husband. But my troubles actually began back in 1986 when I came down with

Chronic Fatigue Syndrome or maybe it was Mononucleosis, or maybe it was Epstein

Barr Virus and definitely positive for Cytomegalo Virus and then they thought my

fatigue was in my head since I was running fevers as high as 103 degrees

intermittently for an entire year and developed hepatomegaly. Surely, it had to

be in my head!!!!!! No body knew what I really had. I had two rounds of

acyclovir finally and that helped somewhat, but I was never the same. The liver

took 8 years to recede. For that I am grateful. Then I developed heart

problems, had 4 heart surgeries, then hypertension and diabetes and the list

goes on. Surely, I was a definite case for the mental ward.

I knew they were misinformed and I was sick. It took a 40 lb weight loss and

Pulmonary Fibrosis plus an ANA of 640 and speckled to finally take me seriously.

I see what you mean about food allergies. Best to know about the hidden stuff

and avoid the consequences. I am now in remission on A/P after 18 months and

about to start the M/P in the fall. It has been a long road and I need to write

a book so other's don't have to travel the same road as I did. That's why I'm

here writing day after day and listening and learning and knowing I am not

alone. Thanks for your input too and everybody else's. Dolores

Vicki <genuinelysweet2002@...> wrote: Hi Dolores. The reason I

did the food allergy shots rather than just stay away from the foods is because

of 2 things. First, I was already getting allergy shots for environmental things

I am allergic to and I figured I may as well do the food ones at the same time.

But also, the foods I am allergic to are so common and VERY hidden in many

foods. In my case, I was 1.5 on corn, 3 on wheat (yet not gluten!), 30 on eggs

(HIGH!) and 100 on garlic (SUPER HIGH!). Anything over 1 is allergy reaction I

was told. So I thought if these were aggravating my immune system even in tiny

trace amounts, maybe my auto immune disease symtoms would improve with the food

and environmental allergy shots. So far no such luck with the Sjogren's or the

chronic motion sickness.

I am debating if I should do the Marshall Protocol or another protocol that does

not include removing vit d, taking hyertensive drug, nor staying away from the

sun. Of course, I dont know which is more effective I am going off of which I

hope will be less grueling in the long run.

mike rosner <martysfolks2004@...> wrote:

Hi, thanks for the compliment. I have not yet started on the Marshall. Waiting

for the days to grow shorter to start. That way, I can go out after 5p.m. to do

grocery shopping etc. We are supposed to eliminate all sorts of Vit D as it is

considered a steroid hormone. So, I'm preparing to live like a mole for a while.

Hopefully when I start Phase 2, I'll be able to tolerate some light. And phase 3

is the longest. They predict from 12-36 months. Phase 1 is from 3-6 months.

Phase 2 is about a year more or less. I'm also still shopping for a doc who is

knowledgable and will follow me thru the M/P process so I don't end up teaching

them. As far as foods, well I'm no expert. I just listen to my body. Sometimes,

I get a little hard of hearing and then my body screams at me and then I have to

listen. But tell me, why are you taking the allergy shots for foods? Why not

just eliminate the foods? Dolores

Vicki <genuinelysweet2002@...> wrote: Hey Dolores. First off, I really

appreciate the knowledge you bring to this board. Plus you seem like a nice lady

too! How are you doing on the Marshall Protocol? Sorry I also forget which

disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love the

taste too but stopped eating it as much as I could because I scored 100 on my

allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs, 3

on wheat and 1.5 on corn. Although the only way I will ever get off wheat is if

it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to me

means eating correctly (that's a loose term because people are all so different

that what one can eat another can't.) so, that's an experimental thing and also

done by testing for G.I. diseases which could be overlapping. Most people can

tell how they feel after eating certain foods. I'm diabetic and lactose

intolerant. So, dairy and sugar are out for me. Lately it has also been chinese

food not agreeing with me either. Secondly, drinking good water is a healthy way

to flush out the system. We bought one of those machines that filters the water

and we get water delivered. Again, that depends on where you live and where your

water supply comes from. 3rd. Rest, lay down when you're tired, don't push

yourself. During sleep, we repair and refresh our bodies. Think of it as getting

your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Hi Vicki, You know what, I forgot to tell you what disease I have. I was

diagnosed in 2005 with Diffuse, Speckeled, Systemic Scleroderma and Rheumatoid

Arthritis and now discover that I have the Lupus anticoagulant antibody as does

my husband. But my troubles actually began back in 1986 when I came down with

Chronic Fatigue Syndrome or maybe it was Mononucleosis, or maybe it was Epstein

Barr Virus and definitely positive for Cytomegalo Virus and then they thought my

fatigue was in my head since I was running fevers as high as 103 degrees

intermittently for an entire year and developed hepatomegaly. Surely, it had to

be in my head!!!!!! No body knew what I really had. I had two rounds of

acyclovir finally and that helped somewhat, but I was never the same. The liver

took 8 years to recede. For that I am grateful. Then I developed heart

problems, had 4 heart surgeries, then hypertension and diabetes and the list

goes on. Surely, I was a definite case for the mental ward.

I knew they were misinformed and I was sick. It took a 40 lb weight loss and

Pulmonary Fibrosis plus an ANA of 640 and speckled to finally take me seriously.

I see what you mean about food allergies. Best to know about the hidden stuff

and avoid the consequences. I am now in remission on A/P after 18 months and

about to start the M/P in the fall. It has been a long road and I need to write

a book so other's don't have to travel the same road as I did. That's why I'm

here writing day after day and listening and learning and knowing I am not

alone. Thanks for your input too and everybody else's. Dolores

Vicki <genuinelysweet2002@...> wrote: Hi Dolores. The reason I

did the food allergy shots rather than just stay away from the foods is because

of 2 things. First, I was already getting allergy shots for environmental things

I am allergic to and I figured I may as well do the food ones at the same time.

But also, the foods I am allergic to are so common and VERY hidden in many

foods. In my case, I was 1.5 on corn, 3 on wheat (yet not gluten!), 30 on eggs

(HIGH!) and 100 on garlic (SUPER HIGH!). Anything over 1 is allergy reaction I

was told. So I thought if these were aggravating my immune system even in tiny

trace amounts, maybe my auto immune disease symtoms would improve with the food

and environmental allergy shots. So far no such luck with the Sjogren's or the

chronic motion sickness.

I am debating if I should do the Marshall Protocol or another protocol that does

not include removing vit d, taking hyertensive drug, nor staying away from the

sun. Of course, I dont know which is more effective I am going off of which I

hope will be less grueling in the long run.

mike rosner <martysfolks2004@...> wrote:

Hi, thanks for the compliment. I have not yet started on the Marshall. Waiting

for the days to grow shorter to start. That way, I can go out after 5p.m. to do

grocery shopping etc. We are supposed to eliminate all sorts of Vit D as it is

considered a steroid hormone. So, I'm preparing to live like a mole for a while.

Hopefully when I start Phase 2, I'll be able to tolerate some light. And phase 3

is the longest. They predict from 12-36 months. Phase 1 is from 3-6 months.

Phase 2 is about a year more or less. I'm also still shopping for a doc who is

knowledgable and will follow me thru the M/P process so I don't end up teaching

them. As far as foods, well I'm no expert. I just listen to my body. Sometimes,

I get a little hard of hearing and then my body screams at me and then I have to

listen. But tell me, why are you taking the allergy shots for foods? Why not

just eliminate the foods? Dolores

Vicki <genuinelysweet2002@...> wrote: Hey Dolores. First off, I really

appreciate the knowledge you bring to this board. Plus you seem like a nice lady

too! How are you doing on the Marshall Protocol? Sorry I also forget which

disease you have.

I saw you mentioned garlic and i have hear it is really good for you. I love the

taste too but stopped eating it as much as I could because I scored 100 on my

allergy test for it, anything over 0 is allergic reaction. I was 30 in eggs, 3

on wheat and 1.5 on corn. Although the only way I will ever get off wheat is if

it cured me and 6 weeks off did nothing. Wheat is hidden in everything and

garlic is pretty hidden too. Anyway, I dont get any kind of obvious reaction

eating these foods but perhaps they worsen my auto immune disease and I dont

know it. So I stay away from eggs and garlic unless it is hidden. Anyway, I get

allergy shots weekly for the food and environmental allergens but sometimes I

wonder about side effects of them for someone who already had auto immune

disease. I had read this crazy story about someone DEVELOPING Sjogren's after

the allergy shots so for a while I stopped them but no one can explain that one.

I hoped that the shots would actually help my

disease as much of a long shot as it is. I also wonder if i should stay away

from these foods even when I have had the shots for 3 months which is when they

begin to kick on and at 6 months i think i am to stop.

I dont want to take immunosuppresants and plaquenil and methotextrate are all

the traditional docs offer. I wont ever take metho but am considering plaq

because i am so desperate but dont know if that is the way to go. few with my

disease get better on it dryness and bloating wise, maybe just a little help

with fatigue but the others are the worst for me. But I wonder if i should try

it in case i am one of lucky few to get benefits but I am not looking forward to

the hair loss. I think the antibiotic route may be better but i worry about that

too and not knowing people with SS on it and doing well also makes it harder to

start without that positive information...

mike rosner <martysfolks2004@...> wrote:

Hi, first it is what I don't use that counts. I use no immunosuppressants.

Suppressants and boosting knock each other out. Boosting the immune system to me

means eating correctly (that's a loose term because people are all so different

that what one can eat another can't.) so, that's an experimental thing and also

done by testing for G.I. diseases which could be overlapping. Most people can

tell how they feel after eating certain foods. I'm diabetic and lactose

intolerant. So, dairy and sugar are out for me. Lately it has also been chinese

food not agreeing with me either. Secondly, drinking good water is a healthy way

to flush out the system. We bought one of those machines that filters the water

and we get water delivered. Again, that depends on where you live and where your

water supply comes from. 3rd. Rest, lay down when you're tired, don't push

yourself. During sleep, we repair and refresh our bodies. Think of it as getting

your batteries recharged. 4th

Do, some exercize that gets you deep breathing and gets the circulation moving.

Then, of course, you will get a whole list of supplements like garlic and herbs

that people more knowledgable than me will tell you about. Last, it helps to

have someone on your side who will listen to you as you unload your burdens and

try to avoid all unecessary negative stress. Good luck, Dolores

Rizun <emmie@...> wrote: Can you tell me what you people use to

boost your immune system. Thanks

[Guest guest]

Thanks Dolores. So if AP got you in remission, why do yuo need MP? Can you

please tell me also what exactly do you take with AP and when? Is there info on

it online? I have been considering the protocol for chlamydia pneumania which is

respiratory condition (not the STD Chlamydia)

I am so sorry you have been through this hell. You are such a strong lady to

fight off all these conditions! I myself have 3 chronic ailments at the age of

31. I hope to walk in your footsteps. If I am going to have this insiduous

disease then I want to fight it like you. So many times I just want to give up

though. Like today, my normal dry hoarsey soar throat is worse than ever can't

swallow without so much pain. My whole body aches like crazy, especially the

head and neck, even in front of the neck, which I thought was my tmjd flaring

but now I realize I must be sick on top of the AI disease and chronic nausea and

dizziness...maybe strep? or maybe a virus? I don't know. Anyway, sorry for my

complaining so much. You certainly have been through more than me. I guess I

dont know how to handle this new thing on top of my chronic thing. Dont know

what's what anymore and knowing that last year before I developed the AI disease

I got sick like this for 6 weeks, it's all so

weird and confusing not knowing the cause of anything. Oh and i am trying to

stay away from the bad foods as much as possible because it takes a long time

for the allergy shots to kick in. 3 months minimum. Hopefully i am not doing

more damage by getting them. Thanks for listening...

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

Vicki dear, What an excellent question? Remission means that my disease is not

progressing any further at this time and some symptoms have even receded

somewhat, but remission does not mean that I am cured of my diseases and they

can rear their ugly head any time my immune system does not hold up, like under

times of stress or if I catch a cold. Anything could start it up again. M/P is

a 3 phase part protocol which is as close to a cure as we can get. The target

of doing this protocol is to weaken the mycoplasmas (they are a cross between a

virus and a bacteria) so that my own immune system can kill them off. Because

the actual antibiotic does not kill off these particular mycoplasmas that are

(CWD) Cell Wall Deficient. Meaning once they have invaded your body, they lose

their cell walls, then they morph into an L-shape form and wrap around your own

cells DNA and lives in the body as a parasite. When enough of them overwhelm

the immune system, the immune system can't

fight back like it is supposed to. They call these a TH1 disease. That means

that your immune system is compromised and can not do it's job. The best

antibiotic that works at weakening is Minocin which is part of the tetracycline

family. There are also some antibiotics that are added to the protocol and a

drug called Benicar which helps the antibiotic do it's job better. After I am

done with all three phases and my immune system is up and running the way it

should, I may have to take a series of antibiotics from time to time to clean

out any new mycoplasmas that I may accumulate during the year or by getting a

flu shot. I know I will be fighting these micoplasmas for the rest of my life,

but it will be with an immune system that is healthy. That is my goal.

Everybody has micoplasmas in their system, but a strong immune system keeps them

from getting sick. Our problem is that we collected too many over a long period

of time and damaged our immune systems. That's why

it is important to boost the immune system and that's not easy because

everybody is different and there are different micoplasmas. I am positive for

mycoplasma pneumoniae mostly and there are others, but that is my culprit. I'm

sorry you feel so sick. I was very sick also. But once I realized that the

micoplasma was the offending organism, then I put aside all the symptoms in my

head and put my focus on getting the micoplasma count down. I started with A/P

and that has gotten me this far, but I'm going all the way and then I will write

about it and the journey that I took to get there and for all the people who are

taking the journey with me and are doing better for having made the trip. I

want to give people hope because right now we seem to focus only on symptoms,

but not on the main cause and that's what is important. Get to the cause and

then we lose all the symptoms. It really is simple! We need to educate

ourselves as much as we can. Thanks for asking and I

hope you feel better soon. Are you on A/P? That's the start. Good luck.

Dolores

Vicki <genuinelysweet2002@...> wrote:

Thanks Dolores. So if AP got you in remission, why do yuo need MP? Can

you please tell me also what exactly do you take with AP and when? Is there info

on it online? I have been considering the protocol for chlamydia pneumania which

is respiratory condition (not the STD Chlamydia)

I am so sorry you have been through this hell. You are such a strong lady to

fight off all these conditions! I myself have 3 chronic ailments at the age of

31. I hope to walk in your footsteps. If I am going to have this insiduous

disease then I want to fight it like you. So many times I just want to give up

though. Like today, my normal dry hoarsey soar throat is worse than ever can't

swallow without so much pain. My whole body aches like crazy, especially the

head and neck, even in front of the neck, which I thought was my tmjd flaring

but now I realize I must be sick on top of the AI disease and chronic nausea and

dizziness...maybe strep? or maybe a virus? I don't know. Anyway, sorry for my

complaining so much. You certainly have been through more than me. I guess I

dont know how to handle this new thing on top of my chronic thing. Dont know

what's what anymore and knowing that last year before I developed the AI disease

I got sick like this for 6 weeks, it's all so

weird and confusing not knowing the cause of anything. Oh and i am trying to

stay away from the bad foods as much as possible because it takes a long time

for the allergy shots to kick in. 3 months minimum. Hopefully i am not doing

more damage by getting them. Thanks for listening...

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

[Guest guest]

hi there Dolores. Honestly, with this amount of misery I would have to get much

better to call it remission. One girl had told me she was in remission from her

Sjogrens. I got SOOOO excited about it. Then I come to find out she had ALL the

horrible symptoms but the non hodgkins lymph cancer associated with SS was gone.

That's great because she will live but the horrible symptoms of the disease are

still there so really she was in remission from the Cancer but not the disease

that brought it on and could bring it back. I was bummed because I have only

found 1.5 SS people who are better from long term antibiotics.

Anyway, is AP therapy just the Minocycline only? I think I read Clymadicin too

was part of the protocol? I know you were on it 18 months but how long were you

on that before you first noticed getting better? The Chlamydia Pneumania

protocol includes Mino, Zith and FLagyl. Sometimes on that begins with a T I

cant rememer. I did it just for a month and even with probiotics I developed

yeast infection. They call is CAP. What do youthink of it? THey do the mino

daily and the rest they alternate.

I really can spell and have better grammer but when I am not well i just type

fast as much as I can get out and send ASAP. Just an FYI.

I really want to reach a remission that means my symptoms are gone or as much

as possible be gone.

I went to an ND for antibiotics but she would only rx them if the cleansign

didnt work. This meant colonics, hydroptherapy, some supplements in IV form

etc...this was all 1K a week! I think she did some sauna too. Not infrared but

some other kind. Needless to say I didnt go that route. Have you heard anything

about saunas especially infrared ones helping with killing the bugs? I forgot to

saythat what you said about your docs is similar to my experiences. They dont

know much. Again, why test for mono, ebstein barr etc...if they dont know what

to do about it and they just call us crazy.

Thanks Dolores!

---------------------------------

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

No Vicki, Truly I am in remission. I don't have any of the S/D or R/A symptoms.

I have no pain. My skin is soft and supple. I can bend any which way. Two

saturdays ago, I went to a birthday party and danced every dance w/o getting out

of breath. My face is coming back to normal. There's hardly a trace of a

smaller mouth. My mouth has always been small, so that's normal, my hair is

growing long down my back and as soon as it hits my waist, I am donating it to

the foundation that makes wigs for cancer kids. My nails are growing nicely.

They no longer have ridges. My leg cramps have abated. My Raynaud's left during

my second month of therapy. My lungs are clear. My mind has cleared. I'm no

longer anemic, I am at my ideal weight. I started noticing changes within the

first month and month after month it just got better and better. Then at 6

months, I reached a plateau and stayed there for about three months. Didn't

regress, just stayed status quo. Then I started

getting better again at around 12 months and the last 4 months I got better by

leaps and bounds. I don't take pain meds. My heart aarythmia's have stopped,

my double vision no longer is happening and my dizzy spells have stopped also.

What can I say. I have no symptoms, I am in remission. Look up remission in

the dictionary and in the Thesaurus. It say to abate. That means to have

stopped in it's tracks. According to my doc, there is no evidence of pulmonary

fibrosis. So, why do I want to go thru M/P because I know those damn

micooplasmas are still in there looking for a weakened place to attack and I'm

not going to give it to them. Yes, I told you there are other antibiotics they

add in phase 2 and 3. Phase one starts with blood work and Benicar, then they

add small amounts of Minocin and pulse it. They must watch for herxes and

modify if you get into trouble. It's a lot of godamn work, but it is worth it

for me. And I'm willing to take the chance. Did I

tell you that I am 70 yrs. old and have the energy of a 40 yr. old. I work, I

dance, I play and I work some more. Sometimes I take a nap and sometimes I work

all night on the computer. I'm not complaining about anything. I love my life.

I spent my winter in the Caribbean, swimming, kayaking, hiking, flying,

spelunking, partying and traveling from Island to Island. I'm not sitting on my

ass like most 70 yr. olds. I've got spunk and stamina and I stun people when

they find out that I am 70. I have a wonderful husband, daughter, son, friends,

and am eternally busy. So, what can I say, Yes I am in remission, One can

dwell on the symptoms or get to the core. I made my choice and I've been

successful and will write a book about it. To set the story straight, I was on

Minocin 100mg in the morning and 100mg in the evening. That was it for the

scleroderma. Prior to that I was on my death bed, for more than 7 months,

puking my brains out and continuous diarrhea. I lost

40 lbs. My skin across my chest was so tight, I couldn't breathe and I had

small white pebbles popping out of my skin. I lived with a nebulizer next to my

bed. My hands were curled into an O shape when I put my fingers together and I

screamed if someone so much as touched me lightly. I couldn't roll over in bed

the pain was so bad. Everyone swore I had cancer and my husband cried everyday.

Today, I am fabulous. Everything in me works just fine. If that's not

remission, what is? I truly wish you would get better like I did. But it takes

a lot of work, study and determination to make it your goal. My doc said, I got

better because of my drive. She may be part right. But Minocin was the tool.

Have a good night and think about what I said. You've got to start with a good

attitude every morning. Take care, Dolores

Vicki <genuinelysweet2002@...> wrote: hi there Dolores. Honestly,

with this amount of misery I would have to get much better to call it remission.

One girl had told me she was in remission from her Sjogrens. I got SOOOO excited

about it. Then I come to find out she had ALL the horrible symptoms but the non

hodgkins lymph cancer associated with SS was gone. That's great because she will

live but the horrible symptoms of the disease are still there so really she was

in remission from the Cancer but not the disease that brought it on and could

bring it back. I was bummed because I have only found 1.5 SS people who are

better from long term antibiotics.

Anyway, is AP therapy just the Minocycline only? I think I read Clymadicin too

was part of the protocol? I know you were on it 18 months but how long were you

on that before you first noticed getting better? The Chlamydia Pneumania

protocol includes Mino, Zith and FLagyl. Sometimes on that begins with a T I

cant rememer. I did it just for a month and even with probiotics I developed

yeast infection. They call is CAP. What do youthink of it? THey do the mino

daily and the rest they alternate.

I really can spell and have better grammer but when I am not well i just type

fast as much as I can get out and send ASAP. Just an FYI.

I really want to reach a remission that means my symptoms are gone or as much as

possible be gone.

I went to an ND for antibiotics but she would only rx them if the cleansign

didnt work. This meant colonics, hydroptherapy, some supplements in IV form

etc...this was all 1K a week! I think she did some sauna too. Not infrared but

some other kind. Needless to say I didnt go that route. Have you heard anything

about saunas especially infrared ones helping with killing the bugs? I forgot to

saythat what you said about your docs is similar to my experiences. They dont

know much. Again, why test for mono, ebstein barr etc...if they dont know what

to do about it and they just call us crazy.

Thanks Dolores!

---------------------------------

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Thanks for all you've done and doing. You are brave to come back from such an

ordeal with your lungs. Glad you are doing better now. I'm doing well on

Minocin and have done well from the get go. Could that have been a horrible

herx? Don't know. Seems like is having the same symptoms again. I hope

someone comes up with an answer real quick. Take care. Have a good night.

Hugs to you too, Dolores

DEBBIE GIBSON <Debbullwinkle@...> wrote: Delores....Dr W has had

me on the AP, using minocin and clindamyacin every 8 weeks...until I had the

reaction to whatever it was...we were never sure..I take zithromax occasionally

and have done 8 weeks at a time of the zmax! I am sooo very happy you are

getting in to see Dr Whitman...I think he is the absolute best, hands down!! I

have seen many of the AP physicians and DR W really took an interest in me and

worked very hard for me to get that so called " experimental " treatment that

saved my life when my lungs were so damaged...

I think that Dr W does that with each of his patients, he is simply a phenomenal

physician...he does take very long vacations and is gone, I am not sure, maybe

every other month??? but frankly, I don't care, he deserves any vacation time he

gets.....he is always able to work me in, his staff is wonderful and he battled

my insurance company for several years to get me the treatment I needed!

I am very happy you are getting in to see him...when Pat Ganger wrote her book

with Carol Lange, I took him a copy on my next visit...he told me he was very,

very impressed with their book! :>)

Hugs, Debbie

[Guest guest]

Delores....Dr W has had me on the AP, using minocin and clindamyacin every 8

weeks...until I had the reaction to whatever it was...we were never sure..I take

zithromax occasionally and have done 8 weeks at a time of the zmax! I am sooo

very happy you are getting in to see Dr Whitman...I think he is the absolute

best, hands down!! I have seen many of the AP physicians and DR W really took an

interest in me and worked very hard for me to get that so called " experimental "

treatment that saved my life when my lungs were so damaged...

I think that Dr W does that with each of his patients, he is simply a phenomenal

physician...he does take very long vacations and is gone, I am not sure, maybe

every other month??? but frankly, I don't care, he deserves any vacation time he

gets.....he is always able to work me in, his staff is wonderful and he battled

my insurance company for several years to get me the treatment I needed!

I am very happy you are getting in to see him...when Pat Ganger wrote her book

with Carol Lange, I took him a copy on my next visit...he told me he was very,

very impressed with their book! :>)

Hugs, Debbie

[Guest guest]

I was helped by many on this board, Socjog, rtc, Geoff, the most important

thing I learned is giving back, which is what this board is all about....helping

others. Without , I would not have found Dr W.....and probably would not

have heard about the tx for my lungs{My local physicians being less than

informed on that}....I don't consider myself brave, just determined to live a

good life, entertain all possibilities of getting better and to pass it forward.

I am still not convinced it was the mino, at the time, we had raised our pet

parrot from an egg.....he was 13 when we had to find him a new home, which was

agonizing for us...and him...but the dust they put out, very, very bad for

lungs...my immunologist is not very happy about our 4 cats either, but what to

do about that?? When they are gone, we will not get more...but for now...who

would want a diabetic 16 yr old cat? a 14 yr old hypothyroid, and a 14 yr old

that you have to watch like an eagle because he will mark territory and last but

not least, our Bonnie Lynn . (she needs period treatments of zithromax for an

illness) 8 weeks of liquid zmax...runs about $250 for her...even if someone

would give them a home, we could not do it..they are family..

Its all good though, we love them as well as our dogs....but per my DRs...when

the cats are gone, no more...

I wish I had more info for , I can only tell her about my lung issues. I do

plan on asking DR. W if he thinks I could try to go back on the mino, maybe

start at 3 days a week?? and if I notice anything, go off??? we shall see...

Have a good day! Debbie

Re: rheumatic immune system

Thanks for all you've done and doing. You are brave to come back from such an

ordeal with your lungs. Glad you are doing better now. I'm doing well on Minocin

and have done well from the get go. Could that have been a horrible herx? Don't

know. Seems like is having the same symptoms again. I hope someone comes

up with an answer real quick. Take care. Have a good night. Hugs to you too,

Dolores

DEBBIE GIBSON <Debbullwinkle@...> wrote: Delores....Dr W has had me on

the AP, using minocin and clindamyacin every 8 weeks...until I had the reaction

to whatever it was...we were never sure..I take zithromax occasionally and have

done 8 weeks at a time of the zmax! I am sooo very happy you are getting in to

see Dr Whitman...I think he is the absolute best, hands down!! I have seen many

of the AP physicians and DR W really took an interest in me and worked very hard

for me to get that so called " experimental " treatment that saved my life when my

lungs were so damaged...

I think that Dr W does that with each of his patients, he is simply a

phenomenal physician...he does take very long vacations and is gone, I am not

sure, maybe every other month??? but frankly, I don't care, he deserves any

vacation time he gets.....he is always able to work me in, his staff is

wonderful and he battled my insurance company for several years to get me the

treatment I needed!

I am very happy you are getting in to see him...when Pat Ganger wrote her book

with Carol Lange, I took him a copy on my next visit...he told me he was very,

very impressed with their book! :>)

Hugs, Debbie

[Guest guest]

Hi Debbie. Your message to Geoff about all your sick animals got me thinking

about " The Infectious Theory " and convinces me even more that these diseases are

not autoimmune but of an infectious origin. It sounds like all your animals are

infected as well. Does Dr. W. believe in the " Infectious Theory " and therefore,

" The Antibiotic Protocol? " Dolores

DEBBIE GIBSON <Debbullwinkle@...> wrote: I was helped by many on

this board, Socjog, rtc, Geoff, the most important thing I learned is

giving back, which is what this board is all about....helping others. Without

, I would not have found Dr W.....and probably would not have heard about

the tx for my lungs{My local physicians being less than informed on that}....I

don't consider myself brave, just determined to live a good life, entertain all

possibilities of getting better and to pass it forward. I am still not convinced

it was the mino, at the time, we had raised our pet parrot from an egg.....he

was 13 when we had to find him a new home, which was agonizing for us...and

him...but the dust they put out, very, very bad for lungs...my immunologist is

not very happy about our 4 cats either, but what to do about that?? When they

are gone, we will not get more...but for now...who would want a diabetic 16 yr

old cat? a 14 yr old hypothyroid, and a 14 yr

old that you have to watch like an eagle because he will mark territory and

last but not least, our Bonnie Lynn . (she needs period treatments of zithromax

for an illness) 8 weeks of liquid zmax...runs about $250 for her...even if

someone would give them a home, we could not do it..they are family..

Its all good though, we love them as well as our dogs....but per my DRs...when

the cats are gone, no more...

I wish I had more info for , I can only tell her about my lung issues. I do

plan on asking DR. W if he thinks I could try to go back on the mino, maybe

start at 3 days a week?? and if I notice anything, go off??? we shall see...

Have a good day! Debbie

Re: rheumatic immune system

Thanks for all you've done and doing. You are brave to come back from such an

ordeal with your lungs. Glad you are doing better now. I'm doing well on Minocin

and have done well from the get go. Could that have been a horrible herx? Don't

know. Seems like is having the same symptoms again. I hope someone comes

up with an answer real quick. Take care. Have a good night. Hugs to you too,

Dolores

DEBBIE GIBSON <Debbullwinkle@...> wrote: Delores....Dr W has had me on the

AP, using minocin and clindamyacin every 8 weeks...until I had the reaction to

whatever it was...we were never sure..I take zithromax occasionally and have

done 8 weeks at a time of the zmax! I am sooo very happy you are getting in to

see Dr Whitman...I think he is the absolute best, hands down!! I have seen many

of the AP physicians and DR W really took an interest in me and worked very hard

for me to get that so called " experimental " treatment that saved my life when my

lungs were so damaged...

I think that Dr W does that with each of his patients, he is simply a phenomenal

physician...he does take very long vacations and is gone, I am not sure, maybe

every other month??? but frankly, I don't care, he deserves any vacation time he

gets.....he is always able to work me in, his staff is wonderful and he battled

my insurance company for several years to get me the treatment I needed!

I am very happy you are getting in to see him...when Pat Ganger wrote her book

with Carol Lange, I took him a copy on my next visit...he told me he was very,

very impressed with their book! :>)

Hugs, Debbie

[Guest guest]

Hi Debbie;

I am 99.9% sure they are infevtious also.Vets know a lot more about

micoplasma and how bad it is.Only doctors seem to poo-poo it.I have a

good friend who is an ALS researcher and she says that often their lab

slides get micos on them.They just throw up their hands and say they

can't work with them and go on to an other slide.She is in traditional

medecine research.If you go to the MP site there are plenty of pictures

of micoplasma and one slide in particular shows the micos inside an

immune cell.I rather think you may have mico just about everywhere but

after a time they even get into the immune cells and that makes it

extermely difficult to get rid of.Supplements to boost the immune system

would be useless at that point. Lynne

mike rosner wrote:

> Hi Debbie. Your message to Geoff about all your sick animals got me

> thinking about " The Infectious Theory " and convinces me even more that

> these diseases are not autoimmune but of an infectious origin. It

> sounds like all your animals are infected as well. Does Dr. W. believe

> in the " Infectious Theory " and therefore, " The Antibiotic Protocol? "

> Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: I was helped by many on this

> board, Socjog, rtc, Geoff, the most important thing I learned is

> giving back, which is what this board is all about....helping others.

> Without , I would not have found Dr W.....and probably would not

> have heard about the tx for my lungs{My local physicians being less

> than informed on that}....I don't consider myself brave, just

> determined to live a good life, entertain all possibilities of getting

> better and to pass it forward. I am still not convinced it was the

> mino, at the time, we had raised our pet parrot from an egg.....he was

> 13 when we had to find him a new home, which was agonizing for

> us...and him...but the dust they put out, very, very bad for

> lungs...my immunologist is not very happy about our 4 cats either, but

> what to do about that?? When they are gone, we will not get more...but

> for now...who would want a diabet! ic 16 yr old cat? a 14 yr old

> hypothyroid, and a 14 yr

> old that you have to watch like an eagle because he will mark

> territory and last but not least, our Bonnie Lynn . (she needs period

> treatments of zithromax for an illness) 8 weeks of liquid zmax...runs

> about $250 for her...even if someone would give them a home, we could

> not do it..they are family..

> Its all good though, we love them as well as our dogs....but per my

> DRs...when the cats are gone, no more...

> I wish I had more info for , I can only tell her about my lung

> issues. I do plan on asking DR. W if he thinks I could try to go back

> on the mino, maybe start at 3 days a week?? and if I notice anything,

> go off??? we shall see...

> Have a good day! Debbie

> Re: rheumatic immune system

>

> Thanks for all you've done and doing. You are brave to come back from

> such an ordeal with your lungs. Glad you are doing better now. I'm

> doing well on Minocin and have done well from the get go. Could that

> have been a horrible herx? Don't know. Seems like is having the

> same symptoms again. I hope someone comes up with an answer real

> quick. Take care. Have a good night. Hugs to you too, Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: Delores....Dr W has had me

> on the AP, using minocin and clindamyacin every 8 weeks...until I had

> the reaction to whatever it was...we were never sure..I take zithromax

> occasionally and have done 8 weeks at a time of the zmax! I am sooo

> very happy you are getting in to see Dr Whitman...I think he is the

> absolute best, hands down!! I have seen many of the AP physicians and

> DR W really took an interest in me and worked very hard for me to get

> that so called " experimental " treatment that saved my life when my

> lungs were so damaged...

> I think that Dr W does that with each of his patients, he is simply a

> phenomenal physician...he does take very long vacations and is gone, I

> am not sure, maybe every other month??? but frankly, I don't care, he

> deserves any vacation time he gets.....he is always able to work me

> in, his staff is wonderful and he battled my insurance company for

> several years to get me the treatment I needed!

> I am very happy you are getting in to see him...when Pat Ganger wrote

> her book with Carol Lange, I took him a copy on my next visit...he

> told me he was very, very impressed with their book! :>)

> Hugs, Debbie

>

>

[Guest guest]

What is Dr. Whitmans first name? And what state and city is he in? I would like

to see if he has a web site. I am having a hard time finding a local doctor to

treat me. UGH. For a progressive liberal city, Portland lacks progression in

many many areas unfortunately.

Sounds like maybe we should go to vets then to rx us and monitor us!

Dolores when you write your book I would love to read it. I bet it will help

so many people.

I am still deciding on what protocol to do, cap, marshall or ap. Although I am

not completely clear on what was the AP one? What antibiotics does it use? Was

it Mino, Clid and Flagyl?

Thanks!

lynneandsantos <lynneandsantos@...> wrote:

Hi Debbie;

I am 99.9% sure they are infevtious also.Vets know a lot more about

micoplasma and how bad it is.Only doctors seem to poo-poo it.I have a

good friend who is an ALS researcher and she says that often their lab

slides get micos on them.They just throw up their hands and say they

can't work with them and go on to an other slide.She is in traditional

medecine research.If you go to the MP site there are plenty of pictures

of micoplasma and one slide in particular shows the micos inside an

immune cell.I rather think you may have mico just about everywhere but

after a time they even get into the immune cells and that makes it

extermely difficult to get rid of.Supplements to boost the immune system

would be useless at that point. Lynne

mike rosner wrote:

> Hi Debbie. Your message to Geoff about all your sick animals got me

> thinking about " The Infectious Theory " and convinces me even more that

> these diseases are not autoimmune but of an infectious origin. It

> sounds like all your animals are infected as well. Does Dr. W. believe

> in the " Infectious Theory " and therefore, " The Antibiotic Protocol? "

> Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: I was helped by many on this

> board, Socjog, rtc, Geoff, the most important thing I learned is

> giving back, which is what this board is all about....helping others.

> Without , I would not have found Dr W.....and probably would not

> have heard about the tx for my lungs{My local physicians being less

> than informed on that}....I don't consider myself brave, just

> determined to live a good life, entertain all possibilities of getting

> better and to pass it forward. I am still not convinced it was the

> mino, at the time, we had raised our pet parrot from an egg.....he was

> 13 when we had to find him a new home, which was agonizing for

> us...and him...but the dust they put out, very, very bad for

> lungs...my immunologist is not very happy about our 4 cats either, but

> what to do about that?? When they are gone, we will not get more...but

> for now...who would want a diabet! ic 16 yr old cat? a 14 yr old

> hypothyroid, and a 14 yr

> old that you have to watch like an eagle because he will mark

> territory and last but not least, our Bonnie Lynn . (she needs period

> treatments of zithromax for an illness) 8 weeks of liquid zmax...runs

> about $250 for her...even if someone would give them a home, we could

> not do it..they are family..

> Its all good though, we love them as well as our dogs....but per my

> DRs...when the cats are gone, no more...

> I wish I had more info for , I can only tell her about my lung

> issues. I do plan on asking DR. W if he thinks I could try to go back

> on the mino, maybe start at 3 days a week?? and if I notice anything,

> go off??? we shall see...

> Have a good day! Debbie

> Re: rheumatic immune system

>

> Thanks for all you've done and doing. You are brave to come back from

> such an ordeal with your lungs. Glad you are doing better now. I'm

> doing well on Minocin and have done well from the get go. Could that

> have been a horrible herx? Don't know. Seems like is having the

> same symptoms again. I hope someone comes up with an answer real

> quick. Take care. Have a good night. Hugs to you too, Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: Delores....Dr W has had me

> on the AP, using minocin and clindamyacin every 8 weeks...until I had

> the reaction to whatever it was...we were never sure..I take zithromax

> occasionally and have done 8 weeks at a time of the zmax! I am sooo

> very happy you are getting in to see Dr Whitman...I think he is the

> absolute best, hands down!! I have seen many of the AP physicians and

> DR W really took an interest in me and worked very hard for me to get

> that so called " experimental " treatment that saved my life when my

> lungs were so damaged...

> I think that Dr W does that with each of his patients, he is simply a

> phenomenal physician...he does take very long vacations and is gone, I

> am not sure, maybe every other month??? but frankly, I don't care, he

> deserves any vacation time he gets.....he is always able to work me

> in, his staff is wonderful and he battled my insurance company for

> several years to get me the treatment I needed!

> I am very happy you are getting in to see him...when Pat Ganger wrote

> her book with Carol Lange, I took him a copy on my next visit...he

> told me he was very, very impressed with their book! :>)

> Hugs, Debbie

>

>

[Guest guest]

Dolores,

I got a puppy just as I was diagnosed with RA, but before I started AP. She

soon developed sore paws and over time developed misshapen front paws. I

didn't catch on soon enough to put her on AP to avoid the damage. It hasn't

gotten worse since I have her on AP, but her front paws are irreversibly

crippled. We have has discussions about our animals coming down with

similar diseases as us, and also how frequently family members seem to have

" auto-immune " diseases more than statistically expected. Parents and kids

can share genetics, but spouses don't, and they seem to get sick as well at

higher rates.

Take care,

Ute

[Guest guest]

You are so right! In 1991, my husband was diagnosed with anticardiolipin

antibody syndrome. Guess what? Along with my scleroderma, R/A & Pulmonary

fibrosis, they also found that I have anticardiolipin antibody syndrome. Since

we are both on Coumadin (blood thinners,) we are covered. But, I read in one of

the phases of the Marshall Protocol that people on anticoagulants must be

watched carefully. So, I've made an appt. with my cardiologist for us to go

over all my meds and review the M/P together and get me started on the Benicar,

so I don't run into trouble. I plan on starting in Oct. or Nov. when the days

grow shorter and there is less daylight. I really do believe in the " Infectious

Theory " so, the A/P makes perfect sense to me. Thanks for telling me about your

pet. So sorry he/she got sick too! You're doing your best. Take

care~~~~~Dolores P.S. I may devote a chapter in my book re: pets and non

related kin who also get autoimmune disorders. With your

permission, I would like to add your story and a photo of you and your cat.

Would that be okay with you? It just gives more credence that there is a whole

lot of truth to the " Infectious Theory " . Thanks and if not, I will understand.

Bye, Dolores

Ute <nowyoga@...> wrote: Dolores,

I got a puppy just as I was diagnosed with RA, but before I started AP. She

soon developed sore paws and over time developed misshapen front paws. I

didn't catch on soon enough to put her on AP to avoid the damage. It hasn't

gotten worse since I have her on AP, but her front paws are irreversibly

crippled. We have has discussions about our animals coming down with

similar diseases as us, and also how frequently family members seem to have

" auto-immune " diseases more than statistically expected. Parents and kids

can share genetics, but spouses don't, and they seem to get sick as well at

higher rates.

Take care,

Ute

---------------------------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.

[Guest guest]

I think Dr. Whitman's first name is Hendricks. Not sure of the spelling. He

resides in New Jersey and comes to NY on Wednesday's. Not sure if he sees

patients in NY. I heard he's great. However, what I'm looking for is a doctor

who is familiar with the Marshall Protocol. I also hear that he goes out of

town quite often and I'm going to need someone who's going to be there for me.

So, I have my reservations about having him for a doc. I'll talk to him for the

first visit and if we can come to an agreement re: M/P and my care during the

course of the therapy, then I will make up my mind if he is the one I will go

with. So, far I have a few irons in the fire, but am still shopping for the

right one. I did the same kind of shopping for all my other specialists and so

far they have not let me down. As far as which protocol, that will be up to

you. Get all the facts, study them, and when you are sure which road to take,

then go for it. ~~~Good luck, Dolores

Vicki <genuinelysweet2002@...> wrote: What is Dr. Whitmans first

name? And what state and city is he in? I would like to see if he has a web

site. I am having a hard time finding a local doctor to treat me. UGH. For a

progressive liberal city, Portland lacks progression in many many areas

unfortunately.

Sounds like maybe we should go to vets then to rx us and monitor us!

Dolores when you write your book I would love to read it. I bet it will help so

many people.

I am still deciding on what protocol to do, cap, marshall or ap. Although I am

not completely clear on what was the AP one? What antibiotics does it use? Was

it Mino, Clid and Flagyl?

Thanks!

lynneandsantos <lynneandsantos@...> wrote:

Hi Debbie;

I am 99.9% sure they are infevtious also.Vets know a lot more about

micoplasma and how bad it is.Only doctors seem to poo-poo it.I have a

good friend who is an ALS researcher and she says that often their lab

slides get micos on them.They just throw up their hands and say they

can't work with them and go on to an other slide.She is in traditional

medecine research.If you go to the MP site there are plenty of pictures

of micoplasma and one slide in particular shows the micos inside an

immune cell.I rather think you may have mico just about everywhere but

after a time they even get into the immune cells and that makes it

extermely difficult to get rid of.Supplements to boost the immune system

would be useless at that point. Lynne

mike rosner wrote:

> Hi Debbie. Your message to Geoff about all your sick animals got me

> thinking about " The Infectious Theory " and convinces me even more that

> these diseases are not autoimmune but of an infectious origin. It

> sounds like all your animals are infected as well. Does Dr. W. believe

> in the " Infectious Theory " and therefore, " The Antibiotic Protocol? "

> Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: I was helped by many on this

> board, Socjog, rtc, Geoff, the most important thing I learned is

> giving back, which is what this board is all about....helping others.

> Without , I would not have found Dr W.....and probably would not

> have heard about the tx for my lungs{My local physicians being less

> than informed on that}....I don't consider myself brave, just

> determined to live a good life, entertain all possibilities of getting

> better and to pass it forward. I am still not convinced it was the

> mino, at the time, we had raised our pet parrot from an egg.....he was

> 13 when we had to find him a new home, which was agonizing for

> us...and him...but the dust they put out, very, very bad for

> lungs...my immunologist is not very happy about our 4 cats either, but

> what to do about that?? When they are gone, we will not get more...but

> for now...who would want a diabet! ic 16 yr old cat? a 14 yr old

> hypothyroid, and a 14 yr

> old that you have to watch like an eagle because he will mark

> territory and last but not least, our Bonnie Lynn . (she needs period

> treatments of zithromax for an illness) 8 weeks of liquid zmax...runs

> about $250 for her...even if someone would give them a home, we could

> not do it..they are family..

> Its all good though, we love them as well as our dogs....but per my

> DRs...when the cats are gone, no more...

> I wish I had more info for , I can only tell her about my lung

> issues. I do plan on asking DR. W if he thinks I could try to go back

> on the mino, maybe start at 3 days a week?? and if I notice anything,

> go off??? we shall see...

> Have a good day! Debbie

> Re: rheumatic immune system

>

> Thanks for all you've done and doing. You are brave to come back from

> such an ordeal with your lungs. Glad you are doing better now. I'm

> doing well on Minocin and have done well from the get go. Could that

> have been a horrible herx? Don't know. Seems like is having the

> same symptoms again. I hope someone comes up with an answer real

> quick. Take care. Have a good night. Hugs to you too, Dolores

>

> DEBBIE GIBSON <Debbullwinkle@...

> <mailto:Debbullwinkle%40fuse.net>> wrote: Delores....Dr W has had me

> on the AP, using minocin and clindamyacin every 8 weeks...until I had

> the reaction to whatever it was...we were never sure..I take zithromax

> occasionally and have done 8 weeks at a time of the zmax! I am sooo

> very happy you are getting in to see Dr Whitman...I think he is the

> absolute best, hands down!! I have seen many of the AP physicians and

> DR W really took an interest in me and worked very hard for me to get

> that so called " experimental " treatment that saved my life when my

> lungs were so damaged...

> I think that Dr W does that with each of his patients, he is simply a

> phenomenal physician...he does take very long vacations and is gone, I

> am not sure, maybe every other month??? but frankly, I don't care, he

> deserves any vacation time he gets.....he is always able to work me

> in, his staff is wonderful and he battled my insurance company for

> several years to get me the treatment I needed!

> I am very happy you are getting in to see him...when Pat Ganger wrote

> her book with Carol Lange, I took him a copy on my next visit...he

> told me he was very, very impressed with their book! :>)

> Hugs, Debbie

>

>

[Guest guest]

I tested positive for anticardiolipin twice as well as AIED twice. Makes me so

upset that our bodies are making needless antibodies for no reason. I didn't

realize I had to worry about this before beggining the Marshall protocol. Is

this mainly because of the Benicar that can cause us problems or the

antibiotics?

mike rosner <martysfolks2004@...> wrote:

You are so right! In 1991, my husband was diagnosed with

anticardiolipin antibody syndrome. Guess what? Along with my scleroderma, R/A &

Pulmonary fibrosis, they also found that I have anticardiolipin antibody

syndrome. Since we are both on Coumadin (blood thinners,) we are covered. But, I

read in one of the phases of the Marshall Protocol that people on anticoagulants

must be watched carefully. So, I've made an appt. with my cardiologist for us to

go over all my meds and review the M/P together and get me started on the

Benicar, so I don't run into trouble. I plan on starting in Oct. or Nov. when

the days grow shorter and there is less daylight. I really do believe in the

" Infectious Theory " so, the A/P makes perfect sense to me. Thanks for telling me

about your pet. So sorry he/she got sick too! You're doing your best. Take

care~~~~~Dolores P.S. I may devote a chapter in my book re: pets and non related

kin who also get autoimmune disorders. With your

permission, I would like to add your story and a photo of you and your cat.

Would that be okay with you? It just gives more credence that there is a whole

lot of truth to the " Infectious Theory " . Thanks and if not, I will understand.

Bye, Dolores

Ute <nowyoga@...> wrote: Dolores,

I got a puppy just as I was diagnosed with RA, but before I started AP. She

soon developed sore paws and over time developed misshapen front paws. I

didn't catch on soon enough to put her on AP to avoid the damage. It hasn't

gotten worse since I have her on AP, but her front paws are irreversibly

crippled. We have has discussions about our animals coming down with

similar diseases as us, and also how frequently family members seem to have

" auto-immune " diseases more than statistically expected. Parents and kids

can share genetics, but spouses don't, and they seem to get sick as well at

higher rates.

Take care,

Ute

---------------------------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.