Re: Please share success stories!

[Guest guest]

Hi ,

You might want to consider several things:

NAET doctor to help with some of the allergies (www.NAET.com) removed my

son's egg and environmental allergies - 3 years ago - and he's still " good. "

Is he on a GF / CFdiet?

Have you had blood tests to determine what he's absorbing / not

absorbing? *This was HUGE for us! Changing supplements (last week!) has

shown great improvements already!

Have you considered Tae-Kwon-Do (or another martial arts?) This has

helped my son with Asperger's greatly!

More thoughts / ideas available - just let me know if I can be of help.

~Rhonda

www.RhondaSpellman.com

wrote:

>

> Hi all, I am new to the group having just heard about this from

> MCcarthy's book. Would someone share their success stories with me.

>

> After my son's diagnosis of Asperger's, I felt as if I had hit a

> wall-because after that no one really offered me any hope of a change

> in his behavior.

>

> My son is high functioning but has developed and is developing more

> OCD symptoms as he gets older and is put in new situations. I would

> love to hear some encouraging stories this morning. Just left my son

> at school after a melt-down and I am exhausted already....

>

> Thanks

>

> son is eight years old, 11 food allergies, eczema, hives, asthma,

> Aspergers

>

>

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10:10 AM

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[Guest guest]

We just started , so not much to say on that, but we have been doing HANDLE

for other issues like sensory overload and OCD as well.  It is different that

OT.  We have done it for about 1 year and it has really helped my son in terms

of being less aggressive / meltdowns.  They are exercies you are given by a

trained consultant that you do at home.  There are also ones that they can do to

help OCD, we have been on the verge of needing these. 

 

This program is a bit expensive initially, but cheap really over time and

cheaper than doing many other autism therapies, and you can do it yourself.  A

child that is old enough and understands may be able to do what he needs to help

himself in hard situations.  It is hard to explain but the webiste does this

well, www.handle.org .  You can read the book " The Fabric of Autism " also, it is

on the site as well. 

 

This is sort of like for the sensory system, to give the body a baseline in

order to be able to learn other things through other therapies.  It has helped

my son alot in this way.  He is high functioning PDD (6), and goes crazy in a

school environment in a sensory / stimming way not with meltdowns, until he came

home and would hit.  I am now homeschooling him and hopefully over time will be

able to tolerate different environments. 

For him, the OCD is also a way he manages his anxiety, and was really on the

increase a while ago, we do RDI to help with this too.

 

Some suggested medicating him for OCD a while ago, which I refused to do.  This

is a way to help without the use of meds, which also have side effects and trade

offs.

 

This is a bit off ? of the protocol, but for what it is worth.  If you have

other questions about it, feel free to email me off list.

 

Angie

From: <yakalaska@...>

Subject: Please share success stories!

Date: Monday, September 22, 2008, 11:39 AM

Hi all, I am new to the group having just heard about this from

MCcarthy's book. Would someone share their success stories with me.

After my son's diagnosis of Asperger's, I felt as if I had hit a

wall-because after that no one really offered me any hope of a change

in his behavior.

My son is high functioning but has developed and is developing more

OCD symptoms as he gets older and is put in new situations. I would

love to hear some encouraging stories this morning. Just left my son

at school after a melt-down and I am exhausted already....

Thanks

son is eight years old, 11 food allergies, eczema, hives, asthma,

Aspergers

[Guest guest]

Angie,

Do you like RDI? I'm looking into that and the HANDLE info looks good too.

dawn

Please share success stories!

groups (DOT) com

Date: Monday, September 22, 2008, 11:39 AM

Hi all, I am new to the group having just heard about this from

MCcarthy's book. Would someone share their success stories with me.

After my son's diagnosis of Asperger's, I felt as if I had hit a

wall-because after that no one really offered me any hope of a change

in his behavior.

My son is high functioning but has developed and is developing more

OCD symptoms as he gets older and is put in new situations. I would

love to hear some encouraging stories this morning. Just left my son

at school after a melt-down and I am exhausted already....

Thanks

son is eight years old, 11 food allergies, eczema, hives, asthma,

Aspergers

[Guest guest]

Hi ,

My son is also 8. He is not Aspergers, but high functioning. He's PDD,

more specifically hyperlexic. We started the protocal when he was

almost 3. His speech was significantly delayed by that point and his social

and emotional development as well. He was often sick and had great

difficulty sleeping. When we started, the first thing we noticed was that

he was sleeping. He slept for 3 days straight when we first started. His

immune system began strengthening. He still has allergies etc., but I can

send him to school without worrying that he'll come home with every illness

he's exposed to. His first year of treatment, he made 1.5 years of

progress in language (he was like an infant when we started). His therapist

had never seen anything like it.

Long story short, he's now in 3rd grade, participating in the Talented and

Gifted program for math, and is doing this with no aide in his classroom

this year. His ability to tolerate changes and disappointments has

dramatically improved as his emotional development went its natural course.

I believe that SSRIs helped him a great deal in this area as well. He is

still a bit socially akward; we don't get calls for playdates. He is

overall very well treated by the other students at school though. He is

well liked, just not anyone's first pick which is understandable. He still

tunes people out and can be more difficult than the typical kids to engage

in play.

We still have a way to go, but I would definitely consider our story a

success story. My son is very bright, but he was sick and needed medical

treatment in order to progress as quickly and wonderfully as he has.

Hope this helps. My heart goes out to you with the tantrum situation. I

(probably most or all of us) have been there. Don't know what you're

already trying, but constantly presenting choices helped my son a lot. I

taught him that he is in control of his moods. He can choose to have a good

attitude and do well and get rewards or have a bad attitude and eventually

have to do the thing he's trying to avoid anyway.

Hang in there!

April

On Mon, Sep 22, 2008 at 11:39 AM, <yakalaska@...> wrote:

> Hi all, I am new to the group having just heard about this from

> MCcarthy's book. Would someone share their success stories with me.

>

> After my son's diagnosis of Asperger's, I felt as if I had hit a

> wall-because after that no one really offered me any hope of a change

> in his behavior.

>

> My son is high functioning but has developed and is developing more

> OCD symptoms as he gets older and is put in new situations. I would

> love to hear some encouraging stories this morning. Just left my son

> at school after a melt-down and I am exhausted already....

>

> Thanks

>

> son is eight years old, 11 food allergies, eczema, hives, asthma,

> Aspergers

>

>

>