Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Dan check out if there are autoimmune issues in your extended family as evidence is building that this can be a significant factor in the current epidemic of developmental disorders. The thinking is that this causes a genetic susceptibility with other factors (likely several) such as environmental toxins providing the trigger. Regarding DAN it is like everything else in life the best people are those who come recommended with a good track record. Dr G is not a supporter of DAN methodology but the best thing you can do is form your own views based on extensive reading from reputable sources. If you go to _http://www.thoughtfulhouse.org/mission_research.htm_ (http://www.thoughtfulhouse.org/mission_research.htm) they have excellent papers you can download for free amongst other things they explain the possible immune plus environment links more clearly. Dr Jepson who is the clinic director I believe has a child diagnosed with autism and also has a new book out Changing The Course of Autism which is worth reading too. Thoughtful house is based in Austin Texas. Good luck In a message dated 23/01/2009 00:52:11 GMT Standard Time, daneshears@... writes: My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experimenting with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is absolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I am experiencing the same in fort drum,no pediatrician that will have enough knowledge about autism.my daughter is 2 yrs old and no verbal. Most of the time she is reading books and lost in space. Early intervention helped but no as much as we thought. I tried the GF diet and no changes. We notice a big changes when we switched to soy milk. Any suggestions about sleeping patterns and how to stop her from bitting when she gets upset? Sent from my BlackBerry® smartphone with SprintSpeed other doctors My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 You should call the NNY Autism Center at 315-773-5405. My daughter is a patient at that clinic and I now work there. I have seen amazing changes in the children coming to our clinic. You can even get a referral from Guthrie. Sheri From: dr_aitejeda@... <dr_aitejeda@...> Subject: Re: other doctors Date: Thursday, January 22, 2009, 9:44 PM I am experiencing the same in fort drum,no pediatrician that will have enough knowledge about autism.my daughter is 2 yrs old and no verbal. Most of the time she is reading books and lost in space. Early intervention helped but no as much as we thought. I tried the GF diet and no changes. We notice a big changes when we switched to soy milk. Any suggestions about sleeping patterns and how to stop her from bitting when she gets upset? Sent from my BlackBerry® smartphone with SprintSpeed other doctors My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I may get some flack on this list, but there ARE good DAN doctors. See " Changing the Course of Autism " By Jepsen, MD, . other doctors My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 I agree totally. The nature of the current and rising developmental epidemic is considered to be a multiple combination of factors which is why some protocols work for some children and not for others. Keeping an open mind and reading the up to date scientific information/literature and lots of opinions parents and professionals is more effective in finding THE most helpful protocol for your child. A significant question to ask when first consulting a new physician and before commencing a regime is to ask about success rates (facts and figures) to see if it is worth spending what usually amounts to very considerable sums of money. In a message dated 23/01/2009 04:20:51 GMT Standard Time, palmerr@... writes: I may get some flack on this list, but there ARE good DAN doctors. See " Changing the Course of Autism " By Jepsen, MD, . -----Original Message----- From: _@..._ (mailto: ) [mailto:_@..._ (mailto: ) ] On Behalf Of _dr_aitejeda@dr_aiteje_ (mailto:dr_aitejeda@...) Sent: Thursday, January 22, 2009 8:44 PM _@..._ (mailto: ) Subject: Re: other doctors I am experiencing the same in fort drum,no pediatrician that will have enough knowledge about autism.my daughter is 2 yrs old and no verbal. Most of the time she is reading books and lost in space. Early intervention helped but no as much as we thought. I tried the GF diet and no changes. We notice a big changes when we switched to soy milk. Any suggestions about sleeping patterns and how to stop her from bitting when she gets upset? Sent from my BlackBerry® smartphone with SprintSpeed other doctors My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane [Non-text portions of this message have been removed] ------------------------------------ Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute, the Parent Coalition, or the list moderator(s)t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Sheri,Thanks a lot!there is a way that we can meet and exchange information. My daughter was diagnosed dec.3 2008.I read over 100 pages per day in refer to autism. But I guess that I need orientation from people that have more experiences with their kids. I think that I met you in a healthfair at fort drum when we just started to notice symptoms. My phone is 917 776 9189 Sent from my BlackBerry® smartphone with SprintSpeed other doctors My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Hello! There are no clinics, under Dr Goldberg's supervision, on the east coast. Kathy on does have a center in NNY that follows the bloodwork and many of the treatments Dr G recommends. I've talked with many parents who highly recommend the NNY center if traveling to the west coast coast is not an option or if you prefer someplace closer to home. http://www.nnyautismcenter.com/ Dr. , who is now located in Texas, visits the center to see children. A number of parents are working on Dr Goldberg to provide training to other doctors and medical professionals so that many parents, who do not have the means to travel to Calif, can get the right care for their affected child. It isn't easy traveling to Calif. We live in land. A straight flight to LAX is 6 hrs ... then there's the cost of the tickets and lodging ... and if you visit the LA area, you might as well stop in and see Mickey. One of these days we might actually make it to DisneyWorld instead of DisneyLand ... :-) If you are new to , I would take a minute to review the 2 websites. http://www.nids.net & http://www.neuroimmunedr.com Again, parents are working to have these sites updated. The bloodwork is very important and will take a few draws. 95 panel allergy test will help to pinpoint food intolerances. Removing milk and carbs from the diet .. bumping up protein . doris - millersville MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 We go to the NNY Center in New York also and have been very pleased with the care we have recieved. It is also fairly easy to get in and out of the town vs. LA I am sure. Angie From: Doris and Steve <sjsmith@...> Subject: re: other doctors " " < > Date: Friday, January 23, 2009, 5:49 AM Hello! There are no clinics, under Dr Goldberg's supervision, on the east coast. Kathy on does have a center in NNY that follows the bloodwork and many of the treatments Dr G recommends. I've talked with many parents who highly recommend the NNY center if traveling to the west coast coast is not an option or if you prefer someplace closer to home. http://www.nnyautis mcenter.com/ Dr. , who is now located in Texas, visits the center to see children. A number of parents are working on Dr Goldberg to provide training to other doctors and medical professionals so that many parents, who do not have the means to travel to Calif, can get the right care for their affected child. It isn't easy traveling to Calif. We live in land. A straight flight to LAX is 6 hrs ... then there's the cost of the tickets and lodging ... and if you visit the LA area, you might as well stop in and see Mickey. One of these days we might actually make it to DisneyWorld instead of DisneyLand ... :-) If you are new to , I would take a minute to review the 2 websites. http://www.nids. net & http://www.neuroimm unedr.com Again, parents are working to have these sites updated. The bloodwork is very important and will take a few draws. 95 panel allergy test will help to pinpoint food intolerances. Removing milk and carbs from the diet .. bumping up protein . doris - millersville MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 I would highly recommend taking them to see Dr. Goldberg. We live far away & he is wonderful to work with us " long distance " . We have monthly phone consultations, we do all the bloodwork locally & then he gets the results. It has worked very well. Our son sounds similar to your oldest daughter. Best wishes- From: daneshears <daneshears@...> Subject: other doctors Date: Sunday, January 11, 2009, 10:30 PM My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 You won't get any flack from me. But unfortunately, this isn't the list to talk about DAN. Several lists to look into for DAN that may be helpful: MB12/Valtrex ABMD autisminterventionsocal TACAUSA There are more, too. All are so easy to find. Cheryl ~Check out my blog: http://www.gryffins-tail.blogspot.com/ On Jan 22, 2009, at 8:20 PM, Palmer, F wrote: > I may get some flack on this list, but there ARE good DAN doctors. > See " Changing the Course of Autism " By Jepsen, MD, . > > > other doctors > > > > > > My oldest daughter regressed at fifteen months and I am currently > being > > inundated with new terms and words, as I attempt to do what is best > for > > her. I recently heard about Dr. G and the hypothesis and I have > > to say that it fit my daughters description perfectly. Prior to her > > regression she could point to her body parts and say them by name, and > > eat with a fork and spoon (by twelve months). She is now three and > can > > still not replicate either task or speak beyond a 15 month level. She > > is very bright, but stares off into space far too much. I am curious > > about what people here think about DAN Doctors, and whether there are > > any Doctors on the east coast. We are currently experiementing > > with the GFCF diet and while we saw good progress on it for the first > > two days, we have seen no sustained progress from it for the last > month. > > > > My second daughter is also remarkably non verbal at 20 months and > > though she makes much better eye contact, I am beginning to be > > concerned for her as well. The doctor I am seeing at Duke is next > > useless. > > > > Neither my wife nor I have a history of autism in our families, > both of > > which are quite large (20 plus cousins) all fine. So we are > completely > > turned around as to what is causing this. > > > > Any pointers to doctors on the east coast, would be a huge help. We > > are seeing a guy at Duke, but he is asolutely the " nothing I can do " > > sort. > > > > Thanks, > > Dane > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 are you out of State to Dr Goldberg but still in the US? Our experience has not been as helpful as yours! We saw Dr Goldberg in December with two of our children and still can't manage to get him to give us a written recommendation (which our medical system here in the UK regards as mandatory) to get the medications prescribed here. So six weeks after tests and lots of expense including spect scan and diagnosis for both we are in the position of being no nearer to starting the protocol. I have been in touch with his office several times trying to get the recommended scripts and advice to give to a physician here and after several emails was unhelpfully advised by Dr Goldberg to tell the UK physician to view his DVD! The reason I visited the US is precisely because there are no Physician's here who follow the treatment much less understand it (and unfortunately the DVD does not contain the specific recommendations relevant to my children!) but they would most likely prescribe based on a written recommendation from Dr Goldberg. I feel totally frustrated by our experience and wondered if anyone else had similar problems or if anyone can offer any advice to moving this forward? S In a message dated 25/01/2009 19:56:43 GMT Standard Time, thehacks@... writes: I would highly recommend taking them to see Dr. Goldberg. We live far away & he is wonderful to work with us " long distance " . We have monthly phone consultations, <WBR>we do all the bloodwork loc & then he gets the results. It has worked very well. Our son sounds similar to your oldest daughter. Best wishes- --- On Sun, 1/11/09, daneshears <_daneshears@..._ (mailto:daneshears@...) > wrote: From: daneshears <_daneshears@..._ (mailto:daneshears@...) > Subject: other doctors _@..._ (mailto: ) Date: Sunday, January 11, 2009, 10:30 PM My oldest daughter regressed at fifteen months and I am currently being inundated with new terms and words, as I attempt to do what is best for her. I recently heard about Dr. G and the hypothesis and I have to say that it fit my daughters description perfectly. Prior to her regression she could point to her body parts and say them by name, and eat with a fork and spoon (by twelve months). She is now three and can still not replicate either task or speak beyond a 15 month level. She is very bright, but stares off into space far too much. I am curious about what people here think about DAN Doctors, and whether there are any Doctors on the east coast. We are currently experiementing with the GFCF diet and while we saw good progress on it for the first two days, we have seen no sustained progress from it for the last month. My second daughter is also remarkably non verbal at 20 months and though she makes much better eye contact, I am beginning to be concerned for her as well. The doctor I am seeing at Duke is next useless. Neither my wife nor I have a history of autism in our families, both of which are quite large (20 plus cousins) all fine. So we are completely turned around as to what is causing this. Any pointers to doctors on the east coast, would be a huge help. We are seeing a guy at Duke, but he is asolutely the " nothing I can do " sort. Thanks, Dane [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Have you done all of the protocol, such as antivirals? antifungals? etc? My daughter started sleeping through the night after the antivirals. My daughter didn't really have anything significant in her immune panel. I wasn't even sure was the way for us but now I am sure it is. It turns out that after we took care of the viral and fungal issues now food allergies are popping up! My daughter used to be so spacey too, totally in her own world and now she is brighter and asking questions and more. HTH- --- dr_aitejeda@... wrote: > Sheri,Thanks a lot!there is a way that we can meet > and exchange information. My daughter was diagnosed > dec.3 2008.I read over 100 pages per day in refer to > autism. But I guess that I need orientation from > people that have more experiences with their kids. > I think that I met you in a healthfair at fort drum > when we just started to notice symptoms. > My phone is 917 776 9189 > Sent from my BlackBerry® smartphone with SprintSpeed > > other doctors > > > My oldest daughter regressed at fifteen months and I > am currently being > inundated with new terms and words, as I attempt to > do what is best for > her. I recently heard about Dr. G and the > hypothesis and I have > to say that it fit my daughters description > perfectly. Prior to her > regression she could point to her body parts and say > them by name, and > eat with a fork and spoon (by twelve months). She > is now three and can > still not replicate either task or speak beyond a 15 > month level. She > is very bright, but stares off into space far too > much. I am curious > about what people here think about DAN Doctors, and > whether there are > any Doctors on the east coast. We are > currently experiementing > with the GFCF diet and while we saw good progress on > it for the first > two days, we have seen no sustained progress from it > for the last month. > > My second daughter is also remarkably non verbal at > 20 months and > though she makes much better eye contact, I am > beginning to be > concerned for her as well. The doctor I am seeing > at Duke is next > useless. > > Neither my wife nor I have a history of autism in > our families, both of > which are quite large (20 plus cousins) all fine. > So we are completely > turned around as to what is causing this. > > Any pointers to doctors on the east coast, would be > a huge help. We > are seeing a guy at Duke, but he is asolutely the > " nothing I can do " > > sort. > > Thanks, > Dane > > > > > [Non-text portions of this message have been > removed] > > > ------------------------------------ > > Responsibility for the content of this message lies > strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute, the > Parent Coalition, or the list > moderator(s). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 - What kind of food allergy testing, diagnosing etc. worked for you. I am sure it was also watching and monitoring / logging her diet? Just wondering what worked well for you. Thanks for any information. Angie > > From: dr_aitejeda <dr_aitejeda> > Subject: Re: other doctors > groups (DOT) com > Date: Thursday, January 22, 2009, 9:44 PM > > I am experiencing the same in fort drum,no > pediatrician that will have enough > knowledge about autism.my daughter is 2 yrs old and > no verbal. Most of the time > she is reading books and lost in space. Early > intervention helped but no as much > as we thought. I tried the GF diet and no changes. > We notice a big changes when > we switched to soy milk. > Any suggestions about sleeping patterns and how to > stop her from bitting when > she gets upset? > Sent from my BlackBerry® smartphone with SprintSpeed > > other doctors > > > My oldest daughter regressed at fifteen months and I > am currently being > inundated with new terms and words, as I attempt to > do what is best for > her. I recently heard about Dr. G and the > hypothesis and I have > to say that it fit my daughters description > perfectly. Prior to her > regression she could point to her body parts and say > them by name, and > eat with a fork and spoon (by twelve months). She > is now three and can > still not replicate either task or speak beyond a 15 > month level. She > is very bright, but stares off into space far too > much. I am curious > about what people here think about DAN Doctors, and > whether there are > any Doctors on the east coast. We are > currently experiementing > with the GFCF diet and while we saw good progress on > it for the first > two days, we have seen no sustained progress from it > for the last month. > > My second daughter is also remarkably non verbal at > 20 months and > though she makes much better eye contact, I am > beginning to be > concerned for her as well. The doctor I am seeing > at Duke is next > useless. > > Neither my wife nor I have a history of autism in > our families, both of > which are quite large (20 plus cousins) all fine. > So we are completely > turned around as to what is causing this. > > Any pointers to doctors on the east coast, would be > a huge help. We > are seeing a guy at Duke, but he is asolutely the > " nothing I can do " > > sort. > > Thanks, > Dane > > > > > [Non-text portions of this message have been > removed] > > > ------------ --------- --------- ------ > > Responsibility for the content of this message lies > strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute, the > Parent Coalition, or the list > moderator(s) . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Angie, Bear with me.. My daughter's bloodwork through the MD didn't show anything indicating she had food allergies. But her allergies show up (as far as I can tell) through either hives or diarrhea. But honestly know of this stuff showed up until after my daughter had the viral and fungal stuff cleared up. Its like her immune system started scrambling to take care of the foods it didn't like. First I started with the GF/CF diet, and after my daughter was on the antiviral, all of her stools were bad. Then the antifungal fixed them for awhile, then She had bad poops again and I just did the " sleuth " thing and eliminated yeast(its in GF crackers and GF breads, too)...that worked for awhile, then I eliminated eggs, then that worked. Then strawberries. Now she and all my kids have been battling a long virus so we will see how long that goes. I am hoping there's no more bad stools from now on. As far as allergy testing for the foods, the Dr. told me that our kiddos with immune problems will not have accurate testing many times, so we have to eliminate. That proved to be true in our case, too. I hope this helps. Sorry for the book I wrote - > What kind of food allergy testing, diagnosing etc. > worked for you. I am sure it was also watching and > monitoring / logging her diet? Just wondering what > worked well for you. > Thanks for any information. > Angie > > > > > > From: dr_aitejeda <dr_aitejeda@ > > > > Subject: Re: other doctors > > groups (DOT) com > > Date: Thursday, January 22, 2009, 9:44 PM > > > > I am experiencing the same in fort drum,no > > pediatrician that will have enough > > knowledge about autism.my daughter is 2 yrs old > and > > no verbal. Most of the time > > she is reading books and lost in space. Early > > intervention helped but no as much > > as we thought. I tried the GF diet and no changes. > > We notice a big changes when > > we switched to soy milk. > > Any suggestions about sleeping patterns and how to > > stop her from bitting when > > she gets upset? > > Sent from my BlackBerry® smartphone with > SprintSpeed > > > > other doctors > > > > > > My oldest daughter regressed at fifteen months and > I > > am currently being > > inundated with new terms and words, as I attempt > to > > do what is best for > > her. I recently heard about Dr. G and the > > hypothesis and I have > > to say that it fit my daughters description > > perfectly. Prior to her > > regression she could point to her body parts and > say > > them by name, and > > eat with a fork and spoon (by twelve months). She > > is now three and can > > still not replicate either task or speak beyond a > 15 > > month level. She > > is very bright, but stares off into space far too > > much. I am curious > > about what people here think about DAN Doctors, > and > > whether there are > > any Doctors on the east coast. We are > > currently experiementing > > with the GFCF diet and while we saw good progress > on > > it for the first > > two days, we have seen no sustained progress from > it > > for the last month. > > > > My second daughter is also remarkably non verbal > at > > 20 months and > > though she makes much better eye contact, I am > > beginning to be > > concerned for her as well. The doctor I am seeing > > at Duke is next > > useless. > > > > Neither my wife nor I have a history of autism in > > our families, both of > > which are quite large (20 plus cousins) all fine. > > So we are completely > > turned around as to what is causing this. > > > > Any pointers to doctors on the east coast, would > be > > a huge help. We > > are seeing a guy at Duke, but he is asolutely the > > " nothing I can do " > > > > sort. > > > > Thanks, > > Dane > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > ------------ --------- --------- ------ > > > > Responsibility for the content of this message > lies > > strictly with > > the original author(s), and is not necessarily > > endorsed by or the > > opinion of the Research Institute, the > > Parent Coalition, or the list > > moderator(s) . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 I figured you just logged it and did it without labs, etc. We see Dr. too, and I was not really planning on doing any labwork for this, which is ok with me too. My son does not really have a real significant immune panel, but has responded to the antiviral, so I know there are false negatives often. I am reading the Rapp book on allergy, but was wondering what your experience was also. Thanks. Angie > > > > From: dr_aitejeda <dr_aitejeda@ > > > > Subject: Re: other doctors > > groups (DOT) com > > Date: Thursday, January 22, 2009, 9:44 PM > > > > I am experiencing the same in fort drum,no > > pediatrician that will have enough > > knowledge about autism.my daughter is 2 yrs old > and > > no verbal. Most of the time > > she is reading books and lost in space. Early > > intervention helped but no as much > > as we thought. I tried the GF diet and no changes. > > We notice a big changes when > > we switched to soy milk. > > Any suggestions about sleeping patterns and how to > > stop her from bitting when > > she gets upset? > > Sent from my BlackBerry® smartphone with > SprintSpeed > > > > other doctors > > > > > > My oldest daughter regressed at fifteen months and > I > > am currently being > > inundated with new terms and words, as I attempt > to > > do what is best for > > her. I recently heard about Dr. G and the > > hypothesis and I have > > to say that it fit my daughters description > > perfectly. Prior to her > > regression she could point to her body parts and > say > > them by name, and > > eat with a fork and spoon (by twelve months). She > > is now three and can > > still not replicate either task or speak beyond a > 15 > > month level. She > > is very bright, but stares off into space far too > > much. I am curious > > about what people here think about DAN Doctors, > and > > whether there are > > any Doctors on the east coast. We are > > currently experiementing > > with the GFCF diet and while we saw good progress > on > > it for the first > > two days, we have seen no sustained progress from > it > > for the last month. > > > > My second daughter is also remarkably non verbal > at > > 20 months and > > though she makes much better eye contact, I am > > beginning to be > > concerned for her as well. The doctor I am seeing > > at Duke is next > > useless. > > > > Neither my wife nor I have a history of autism in > > our families, both of > > which are quite large (20 plus cousins) all fine. > > So we are completely > > turned around as to what is causing this. > > > > Any pointers to doctors on the east coast, would > be > > a huge help. We > > are seeing a guy at Duke, but he is asolutely the > > " nothing I can do " > > > > sort. > > > > Thanks, > > Dane > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > ------------ --------- --------- ------ > > > > Responsibility for the content of this message > lies > > strictly with > > the original author(s), and is not necessarily > > endorsed by or the > > opinion of the Research Institute, the > > Parent Coalition, or the list > > moderator(s) . > > Quote Link to comment Share on other sites More sharing options...
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