Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 TO: , Dr. Goldberg's response on Stealth virus & Dr. . In a Q & A from a patient from his web site, www.neuroimmunedr.com. Al Dear Olivia,As you support and illustrate, I believe it is very important to attemptto clear up / clean up achild's body medically , before introducing supplements. In general, Irecommend a diet,high protein, low starch and sugar, and usually do fine, - carefullyavoiding allergens (ornegative triggers). Without seeing the testing (and much metabolic /food testing is open todebate and proper perspective) I cannot say for sure how strict you needto be regardingthe peanut oil and olive oil ("oils" in general, are less allergenicthan proteins).While I am not familiar with CLF cell linguistics protocol (please feelfree to send details), Ihave been aware of 's stealth virus work for over a decadenow, and have notbeen impressed by any antedotal therapies suggested. I think it is timethat all parents beginto realize, that while as I have noted in the past, I do respect Dr.'s efforts; when hehas evolved from calling the "Stealth" virus the cause of CFS, the causeof homeless people,to the cause "multiple complex neuropathies" including Autism / PDD, onemust begin tostep back, and realize, that while there may be a role for the stealthvirus, it is NOT theprincipal cause, or should it be a principal focus.Take care,MJG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 I agree with you-I am not buying into this stealth virus thing yet-even though I supposedly have it....call me a skeptic but I need hard proof from more than one source....thanks for forwarding the information though......you always have to be suspicious of someone who thinkks they have found the answer to a big portion of chronic illnesses-that is why I don't like it when Lyme people think that all of cfids is Lyme---it's lumping us all together and it's just going to hurt us in the end.... Fw: Dr. Goldberg TO: , Dr. Goldberg's response on Stealth virus & Dr. . In a Q & A from a patient from his web site, www.neuroimmunedr.com. Al Dear Olivia,As you support and illustrate, I believe it is very important to attemptto clear up / clean up achild's body medically , before introducing supplements. In general, Irecommend a diet,high protein, low starch and sugar, and usually do fine, - carefullyavoiding allergens (ornegative triggers). Without seeing the testing (and much metabolic /food testing is open todebate and proper perspective) I cannot say for sure how strict you needto be regardingthe peanut oil and olive oil ("oils" in general, are less allergenicthan proteins).While I am not familiar with CLF cell linguistics protocol (please feelfree to send details), Ihave been aware of 's stealth virus work for over a decadenow, and have notbeen impressed by any antedotal therapies suggested. I think it is timethat all parents beginto realize, that while as I have noted in the past, I do respect Dr.'s efforts; when hehas evolved from calling the "Stealth" virus the cause of CFS, the causeof homeless people,to the cause "multiple complex neuropathies" including Autism / PDD, onemust begin tostep back, and realize, that while there may be a role for the stealthvirus, it is NOT theprincipal cause, or should it be a principal focus.Take care,MJG This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 We " did " Dr. Goldberg for a year and a half, with a lot of frustration (and $$ spent) and no results. He is not open to any new treatment or protocol other than his own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 For personal reason I chose not to use him even though I had an appointment, he is not a supportive of chelation or mercury poison. Also I know two other families using him, I don't see him helping thier childern, and he has been very negative to one Mom everything she ask about, the things I am doing, he really ran her in the ground for asking to do these things, such as AIT. Sorry, I don't have a realy good feeling about him. [ ] Dr. Goldberg > Hi everybody, > Thanks for all that good feedback with regards my sons " fast healing ability. " Today, I have another question. Does anybody know anything about Dr. Goldberg and his treatment and has anybody consulted him? > Nina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Dr. Goldberg in Cherry Hill, NJ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 I was assuming this was asking about Dr. Goldberg in Tarzana, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 NO, California, big talker, very stick on his methods. Told me he would " cure " my son well he didn't have a clue. Told the friend I went with he could cure her son too, 6 years later he is actually worse, and this guy is telling the family, Oh don't believe those people who tell you you can remove mercury, they will just cause more damage to their childern. Yea, well, I don't think SO! Re: [ ] Dr. Goldberg > Dr. Goldberg in Cherry Hill, NJ? > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Hi , Just wanted to say hello. I haven't seen you in awhile. How is your daughter doing? We are getting ready to chelate my grandsons. Big undertaking with a ton of planning. is in 1st grade this year and doing incredibly well. 's behavior is under control and he is doing extremely well on that front but we are struggling with his method of learning. No answers yet but working on it. I have a new grandson, Jake who just turned 3 months. I am taking care of him as mom went back to work. I am enjoying the heck out of it too. He is so cute and his smile just lights up the room. Hope all is well with you and yours, Lorelie Re: [ ] Dr. Goldberg I was assuming this was asking about Dr. Goldberg in Tarzana, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 In a message dated 6/5/03 8:47:33 AM Central Daylight Time, tsradican@... writes: > The main reason being that he would not even consider the vaccine issue I haven't discussed vaccines directly with him but it is my understanding that he recommends delaying some for kids with medical problems (which he believes most kids diagnosed with regressive autism have) but giving most of them. He never asked if my son was up to date on them though. > wouldn't work with my pediatrician. I have heard of him working with other people's doctors so perhaps he's changed on this one. We haven't asked him to work with our ped so no personal experience here. > his ideas of treatment and not > usually open to other research. That's true. He's a viral guy, who also treats yeast and strep, and uses SSRIs and a few attention drugs. He's also a conventional drug guy. He's very anti-DAN group, anti-supplements, etc. He's ok with some supplements but recommends removing most of them because he believes many aggravate dysfunctional immune systems. He is not a doc who will look at or address all possibilities nor one to have open conversations about various other treatments with. We chose to see him to treat viral issues and explore SSRIs with our son. I feel those are his strongest areas and he really seems to know what he's doing with those. He just ordered a strep titer for my son so if that comes back as a problem, we'll also treat it. > know that he has had great success with those kids he has > worked with. Yes, some children are doing extremely well with his treatment but others I have followed are not progressing or are getting worse. It really seems to me that those progressing tend to have a big viral involvement while others who are probably more affected by other things are not helped. It was also my understanding that if you did not do the monthly phone consults > that your scripts were not refilled. That is true though the consults are now every six weeks due to his overloaded schedule. I can understand why he does that in the early stages -- first year -- since he wants to closely monitor response, blood work, etc to ensure that the best med is being used and he has to manipulate the meds for many kids. Once the child is stabilized though and set with the meds that are working, I think he should give longer prescriptions. As he gets busier, he may change that. Our plan is to work with him until our child is set on meds and then have our local doc keep the prescriptions going until we're ready to wean him off. Some kids are able to drop all the meds after a few years, others can drop some but some have to stay on them for quite a long time. > process of developing an auto immune > drug that is to be the answer to our kids immune problems. He is supposedly in the process of developing an immune modulator drug to help our kids but that has been " just about to happen " for many years from what I understand from former patients. He talks about it some but never really gets into it deeply so who knows when that will be a reality. I guess I am just curious of your take. > starting this > Biomedical journey. I have knowledge, but where to begin and who to believe is so > confusing. Just want your take. My thoughts: Read up on viral issues and see if your child seems to fit those symptoms heavily. If so, he's your guy. If not, see one of the DAN doctors first and then consider seeing him down the road. > Absolutely not. We got a big lecture on the " harm " we'd done to our son and what a " low prognosis " he had due to the chelation and other treatments he'd done at the very start of our apt. Then, when my son blew him away by fully cooperating, conversing and being able to do many of the neurological tests he asked of him, he apologized for his comments. He does tend to rant without considering the consequences at times and goes on rabidly against other treatments, especially chelation. If you see him, you want to be finished with other treatments or postpone them until your child is stabilized on his meds and then move on to another doc. That makes sense anyway though since it's best not to do too many things at once. If you choose to see him, e-mail me privately and I'll give you some pointers on how best to work with him. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 In a message dated 6/5/03 8:47:33 AM Central Daylight Time, tsradican@... writes: > The main reason being that he would not even consider the vaccine issue I haven't discussed vaccines directly with him but it is my understanding that he recommends delaying some for kids with medical problems (which he believes most kids diagnosed with regressive autism have) but giving most of them. He never asked if my son was up to date on them though. > wouldn't work with my pediatrician. I have heard of him working with other people's doctors so perhaps he's changed on this one. We haven't asked him to work with our ped so no personal experience here. > his ideas of treatment and not > usually open to other research. That's true. He's a viral guy, who also treats yeast and strep, and uses SSRIs and a few attention drugs. He's also a conventional drug guy. He's very anti-DAN group, anti-supplements, etc. He's ok with some supplements but recommends removing most of them because he believes many aggravate dysfunctional immune systems. He is not a doc who will look at or address all possibilities nor one to have open conversations about various other treatments with. We chose to see him to treat viral issues and explore SSRIs with our son. I feel those are his strongest areas and he really seems to know what he's doing with those. He just ordered a strep titer for my son so if that comes back as a problem, we'll also treat it. > know that he has had great success with those kids he has > worked with. Yes, some children are doing extremely well with his treatment but others I have followed are not progressing or are getting worse. It really seems to me that those progressing tend to have a big viral involvement while others who are probably more affected by other things are not helped. It was also my understanding that if you did not do the monthly phone consults > that your scripts were not refilled. That is true though the consults are now every six weeks due to his overloaded schedule. I can understand why he does that in the early stages -- first year -- since he wants to closely monitor response, blood work, etc to ensure that the best med is being used and he has to manipulate the meds for many kids. Once the child is stabilized though and set with the meds that are working, I think he should give longer prescriptions. As he gets busier, he may change that. Our plan is to work with him until our child is set on meds and then have our local doc keep the prescriptions going until we're ready to wean him off. Some kids are able to drop all the meds after a few years, others can drop some but some have to stay on them for quite a long time. > process of developing an auto immune > drug that is to be the answer to our kids immune problems. He is supposedly in the process of developing an immune modulator drug to help our kids but that has been " just about to happen " for many years from what I understand from former patients. He talks about it some but never really gets into it deeply so who knows when that will be a reality. I guess I am just curious of your take. > starting this > Biomedical journey. I have knowledge, but where to begin and who to believe is so > confusing. Just want your take. My thoughts: Read up on viral issues and see if your child seems to fit those symptoms heavily. If so, he's your guy. If not, see one of the DAN doctors first and then consider seeing him down the road. > Absolutely not. We got a big lecture on the " harm " we'd done to our son and what a " low prognosis " he had due to the chelation and other treatments he'd done at the very start of our apt. Then, when my son blew him away by fully cooperating, conversing and being able to do many of the neurological tests he asked of him, he apologized for his comments. He does tend to rant without considering the consequences at times and goes on rabidly against other treatments, especially chelation. If you see him, you want to be finished with other treatments or postpone them until your child is stabilized on his meds and then move on to another doc. That makes sense anyway though since it's best not to do too many things at once. If you choose to see him, e-mail me privately and I'll give you some pointers on how best to work with him. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 I am intrigued by your going to Dr. Goldberg. He was the first Dr. I had found who seemed to have a way to help my sons. I had appointments for my sons two months after 9/11. We did not go for a couple of reasons. The main reason being that he would not even consider the vaccine issue and he wouldn't work with my pediatrician. I thought he was usually on his own in his ideas of treatment and not usually open to other research. I do however know that he has had great success with those kids he has worked with. It was also my understanding that if you did not do the monthly phone consults that your scripts were not refilled. Also, I thought that he was in the process of developing an auto immune drug that is to be the answer to our kids immune problems. I guess I am just curious of your take. I am just starting this Biomedical journey. I have knowledge, but where to begin and who to believe is so confusing. Just want your take. I am in no way putting down any treatments here. I just want clarification of your take on your trip. Is he also open to the other treatments you have done? Maybe I need to reconsider going to him. Thanks for your input, Tammie >From: Googahly@... >Reply-Autism Treatment >Autism Treatment >Subject: Re: DR Response >Date: Thu, 5 Jun 2003 01:14:12 EDT > >The " good results " we've seen in my son since he started Valtrex (later >changed to Famvir) were a very rapid improvement in motor skills, >especially >writing clarity and ease of writing. Fine motor has always been very hard >for him >and he has worked extremely hard to write clearly, not too big and between >the >lines. Up until starting antiviral treatment writing a 3-sentence >paragraph >took quite a bit of effort, causing great fatique, and was pretty messy. >Within a month of starting the treatment, suddenly writing was much easier, >his >writing was suddenly much smaller and easier to read and it was much less >fatiguing so much that he was excited to write and would often write a full >page when >only asked to write a paragraph. > >Other motor tasks like washing himself, buttoning clothes, tying shoes, etc >have also come much easier though are still hard for him. > >The other obvious improvement he's had since starting antiviral treatment >has >been in auditory processing and retelling of stories. Prior to treatment, >after 2-3 sentences of auditory stories or written stories, his ability to >retell what he'd heard/read or discuss it was extremely difficult and often >impossible. After two months of antiviral treatment, this ability jumped >so much >that he is now easily able to retell/summarize stories that are up to a >full page >long. > >There have been other, more subtle improvements, like better focus and >attention, longer duration of interaction with other kids, understanding >concepts >better, etc. > >We have been working with Dr. Goldberg from Tarzana, California, >since last December. We had done many other biomedical treatments which >have >helped quite a bit before. I had never really thought vaccines or viral >stuff >applied to him until we did some weird electrodermal testing on a lark that >showed him extremely affected by HHV6. In reading up on HHV6 and viruses >connection with neurocognitive problems, I found he had many of the signs >over the >years. I also recalled that he was exposed to roseola and then had a >different >two-week viral illness that occured shortly after he started regressing. >The >biggest clue was that he wasn't able to use his right arm and leg very well >for >several years after becoming ill. From my reading, talking to other >parents >of kids with HHV6 problems and Dr. Goldberg, I understand the weakness or >difficulty using one side of the body is often a very strong sign of viral >involvement. We delayed going this route for a few years though because >conventional titer testing only showed him to be " equivocal " on HHV6. >However, Dr. >Goldberg has said that many of his patients do not have high viral titers >because >their bodies are unable to fight the virus so cannot properly produce >antibodies. He treated my son on symptoms alone and does seem to have hit >something >that was affecting him. We purposefully did no other new treatments or >therapies over the past six months to be able to better guage the results >so I feel >pretty confident that the progress is due to the treatment rather than >something else. >Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2003 Report Share Posted June 5, 2003 I am intrigued by your going to Dr. Goldberg. He was the first Dr. I had found who seemed to have a way to help my sons. I had appointments for my sons two months after 9/11. We did not go for a couple of reasons. The main reason being that he would not even consider the vaccine issue and he wouldn't work with my pediatrician. I thought he was usually on his own in his ideas of treatment and not usually open to other research. I do however know that he has had great success with those kids he has worked with. It was also my understanding that if you did not do the monthly phone consults that your scripts were not refilled. Also, I thought that he was in the process of developing an auto immune drug that is to be the answer to our kids immune problems. I guess I am just curious of your take. I am just starting this Biomedical journey. I have knowledge, but where to begin and who to believe is so confusing. Just want your take. I am in no way putting down any treatments here. I just want clarification of your take on your trip. Is he also open to the other treatments you have done? Maybe I need to reconsider going to him. Thanks for your input, Tammie >From: Googahly@... >Reply-Autism Treatment >Autism Treatment >Subject: Re: DR Response >Date: Thu, 5 Jun 2003 01:14:12 EDT > >The " good results " we've seen in my son since he started Valtrex (later >changed to Famvir) were a very rapid improvement in motor skills, >especially >writing clarity and ease of writing. Fine motor has always been very hard >for him >and he has worked extremely hard to write clearly, not too big and between >the >lines. Up until starting antiviral treatment writing a 3-sentence >paragraph >took quite a bit of effort, causing great fatique, and was pretty messy. >Within a month of starting the treatment, suddenly writing was much easier, >his >writing was suddenly much smaller and easier to read and it was much less >fatiguing so much that he was excited to write and would often write a full >page when >only asked to write a paragraph. > >Other motor tasks like washing himself, buttoning clothes, tying shoes, etc >have also come much easier though are still hard for him. > >The other obvious improvement he's had since starting antiviral treatment >has >been in auditory processing and retelling of stories. Prior to treatment, >after 2-3 sentences of auditory stories or written stories, his ability to >retell what he'd heard/read or discuss it was extremely difficult and often >impossible. After two months of antiviral treatment, this ability jumped >so much >that he is now easily able to retell/summarize stories that are up to a >full page >long. > >There have been other, more subtle improvements, like better focus and >attention, longer duration of interaction with other kids, understanding >concepts >better, etc. > >We have been working with Dr. Goldberg from Tarzana, California, >since last December. We had done many other biomedical treatments which >have >helped quite a bit before. I had never really thought vaccines or viral >stuff >applied to him until we did some weird electrodermal testing on a lark that >showed him extremely affected by HHV6. In reading up on HHV6 and viruses >connection with neurocognitive problems, I found he had many of the signs >over the >years. I also recalled that he was exposed to roseola and then had a >different >two-week viral illness that occured shortly after he started regressing. >The >biggest clue was that he wasn't able to use his right arm and leg very well >for >several years after becoming ill. From my reading, talking to other >parents >of kids with HHV6 problems and Dr. Goldberg, I understand the weakness or >difficulty using one side of the body is often a very strong sign of viral >involvement. We delayed going this route for a few years though because >conventional titer testing only showed him to be " equivocal " on HHV6. >However, Dr. >Goldberg has said that many of his patients do not have high viral titers >because >their bodies are unable to fight the virus so cannot properly produce >antibodies. He treated my son on symptoms alone and does seem to have hit >something >that was affecting him. We purposefully did no other new treatments or >therapies over the past six months to be able to better guage the results >so I feel >pretty confident that the progress is due to the treatment rather than >something else. >Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Dear parents, I'm excited to join this group. I heard Dr. Goldberg from one of my friends but have not yet known much about his protocol. My son suffered lots of toxic chemical and bacterial from remodeled constriction house when he was a new baby. When we moved in a brand house, he also exposed in new chemical environment. His urine test, hair test, and blood test showed that has low level heavy metals. These tests may not be accurate but I think his problems may not caused by heavy metals but something else. Please share your experience that working with Dr. Goldberg. I wondered if his protocol can help my son. Thank you in advance! Hanna Quote Link to comment Share on other sites More sharing options...
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