Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 I am thinking of taking my son to this doctor. We have been to just about every autism doc and have done every test. My son is on IVIG but it seems to wear off he is on gamunex once a month. We have been on Valtrex for the HHV6 but he does have high ammonia and gut/clostridia problems. Does this doc do anything different than the other docs for the immune system. He does take insurance so that is great but he is 4 hr drive. Any recommendations for us to try before going to see him. Thanks!!!! > From: thefamily007 <donnaaron@sbcglobal .net> > Subject: Re: IMGG and Immunovir > groups (DOT) com > Date: Wednesday, December 17, 2008, 1:16 AM > > > > > > > > > > > > It's an immune modulator, currently being used with > some success in > > CFIDS patients, specifically addressing NK issues. It's made in > > Ireland and is currently not available in the U.S. because of > > political, not safety, reasons. (Insert " rolling eyes " emoticon here!) > > U.S. patients have to purchase it from Canadian pharmacies, and it's > > expensive. Dr. G suggested that we try it a while back, but we opted > > to try IMGG first because our insurance will cover it. > > > > > >> From: thefamily007 <donnaaron@. ..> > >> Subject: IMGG and Immunovir > >> groups (DOT) com > >> Date: Wednesday, December 17, 2008, 12:55 AM > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Hello, listmates, > >> > >> > >> > >> I'm curious as to how the kiddos who have had IMGG and Immunovir have > >> > >> responded to them. > >> > >> > >> > >> My son has been getting IMGG shots every three weeks to treat low NK > >> > >> cells and a low white count. He had his fifth injection last > >> > >> Thursday. Each time, he seems " off " for a few days, and then we >> start > >> > >> to notice some incremental improvements, but nothing huge. Then, in > >> > >> the week before the next injection, he starts to lose his " edge " , for > >> > >> lack of a better way to put it. He's " on " for a couple of weeks, and > >> > >> then he's " off " for a week. It's disappointing, to say the least, > >> > >> because the improvements (at least in terms of behavior and cognitive > >> > >> functioning) don't seem to last, and the IMGG shots won't go on > > forever. > >> > >> > >> > >> I haven't heard yet if the last blood work-up yielded any improved NK > >> > >> or white cell results. If IMGg doesn't do the trick, we will bite >> the > >> > >> bullet and spend the $$ on Immunivir. > >> > >> > >> > >> To those with kids on Immunivir -- how are they doing? What > >> > >> improvements, if any, are you seeing? And are they lasting? > >> > >> > >> > >> TIA, > >> > >> > >> > >> Donna > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 Who is Dr. ? Does he follow the protocol? Where in Texas? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Dr. is a protege (I believe) of Dr. G and he does protocol with children in TX and through the NNY autism center. We flew from chicago to NY to see him and now we do phone consults with him. He is great! -Jennie --- Tarsi <michelletarsi@...> wrote: > Who is Dr. ? Does he follow the > protocol? Where in > Texas? Thanks, > May the Lord bless you and keep you! Visit my blog http://bloominwhereyourplanted.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
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