myoclonic jerks

[Guest guest]

gidday crew

I was wondering if anyone in the group has had experience with

myoclonic jerks developing in puberty. My boy, Guy, has developed

these at 11.8 yrs. They can tend to go in a pattern, thighs-arms hips

back and neck. He can feel them as he goes off to sleep, continue

through out the night and upon waking. He has now started to feel

them occasionally through the day. He has been seizure free up to

this point. But that is not to say that he isn't currently having

them.

We are going in for a short sleep eeg today. I realise that he could

have myoclonic juvenile epilepsy or they could just be benign..the

other conditions the neurologist is eliminating are just too scary

for me to consider.

Do the children on the nids protocol avoid developing this... I

understand that it is not uncommon for people with his diagnosis

(PDDNOS) to develop this condition.(MJE)

This is a new aspect for me and I was hoping that I could pick you

brains on the effects these jerks can have on behaviour and

medication used.

Your knowledge and experience is highly valued as from years of

experience I have found the members of this group to be well grounded

and quite savvy in their approach to treatments.

Thanks Golding