Re: A Newbie and a quick question

[Guest guest]

Sounds like die off to me. We just switched our son to Famvir and are going

through a die off reaction we never experienced with Valtrex. Low grade fever,

stuffy nose, irritability, sleepiness, etc.--I thought he was getting the flu,

but Dr. G says it's die off. Although it's hard for them to go through it, it's

actually a good sign that the med is working.

All the best,

Robyn

> From: Hankinson <jlhank80@...>

> Subject: A Newbie and a quick question

>

> Date: Monday, September 29, 2008, 11:45 AM

> Hi everyone,  my name is and I have a 3 year old

> little girl with autism (High-functioning) and we started

> the Protocol 3 weeks ago after we saw Dr. in

> NY.

> I look forward to learning new things from you all

>  

> My question is:  My daughter is on day 20 of Valtrex and

> for about 4 days she has been extremely irritable with low

> grade fevers in the afternoon...has anyone here had a

> " late die off " like that or do you think it may

> just be a drug side effect?

>  

> Thanks in advance for your help!

> -

>  

>

> May the Lord bless you and keep you!

>

>

> Visit my blog

>

> http://bloominwhereyourplanted.blogspot.com/

>

>

>

>

>

>

>

[Guest guest]

Robyn, my son is also experiencing this with famvir, do you notice facial

grimacing, or more sensory seeking behaviors?  This all went away with the

Valtrex, but it is now back.

 Sincerely Noel

> From: Hankinson <jlhank80 (DOT) com>

> Subject: A Newbie and a quick question

> groups (DOT) com

> Date: Monday, September 29, 2008, 11:45 AM

> Hi everyone,  my name is and I have a 3 year old

> little girl with autism (High-functioning) and we started

> the Protocol 3 weeks ago after we saw Dr. in

> NY.

> I look forward to learning new things from you all

>  

> My question is:  My daughter is on day 20 of Valtrex and

> for about 4 days she has been extremely irritable with low

> grade fevers in the afternoon... has anyone here had a

> " late die off " like that or do you think it may

> just be a drug side effect?

>  

> Thanks in advance for your help!

> -

>  

>

> May the Lord bless you and keep you!

>

>

> Visit my blog

>

> http://bloominwhere yourplanted. blogspot. com/

>

>

>

>

>

>

>

[Guest guest]

Thanks for your reply   It helps

-Jennie

May the Lord bless you and keep you!

Visit my blog

http://bloominwhereyourplanted.blogspot.com/

> From: Hankinson <jlhank80 (DOT) com>

> Subject: A Newbie and a quick question

> groups (DOT) com

> Date: Monday, September 29, 2008, 11:45 AM

> Hi everyone,  my name is and I have a 3 year old

> little girl with autism (High-functioning) and we started

> the Protocol 3 weeks ago after we saw Dr. in

> NY.

> I look forward to learning new things from you all

>  

> My question is:  My daughter is on day 20 of Valtrex and

> for about 4 days she has been extremely irritable with low

> grade fevers in the afternoon... has anyone here had a

> " late die off " like that or do you think it may

> just be a drug side effect?

>  

> Thanks in advance for your help!

> -

>  

>

> May the Lord bless you and keep you!

>

>

> Visit my blog

>

> http://bloominwhere yourplanted. blogspot. com/

>

>

>

>

>

>

>

[Guest guest]

Not facial grimacing and he's not especially sensory seeking. This biggest thing

we've noticed is fatigue and irritability. Dr. G said it can last a couple of

weeks. We had an initial downturn in titers with Valtrex on both boys, but then

the numbers shot up, thus the switch to Famvir. How long has your son been on

it?

All the best,

robyn

>

> > From: Hankinson <jlhank80 (DOT) com>

> > Subject: A Newbie and a quick question

> > groups (DOT) com

> > Date: Monday, September 29, 2008, 11:45 AM

> > Hi everyone,  my name is and I have a 3 year

> old

> > little girl with autism (High-functioning) and we

> started

> > the Protocol 3 weeks ago after we saw Dr.

> in

> > NY.

> > I look forward to learning new things from you all

> >  

> > My question is:  My daughter is on day 20 of Valtrex

> and

> > for about 4 days she has been extremely irritable with

> low

> > grade fevers in the afternoon... has anyone here had a

> > " late die off " like that or do you think it

> may

> > just be a drug side effect?

> >  

> > Thanks in advance for your help!

> > -

> >  

> >

> > May the Lord bless you and keep you!

> >

> >

> > Visit my blog

> >

> > http://bloominwhere yourplanted. blogspot. com/

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

only thirteen days on famvir. He does complain about being tired often and he is

4 yrs. old.

 Sincerely Noel

>

> > From: Hankinson <jlhank80 (DOT) com>

> > Subject: A Newbie and a quick question

> > groups (DOT) com

> > Date: Monday, September 29, 2008, 11:45 AM

> > Hi everyone,  my name is and I have a 3 year

> old

> > little girl with autism (High-functioning) and we

> started

> > the Protocol 3 weeks ago after we saw Dr.

> in

> > NY.

> > I look forward to learning new things from you all

> >  

> > My question is:  My daughter is on day 20 of Valtrex

> and

> > for about 4 days she has been extremely irritable with

> low

> > grade fevers in the afternoon... has anyone here had a

> > " late die off " like that or do you think it

> may

> > just be a drug side effect?

> >  

> > Thanks in advance for your help!

> > -

> >  

> >

> > May the Lord bless you and keep you!

> >

> >

> > Visit my blog

> >

> > http://bloominwhere yourplanted. blogspot. com/

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

The die off experience seems as individual as the child. It can start early (as

is our experience with Famvir, where Valtrex die off was a least 10 days into

treatment and much more mild) and last anywhere from a few days to a couple of

weeks. Noah has literally slept the week away at school. I brought him home one

day and today they called me again saying he was too sleepy to work. I was at a

doctor's appointment and couldn't pick him up right then, which worked out

because he perked up after lunch.

I just hope it's over soon. The irritability is less intense today, which is

good.

Robyn

> >

> > > From: Hankinson <jlhank80 (DOT)

> com>

> > > Subject: A Newbie and a quick question

> > > groups (DOT) com

> > > Date: Monday, September 29, 2008, 11:45 AM

> > > Hi everyone,  my name is and I have a 3

> year

> > old

> > > little girl with autism (High-functioning) and we

> > started

> > > the Protocol 3 weeks ago after we saw Dr.

>

> > in

> > > NY.

> > > I look forward to learning new things from you

> all

> > >  

> > > My question is:  My daughter is on day 20 of

> Valtrex

> > and

> > > for about 4 days she has been extremely irritable

> with

> > low

> > > grade fevers in the afternoon... has anyone here

> had a

> > > " late die off " like that or do you

> think it

> > may

> > > just be a drug side effect?

> > >  

> > > Thanks in advance for your help!

> > > -

> > >  

> > >

> > > May the Lord bless you and keep you!

> > >

> > >

> > > Visit my blog

> > >

> > > http://bloominwhere yourplanted. blogspot. com/

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> removed]

> >

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[Guest guest]

Our kids are so the same and yet so different. We have been through three anti

viral and each time we experience the same issues I see being posted but after

three time I would like to add some observations.

1) When you introduce a new anti viral not only do you see die off but all

aspects of his health go the hell. The first three weeks his immune system goes

out of whack and all of the issue come back. Connor skin picks and his healing

of various wounds slows. Small scratches become sores and his chronic fugal

infections in his feet explode, behavior goes to shit and he gets very tired.

This is the same reaction if I introduce a food that he reacts to, they

basically trash the system. New drugs, reactive foods or even being exposed to a

cold or flue. The difference is after a few weeks on the new meds he not only

recovers fairly quickly but reaches a new plateau.

2) The second issue I have found is not only Connors behaviors get difficult but

his body does not regulate sugar well. Simple healthy foods turn into triggers.

Carbs and fruit juices make him hype out and then crash that is why your son

crashes before lunch and recovers after wards. I found that if I remove fruit

juice and any sources of sugar as well as all carbs in the mornings prior to and

during die off you loss the peaks and valleys during the day. The SSIRs

contribute to the cyclic behavior but do not stop them they help in the lng run.

The trick is to go to no fruit, no juice, minimal carbs and high protein. Connor

will eat roast beef (cold sliced, turkey, egg, meatballs, ETC...) I focus on

these foods for breakfast and lunch and the die off issues are not only

shortened but much lest pronounced.

3) We give him Tylanol two to three times a day for the weeks after introducing

a new anti viral - It helps a lot!

4) These kids truly do understand when you talk with them. Let them know they

are sick and you will help them get comfortable if they will let you. Connor is

ten and has a long way to go but he has learned that I am on his side and lets

me comfort him if I offer before he melts down. Just a kid. Like to be held if

he has the opportunity. If it escalates you loss the moment and it gets much

harder to deal with.

Bill

A Newbie and a quick question

> > > groups (DOT) com

> > > Date: Monday, September 29, 2008, 11:45 AM

> > > Hi everyone, my name is and I have a 3

> year

> > old

> > > little girl with autism (High-functioning) and we

> > started

> > > the Protocol 3 weeks ago after we saw Dr.

>

> > in

> > > NY.

> > > I look forward to learning new things from you

> all

> > >

> > > My question is: My daughter is on day 20 of

> Valtrex

> > and

> > > for about 4 days she has been extremely irritable

> with

> > low

> > > grade fevers in the afternoon... has anyone here

> had a

> > > " late die off " like that or do you

> think it

> > may

> > > just be a drug side effect?

> > >

> > > Thanks in advance for your help!

> > > -

> > >

> > >

> > > May the Lord bless you and keep you!

> > >

> > >

> > > Visit my blog

> > >

> > > http://bloominwhere yourplanted. blogspot. com/

> > >

> > >

> > >

> > >

> > >

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[Guest guest]

Thanks. That's great advice regarding the food. We seem to be past the worst of

it. For the first time this week, he bounced out of bed, and got dressed without

a fight. He even went to the car on this own when it was time to leave for

school. He was also brighter and more focused this morning.

Now, though, I have another one going through die off. Low grade fever,

headache, body aches, stuffy nose, etc.

Fun, fun, fun! But I do agree, they come out brighter and better.

Robyn

> > >

> > > > From: Hankinson <jlhank80 (DOT)

> > com>

> > > > Subject: A Newbie and a quick

> question

> > > > groups (DOT) com

> > > > Date: Monday, September 29, 2008, 11:45 AM

> > > > Hi everyone, my name is and I have

> a 3

> > year

> > > old

> > > > little girl with autism (High-functioning)

> and we

> > > started

> > > > the Protocol 3 weeks ago after we saw

> Dr.

> >

> > > in

> > > > NY.

> > > > I look forward to learning new things from

> you

> > all

> > > >

> > > > My question is: My daughter is on day 20 of

> > Valtrex

> > > and

> > > > for about 4 days she has been extremely

> irritable

> > with

> > > low

> > > > grade fevers in the afternoon... has anyone

> here

> > had a

> > > > " late die off " like that or do you

> > think it

> > > may

> > > > just be a drug side effect?

> > > >

> > > > Thanks in advance for your help!

> > > > -

> > > >

> > > >

> > > > May the Lord bless you and keep you!

> > > >

> > > >

> > > > Visit my blog

> > > >

> > > > http://bloominwhere yourplanted. blogspot.

> com/

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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