Hi, new to the group...1st post

[Guest guest]

Hi all. My name is . I am a 35yo sahm of 2. I joined this

group for my 31/2 year old son Devyn. I also have a 12 month old that

was born prematurely and has developmental delays as well. My husband

is a hospital corpsman in the Navy and is currently deployed. I found

this group through research I am doing to help Devyn. I am so lost.

I have had him tested through the school district. The ADOS (austim

diagnostic observation test) was inconclusive. They diagnosed him as

sig language delayed, but it was the end of the school year so there

were no services offered. I worked with him really hard through the

summer and now that services have started they see a lot of

improvement and say " he doesn't seem autistic " . Over the summer I got

him 2 sessions of neurofeedback and that helped tremendously with his

bowel movements. In the past, without his homeopathic spray, he would

not go for 4-5 days. Now, he goes every day, sometimes twice or more,

without the use of any aids. But he is showing increased aggression.

I tried to get him involved in gymnastics and karate this week but we

got kicked out of both. I called another gymnastics gym and spoke

with the manager and she agreed to allow him into the younger class

because of his delays. We will see how that goes next week. I have

him on 3600 mg of omega 3 everyday and I am beginning a few other

supplements that I have been researching such as GABA, NAC, L-Theanine

and Bach Flower remedies. An Early Start Coordinator was at my house

the other day to test my younger son and we discussed Devyn. She

watched Devyn interact with me and agreed that he is confusing. He

does give eye contact, he is sociable and friendly but she agreed

something is not right. It's like he's in his own world sometimes.

Sometimes he will answer me and interact sometimes he is in what we

call " Devynland " . He also intermittenly does this self-stimulatory

act of twirling his hands and he has a new fear of water. Some times

I get so frustrated because I don't know what of his actions are

disciplinary and what are his delay. He also has extreme sensory

issues. He can't stand things to touch him. If his juice spills he

says he needs a wipe. He can't stand to watch his brother eat because

the sight of it makes him gag. I have a lot of trouble with his

nutrition because he won't eat! There are 2-3 things I can get him to

eat and if its not those things he will starve himself. He never

expresses hunger. He is very OCD, lining things up and cleaning his

toys. He has a lot of changes this past year. The birth of his

brother was very traumatic. His father had just gotten home from 6

months in Iraq and 2 weeks later his brother was born, but under

extreme circumstances, I had to go live in the Mc House

to be near him while he was in the NICU for 2 1/2 months. So my son

lost me during that time and then when I got back, I brought home a

sick baby. Then 8 months later my husband left again. We went to OK

to visit my inlaws, that way he could be around more family and I

could get some help. Now we are in CA with my family. I think this

is all too much for him. I think he might be experiencing some sort

of PTSD. Wow, this is all just pouring out. Obviously, I am

frustrated and seeking help. I printed the list of tests Dr. Goldberg

recommends. Any idea how to get my ped to order them? Thank you for

listening.