Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 My son is 31/2years old and has been on the protocol for six months. He has had great improvements since we started. He is verbal and does talk, sometimes in sentences. I am concerned about these wierd blinking episodes he has and it seems like they occur most frequently at night when I'm tucking him in or prior to bed time. He also has the wierd blinking episodes occassionally on the potty. Sometimes if were laying together on his bed and I blink back at him he'll realize I'm mimicking him and will then return the blinks to me. But the recprocal blinking is rare. He did have a sleep deprived EEG in Feb and it came back normal.. Is this a stimming behavior, a tick, or something uncontrollable. Sometimes when he has these episodes it seems like he drifts back into his own world. anyone have any thoughts? Thanks for listening, From: angie huiz <angiehuiz@...> Subject: Re: Trying to Figure It Out. Date: Thursday, October 2, 2008, 8:52 PM Is this ABA based? (the play facilitaion therapy)? Is there a website for it? Thanks. Angie > > From: Lynn Capone <ecapne (DOT) com> > Subject: Trying to Figure It Out. > groups (DOT) com > Date: Tuesday, September 30, 2008, 8:02 PM > > > > > > > Hi. > > I have a 10 year old son who has been on Dr. Goldberg's > protocol for six years. He started out very low > functioning, behavior was a huge problem, attention, and > had no language skills. We also saw Dr. Fosnot one year > too and my son has improved a lot, he talks, but is not > very social with his language. Right now, at his age, > he still does not care if he fits in with kids in most > situations, prefers to be alone, does not stim anymore but > has some odd behavior such as staring in mirrors & > making faces, and also laughing to himself out of attention > and avoidance of meaningful social contact. I tell him > that if he keeps doing that the kids are going to make fun > of him & he gets it, but can't completely help > himself. > > This is still great compared to where he was before when we > started, but the reason why I am writing is because I wanted > to see if anyone with an older child who was on the protocol > had any similiar characteristics and I wanted to see where > they are now. > > Dr. Goldberg really also does a good job of advising > parents of how to fill in this gaps and from what I hear by > reading these posts, the parents that see him work very hard > at trying to help their kids. Over the last six years, it > has been daily either working with him at home with the > products and companies Dr. Fosnot has recommended for speech > and development, developing play, trying to get him out to > make things as normal as possible, exercise & karate, > therapy appointments, trying to stay in constant contact > with the school, etc. Getting him better is all I seem to > try to do, but I am not sure how things are going to be for > him. > > At this point, I wish things were better for my son, but I > am hoping that maybe someone out there has a child who at 10 > still wasn't quite right, but ended being okay when he > or she were older. Or if someone had a similiar experience > with their child's development, I am asking if you would > be able to share how your child is now if things did not > meet your expectations. > > Dr. Goldberg is the best thing that could have happened to > my son, but again, I am writing to see if there is any > feedback because I am so worried about him. > > Thanks for your time. > > Lynn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Hey - It sounds like a mild tic. A lot of tics go away after time on the protocol, or just with age too. Rapid eye-blinking can also be a side effect of some anti-psychotic meds (nothing Dr G would have prescribed), and maybe a couple of anti-seizure drugs. I'd make sure his eyes aren't dry (I assume they're not red either) from allergies or allergy meds, though - that could make you blink, tightly closing your eyes... But because you described it as wierd, I think 'tic' ... My son has vocal tics that come and go, and I've had tics come and go, including the blinking thing. You want to rule out any bacterial infections, but if they're common, it's just one of those little things that'll go away on it's own and really isn't something to worry about (assuming it is a tic, which I really don't know lol) .... and I wouldn't point it out to him much. One other thing - it could be just a sensory behavior too, which would not be particularly worrisome. HTH- Trying to Figure It Out. > groups (DOT) com > Date: Tuesday, September 30, 2008, 8:02 PM > > > > > > > Hi. > > I have a 10 year old son who has been on Dr. Goldberg's > protocol for six years. He started out very low > functioning, behavior was a huge problem, attention, and > had no language skills. We also saw Dr. Fosnot one year > too and my son has improved a lot, he talks, but is not > very social with his language. Right now, at his age, > he still does not care if he fits in with kids in most > situations, prefers to be alone, does not stim anymore but > has some odd behavior such as staring in mirrors & > making faces, and also laughing to himself out of attention > and avoidance of meaningful social contact. I tell him > that if he keeps doing that the kids are going to make fun > of him & he gets it, but can't completely help > himself. > > This is still great compared to where he was before when we > started, but the reason why I am writing is because I wanted > to see if anyone with an older child who was on the protocol > had any similiar characteristics and I wanted to see where > they are now. > > Dr. Goldberg really also does a good job of advising > parents of how to fill in this gaps and from what I hear by > reading these posts, the parents that see him work very hard > at trying to help their kids. Over the last six years, it > has been daily either working with him at home with the > products and companies Dr. Fosnot has recommended for speech > and development, developing play, trying to get him out to > make things as normal as possible, exercise & karate, > therapy appointments, trying to stay in constant contact > with the school, etc. Getting him better is all I seem to > try to do, but I am not sure how things are going to be for > him. > > At this point, I wish things were better for my son, but I > am hoping that maybe someone out there has a child who at 10 > still wasn't quite right, but ended being okay when he > or she were older. Or if someone had a similiar experience > with their child's development, I am asking if you would > be able to share how your child is now if things did not > meet your expectations. > > Dr. Goldberg is the best thing that could have happened to > my son, but again, I am writing to see if there is any > feedback because I am so worried about him. > > Thanks for your time. > > Lynn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 My son does a lot of blinking and it does disappear when we we use eye drops to moisturize his eyes. Robyn > > > > From: Lynn Capone <ecapne (DOT) com> > > Subject: Trying to Figure It Out. > > groups (DOT) com > > Date: Tuesday, September 30, 2008, 8:02 PM > > > > > > > > > > > > > > Hi. > > > > I have a 10 year old son who has been on Dr. > Goldberg's > > protocol for six years. He started out very low > > functioning, behavior was a huge problem, attention, > and > > had no language skills. We also saw Dr. Fosnot one > year > > too and my son has improved a lot, he talks, but is > not > > very social with his language. Right now, at his > age, > > he still does not care if he fits in with kids in most > > situations, prefers to be alone, does not stim anymore > but > > has some odd behavior such as staring in mirrors & > > making faces, and also laughing to himself out of > attention > > and avoidance of meaningful social contact. I tell > him > > that if he keeps doing that the kids are going to make > fun > > of him & he gets it, but can't completely help > > himself. > > > > This is still great compared to where he was before > when we > > started, but the reason why I am writing is because I > wanted > > to see if anyone with an older child who was on the > protocol > > had any similiar characteristics and I wanted to see > where > > they are now. > > > > Dr. Goldberg really also does a good job of advising > > parents of how to fill in this gaps and from what I > hear by > > reading these posts, the parents that see him work > very hard > > at trying to help their kids. Over the last six > years, it > > has been daily either working with him at home with > the > > products and companies Dr. Fosnot has recommended for > speech > > and development, developing play, trying to get him > out to > > make things as normal as possible, exercise & > karate, > > therapy appointments, trying to stay in constant > contact > > with the school, etc. Getting him better is all I > seem to > > try to do, but I am not sure how things are going to > be for > > him. > > > > At this point, I wish things were better for my son, > but I > > am hoping that maybe someone out there has a child who > at 10 > > still wasn't quite right, but ended being > okay when he > > or she were older. Or if someone had a similiar > experience > > with their child's development, I am asking if you > would > > be able to share how your child is now if things did > not > > meet your expectations. > > > > Dr. Goldberg is the best thing that could have > happened to > > my son, but again, I am writing to see if there is any > > feedback because I am so worried about him. > > > > Thanks for your time. > > > > Lynn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 My son's blinking were usually " tics " for him... Since he's been taking biotin and mindlinx his eye blinking has all but disappeared. Best of luck, Rhonda www.RhondaSpellman.com Robyn & Greg Coggins wrote: > > My son does a lot of blinking and it does disappear when we we use eye > drops to moisturize his eyes. > > Robyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Thanks everyone for the info!! I will try the eye drops if that doesn't work, than probably a tick and he will hopefully grow out of it!! (hopefully) Thanks, > > > > From: Lynn Capone <ecapne (DOT) com> > > Subject: Trying to Figure It Out. > > groups (DOT) com > > Date: Tuesday, September 30, 2008, 8:02 PM > > > > > > > > > > > > > > Hi. > > > > I have a 10 year old son who has been on Dr. > Goldberg's > > protocol for six years. He started out very low > > functioning, behavior was a huge problem, attention, > and > > had no language skills. We also saw Dr. Fosnot one > year > > too and my son has improved a lot, he talks, but is > not > > very social with his language. Right now, at his > age, > > he still does not care if he fits in with kids in most > > situations, prefers to be alone, does not stim anymore > but > > has some odd behavior such as staring in mirrors & > > making faces, and also laughing to himself out of > attention > > and avoidance of meaningful social contact. I tell > him > > that if he keeps doing that the kids are going to make > fun > > of him & he gets it, but can't completely help > > himself. > > > > This is still great compared to where he was before > when we > > started, but the reason why I am writing is because I > wanted > > to see if anyone with an older child who was on the > protocol > > had any similiar characteristics and I wanted to see > where > > they are now. > > > > Dr. Goldberg really also does a good job of advising > > parents of how to fill in this gaps and from what I > hear by > > reading these posts, the parents that see him work > very hard > > at trying to help their kids. Over the last six > years, it > > has been daily either working with him at home with > the > > products and companies Dr. Fosnot has recommended for > speech > > and development, developing play, trying to get him > out to > > make things as normal as possible, exercise & > karate, > > therapy appointments, trying to stay in constant > contact > > with the school, etc. Getting him better is all I > seem to > > try to do, but I am not sure how things are going to > be for > > him. > > > > At this point, I wish things were better for my son, > but I > > am hoping that maybe someone out there has a child who > at 10 > > still wasn't quite right, but ended being > okay when he > > or she were older. Or if someone had a similiar > experience > > with their child's development, I am asking if you > would > > be able to share how your child is now if things did > not > > meet your expectations. > > > > Dr. Goldberg is the best thing that could have > happened to > > my son, but again, I am writing to see if there is any > > feedback because I am so worried about him. > > > > Thanks for your time. > > > > Lynn > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.