Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 > From: thefamily007 <donnaaron@sbcglobal .net> > Subject: Re: IMGG and Immunovir > groups (DOT) com > Date: Wednesday, December 17, 2008, 1:16 AM > > > > > > > > > > > > It's an immune modulator, currently being used with > some success in > > CFIDS patients, specifically addressing NK issues. It's made in > > Ireland and is currently not available in the U.S. because of > > political, not safety, reasons. (Insert " rolling eyes " emoticon here!) > > U.S. patients have to purchase it from Canadian pharmacies, and it's > > expensive. Dr. G suggested that we try it a while back, but we opted > > to try IMGG first because our insurance will cover it. > > > > > >> From: thefamily007 <donnaaron@. ..> > >> Subject: IMGG and Immunovir > >> groups (DOT) com > >> Date: Wednesday, December 17, 2008, 12:55 AM > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Hello, listmates, > >> > >> > >> > >> I'm curious as to how the kiddos who have had IMGG and Immunovir have > >> > >> responded to them. > >> > >> > >> > >> My son has been getting IMGG shots every three weeks to treat low NK > >> > >> cells and a low white count. He had his fifth injection last > >> > >> Thursday. Each time, he seems " off " for a few days, and then we >> start > >> > >> to notice some incremental improvements, but nothing huge. Then, in > >> > >> the week before the next injection, he starts to lose his " edge " , for > >> > >> lack of a better way to put it. He's " on " for a couple of weeks, and > >> > >> then he's " off " for a week. It's disappointing, to say the least, > >> > >> because the improvements (at least in terms of behavior and cognitive > >> > >> functioning) don't seem to last, and the IMGG shots won't go on > > forever. > >> > >> > >> > >> I haven't heard yet if the last blood work-up yielded any improved NK > >> > >> or white cell results. If IMGg doesn't do the trick, we will bite >> the > >> > >> bullet and spend the $$ on Immunivir. > >> > >> > >> > >> To those with kids on Immunivir -- how are they doing? What > >> > >> improvements, if any, are you seeing? And are they lasting? > >> > >> > >> > >> TIA, > >> > >> > >> > >> Donna > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 > > > >> From: thefamily007 <donnaaron@ ..> > > > >> Subject: IMGG and Immunovir > > > >> groups (DOT) com > > > >> Date: Wednesday, December 17, 2008, 12:55 AM > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> Hello, listmates, > > > >> > > > >> > > > >> > > > >> I'm curious as to how the kiddos who have had IMGG and Immunovir have > > > >> > > > >> responded to them. > > > >> > > > >> > > > >> > > > >> My son has been getting IMGG shots every three weeks to treat low NK > > > >> > > > >> cells and a low white count. He had his fifth injection last > > > >> > > > >> Thursday. Each time, he seems " off " for a few days, and then we > >> start > > > >> > > > >> to notice some incremental improvements, but nothing huge. Then, in > > > >> > > > >> the week before the next injection, he starts to lose his " edge " , for > > > >> > > > >> lack of a better way to put it. He's " on " for a couple of weeks, and > > > >> > > > >> then he's " off " for a week. It's disappointing, to say the least, > > > >> > > > >> because the improvements (at least in terms of behavior and cognitive > > > >> > > > >> functioning) don't seem to last, and the IMGG shots won't go on > > > > forever. > > > >> > > > >> > > > >> > > > >> I haven't heard yet if the last blood work-up yielded any improved NK > > > >> > > > >> or white cell results. If IMGg doesn't do the trick, we will bite > >> the > > > >> > > > >> bullet and spend the $$ on Immunivir. > > > >> > > > >> > > > >> > > > >> To those with kids on Immunivir -- how are they doing? What > > > >> > > > >> improvements, if any, are you seeing? And are they lasting? > > > >> > > > >> > > > >> > > > >> TIA, > > > >> > > > >> > > > >> > > > >> Donna > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> Quote Link to comment Share on other sites More sharing options...
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