Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 Thanks , Why he does't accepted patients who have been true DAN protocol? Is he thinking that DAN protocol is hurting our childs? Anyway, I'm glad that he's changed his idea. It's difficult to find right protocol at first time. Muge ________________________________ From: [mailto: ] On Behalf Of Sent: Thursday, July 24, 2008 5:20 AM Subject: Re: Does Dr Goldberg accept oversees patients? Hi - Yes, Dr Goldberg does see oversees patients. It could be worth the trip. I'm not sure but I do think he's currently accepting patients who have been thru the DAN! protocol - for a while, he was not taking kids who had been thru chelation and maybe HBOT? Not sure. I would just check with his office to be sure. Maybe others who have had the same treatments can share how much benefit they received by switching to the treatment? HTH- Does Dr Goldberg accept oversees patients? Hi from new member, We are from Istanbul,Turkey. I think that my son is very typical example of . We have a long story: My son Deniz is 9 years old now. His immune system is weak since his birth, upper respiratory infections started when he was only 1 month age. His first autistic behaviours started just after recurrent coxsackie infections (hand-foot-month disease) at 2,5 years old. His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, but had mood swings, ocd, anxiety and stereotypical behaviours. Then recovered temporary 'by coincidence' at 4,5 years old after a very bad dysentery infection treated with several gut antibiotics and 6 months later a tonsillit operation. Then he went to a kindergarten during 2 years and started primary school at 7 years old without problem. He had still some issues, had still too much upper respiratory infections, had ADD , had some stereotypical behaviours appeared just before infections and disappeared after infections. He had a secondary regression at 7,5 years old, a sudden personality change: refused everything, reading, writing, painting, playing with other children., started to tell strange stories. His psychologist said with happiness that his imagination is developing! But he was hallucinating , and than 1 week later come home crying, completely confused. It was 2 month after his prevenar vaccination and just 15 day after his DPTa vaccination. Also he was on ritalin since 3-4 weeks. Dr thought that it's a side effect of ritalin, but now I believe in it's because of vaccinations. Then , tried several drugs during next months, he wasn't hallucinating anymore but he became deeply autistic: has sharp mood swings, steaming all day, talking himself, singing himself .... Every dr had different diagnosis: bipolar disorder, childhood schizophrenia, just autism etc... Then we learned about biomedical approach, stopped all psychotic drugs which were not helping at all. We did several intervention : supplements, chelation (IV DPMS + IV EDTA and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, antifungal treatment. Some of them had temporary (2-3 weeks) positive effects, (HBOT and antifungal), but he regressed again. We did MRI and EEG just after regression which were clear. About 1 year ago we did SPECT showed some mild hypoperfussion at fronto-temporal lobes. We did several tests : amino acides, organic acides , comprehensive stool , provoked toxic metal tests(no more mercury, still some lead), french porphyrine test (shows mild mercury toxification) , Yasko nutrigenomics test (some genetic defects on methylation) , viral-bacterial titers (no strep ,no Herpes, only high coxsackie titers), IgG food allergy (no any food sensitivity) ...etc.. We only have 1 DAN dr here, and he doesn't support antiviral therapy, so we found a DAN dr form USA supporting via phone consultation and started to Valtrex with big hope. He's on valtrex and nizoral since 1,5 month and he had some die-off but he doesn't have still significant gains. Do you think that Dr. Goldberg can help my son ? I will try to arrange an appointment. Thanks for reading. Muge mother of Deniz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Dr. G once told me that working with some kids that have been on a true DAN protocol can be difficult because their immune systems have really been wrecked (wrecked is my word...I forget his exact term). It's my understanding that he does believe DAN is hurting at least some kids. Kristy Re: Does Dr Goldberg accept oversees patients? Hi - Yes, Dr Goldberg does see oversees patients. It could be worth the trip. I'm not sure but I do think he's currently accepting patients who have been thru the DAN! protocol - for a while, he was not taking kids who had been thru chelation and maybe HBOT? Not sure. I would just check with his office to be sure. Maybe others who have had the same treatments can share how much benefit they received by switching to the treatment? HTH- Does Dr Goldberg accept oversees patients? Hi from new member, We are from Istanbul,Turkey. I think that my son is very typical example of . We have a long story: My son Deniz is 9 years old now. His immune system is weak since his birth, upper respiratory infections started when he was only 1 month age. His first autistic behaviours started just after recurrent coxsackie infections (hand-foot-month disease) at 2,5 years old. His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, but had mood swings, ocd, anxiety and stereotypical behaviours. Then recovered temporary 'by coincidence' at 4,5 years old after a very bad dysentery infection treated with several gut antibiotics and 6 months later a tonsillit operation. Then he went to a kindergarten during 2 years and started primary school at 7 years old without problem. He had still some issues, had still too much upper respiratory infections, had ADD , had some stereotypical behaviours appeared just before infections and disappeared after infections. He had a secondary regression at 7,5 years old, a sudden personality change: refused everything, reading, writing, painting, playing with other children., started to tell strange stories. His psychologist said with happiness that his imagination is developing! But he was hallucinating , and than 1 week later come home crying, completely confused. It was 2 month after his prevenar vaccination and just 15 day after his DPTa vaccination. Also he was on ritalin since 3-4 weeks. Dr thought that it's a side effect of ritalin, but now I believe in it's because of vaccinations. Then , tried several drugs during next months, he wasn't hallucinating anymore but he became deeply autistic: has sharp mood swings, steaming all day, talking himself, singing himself .... Every dr had different diagnosis: bipolar disorder, childhood schizophrenia, just autism etc... Then we learned about biomedical approach, stopped all psychotic drugs which were not helping at all. We did several intervention : supplements, chelation (IV DPMS + IV EDTA and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, antifungal treatment. Some of them had temporary (2-3 weeks) positive effects, (HBOT and antifungal), but he regressed again. We did MRI and EEG just after regression which were clear. About 1 year ago we did SPECT showed some mild hypoperfussion at fronto-temporal lobes. We did several tests : amino acides, organic acides , comprehensive stool , provoked toxic metal tests(no more mercury, still some lead), french porphyrine test (shows mild mercury toxification) , Yasko nutrigenomics test (some genetic defects on methylation) , viral-bacterial titers (no strep ,no Herpes, only high coxsackie titers), IgG food allergy (no any food sensitivity) ...etc.. We only have 1 DAN dr here, and he doesn't support antiviral therapy, so we found a DAN dr form USA supporting via phone consultation and started to Valtrex with big hope. He's on valtrex and nizoral since 1,5 month and he had some die-off but he doesn't have still significant gains. Do you think that Dr. Goldberg can help my son ? I will try to arrange an appointment. Thanks for reading. Muge mother of Deniz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 My son became Dr. Goldberg's patient in April 2008. We told Dr. Goldberg that we did chelation and HBOT and even though he said that this could have hurt my son he didn't reject him. Thanks, > > Dr. G once told me that working with some kids that have been on a true DAN > protocol can be difficult because their immune systems have really been > wrecked (wrecked is my word...I forget his exact term). It's my > understanding that he does believe DAN is hurting at least some kids. > > Kristy > > Re: Does Dr Goldberg accept oversees patients? > > > > Hi - > Yes, Dr Goldberg does see oversees patients. It could be worth the > trip. I'm not sure but I do think he's currently accepting patients who > have been thru the DAN! protocol - for a while, he was not taking kids > who had been thru chelation and maybe HBOT? Not sure. I would just > check with his office to be sure. Maybe others who have had the same > treatments can share how much benefit they received by switching to the > treatment? > HTH- > > > Does Dr Goldberg accept oversees patients? > > Hi from new member, > We are from Istanbul,Turkey. > I think that my son is very typical example of . We have a long > story: > My son Deniz is 9 years old now. > His immune system is weak since his birth, upper respiratory > infections started when he was only 1 month age. > His first autistic behaviours started just after recurrent coxsackie > infections (hand-foot-month disease) at 2,5 years old. > His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, > but > had mood swings, ocd, anxiety and stereotypical behaviours. > Then recovered temporary 'by coincidence' at 4,5 years old after a very > bad dysentery infection treated with several gut antibiotics and 6 > months > later a tonsillit operation. > Then he went to a kindergarten during 2 years and started primary school > at > 7 years old without problem. > He had still some issues, had still too much upper respiratory > infections, > had ADD , had some stereotypical behaviours appeared just before > infections and disappeared after infections. > He had a secondary regression at 7,5 years old, a sudden personality > change: refused everything, reading, writing, painting, playing with > other > children., started to tell strange stories. His psychologist said with > happiness that his imagination is developing! But he was hallucinating , > and than 1 week later come home crying, completely confused. > It was 2 month after his prevenar vaccination and just 15 day after his > DPTa vaccination. Also he was on ritalin since 3-4 weeks. > Dr thought that it's a side effect of ritalin, but now I believe in it's > because of vaccinations. > Then , tried several drugs during next months, he wasn't hallucinating > anymore but he became deeply autistic: has sharp mood swings, steaming > all > day, talking himself, singing himself .... > Every dr had different diagnosis: bipolar disorder, childhood > schizophrenia, > just autism etc... > Then we learned about biomedical approach, stopped all psychotic drugs > which were not helping at all. > We did several intervention : supplements, chelation (IV DPMS + IV EDTA > and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, > antifungal treatment. Some of them had temporary (2-3 weeks) positive > effects, (HBOT and antifungal), but he regressed again. > > We did MRI and EEG just after regression which were clear. About 1 year > ago we did SPECT showed some mild hypoperfussion at fronto-temporal > lobes. > > We did several tests : amino acides, organic acides , comprehensive > stool , > provoked toxic metal tests(no more mercury, still some lead), french > porphyrine test (shows mild mercury toxification) , Yasko nutrigenomics > test > (some genetic defects on methylation) , viral-bacterial titers (no strep > ,no Herpes, only high coxsackie titers), IgG food allergy (no any food > sensitivity) ...etc.. > We only have 1 DAN dr here, and he doesn't support antiviral therapy, so > we > found a DAN dr form USA supporting via phone consultation > and started to Valtrex with big hope. He's on valtrex and nizoral since > 1,5 month and he had some die-off but he doesn't have still significant > gains. > > Do you think that Dr. Goldberg can help my son ? I will try to arrange > an > appointment. > Thanks for reading. > > Muge > > mother of Deniz. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 He believes they are hurting *all* the kids at this point. Cheryl ~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more! http://astore.amazon.com/grystai-20 ~Check out my blog: http://www.gryffins-tail.blogspot.com/ On Jul 25, 2008, at 8:32 AM, Kristy Nardini wrote: > Dr. G once told me that working with some kids that have been on a > true DAN > protocol can be difficult because their immune systems have really > been > wrecked (wrecked is my word...I forget his exact term). It's my > understanding that he does believe DAN is hurting at least some kids. > > Kristy > > Re: Does Dr Goldberg accept oversees patients? > > > > Hi - > Yes, Dr Goldberg does see oversees patients. It could be worth the > trip. I'm not sure but I do think he's currently accepting > patients who > have been thru the DAN! protocol - for a while, he was not taking kids > who had been thru chelation and maybe HBOT? Not sure. I would just > check with his office to be sure. Maybe others who have had the same > treatments can share how much benefit they received by switching to > the > treatment? > HTH- > > > Does Dr Goldberg accept oversees patients? > > Hi from new member, > We are from Istanbul,Turkey. > I think that my son is very typical example of . We have a long > story: > My son Deniz is 9 years old now. > His immune system is weak since his birth, upper respiratory > infections started when he was only 1 month age. > His first autistic behaviours started just after recurrent coxsackie > infections (hand-foot-month disease) at 2,5 years old. > His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years > old, > but > had mood swings, ocd, anxiety and stereotypical behaviours. > Then recovered temporary 'by coincidence' at 4,5 years old after a > very > bad dysentery infection treated with several gut antibiotics and 6 > months > later a tonsillit operation. > Then he went to a kindergarten during 2 years and started primary > school > at > 7 years old without problem. > He had still some issues, had still too much upper respiratory > infections, > had ADD , had some stereotypical behaviours appeared just before > infections and disappeared after infections. > He had a secondary regression at 7,5 years old, a sudden personality > change: refused everything, reading, writing, painting, playing with > other > children., started to tell strange stories. His psychologist said with > happiness that his imagination is developing! But he was > hallucinating , > and than 1 week later come home crying, completely confused. > It was 2 month after his prevenar vaccination and just 15 day after > his > DPTa vaccination. Also he was on ritalin since 3-4 weeks. > Dr thought that it's a side effect of ritalin, but now I believe in > it's > because of vaccinations. > Then , tried several drugs during next months, he wasn't hallucinating > anymore but he became deeply autistic: has sharp mood swings, steaming > all > day, talking himself, singing himself .... > Every dr had different diagnosis: bipolar disorder, childhood > schizophrenia, > just autism etc... > Then we learned about biomedical approach, stopped all psychotic drugs > which were not helping at all. > We did several intervention : supplements, chelation (IV DPMS + IV > EDTA > and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, > antifungal treatment. Some of them had temporary (2-3 weeks) positive > effects, (HBOT and antifungal), but he regressed again. > > We did MRI and EEG just after regression which were clear. About 1 > year > ago we did SPECT showed some mild hypoperfussion at fronto-temporal > lobes. > > We did several tests : amino acides, organic acides , comprehensive > stool , > provoked toxic metal tests(no more mercury, still some lead), french > porphyrine test (shows mild mercury toxification) , Yasko > nutrigenomics > test > (some genetic defects on methylation) , viral-bacterial titers (no > strep > ,no Herpes, only high coxsackie titers), IgG food allergy (no any food > sensitivity) ...etc.. > We only have 1 DAN dr here, and he doesn't support antiviral > therapy, so > we > found a DAN dr form USA supporting via phone consultation > and started to Valtrex with big hope. He's on valtrex and nizoral > since > 1,5 month and he had some die-off but he doesn't have still > significant > gains. > > Do you think that Dr. Goldberg can help my son ? I will try to arrange > an > appointment. > Thanks for reading. > > Muge > > mother of Deniz. > > Quote Link to comment Share on other sites More sharing options...
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