Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Hi , my son is on Imunovir (Isoprinosine) since two months. He hasn't changed a bit unfortunately. IVIG did nothing to him either, but that's my kid. Until we try it, we will never know..... > > Hello- > > I've noticed that several families have their children on Immunovir > and I was wanting to know of their success, and any results. > > I ask because I'm looking into it for myself now. I've been hitting a > plateau and discussed it with my Neuroimmunologist and he said he'd be > willing to give it a try. > > > Any successes with using it? > > > Thanks, > > , CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Hi , Our son has been on Immunovir for almost two months also. Fortunately, he's doing beautifully on this med.. He's made it through the fall allergy season with no symptoms what so ever (which in itself is a miracle for him). He's gaining weight nicely and has beautiful color for the first time in as long as I can remember. We did complete six months of IVIG prior to starting Immunovir. He has IgG deficiency and severe PANDAS as well. We decided to try to take a break off the IVIG and just continue with the Immunovir, but last week the PANDAS returned so we may have to go back on the IVIG to calm things down again.:-(. I think this drug is certaintly worth a try, it's been working well for our son. Take good care, @...: monica.murgia@...: Thu, 23 Oct 2008 00:41:27 +0000Subject: Re: New updates with Immunovir anti-viral... Hi ,my son is on Imunovir (Isoprinosine) since two months. He hasn't changed a bit unfortunately.IVIG did nothing to him either, but that's my kid. Until we try it, we will never know.....>> Hello-> > I've noticed that several families have their children on Immunovir> and I was wanting to know of their success, and any results.> > I ask because I'm looking into it for myself now. I've been hitting a> plateau and discussed it with my Neuroimmunologist and he said he'd be> willing to give it a try.> > > Any successes with using it?> > > Thanks, > > , CA> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Thank you so much for the response - that is great news. I'm not too familiar with what IVIG is, I don't know if that would be beneficial to/for me or not since your child seems to be doing quite well. Keep me updated, ok? Thanks again, >> Hello-> > I've noticed that several families have their children on Immunovir> and I was wanting to know of their success, and any results.> > I ask because I'm looking into it for myself now. I've been hitting a> plateau and discussed it with my Neuroimmunologist and he said he'd be> willing to give it a try.> > > Any successes with using it?> > > Thanks, > > , CA> > > > > > > > Quote Link to comment Share on other sites More sharing options...
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