Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 It may be more of a Sensory Issue than deliberate defiance. Maybe look into an OT Evaluation if you have not already. If you already get OT, tell them about his actions. Your story reminded me of another mom who asked about her toddler always banging his head. This was the response of an OT on the board with us special needs moms: Head banging is usually a behavior that forms out of frustration and other emotions. Often when children bang their heads they are acting out the stress they are feeling...in their head, as the brain might be having a hard time processing, figuring out what to do next or coping. If he hits his head hard enough that he is bruising, then you should put a bike helmet on him the first time he strikes his head. He might not bang his head again if he isn't getting that " bam " feeling. Also to help him cope, try putting a bean bag on the floor in front of him and let him push his head into it. You can also place your hand on the top of his, push down with an even firm push (being careful of the neck, not to push it out of alignment) and hold it there for a few seconds. It's a usual toddler phase to go through a physical acting out and children will do it for a reaction, but if it appears he has some sensory issues that may be driving him into overdrive, he might not be aware that he is even banging his head....I hope that this makes sense! _________________ >I know head banging is not your exact issue, but some general tips here might give you a head start. good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hello ! How are his receptive and expressive language? My daughter was all over the place and wouldn't listen until her receptive came along. At that time it got better, and compliance is now just getting better and better now that she is coming along with expressive. Could it be that? Hanagan <hanagan_8@...> wrote: Hi Everyone, I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns. Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection. So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted. Thanks __________________________________________________________ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hi , Your description sounds very much like my son's behavior....it started around 1 1/2 and was really noticeable by age 2. My son has a small genetic deletion, that comes with other associations as well. Typically kids with my son's condition (SMS) are charming, very affectionate kids...but, they also have the reverse.(They are some of the best huggers you will ever meet!) They have very poor tolerance frustration, short attention spans and are huge attention seekers, especially from adults. They tend to have self-injurious behavior, and can have intense prolonged tantrums with nothing obvious to set them off. Impulse control problems are big. Some parents finally take all furniture out of the bedrooms so there is a safe place for them to be. They tend to have excellent long term memory for events and visual details. Apraxia(or something like apraxia) is common. They tend to have a 'reversed' sleep cycle. As infants they are 'angelic', they never cry, they smile a lot. They fall asleep easily during the daytime, and are often up for the day by 4 or 5 am. They have frequent night wakings. If this sounds anything like your son, you can check out this link to see if there are any other similarities. http://www.prisms.org/WhatisSMS/characteristics.htm Feel free to contact me on or off line if you have any questions. Most doctors still have never heard of SMS, so it is unlikely your doctor will know anything about it. Gretchen > > > Hi Everyone, > > I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. > > My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns. > > Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection. > > So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. > > Any advice or suggestions are always gratefully accepted. > > Thanks > > > _________________________________________________________________ > How well do you know your celebrity gossip? > http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Its a great idea to follow up with genetics. The basic genetics testing done at birth showed nothing, when we followed up with a pediatric genetics doctor- a small deletion was found. He told us later that her type of deletion is being studied and many of the kids have Apraxia and some of the features that she does. Theres no name for the type of deletion yet. You will develop your own history and stories to tell. Keep a log of all doctors names/numbers by the phone. good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 You may want to research RAD Reactive Attachment Disorder, Mood Disorders, Adjustment Disorders. Many adopted children oor children who do not receive what they need in the beginning of life (or in the womb) suffer emotionally later in life. Good therapy speciific to RAD is helpful. Good Luck. @...: hanagan_8@...: Sun, 23 Mar 2008 15:01:28 -0700Subject: [ ] Defiant Behavior Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks__________________________________________________________H\ ow well do you know your celebrity gossip?http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A[Non-text portions of this message have been removed] _________________________________________________________________ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 I had the same thought - that his behaviors could all be rooted in sensory-seeking as you certainly described my son prior to our Vit E intervention, which stopped all of it instantaneously (results not typical for all who try Vit E, but is a reality for us). Behaviors were managed somewhat with OT (brushing protocol and the deep pressure that Janice discusses below). > > , > > I have no basis for what I am suggesting..... just my 'gut' talking here. Have you tried wrapping your son tightly or doing deep pressure on him or using weight blankets with him? For some reason, it just seems to me like your little boy needs to be rolled up like a sausage and rolled to work his sensory issues. He 'feels' like his body is unsettled and he is in need of bear hugs. > > I don't know why what you have said 'twigs' this in me.... I just have this picture in my mind of this little boy constantly sensory seeking as his body feels out of sync in this world. > > Speaking of out of sinc..... Have you read this book.... The Out- of-Sync-Child..... that sounds like your boy. Another one for you may be Sensational Kids. Your son has SPD.... screaming out of your words. > > Like I said, I have no basis for saying this from your words and so may be truly out of line..... it's just a feeling I get..... your son reminds me of my nephew who is rambunctious, creative..... but has this 'sensory' quality about him that creates havoc in his well- being. > > Janice > > > [ ] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks________________________________________________ __________How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A[Non-text portions of this message have been removed] > > __________________________________________________________ > How well do you know your celebrity gossip? > http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 , I have no basis for what I am suggesting..... just my 'gut' talking here. Have you tried wrapping your son tightly or doing deep pressure on him or using weight blankets with him? For some reason, it just seems to me like your little boy needs to be rolled up like a sausage and rolled to work his sensory issues. He 'feels' like his body is unsettled and he is in need of bear hugs. I don't know why what you have said 'twigs' this in me.... I just have this picture in my mind of this little boy constantly sensory seeking as his body feels out of sync in this world. Speaking of out of sinc..... Have you read this book.... The Out-of-Sync-Child..... that sounds like your boy. Another one for you may be Sensational Kids. Your son has SPD.... screaming out of your words. Like I said, I have no basis for saying this from your words and so may be truly out of line..... it's just a feeling I get..... your son reminds me of my nephew who is rambunctious, creative..... but has this 'sensory' quality about him that creates havoc in his well-being. Janice [ ] Defiant Behavior Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks__________________________________________________________H\ ow well do you know your celebrity gossip?http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A[Non-text portions of this message have been removed] __________________________________________________________ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 We got a lot accomplished with this sort of behaviour by eliminating wheat milk and sugar from my guys diets. Interesting about what Janice says about the deep pressure because when my one little guy is in a " mood " (as the behaviours are no longer constant), wrapping him in a big comforter and cuddling and rocking him, calm him down within minutes. Actually when I am restless at night, my hubby goes around the house and gets all the spare blankets and puts them on top of me so I will be still in bed. I would definitely try so deep pressure. Good luck > > > [ ] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopte > d him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the pla > yground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're > houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Exactly..... big monster bear hugs that rock and settle. There are a lot of kids who really need this type of work to feel comfortable in their own skin. I have posted a few times on how to do deep pressure; check the archives or post back if you cannot find out how to; I will find it for you. Deep pressure 2 times daily along with soothing bear hugs (mommy cuddle time), weighted blankets, etc. If you see this working for you.... then you know which direction to head in. Definately cut down on the sugar. Our diets are crazy with sugar. My NT athletic, verbose, and intellectual " almost " step-son turns into a real BRAT when he's had too much..... a good example was yesterday after eating the bunny..... what in the house can we possible wreck......! It is like he is 'looking' for it..... and he is 11 years old! That is what too much sugar can do..... even natural sugar but not nearly as bad. Janice [ ] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopte > d him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the pla > yground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're > houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 I'd like to chime in on what Janice says about the sensory seeking. One of the things that worked great for us was a small back pack filled with a couple of soup cans for weight. My son was part of a class for OT's that showed some strategies for calming. I video taped him in full temper and then put the back pack on and 30 seconds later he had calmed down enough to attend to task. Weight works wonders. We do the tight wrapping, deep pressure, he has a weighted stuffed animal for his lap at school while sitting on a therapy ball instead of a chair. Anything that I can put weight in to put on him I do. Love, love love it! Sandy [childrensapraxiane t] Defiant Behavior Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform... ..but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.ThanksLesl ie_______ _________ _________ _________ _________ _________ ______How well do you know your celebrity gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A[Non-text portions of this message have been removed] ____________ _________ _________ _________ _________ _________ _ How well do you know your celebrity gossip? http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 I am sorry if this is a dumb question but why does this work? > > I'd like to chime in on what Janice says about the sensory seeking. > > One of the things that worked great for us was a small back pack filled > with a couple of soup cans for weight. My son was part of a class for > OT's that showed some strategies for calming. I video taped him in full > temper and then put the back pack on and 30 seconds later he had > calmed down enough to attend to task. > > Weight works wonders. We do the tight wrapping, deep pressure, he > has a weighted stuffed animal for his lap at school while sitting on a > therapy ball instead of a chair. Anything that I can put weight in to put on > him I do. Love, love love it! > > Sandy > > > [childrensapraxiane t] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform... ..but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his > sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.ThanksLesl ie_______ _________ _________ _________ > _________ _________ ______How well do you know your celebrity gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Weight helps calm and organize children with sensory integration dysfunction. Sandy [childrensapraxiane t] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform... ..but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his > sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.ThanksLesl ie_______ _________ _________ _________ > _________ _________ ______How well do you know your celebrity gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 I have known it to work on other children. Makes sence to me, as the Central Nervous System is out of whack. That calms the CNS. [ ] Re: Defiant Behavior I am sorry if this is a dumb question but why does this work? > > I'd like to chime in on what Janice says about the sensory seeking. > > One of the things that worked great for us was a small back pack filled > with a couple of soup cans for weight. My son was part of a class for > OT's that showed some strategies for calming. I video taped him in full > temper and then put the back pack on and 30 seconds later he had > calmed down enough to attend to task. > > Weight works wonders. We do the tight wrapping, deep pressure, he > has a weighted stuffed animal for his lap at school while sitting on a > therapy ball instead of a chair. Anything that I can put weight in to put on > him I do. Love, love love it! > > Sandy > > > [childrensapraxiane t] Defiant Behavior > > Hi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform... ..but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his > sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.ThanksLesl ie_______ _________ _________ _________ > _________ _________ ______How well do you know your celebrity gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 My grandson will be 3 at the end of April, he has been diagnosed with Apraxia and we have had an OT come to the house because of sensory issues. Most of the OT suggestions for this type of behavior (specifically Corbin has " melt downs " with too much stimulation) have been heavy lifting, physical activity like jumping on a bouncer prior to a possible stimulation. Or, just hugging and removing him from the situation with activity. I have been reading " Out of Sync Child " and I noticed the weighted vests, backpacks, etc mentioned also. I care for Corbin five days a week and on the week ends quite a bit because of my son and daughter-in-law's jobs. He is very big and very strong, and when he is in the throws of a " melt down " he sometimes scratches, bites, hits, kicks. I couldn't get a back pack on him unless I had three other people helping. I haven't tried wrapping him in a blanket, but I intend to try that. I was wondering if I made some sort of vest that was weighted for him to wear to a situation (usually stores or restaurants or even large family functions) if that would help. How much weight is needed or is it different for each child? I would appreciate any suggestions > > > > I'd like to chime in on what Janice says about the sensory seeking. > > > > One of the things that worked great for us was a small back pack > filled > > with a couple of soup cans for weight. My son was part of a class > for > > OT's that showed some strategies for calming. I video taped him in > full > > temper and then put the back pack on and 30 seconds later he had > > calmed down enough to attend to task. > > > > Weight works wonders. We do the tight wrapping, deep pressure, he > > has a weighted stuffed animal for his lap at school while sitting > on a > > therapy ball instead of a chair. Anything that I can put weight in > to put on > > him I do. Love, love love it! > > > > Sandy > > > > > > [childrensapraxiane > t] Defiant Behavior > > > > Hi Everyone,I guess the newest thing I'm going to begin talking > about is my son's behavior. I've avoided this subject many, many > times because I've always hoped it would miraciously > transform... ..but it doesn't seem to be changing. My son has always > had a defiant streak, but we've always assumed it was age > appropriate. Whenever I mentioned it to the ped, he dismissed my > concerns.Anyway, it was recently mentioned to me (by a therapist t > hat I've been seeing), that he could have attachment issues. We > adopted him at 30 days old, and he'd been in the NICU up until we > brought him home. We were notified " about him " when he was ready to > exit the hospital. He was a preemie. I immediately left my job, and > stayed home with him -- holding him as much as possible -- trying to > establish bonding. As he's approaching three y.o., his defiance is > more and more exhausting. For example, when we're in the backyard, > he's purposely digging in the flower gardens (avoiding his > > sandbox), or attempting to climb the fence. At the playground, he > continues to engage in attention seeking behaviors. I guess a good > way to describe him would be " constant attention seeker " , and perhaps > defiance is not really the appropriate title for him. Anyway, we've > literally removed most everything from our living room and dining > room, because he's constantly touching, grabbing, climbing, and > getting into things. I assumed I could begin to put my ho use back > together soon, but it's still looking pretty impossible. I visit > other mother's homes and they're houses are not barren like ours. > THey have picutres on the walls, furniture, etc.....Yes, he has > sensory issues, and I always assumed there was a huge connection.So, > I guess I'm presenting these details to the group because I'm > wondering if anyone else has similar stories or experiences. Any > advice or suggestions are always gratefully accepted.ThanksLesl > ie_______ _________ _________ _________ > > _________ _________ ______How well do you know your celebrity > gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 We use " tick Tock " for our sons. Gently take them by the ankles and swing them upside down. GENTLY for as long as it takes to say TICK TOCK and then GENTLY put them down This " disorientates " the child by " crossing the midline " This is weird but does work. The key is to be VERY GENTLE when doing it. > > > > I'd like to chime in on what Janice says about the sensory seeking. > > > > One of the things that worked great for us was a small back pack > filled > > with a couple of soup cans for weight. My son was part of a class > for > > OT's that showed some strategies for calming. I video taped him in > full > > temper and then put the back pack on and 30 seconds later he had > > calmed down enough to attend to task. > > > > Weight works wonders. We do the tight wrapping, deep pressure, he > > has a weighted stuffed animal for his lap at school while sitting > on a > > therapy ball instead of a chair. Anything that I can put weight in > to put on > > him I do. Love, love love it! > > > > Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Look for weighted blankets, weighted pads, and weighted animals on- line. You can sew your own and use plastic " poly pellets " as the weight. I have heard some people remove some of the stuffing out of a stuffed animal and use poly pellets to make it a weighted animal. Here is a vest from Therapy Shoppe: http://therapyshoppe.com/product.php?cat=4 & PHPSESSID=e782323700a29525fda6557783b\ 4be65 If you bought or made your grandson a vest you could sew on the pockets to insert the weights. I make my own weighted items by looking at photos on-line. My son is almost 5 (58mos) and he uses a " heavy baby " I made for him which weighs 4 1/2lbs (http://www.joyswaldorfdolls.com/doll_kits_and_patterns/heavy_baby_and_little_ba\ by.htm). He holds it on his lap in his carseat and carrys it around in a tiny backpack. He also sleeps with a " Cars " theme weighted blanket on him. It has 4lbs of weights in it. His OT said you start with 10% of your child's weight in making weighted blankets. I bought one on eBay for $45. My son does not tolerate being wrapped up in a blanket. He will tolerate a crib sized weighted blanket be draped over him. As for the backpack his sisters have some from American Girl they use as purses so that is why he wears one (to be like them). You'll have to get creative on that one. When we were trying to get my son to tolerate headphones we rewarded him if he wore them for 1 minute at first and then increased the time before giving the reward. Sincerely, Debra, homeschooling mom of 4 ages 11, 10, 8, and 4 > > My grandson will be 3 at the end of April, he has been diagnosed with Apraxia and we have had an OT come to the house because of sensory issues. I have been reading " Out of Sync Child " and I noticed the weighted vests, backpacks, etc mentioned also. I couldn't get a back pack on him unless I had three other people helping. I haven't tried wrapping him in a blanket, but I intend to try that. I was wondering if I made some sort of vest that was weighted for him to wear to a situation (usually stores or restaurants or even large family functions) if that would help. How much weight is needed or is it different for each child? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 What time would it be if I tried " tick tock " with my 11 and 13 year old today? Time for hernia surgery!!! Wish I knew about this to try it when they were little. I'd love to know from the rest of you if this works as it sounds like such a cool vestibular approach -and I'm big time into that for apraxia! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 -Weight should be used prior to meltdowns. For example, if I knew I was going to playgroup, or doing a craft at the table, I'd put the backpack on him. At school now his EA puts the weighted lap dog on him when he sits so that he can attend to task much better. I got one of those little character backpacks, the kiddy size is perfect. The rule of thumb regarding weight is 10% of the childs body weight. My MIL sewed pockets into a regular vest so I could insert weight that way as well. The thing I liked when he was little was the backpack though. All the other kids thought it was cool! Now I look at everything and wonder how I can put weight in it! There are a ton of websites where you can buy stuff, but it's expensive and I usually try to make something on my own. The OT's usually have great ideas for homemade stuff, or they can lend you something before you buy it. So just remember to try the weight so he can calm and organize BEFORE the meltdown. As I've said, weight is a wonderful thing. If you've read " the out of sync child " try the " out of sync child has fun " It had a ton of ideas that you can try at home. hth Sandy -- In , " nicholson_pat " <nananicholson@...> wrote: > > My grandson will be 3 at the end of April, he has been diagnosed with > Apraxia and we have had an OT come to the house because of sensory > issues. Most of the OT suggestions for this type of behavior > (specifically Corbin has " melt downs " with too much stimulation) have > been heavy lifting, physical activity like jumping on a bouncer prior > to a possible stimulation. Or, just hugging and removing him from the > situation with activity. I have been reading " Out of Sync Child " and > I noticed the weighted vests, backpacks, etc mentioned also. I care > for Corbin five days a week and on the week ends quite a bit because > of my son and daughter-in-law's jobs. He is very big and very > strong, and when he is in the throws of a " melt down " he sometimes > scratches, bites, hits, kicks. I couldn't get a back pack on him > unless I had three other people helping. I haven't tried wrapping > him in a blanket, but I intend to try that. I was wondering if I > made some sort of vest that was weighted for him to wear to a > situation (usually stores or restaurants or even large family > functions) if that would help. How much weight is needed or is it > different for each child? > I would appreciate any suggestions > > > > > > > > I'd like to chime in on what Janice says about the sensory > seeking. > > > > > > One of the things that worked great for us was a small back pack > > filled > > > with a couple of soup cans for weight. My son was part of a class > > for > > > OT's that showed some strategies for calming. I video taped him > in > > full > > > temper and then put the back pack on and 30 seconds later he had > > > calmed down enough to attend to task. > > > > > > Weight works wonders. We do the tight wrapping, deep pressure, he > > > has a weighted stuffed animal for his lap at school while sitting > > on a > > > therapy ball instead of a chair. Anything that I can put weight > in > > to put on > > > him I do. Love, love love it! > > > > > > Sandy > > > > > > > > > > [childrensapraxiane > > t] Defiant Behavior > > > > > > Hi Everyone,I guess the newest thing I'm going to begin talking > > about is my son's behavior. I've avoided this subject many, many > > times because I've always hoped it would miraciously > > transform... ..but it doesn't seem to be changing. My son has > always > > had a defiant streak, but we've always assumed it was age > > appropriate. Whenever I mentioned it to the ped, he dismissed my > > concerns.Anyway, it was recently mentioned to me (by a therapist t > > hat I've been seeing), that he could have attachment issues. We > > adopted him at 30 days old, and he'd been in the NICU up until we > > brought him home. We were notified " about him " when he was ready to > > exit the hospital. He was a preemie. I immediately left my job, and > > stayed home with him -- holding him as much as possible -- trying > to > > establish bonding. As he's approaching three y.o., his defiance is > > more and more exhausting. For example, when we're in the backyard, > > he's purposely digging in the flower gardens (avoiding his > > > sandbox), or attempting to climb the fence. At the playground, he > > continues to engage in attention seeking behaviors. I guess a good > > way to describe him would be " constant attention seeker " , and > perhaps > > defiance is not really the appropriate title for him. Anyway, we've > > literally removed most everything from our living room and dining > > room, because he's constantly touching, grabbing, climbing, and > > getting into things. I assumed I could begin to put my ho use back > > together soon, but it's still looking pretty impossible. I visit > > other mother's homes and they're houses are not barren like ours. > > THey have picutres on the walls, furniture, etc.....Yes, he has > > sensory issues, and I always assumed there was a huge > connection.So, > > I guess I'm presenting these details to the group because I'm > > wondering if anyone else has similar stories or experiences. Any > > advice or suggestions are always gratefully accepted.ThanksLesl > > ie_______ _________ _________ _________ > > > _________ _________ ______How well do you know your celebrity > > gossip?http://originals. msn.com/thebigde bate?ocid= T002MSN03N0707A > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 hmmm, maybe put them in gravity boots and gently push them side to side... its just a thought :-) I am going to try it (not the gravity boots) with my 3.5 yr next time I get the chance to. I'll let you know hwo it works. [ ] Re: Defiant Behavior What time would it be if I tried " tick tock " with my 11 and 13 year old today? Time for hernia surgery!!! Wish I knew about this to try it when they were little. I'd love to know from the rest of you if this works as it sounds like such a cool vestibular approach -and I'm big time into that for apraxia! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi Everyone, I tried the tick-tock several times last night with my son. He loved it, but it didn't seem to work for defiant behavior. Though, I don't think he has that midline problem, so maybe that's why it doesn't work with him. Oh, well, now we have yet another fun activity that tiers mommy out :-) [childrensapraxiane t] Re: Defiant Behavior What time would it be if I tried " tick tock " with my 11 and 13 year old today? Time for hernia surgery!!! Wish I knew about this to try it when they were little. I'd love to know from the rest of you if this works as it sounds like such a cool vestibular approach -and I'm big time into that for apraxia! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Thanks for all the suggestions! I would love to try the Tick Tock, but since he's a really big boy and I'm not very big, it isn't possible! I do well to get him in and out of a shopping cart or car seat! > > Hi Everyone, I tried the tick-tock several times last night with my son. He loved it, but it didn't seem to work for defiant behavior. Though, I don't think he has that midline problem, so maybe that's why it doesn't work with him. Oh, well, now we have yet another fun activity that tiers mommy out :-) > > > > [childrensapraxiane t] Re: Defiant Behavior > > What time would it be if I tried " tick tock " with my 11 and 13 year > old today? Time for hernia surgery!!! Wish I knew about this to try > it when they were little. I'd love to know from the rest of you if > this works as it sounds like such a cool vestibular approach -and I'm > big time into that for apraxia! > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 Hi Janice, Thanks for your input. I have read part of the Out of Sync Child, but I need to revisit the book. Need to buy a copy for myself..... Since your suggestion, I've been grabbing him and hugging him tightly, but he resists it (often.....sometimes he settles down). When we're in the moment, I've not remembered to grab a blanket. I used to do the squeezing and his arms and legs, but have stopped recently. He's definitely an attention seeker/or sensory seeker. It's really difficult to take him ANYWHERE. My five minutes in Starbucks is almost unbearable. During the holidays, I cringe when we visit relatives. We're also exhausted at the end of the visit. I'll bring everything up to the new OT to see if she can give more insight. But there seems to be a behavioral component as well. For example, I left the room for two minutes the other day to find him writing on the walls when I returned. He's climbed on his chair and got a pen from a high shelf and began writing on the walls.....something that he knows not to do. It's not sneaking and writing.....it's writing to get attention. Then later, he grabbed the paper towels and ran through the house with them -- stringing the paper towels everywhere. ONce again, he wanted attention. And I've tried everything behaviorally with him. I'm exhausted. He also seems to be going through another cognitive growth spurt, and these behaviors increase during such times. Thanks @...: jscott@...: Mon, 24 Mar 2008 14:10:26 -0700Subject: RE: [ ] Defiant Behavior ,I have no basis for what I am suggesting..... just my 'gut' talking here. Have you tried wrapping your son tightly or doing deep pressure on him or using weight blankets with him? For some reason, it just seems to me like your little boy needs to be rolled up like a sausage and rolled to work his sensory issues. He 'feels' like his body is unsettled and he is in need of bear hugs.I don't know why what you have said 'twigs' this in me.... I just have this picture in my mind of this little boy constantly sensory seeking as his body feels out of sync in this world.Speaking of out of sinc..... Have you read this book.... The Out-of-Sync-Child..... that sounds like your boy. Another one for you may be Sensational Kids. Your son has SPD.... screaming out of your words. Like I said, I have no basis for saying this from your words and so may be truly out of line..... it's just a feeling I get..... your son reminds me of my nephew who is rambunctious, creative..... but has this 'sensory' quality about him that creates havoc in his well-being.Janice [ ] Defiant BehaviorHi Everyone,I guess the newest thing I'm going to begin talking about is my son's behavior. I've avoided this subject many, many times because I've always hoped it would miraciously transform.....but it doesn't seem to be changing. My son has always had a defiant streak, but we've always assumed it was age appropriate. Whenever I mentioned it to the ped, he dismissed my concerns.Anyway, it was recently mentioned to me (by a therapist t hat I've been seeing), that he could have attachment issues. We adopted him at 30 days old, and he'd been in the NICU up until we brought him home. We were notified " about him " when he was ready to exit the hospital. He was a preemie. I immediately left my job, and stayed home with him -- holding him as much as possible -- trying to establish bonding. As he's approaching three y.o., his defiance is more and more exhausting. For example, when we're in the backyard, he's purposely digging in the flower gardens (avoiding his sandbox), or attempting to climb the fence. At the playground, he continues to engage in attention seeking behaviors. I guess a good way to describe him would be " constant attention seeker " , and perhaps defiance is not really the appropriate title for him. Anyway, we've literally removed most everything from our living room and dining room, because he's constantly touching, grabbing, climbing, and getting into things. I assumed I could begin to put my ho use back together soon, but it's still looking pretty impossible. I visit other mother's homes and they're houses are not barren like ours. THey have picutres on the walls, furniture, etc.....Yes, he has sensory issues, and I always assumed there was a huge connection.So, I guess I'm presenting these details to the group because I'm wondering if anyone else has similar stories or experiences. Any advice or suggestions are always gratefully accepted.Thanks__________________________________________________________H\ ow well do you know your celebrity gossip?http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A[Non-text portions of this message have been removed] __________________________________________________________How well do you know your celebrity gossip?http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A[Non-text portions of this message have been removed][Non-text portions of this message have been removed] _________________________________________________________________ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 We also have a very noncompliant child, it also was the case the better he was getting in terms of verbal ability and Œbeing with it¹, the more controlling/defiant he became. He is five now, and someone recommended a book to us called ³1,2,3 Magic² - it is a discipline book written for Œnormal¹ kids, but some of the general principles can be applied to asd, depending on individual situation. Our son is 5 and we feel some of the methods from the book have made a huge difference to his non-compliance issues. Another great thing about the book is that it helps you as a parent to apply breaks and generally not boil over when frustrated. I really cannot recommend it highly enough. I must say some of the things that are working for us now I'm not sure would have worked 1 or 2 years ago, partly because of son¹s age and partly because his defiant behaviour was more down to autism and less down to pure childish behaviour (need to control you/her environment). As I said the book was written with typical kids in mind but some of the things could be modified and applied for your situation, hopefully. Even if you find you cannot apply any of the methods right now, save it for the day when you dd is ready. Hth Natasa > > > > Hi everyone, I was wondering if anyone here > experienced a lot of defiant behavior from their child > with ASD. I have a 3.5 year old on Valtrex, Diflucan, > Tenex, and Zyrtec. We started Lexapro but she was so > hyper and crazy we took her off. She is GF/CF and all > her allergens have been removed. > > She is better in a lot of ways, more interactive and > better language and understanding, but she fights me > about almost everything! Screaming, falling on the > floor, crying and noncompliance are the issues. And > it's all day long! Also she says " yes/no/yes/no " > > Any help? Thank you, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 , We had a period of time like that with one of my sons... I¹m sure he could easily have been diagnosed with ODD. It was horrible. I think that soy was a trigger, certain meds made it worse (I¹m thinking Tenex... we lowered it and then he improved a bit), but mostly it has just taken time on the protocol and after several years (I know you don¹t want to hear that) it has gotten much, MUCH better. He¹s much closer to average in his oppositional behavior now. I¹d say it was pretty intense oppositional behavior for about a solid 3 years but for the last two it has been steadily improving (he¹s been sick about 5 years). One thing that helped me was knowing that he hadn¹t always been like that... before his seizures began at age 3 he was so sweet tempered... practically angelic. Then he was hit with seizures (they thought he was having 4 different types, he was in status epilepticus at one point, lost all speech, I could go on and on... to sum it up the speech therapist told me he presented like a stroke victim... the neurogeneticist thought he had Lennox Gastaut Syndrome... he was a very, VERY sick boy). After he became ill the opposition started. I hoped that it was caused by one of the seizure meds and that it would go away as he was weaned from one to another, but that didn¹t happen. Basically he just had to get healthier... and that took a long time. Back then, another thing that helped me was that once in a while he would show me that he really didn¹t want to be like that... one night when he was being particularly venomous, out of the blue, he burst into tears and said ³I¹m not going to have any friends!². He knew what he was doing but couldn¹t seem to stop himself. Eventually I figured out that the best way to get him out of one of his episodes was to just stop what ever I was doing (this was not easy with 5 children at home...) and just pick him up and love him... hold and rock him and not talk except maybe to tell him that I loved him and was helping him calm down. He responded to that very well... it was as if he was on an emotional overload and he couldn¹t get control of himself. If I showed anger toward him when he was acting cross, it just made him more tense and fueled his anxiety and anger. As his language skills increased and he was better able to express himself verbally, I think that helped. For a long time after he began to regain his speech he was completely echolalic... he couldn¹t produce original phrases. He knew what he wanted to say, and that he used to be able to speak very well, so he was extremely frustrated to be in the position he was in. Some days he would just scream and scream. Now that I think about it, he is on a low dose of Adderall, and I think that has helped calm him some by allowing him to slow down and think about things before reacting. It was a long time before Dr. G was ready to put him on the Adderall, though... he wanted to optimize everything else first before he started that. The behavior was improving before he started Adderall, though, so Adderall was not the cure... it has just helped some. Without going into another long drawn out explanation I can also say that the antiviral played a huge role in his improvement cognitively. I¹ve probably said too much, but please know that the behavior is NOT who your daughter really is... it is a part of her illness and inside she doesn¹t want to be that way. It can get better. Caroline G. From: Hankinson <jlhank80@...> Reply-< > Date: Fri, 30 Jan 2009 15:29:38 -0800 (PST) < > Subject: defiant behavior Hi everyone, I was wondering if anyone here experienced a lot of defiant behavior from their child with ASD. I have a 3.5 year old on Valtrex, Diflucan, Tenex, and Zyrtec. We started Lexapro but she was so hyper and crazy we took her off. She is GF/CF and all her allergens have been removed. She is better in a lot of ways, more interactive and better language and understanding, but she fights me about almost everything! Screaming, falling on the floor, crying and noncompliance are the issues. And it's all day long! Also she says " yes/no/yes/no " Any help? Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Hi, . I echo Caroline's comments. I have three boys on the protocol and I have similar behavior with two of them. My oldest defiance didn't start until after his seizures started. He, too, was the sweetest baby and toddler. My youngest, Elijah, was a dynamo from day one. He's six now and I still get the knock down, drag out emotional outburst that culminates in him threatening to kill himself. It's horrible! Since starting the protocol, though, the incidents are happening less and less, and when they do occur, they are more manageable. My older son, , has told us that he knows that what he's doing is wrong and that he shouldn't be saying what he's saying, but he can't stop himself. It's somewhat of a compulsion. We now communicate to him if we believe he's headed toward compulsive misbehaving and he makes the choice to remove himself from the situation. It's helped somewhat. My problem is that I'm a very emotional person, and that my boys would " feed " off that to some extent. A few weeks ago, I read an article on the slaw website on discipline and I ended up buying the book off Amazon. It's called 1-2-3 Magic. It's really helped me learn how to keep emotional out of the disciplinary process. On the whole, though, things are definitely getting better for all three of my kids on the protocol. All the best, Robyn > From: Caroline Glover <sfglover@...> > Subject: Re: defiant behavior > > Date: Friday, February 6, 2009, 6:37 AM > , > > We had a period of time like that with one of my sons... > I¹m sure he could > easily have been diagnosed with ODD. It was horrible. I > think that soy was > a trigger, certain meds made it worse (I¹m thinking > Tenex... we lowered it > and then he improved a bit), but mostly it has just taken > time on the > protocol and after several years (I know you don¹t want to > hear that) it has > gotten much, MUCH better. He¹s much closer to average in > his oppositional > behavior now. I¹d say it was pretty intense oppositional > behavior for about > a solid 3 years but for the last two it has been steadily > improving (he¹s > been sick about 5 years). > > One thing that helped me was knowing that he hadn¹t always > been like that... > before his seizures began at age 3 he was so sweet > tempered... practically > angelic. Then he was hit with seizures (they thought he > was having 4 > different types, he was in status epilepticus at one point, > lost all speech, > I could go on and on... to sum it up the speech therapist > told me he > presented like a stroke victim... the neurogeneticist > thought he had Lennox > Gastaut Syndrome... he was a very, VERY sick boy). After > he became ill the > opposition started. I hoped that it was caused by one of > the seizure meds > and that it would go away as he was weaned from one to > another, but that > didn¹t happen. Basically he just had to get healthier... > and that took a > long time. > > Back then, another thing that helped me was that once in a > while he would > show me that he really didn¹t want to be like that... one > night when he was > being particularly venomous, out of the blue, he burst into > tears and said > ³I¹m not going to have any friends!². He knew what he > was doing but > couldn¹t seem to stop himself. Eventually I figured out > that the best way > to get him out of one of his episodes was to just stop what > ever I was doing > (this was not easy with 5 children at home...) and just > pick him up and love > him... hold and rock him and not talk except maybe to tell > him that I loved > him and was helping him calm down. He responded to that > very well... it was > as if he was on an emotional overload and he couldn¹t get > control of > himself. If I showed anger toward him when he was acting > cross, it just > made him more tense and fueled his anxiety and anger. > > As his language skills increased and he was better able to > express himself > verbally, I think that helped. For a long time after he > began to regain his > speech he was completely echolalic... he couldn¹t produce > original phrases. > He knew what he wanted to say, and that he used to be able > to speak very > well, so he was extremely frustrated to be in the position > he was in. Some > days he would just scream and scream. > > Now that I think about it, he is on a low dose of Adderall, > and I think that > has helped calm him some by allowing him to slow down and > think about things > before reacting. It was a long time before Dr. G was ready > to put him on > the Adderall, though... he wanted to optimize everything > else first before > he started that. The behavior was improving before he > started Adderall, > though, so Adderall was not the cure... it has just helped > some. Without > going into another long drawn out explanation I can also > say that the > antiviral played a huge role in his improvement > cognitively. > > I¹ve probably said too much, but please know that > the behavior is > NOT who your daughter really is... it is a part of her > illness and inside > she doesn¹t want to be that way. It can get better. > > Caroline G. > > > From: Hankinson <jlhank80@...> > Reply-< > > Date: Fri, 30 Jan 2009 15:29:38 -0800 (PST) > < > > Subject: defiant behavior > > Hi everyone, I was wondering if anyone here > experienced a lot of defiant behavior from their child > with ASD. I have a 3.5 year old on Valtrex, Diflucan, > Tenex, and Zyrtec. We started Lexapro but she was so > hyper and crazy we took her off. She is GF/CF and all > her allergens have been removed. > > She is better in a lot of ways, more interactive and > better language and understanding, but she fights me > about almost everything! Screaming, falling on the > floor, crying and noncompliance are the issues. And > it's all day long! Also she says > " yes/no/yes/no " > > Any help? Thank you, > > > > > Quote Link to comment Share on other sites More sharing options...
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