Re: Trying to Figure It Out.

[Guest guest]

My son is only 6 and just started .  I do not know about an older child

obviously, but my son has not cared about social things either.  He never cared

about his behavior around others either (the odd things).  We have been doing

RDI for about 9 months and the focus is on relationships with others and how

things make others feel.  This has been alot of help for my son and he seems to

finally be in the beginning stages of getting these social nuances that we all

know naturally.  It is hard to believe how my son does not understand the basics

of social things, like a 2 year old or younger.  RDI takes you through the steps

of re-learning these things slowly.  My son cannot help himself in this way

either, but has to be re-taught.

 

It does not focus really on play, but on learning how to be with others, along

with long term social functioning to be able to interact in the world as

adults.  This may not be what you are looking for necessarily, but is has helped

us alot in this way already.  The website is www.rdiconnect.com.

Angie

From: Lynn Capone <ecapne@...>

Subject: Trying to Figure It Out.

Date: Tuesday, September 30, 2008, 8:02 PM

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Hi Angie.

 

I would look into anything worthwhile and I appreciate you writing.  Lynn

From: Lynn Capone <ecapne (DOT) com>

Subject: Trying to Figure It Out.

groups (DOT) com

Date: Tuesday, September 30, 2008, 8:02 PM

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Hi Lynn

My son is also 10. I know you are looking for a parent of an older child to

reply but I'm going to look to you for some guidance if that's ok.

We started biomed approach just under a year ago. Gfcf  no yeast and then went

to after Dan supplements caused major reactions.

My son is low to moderate functioning. He's a viral kid with pandas and major

food sensitivities also very behavioral. He is not purposeful in his behavior

antics, he is usually upset and aggitated from internal issues when he is on, he

can be delightful and able.

He is on valtrex, diflucan, antiiotics when needed,singulair, allegra, risperdal

and celexa (just started). My ultimate goal is to get him off the risperdal and

enable him to have better functioning. We are seeing subtle positive changes

with some ups and downs.

Can you share some of your positive experiences. It sounds like your son was

like mine at a younger age. I appreciate It.

Vicki

From: Lynn Capone <ecapne@...>

Subject: Trying to Figure It Out.

Date: Tuesday, September 30, 2008, 9:02 PM

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Hi Lynn

My son is also 10. I know you are looking for a parent of an older child to

reply but I'm going to look to you for some guidance if that's ok.

We started biomed approach just under a year ago. Gfcf  no yeast and then went

to after Dan supplements caused major reactions.

My son is low to moderate functioning. He's a viral kid with pandas and major

food sensitivities also very behavioral. He is not purposeful in his behavior

antics, he is usually upset and aggitated from internal issues when he is on, he

can be delightful and able.

He is on valtrex, diflucan, antiiotics when needed,singulair, allegra, risperdal

and celexa (just started). My ultimate goal is to get him off the risperdal and

enable him to have better functioning. We are seeing subtle positive changes

with some ups and downs.

Can you share some of your positive experiences. It sounds like your son was

like mine at a younger age. I appreciate It.

Vicki

From: Lynn Capone <ecapne@...>

Subject: Trying to Figure It Out.

Date: Tuesday, September 30, 2008, 9:02 PM

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Hi,

Have you tried other therapies? vision, neurofeedback, HANDLE. I think your

son could benefit from them.

Hailu

DESA Executive Office

DC2-2338

Tel: (212) 963-1706

E-mail: hailu@...

Lynn Capone

<ecapne@...

> To

Sent by:

groups (DOT) cc

com

Subject

Trying to Figure It Out.

30/09/2008 09:02

PM

Please respond to

groups (DOT)

com

Hi.

I have a 10 year old son who has been on Dr. Goldberg's protocol for six

years.  He started out very low functioning, behavior was a huge problem,

attention,  and had no language skills.  We also saw Dr. Fosnot one year

too and my son has improved a lot, he talks, but is not very social with

his language.  Right now,  at his age, he still does not care if he fits in

with kids in most situations, prefers to be alone, does not stim anymore

but has some odd behavior such as staring in mirrors & making faces, and

also laughing to himself out of attention and avoidance of meaningful

social contact.  I tell him that if he keeps doing that the kids are going

to make fun of him & he gets it, but can't completely help himself.

This is still great compared to where he was before when we started, but

the reason why I am writing is because I wanted to see if anyone with an

older child who was on the protocol had any similiar characteristics and I

wanted to see where they are now.

Dr. Goldberg really also does a good job of advising parents of how to fill

in this gaps and from what I hear by reading these posts, the parents that

see him work very hard at trying to help their kids.  Over the last six

years, it has been daily either working with him at home with  the products

and companies Dr. Fosnot has recommended for speech and development,

developing play, trying to get him out to make things as normal as

possible, exercise & karate, therapy appointments,  trying to stay in

constant contact with the school, etc.  Getting him better is all I seem to

try to do, but I am not sure how things are going to be for him.

At this point, I wish things were better for my son, but I am hoping that

maybe someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able

to share how your child is now if things did not meet your expectations.

Dr. Goldberg is the best thing that could have happened to my son, but

again, I am writing to see if there is any feedback because I am so worried

about him.

Thanks for your time.

Lynn

[Guest guest]

You may want to consider play facilitation therapy. I'm not sure where you

live, but it's offered at some of the Regional Centers in CA. Using an aide and

an inclusion specialist, we improved our son's social skills quite a bit in one

year. It's not where I want it to be and he is still very limited in his speech,

but he now has a desire to be with and play with other children.

Noah is 8 and started with Dr. G this past January. We've already seen

incredible improvements and hope to see more. I have three sons and all of them

see Dr. G. My middle son, Noah, is the most severely affected, with

mild/moderate autism. has Asperger's and has some of the social " quirks "

already mentioned here. Elijah, 5, just had his first appointment with Dr. and

has significant immune problems. He has some social interaction problems as

well, mostly he's too loud and invades personal space. He also has extreme

emotional mood swings and was probably headed for a bipolar disorder. We're

hoping to avoid that with the protocol.

I've heard many great stories on this list about kids who make incredible

progress. We have to push them, but they also have to be ready. It sounds as if

you're doing all the right things by getting him out there and involved. In my

experience, these kids have all that info packed inside--all those experiences

you gave them--and all of a sudden, one day it just clicks.

All the best,

Robyn

>

> From: Lynn Capone <ecapne@...>

> Subject: Trying to Figure It Out.

>

> Date: Tuesday, September 30, 2008, 8:02 PM

>

>

>

>

>

>

> Hi.

>  

> I have a 10 year old son who has been on Dr. Goldberg's

> protocol for six years.  He started out very low

> functioning, behavior was a huge problem, attention,  and

> had no language skills.  We also saw Dr. Fosnot one year

> too and my son has improved a lot, he talks, but is not

> very social with his language.  Right now,  at his age,

> he still does not care if he fits in with kids in most

> situations, prefers to be alone, does not stim anymore but

> has some odd behavior such as staring in mirrors &

> making faces, and also laughing to himself out of attention

> and avoidance of meaningful social contact.  I tell him

> that if he keeps doing that the kids are going to make fun

> of him & he gets it, but can't completely help

> himself.

>  

> This is still great compared to where he was before when we

> started, but the reason why I am writing is because I wanted

> to see if anyone with an older child who was on the protocol

> had any similiar characteristics and I wanted to see where

> they are now.

>  

> Dr. Goldberg really also does a good job of advising

> parents of how to fill in this gaps and from what I hear by

> reading these posts, the parents that see him work very hard

> at trying to help their kids.  Over the last six years, it

> has been daily either working with him at home with  the

> products and companies Dr. Fosnot has recommended for speech

> and development, developing play, trying to get him out to

> make things as normal as possible, exercise & karate,

> therapy appointments,  trying to stay in constant contact

> with the school, etc.  Getting him better is all I seem to

> try to do, but I am not sure how things are going to be for

> him.

>  

> At this point, I wish things were better for my son, but I

> am hoping that maybe someone out there has a child who at 10

> still wasn't quite right, but ended being okay when he

> or she were older.  Or if someone had a similiar experience

> with their child's development, I am asking if you would

> be able to share how your child is now if things did not

> meet your expectations.

>  

> Dr. Goldberg is the best thing that could have happened to

> my son, but again, I am writing to see if there is any

> feedback because I am so worried about him.

>  

> Thanks for your time.

>  

> Lynn

>

>

[Guest guest]

Is this ABA based? (the play facilitaion therapy)?  Is there a website for it? 

Thanks.

Angie

>

> From: Lynn Capone <ecapne (DOT) com>

> Subject: Trying to Figure It Out.

> groups (DOT) com

> Date: Tuesday, September 30, 2008, 8:02 PM

>

>

>

>

>

>

> Hi.

>  

> I have a 10 year old son who has been on Dr. Goldberg's

> protocol for six years.  He started out very low

> functioning, behavior was a huge problem, attention,  and

> had no language skills.  We also saw Dr. Fosnot one year

> too and my son has improved a lot, he talks, but is not

> very social with his language.  Right now,  at his age,

> he still does not care if he fits in with kids in most

> situations, prefers to be alone, does not stim anymore but

> has some odd behavior such as staring in mirrors &

> making faces, and also laughing to himself out of attention

> and avoidance of meaningful social contact.  I tell him

> that if he keeps doing that the kids are going to make fun

> of him & he gets it, but can't completely help

> himself.

>  

> This is still great compared to where he was before when we

> started, but the reason why I am writing is because I wanted

> to see if anyone with an older child who was on the protocol

> had any similiar characteristics and I wanted to see where

> they are now.

>  

> Dr. Goldberg really also does a good job of advising

> parents of how to fill in this gaps and from what I hear by

> reading these posts, the parents that see him work very hard

> at trying to help their kids.  Over the last six years, it

> has been daily either working with him at home with  the

> products and companies Dr. Fosnot has recommended for speech

> and development, developing play, trying to get him out to

> make things as normal as possible, exercise & karate,

> therapy appointments,  trying to stay in constant contact

> with the school, etc.  Getting him better is all I seem to

> try to do, but I am not sure how things are going to be for

> him.

>  

> At this point, I wish things were better for my son, but I

> am hoping that maybe someone out there has a child who at 10

> still wasn't quite right, but ended being okay when he

> or she were older.  Or if someone had a similiar experience

> with their child's development, I am asking if you would

> be able to share how your child is now if things did not

> meet your expectations.

>  

> Dr. Goldberg is the best thing that could have happened to

> my son, but again, I am writing to see if there is any

> feedback because I am so worried about him.

>  

> Thanks for your time.

>  

> Lynn

>

>

[Guest guest]

Dear Robyn.

 

Thank-you for your suggestion.  Right now, my son attends a playgroup that is

adult facilitated and I have been trying to work on his play skills at home

because with all the therapies that we do, it is financially difficult. I will

google what you have suggested to se what I can come up with.  I really

appreciate your response. 

 

Lynn

>

> From: Lynn Capone <ecapne (DOT) com>

> Subject: Trying to Figure It Out.

> groups (DOT) com

> Date: Tuesday, September 30, 2008, 8:02 PM

>

>

>

>

>

>

> Hi.

>  

> I have a 10 year old son who has been on Dr. Goldberg's

> protocol for six years.  He started out very low

> functioning, behavior was a huge problem, attention,  and

> had no language skills.  We also saw Dr. Fosnot one year

> too and my son has improved a lot, he talks, but is not

> very social with his language.  Right now,  at his age,

> he still does not care if he fits in with kids in most

> situations, prefers to be alone, does not stim anymore but

> has some odd behavior such as staring in mirrors &

> making faces, and also laughing to himself out of attention

> and avoidance of meaningful social contact.  I tell him

> that if he keeps doing that the kids are going to make fun

> of him & he gets it, but can't completely help

> himself.

>  

> This is still great compared to where he was before when we

> started, but the reason why I am writing is because I wanted

> to see if anyone with an older child who was on the protocol

> had any similiar characteristics and I wanted to see where

> they are now.

>  

> Dr. Goldberg really also does a good job of advising

> parents of how to fill in this gaps and from what I hear by

> reading these posts, the parents that see him work very hard

> at trying to help their kids.  Over the last six years, it

> has been daily either working with him at home with  the

> products and companies Dr. Fosnot has recommended for speech

> and development, developing play, trying to get him out to

> make things as normal as possible, exercise & karate,

> therapy appointments,  trying to stay in constant contact

> with the school, etc.  Getting him better is all I seem to

> try to do, but I am not sure how things are going to be for

> him.

>  

> At this point, I wish things were better for my son, but I

> am hoping that maybe someone out there has a child who at 10

> still wasn't quite right, but ended being okay when he

> or she were older.  Or if someone had a similiar experience

> with their child's development, I am asking if you would

> be able to share how your child is now if things did not

> meet your expectations.

>  

> Dr. Goldberg is the best thing that could have happened to

> my son, but again, I am writing to see if there is any

> feedback because I am so worried about him.

>  

> Thanks for your time.

>  

> Lynn

>

>

[Guest guest]

Hey Lynn,

Gosh - at 10, you have a long ways to go, and your child has lots of opportunity

to improve socially.  I've been '' in one form or another all my life, and

my preteen years I had no idea how to interact socially, and really didn't until

my late teens.

My son is 9 - had been w/Dr G almost 3 years, then off meds for 3 years.  He has

just started back on nizoral thru Dr , and may do some other things too. 

He is only recently really started caring about having friends.  He does pretty

well in some situations (ie riding bikes w/, playing in the dirt w/, etc), but

not great in conversation yet.  BUT ... the fact that the desire has even hit is

so wonderful.  Just last year, he coulnd't control or interpret certain things,

but lately he is way more aware.  And this is even NOT having the protocol ... I

really do believe that he had become medically stable by the time we had to stop

for $ reasons, although I don't doubt continuing meds would have been helpful as

well, and will be again. 

Anyway, I've heard that boys hitting puberty can bring about some big leaps

too.  A pediatrician here told me he has seen so many boys w/'autism' lose

symptoms with puberty that he is certain there was a connection to testosterone

(which btw nizoral I think may have some impact on).

I think our kids will have less than wonderful teen experiences, and have a

harder time thru those years emotionally, but as we keep helping them, the

opportunity for improvement all the way into adulthood should not be dismissed. 

Don't lose hope - there is lots and lots of time, and I'm always shocked by how

much my son improves from one year to the next when I look back, whereas when I

look ahead as to how far there is to go, I feel a lot of distress.  But in the

moment, right now, he's great.  I'd like perfect for him, for his brother, for

our whole family, but right now, I'm trying to be ok with now.  When my son was

3 & 4, looking at where he was, I couldn't imagine life today, and it has turned

out soooo much better than I could have imagined back then - and I'll bet you

feel the same way.  But of course I want more. And I believe we'll get it.  In

the meantime, I want to fill his world with cool fun things and experiences that

don't require other people as well - and let him take his pace with friends that

he chooses to associate with.  I still can't get over this summer how he has

spent more time playing with kids in his grandmother's neighborhood than ever.

HTH-

Trying to Figure It Out.

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Dear .

 

I do want so much better for my son.  During the early years, I was hoping he

could get out of this with some sort of normal life after his childhood. 

However, as things go along and I see him progressing in some areas, but now

that he is getting older, appearing just a bit more odd and kids recognizing it,

I want more for him.  I want him to be able to have friends, even just a few and

realize the importance of social interactions.

 

Your email and the other replies from other parents have been so helpful.  I am

not an emotional person, but honestly, all the replies that I have received

confirm that most people are really good.   I can't tell you how much I

appreciate your replies.  My son also likes riding bikes, riding in dirt, and

actually playing in dirty or muddy situations.  The real kicker here is that the

few kids that are around him, don't like to do these things!  But at least, they

are okay with him even if they are not around that much.

Thank-you again.

 

Lynn

From: <thecolemans4@...>

Subject: Re: Trying to Figure It Out.

Date: Sunday, October 5, 2008, 7:05 PM

Hey Lynn,

Gosh - at 10, you have a long ways to go, and your child has lots of opportunity

to improve socially.  I've been '' in one form or another all my life, and

my preteen years I had no idea how to interact socially, and really didn't until

my late teens.

My son is 9 - had been w/Dr G almost 3 years, then off meds for 3 years.  He has

just started back on nizoral thru Dr , and may do some other things too. 

He is only recently really started caring about having friends.  He does pretty

well in some situations (ie riding bikes w/, playing in the dirt w/, etc), but

not great in conversation yet.  BUT ... the fact that the desire has even hit is

so wonderful.  Just last year, he coulnd't control or interpret certain things,

but lately he is way more aware.  And this is even NOT having the protocol ... I

really do believe that he had become medically stable by the time we had to stop

for $ reasons, although I don't doubt continuing meds would have been helpful as

well, and will be again. 

Anyway, I've heard that boys hitting puberty can bring about some big leaps

too.  A pediatrician here told me he has seen so many boys w/'autism' lose

symptoms with puberty that he is certain there was a connection to testosterone

(which btw nizoral I think may have some impact on).

I think our kids will have less than wonderful teen experiences, and have a

harder time thru those years emotionally, but as we keep helping them, the

opportunity for improvement all the way into adulthood should not be dismissed. 

Don't lose hope - there is lots and lots of time, and I'm always shocked by how

much my son improves from one year to the next when I look back, whereas when I

look ahead as to how far there is to go, I feel a lot of distress.  But in the

moment, right now, he's great.  I'd like perfect for him, for his brother, for

our whole family, but right now, I'm trying to be ok with now.  When my son was

3 & 4, looking at where he was, I couldn't imagine life today, and it has turned

out soooo much better than I could have imagined back then - and I'll bet you

feel the same way.  But of course I want more. And I believe we'll get it.  In

the meantime, I want to fill his world with cool fun things and experiences that

don't require other people as well - and let him take his pace with friends that

he chooses to associate with.  I still can't get over this summer how he has

spent more time playing with kids in his grandmother' s neighborhood than ever.

HTH-

Trying to Figure It Out.

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six years. 

He started out very low functioning, behavior was a huge problem, attention,

 and had no language skills.  We also saw Dr. Fosnot one year too and my son has

improved a lot, he talks, but is not very social with his language.  Right now,

 at his age, he still does not care if he fits in with kids in most situations,

prefers to be alone, does not stim anymore but has some odd behavior such as

staring in mirrors & making faces, and also laughing to himself out of attention

and avoidance of meaningful social contact.  I tell him that if he keeps doing

that the kids are going to make fun of him & he gets it, but can't completely

help himself.

 

This is still great compared to where he was before when we started, but the

reason why I am writing is because I wanted to see if anyone with an older child

who was on the protocol had any similiar characteristics and I wanted to see

where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc.  Getting

him better is all I seem to try to do, but I am not sure how things are going to

be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your time.

 

Lynn

[Guest guest]

Thank you for this !  I also have an 11 year old boy with Dr. Goldberg

for a year and a half now.  I refuse to believe that he will not get better!!

 I never respond to these e-mails, however I read all of them.  I felt

compelled to thank you for your response.  I am a parent who suffers quietly,

and worries about my son every single day when I send him to school.  I am at

the point where I have got to stop the insanity of all of this!  I need to be

the voice for us all to get the appropriate " label " and help these kids!

Sincerely,

Sue Muncy

Re: Trying to Figure It Out.

Hey Lynn,

Gosh - at 10, you have a long ways to go, and your child has lots of opportunity

to improve socially.  I've been '' in one form or another all my life, and

my preteen years I had no idea how to interact socially, and really didn't until

my late teens.

My son is 9 - had been w/Dr G almost 3 years, then off meds for 3 years.  He

has just started back on nizoral thru Dr , and may do some other things

too.  He is only recently really started caring about having friends.  He does

pretty well in some situations (ie riding bikes w/, playing in the dirt w/,

etc), but not great in=2

0conversation yet.  BUT ... the fact that the desire has even hit is so

wonderful.  Just last year, he coulnd't control or interpret certain things,

but lately he is way more aware.  And this is even NOT having the protocol ...

I really do believe that he had become medically stable by the time we had to

stop for $ reasons, although I don't doubt continuing meds would have been

helpful as well, and will be again. 

Anyway, I've heard that boys hitting puberty can bring about some big leaps

too.  A pediatrician here told me he has seen so many boys w/'autism' lose

symptoms with puberty that he is certain there was a connection to testosterone

(which btw nizoral I think may have some impact on).

I think our kids will have less than wonderful teen experiences, and have a

harder time thru those years emotionally, but as we keep helping them, the

opportunity for improvement all the way into adulthood should not be

dismissed. 

Don't lose hope - there is lots and lots of time, and I'm always shocked by how

much my son improves from one year to the next when I look back, whereas when I

look ahead as to how far there is to go, I feel a lot of distress.  But in the

moment, right now, he's great.  I'd like perfect for him, for his brother, for

our whole family, but right now, I'm trying to be ok with now.  When my son was

3 & 4, looking at where he was, I couldn't imagine life today, and it has turned

out soooo much better than I could

have imagined back then - and I'll bet you feel the same way.  But of course I

want more. And I believe we'll get it.  In the meantime, I want to fill his

world with cool fun things and experiences that don't require other people as

well - and let him take his pace with friends that he chooses to associate

with.  I still can't get over this summer how he has spent more time playing

with kids in his grandmother's neighborhood than ever.

HTH-

Trying to Figure It Out.

Hi.

 

I have a 10 year old son who has been on Dr. Goldberg's protocol for six

years.  He started out very low functioning, behavior was a huge problem,

attention,  and had no language skills.  We also saw Dr. Fosnot one year

too and my son has improved a lot, he talks, but is not very social with his

language.  Right now,  at his age, he still does not care if he fits in with

kids in most situations, prefers to be alone, does not stim anymore but has some

odd behavior such as staring in mirrors & making faces, and also laughing to

himself out of attention and avoidance of meaningful social contact.  I tell

him that if he keeps doing that the kids are going to make fun of him & he gets

it, but can't completely help himself.

 

This is still great compared to where he w

as before when we started, but the reason why I am writing is because I wanted

to see if anyone with an older child who was on the protocol had any similiar

characteristics and I wanted to see where they are now.

 

Dr. Goldberg really also does a good job of advising parents of how to fill in

this gaps and from what I hear by reading these posts, the parents that see him

work very hard at trying to help their kids.  Over the last six years, it has

been daily either working with him at home with  the products and companies Dr.

Fosnot has recommended for speech and development, developing play, trying to

get him out to make things as normal as possible, exercise & karate, therapy

appointments,  trying to stay in constant contact with the school, etc. 

Getting him better is all I seem to try to do, but I am not sure how things are

going to be for him.

 

At this point, I wish things were better for my son, but I am hoping that maybe

someone out there has a child who at 10 still wasn't quite right, but

ended being okay when he or she were older.  Or if someone had a similiar

experience with their child's development, I am asking if you would be able to

share how your child is now if things did not meet your expectations.

 

Dr. Goldberg is the best thing that could have happened to my son, but again, I

am writing to see if there is any feedback because I am so worried about him.

 

Thanks for your tim

e.

 

Lynn