IMGG and Immunovir

[Guest guest]

Hello, listmates,

I'm curious as to how the kiddos who have had IMGG and Immunovir have

responded to them.

My son has been getting IMGG shots every three weeks to treat low NK

cells and a low white count. He had his fifth injection last

Thursday. Each time, he seems " off " for a few days, and then we start

to notice some incremental improvements, but nothing huge. Then, in

the week before the next injection, he starts to lose his " edge " , for

lack of a better way to put it. He's " on " for a couple of weeks, and

then he's " off " for a week. It's disappointing, to say the least,

because the improvements (at least in terms of behavior and cognitive

functioning) don't seem to last, and the IMGG shots won't go on forever.

I haven't heard yet if the last blood work-up yielded any improved NK

or white cell results. If IMGg doesn't do the trick, we will bite the

bullet and spend the $$ on Immunivir.

To those with kids on Immunivir -- how are they doing? What

improvements, if any, are you seeing? And are they lasting?

TIA,

Donna