Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Hi from new member, We are from Istanbul,Turkey. I think that my son is very typical example of . We have a long story: My son Deniz is 9 years old now. His immune system is weak since his birth, upper respiratory infections started when he was only 1 month age. His first autistic behaviours started just after recurrent coxsackie infections (hand-foot-month disease) at 2,5 years old. His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, but had mood swings, ocd, anxiety and stereotypical behaviours. Then recovered temporary 'by coincidence' at 4,5 years old after a very bad dysentery infection treated with several gut antibiotics and 6 months later a tonsillit operation. Then he went to a kindergarten during 2 years and started primary school at 7 years old without problem. He had still some issues, had still too much upper respiratory infections, had ADD , had some stereotypical behaviours appeared just before infections and disappeared after infections. He had a secondary regression at 7,5 years old, a sudden personality change: refused everything, reading, writing, painting, playing with other children., started to tell strange stories. His psychologist said with happiness that his imagination is developing! But he was hallucinating , and than 1 week later come home crying, completely confused. It was 2 month after his prevenar vaccination and just 15 day after his DPTa vaccination. Also he was on ritalin since 3-4 weeks. Dr thought that it's a side effect of ritalin, but now I believe in it's because of vaccinations. Then , tried several drugs during next months, he wasn't hallucinating anymore but he became deeply autistic: has sharp mood swings, steaming all day, talking himself, singing himself .... Every dr had different diagnosis: bipolar disorder, childhood schizophrenia, just autism etc... Then we learned about biomedical approach, stopped all psychotic drugs which were not helping at all. We did several intervention : supplements, chelation (IV DPMS + IV EDTA and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, antifungal treatment. Some of them had temporary (2-3 weeks) positive effects, (HBOT and antifungal), but he regressed again. We did MRI and EEG just after regression which were clear. About 1 year ago we did SPECT showed some mild hypoperfussion at fronto-temporal lobes. We did several tests : amino acides, organic acides , comprehensive stool , provoked toxic metal tests(no more mercury, still some lead), french porphyrine test (shows mild mercury toxification), Yasko nutrigenomics test (some genetic defects on methylation) , viral-bacterial titers (no strep ,no Herpes, only high coxsackie titers), IgG food allergy (no any food sensitivity)...etc.. We only have 1 DAN dr here, and he doesn't support antiviral therapy, so we found a DAN dr form USA supporting via phone consultation and started to Valtrex with big hope. He's on valtrex and nizoral since 1,5 month and he had some die-off but he doesn't have still significant gains. Do you think that Dr. Goldberg can help my son ? I will try to arrange an appointment. Thanks for reading. Muge mother of Deniz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Hi - Yes, Dr Goldberg does see oversees patients. It could be worth the trip. I'm not sure but I do think he's currently accepting patients who have been thru the DAN! protocol - for a while, he was not taking kids who had been thru chelation and maybe HBOT? Not sure. I would just check with his office to be sure. Maybe others who have had the same treatments can share how much benefit they received by switching to the treatment? HTH- Does Dr Goldberg accept oversees patients? Hi from new member, We are from Istanbul,Turkey. I think that my son is very typical example of . We have a long story: My son Deniz is 9 years old now. His immune system is weak since his birth, upper respiratory infections started when he was only 1 month age. His first autistic behaviours started just after recurrent coxsackie infections (hand-foot-month disease) at 2,5 years old. His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, but had mood swings, ocd, anxiety and stereotypical behaviours. Then recovered temporary 'by coincidence' at 4,5 years old after a very bad dysentery infection treated with several gut antibiotics and 6 months later a tonsillit operation. Then he went to a kindergarten during 2 years and started primary school at 7 years old without problem. He had still some issues, had still too much upper respiratory infections, had ADD , had some stereotypical behaviours appeared just before infections and disappeared after infections. He had a secondary regression at 7,5 years old, a sudden personality change: refused everything, reading, writing, painting, playing with other children., started to tell strange stories. His psychologist said with happiness that his imagination is developing! But he was hallucinating , and than 1 week later come home crying, completely confused. It was 2 month after his prevenar vaccination and just 15 day after his DPTa vaccination. Also he was on ritalin since 3-4 weeks. Dr thought that it's a side effect of ritalin, but now I believe in it's because of vaccinations. Then , tried several drugs during next months, he wasn't hallucinating anymore but he became deeply autistic: has sharp mood swings, steaming all day, talking himself, singing himself .... Every dr had different diagnosis: bipolar disorder, childhood schizophrenia, just autism etc... Then we learned about biomedical approach, stopped all psychotic drugs which were not helping at all. We did several intervention : supplements, chelation (IV DPMS + IV EDTA and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, antifungal treatment. Some of them had temporary (2-3 weeks) positive effects, (HBOT and antifungal), but he regressed again. We did MRI and EEG just after regression which were clear. About 1 year ago we did SPECT showed some mild hypoperfussion at fronto-temporal lobes. We did several tests : amino acides, organic acides , comprehensive stool , provoked toxic metal tests(no more mercury, still some lead), french porphyrine test (shows mild mercury toxification) , Yasko nutrigenomics test (some genetic defects on methylation) , viral-bacterial titers (no strep ,no Herpes, only high coxsackie titers), IgG food allergy (no any food sensitivity) ...etc.. We only have 1 DAN dr here, and he doesn't support antiviral therapy, so we found a DAN dr form USA supporting via phone consultation and started to Valtrex with big hope. He's on valtrex and nizoral since 1,5 month and he had some die-off but he doesn't have still significant gains. Do you think that Dr. Goldberg can help my son ? I will try to arrange an appointment. Thanks for reading. Muge mother of Deniz. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Yes Muge he does. We were an overseas patient for 9 years before returning to the US after living in Asia for 20! We commuted from Singapore to see Dr G - usually once a year and then did the rest with telephone consults and email, and faxing bloodwork results. It works fine. Only draw back is that you must be very precise in monthly updates about changes in behaviour, physical and mental condition - obviously much easier for Dr G to see. The other issues is to ensure that the medicines he prescribes are available and to be aware that brand names may differ - despite a med being made by the same company - eg Claritin D here is Clarinase in other countries. Biaxin the antibiotic Clarithromycin is known as Klacid etc. Email me off line if you want to know more, Regards, _____ From: [mailto: ] On Behalf Of MugeTK Sent: Wednesday, July 23, 2008 6:27 AM Subject: Does Dr Goldberg accept oversees patients? Hi from new member, We are from Istanbul,Turkey. I think that my son is very typical example of . We have a long story: My son Deniz is 9 years old now. His immune system is weak since his birth, upper respiratory infections started when he was only 1 month age. His first autistic behaviours started just after recurrent coxsackie infections (hand-foot-month disease) at 2,5 years old. His diagnosis was PDD NOS, he wasn't too bad: verbal since 1 years old, but had mood swings, ocd, anxiety and stereotypical behaviours. Then recovered temporary 'by coincidence' at 4,5 years old after a very bad dysentery infection treated with several gut antibiotics and 6 months later a tonsillit operation. Then he went to a kindergarten during 2 years and started primary school at 7 years old without problem. He had still some issues, had still too much upper respiratory infections, had ADD , had some stereotypical behaviours appeared just before infections and disappeared after infections. He had a secondary regression at 7,5 years old, a sudden personality change: refused everything, reading, writing, painting, playing with other children., started to tell strange stories. His psychologist said with happiness that his imagination is developing! But he was hallucinating , and than 1 week later come home crying, completely confused. It was 2 month after his prevenar vaccination and just 15 day after his DPTa vaccination. Also he was on ritalin since 3-4 weeks. Dr thought that it's a side effect of ritalin, but now I believe in it's because of vaccinations. Then , tried several drugs during next months, he wasn't hallucinating anymore but he became deeply autistic: has sharp mood swings, steaming all day, talking himself, singing himself .... Every dr had different diagnosis: bipolar disorder, childhood schizophrenia, just autism etc... Then we learned about biomedical approach, stopped all psychotic drugs which were not helping at all. We did several intervention : supplements, chelation (IV DPMS + IV EDTA and oral DMSA) , HBOT (2x40 session hard chamber), IVIG, antifungal treatment. Some of them had temporary (2-3 weeks) positive effects, (HBOT and antifungal), but he regressed again. We did MRI and EEG just after regression which were clear. About 1 year ago we did SPECT showed some mild hypoperfussion at fronto-temporal lobes. We did several tests : amino acides, organic acides , comprehensive stool , provoked toxic metal tests(no more mercury, still some lead), french porphyrine test (shows mild mercury toxification), Yasko nutrigenomics test (some genetic defects on methylation) , viral-bacterial titers (no strep ,no Herpes, only high coxsackie titers), IgG food allergy (no any food sensitivity)...etc.. We only have 1 DAN dr here, and he doesn't support antiviral therapy, so we found a DAN dr form USA supporting via phone consultation and started to Valtrex with big hope. He's on valtrex and nizoral since 1,5 month and he had some die-off but he doesn't have still significant gains. Do you think that Dr. Goldberg can help my son ? I will try to arrange an appointment. Thanks for reading. Muge mother of Deniz. Quote Link to comment Share on other sites More sharing options...
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