Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 HI, What is the name of your doctor? My mom is also in Houston, TX. Thanks, > > hi nicole, im so sorry about your mom. i can't believe the rheummy is not able to determine the type of ra, that's kinda strange!! my fingers are also destroyed by the severity of my ra. sometimes i have to have help eating & other thing done for me due to the pain & fusion of my joints. it sux! i feel bad mostly every day & then when i do feel good i still need help! i've been sick with ra since age 5. they ran all kinds of tests on me blood work etc. my dr. here told my mom back then it was growing pains, to keep me in bed. GROWING PAINS MY A--!! it was not until my mom took me to houston,tx.. the dr. dx me right away. so yes i believe sometimes they can't figure it out but you have to keep on them!! i don't think it's hereditary because when i was pregnant with my daughter, i went through genetic testing & everything just to be sure. i was BLESSED WITH A HEALTHY BABY GIRL!! no one else in my family has it just me, so i don't know where i got it cuz i > was born a healthy baby.. everyone ask how did u get ra & i tell them i don't know, i guess god choose me to bear this cross. so that's what i'm doing! about the pregnancy question, when i was pregnant with my daughter,alyssa i felt SO ALIVE & FULL OF ENERGY. > however, after she was born my ra was in full force & i was in soooo much pain i had to start back up on all my meds. the prednisone HELPED the most!! hang in there nicole, you will have good & bad days, HOPEFULLY more GOOD days.... HOPE i could be of some help... god bless,melyndagamez 6/7/08 5:25p.m.central time > > > [ ] Please help! > > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 hi nicole, the drs.name was dr. brewer, he was a children's dr. that was back in 1974.. sorry. god bless,melyndagamez [ ] Please help! > > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse.. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Your mother should get a second opinion ASAP, . Not an MD On Sat, Jun 7, 2008 at 1:23 PM, OM Shanti <nk_laurie@...> wrote: > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 In about four years they have not been able to identify & nbsp; my inflammatory arthritis. & nbsp; I go from being diagnosed with arthopathies, to unspecified diffuse connective tissue disease, to seronegative RA. & nbsp; I have evidence of changes being made in my knees (although hips, hands, fingers, feet, ankles, are very bad as well). & nbsp; I'm treated with DMARDs but still have a lot of pain. & nbsp; Has she been to a specialty hospital with a rheumatologist? From: OM Shanti & lt;nk_laurie@... & gt; Subject: [ ] Please help! Date: Saturday, June 7, 2008, 2:23 PM My mom has unidentifiable arthritis. She has been seeing a reumatologist who says it is one of the most aggressive cases she has ever seen. It is completely destroying her joints. She has no joints left in her index fingers, they are entirely fused together. Doctor has ruled out RA but assumed it was autoimmune and has been using chemo-like IV drugs on her for over a year. Instead of getting better, it has gotten MUCH MUCH worse. Her doc says she only has 3 patients who are like my mom. She has recommended for my mom to get a second opinion, because she doesn't know if she is " missing " something. Now the doctor thinks it is inflammatory arthritis and is going to d/c the IVs soon, and start her on antibiotics contintuously. And maybe steroids. My mom doesn't want to take steroids, she will only take them as a last resort. IN the meantime her arthritis has gotten horrendous over the past two years. She went from having red nodules on her joints, to having no joints. Has anyone heard of a case like this, where doctors could not identify the type of arthritis, and treatment has not helped. Also, I am wondering if this is hereditary. Because I started having joint pains at 27, then I got pregnant after I turned 28 and the pains went away during the fourth month of pregnancy. Now my son is four months old, and I think I have full blown arthritis in my fingers and toes. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 She has an appointment with a doctor in August for a second opinion (the doc was backed up eight months, she made the appt in jan)! Her doctor even told her to get a second opinion because she doesn't know what to do. One thing to not is that she has not yet tried ANY steroids because she doesn't want to take them. She will only take them as a last resort. I would say it is time but thats just my opinion, I don't know a lot about this. I have had to take low dose steroids before to help tolerate thyroid meds but I am sure it is different. > > My mom has unidentifiable arthritis. She has been seeing a > > reumatologist who says it is one of the most aggressive cases she has > > ever seen. > > > > It is completely destroying her joints. She has no joints left in her > > index fingers, they are entirely fused together. Doctor has ruled out > > RA but assumed it was autoimmune and has been using chemo-like IV > > drugs on her for over a year. Instead of getting better, it has gotten > > MUCH MUCH worse. > > > > Her doc says she only has 3 patients who are like my mom. She has > > recommended for my mom to get a second opinion, because she doesn't > > know if she is " missing " something. > > > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > > the IVs soon, and start her on antibiotics contintuously. And maybe > > steroids. My mom doesn't want to take steroids, she will only take > > them as a last resort. IN the meantime her arthritis has gotten > > horrendous over the past two years. She went from having red nodules > > on her joints, to having no joints. > > > > Has anyone heard of a case like this, where doctors could not identify > > the type of arthritis, and treatment has not helped. > > > > Also, I am wondering if this is hereditary. Because I started having > > joint pains at 27, then I got pregnant after I turned 28 and the pains > > went away during the fourth month of pregnancy. Now my son is four > > months old, and I think I have full blown arthritis in my fingers and > > toes. > > > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 That really sucks that you have had this for so long. I am not sure how I would deal with it, it is already getting hard to lift and change my son. > > hi nicole, im so sorry about your mom. i can't believe the rheummy is not able to determine the type of ra, that's kinda strange!! my fingers are also destroyed by the severity of my ra. sometimes i have to have help eating & other thing done for me due to the pain & fusion of my joints. it sux! i feel bad mostly every day & then when i do feel good i still need help! i've been sick with ra since age 5. they ran all kinds of tests on me blood work etc. my dr. here told my mom back then it was growing pains, to keep me in bed. GROWING PAINS MY A--!! it was not until my mom took me to houston,tx.. the dr. dx me right away. so yes i believe sometimes they can't figure it out but you have to keep on them!! i don't think it's hereditary because when i was pregnant with my daughter, i went through genetic testing & everything just to be sure. i was BLESSED WITH A HEALTHY BABY GIRL!! no one else in my family has it just me, so i don't know where i got it cuz i > was born a healthy baby.. everyone ask how did u get ra & i tell them i don't know, i guess god choose me to bear this cross. so that's what i'm doing! about the pregnancy question, when i was pregnant with my daughter,alyssa i felt SO ALIVE & FULL OF ENERGY. > however, after she was born my ra was in full force & i was in soooo much pain i had to start back up on all my meds. the prednisone HELPED the most!! hang in there nicole, you will have good & bad days, HOPEFULLY more GOOD days.... HOPE i could be of some help... god bless,melyndagamez 6/7/08 5:25p.m.central time > > > [ ] Please help! > > My mom has unidentifiable arthritis. She has been seeing a > reumatologist who says it is one of the most aggressive cases she has > ever seen. > > It is completely destroying her joints. She has no joints left in her > index fingers, they are entirely fused together. Doctor has ruled out > RA but assumed it was autoimmune and has been using chemo-like IV > drugs on her for over a year. Instead of getting better, it has gotten > MUCH MUCH worse. > > Her doc says she only has 3 patients who are like my mom. She has > recommended for my mom to get a second opinion, because she doesn't > know if she is " missing " something. > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > the IVs soon, and start her on antibiotics contintuously. And maybe > steroids. My mom doesn't want to take steroids, she will only take > them as a last resort. IN the meantime her arthritis has gotten > horrendous over the past two years. She went from having red nodules > on her joints, to having no joints. > > Has anyone heard of a case like this, where doctors could not identify > the type of arthritis, and treatment has not helped. > > Also, I am wondering if this is hereditary. Because I started having > joint pains at 27, then I got pregnant after I turned 28 and the pains > went away during the fourth month of pregnancy. Now my son is four > months old, and I think I have full blown arthritis in my fingers and > toes. > > Thanks, > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 , it might be helpful to give your mom some articles about low dose prednisone. It has a place in the management of RA and there was even a paper that came out recently (eek, , do you know the one?) that said low-dose pred is actually bone *sparing* in RA. Bad things happen if you take high doses for long periods of time, but many of us have to take low dose for quite a long time. Every drug has its trade offs, but encourage her to see that having inflamed joints is a bad thing and it's important to do whatever it takes to put on the brakes. I hope you get that 2nd opinion soon, Kate F [ ] Re: Please help! She has an appointment with a doctor in August for a second opinion (the doc was backed up eight months, she made the appt in jan)! Her doctor even told her to get a second opinion because she doesn't know what to do. One thing to not is that she has not yet tried ANY steroids because she doesn't want to take them. She will only take them as a last resort. I would say it is time but thats just my opinion, I don't know a lot about this. I have had to take low dose steroids before to help tolerate thyroid meds but I am sure it is different. > > My mom has unidentifiable arthritis. She has been seeing a > > reumatologist who says it is one of the most aggressive cases she has > > ever seen. > > > > It is completely destroying her joints. She has no joints left in her > > index fingers, they are entirely fused together. Doctor has ruled out > > RA but assumed it was autoimmune and has been using chemo-like IV > > drugs on her for over a year. Instead of getting better, it has gotten > > MUCH MUCH worse. > > > > Her doc says she only has 3 patients who are like my mom. She has > > recommended for my mom to get a second opinion, because she doesn't > > know if she is " missing " something. > > > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > > the IVs soon, and start her on antibiotics contintuously. And maybe > > steroids. My mom doesn't want to take steroids, she will only take > > them as a last resort. IN the meantime her arthritis has gotten > > horrendous over the past two years. She went from having red nodules > > on her joints, to having no joints. > > > > Has anyone heard of a case like this, where doctors could not identify > > the type of arthritis, and treatment has not helped. > > > > Also, I am wondering if this is hereditary. Because I started having > > joint pains at 27, then I got pregnant after I turned 28 and the pains > > went away during the fourth month of pregnancy. Now my son is four > > months old, and I think I have full blown arthritis in my fingers and > > toes. > > > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 If you all know of any articles on this subject please let me know (e.g. how low dose prednisone can benefit RA) My mom usually doesn't listen to me but if she reads it somewhere else she might listen. I think she is losing faith because already some of the more aggressive treatments have been useless. Thanks, > > > My mom has unidentifiable arthritis. She has been seeing a > > > reumatologist who says it is one of the most aggressive cases she has > > > ever seen. > > > > > > It is completely destroying her joints. She has no joints left in her > > > index fingers, they are entirely fused together. Doctor has ruled out > > > RA but assumed it was autoimmune and has been using chemo-like IV > > > drugs on her for over a year. Instead of getting better, it has gotten > > > MUCH MUCH worse. > > > > > > Her doc says she only has 3 patients who are like my mom. She has > > > recommended for my mom to get a second opinion, because she doesn't > > > know if she is " missing " something. > > > > > > Now the doctor thinks it is inflammatory arthritis and is going to d/c > > > the IVs soon, and start her on antibiotics contintuously. And maybe > > > steroids. My mom doesn't want to take steroids, she will only take > > > them as a last resort. IN the meantime her arthritis has gotten > > > horrendous over the past two years. She went from having red nodules > > > on her joints, to having no joints. > > > > > > Has anyone heard of a case like this, where doctors could not identify > > > the type of arthritis, and treatment has not helped. > > > > > > Also, I am wondering if this is hereditary. Because I started having > > > joint pains at 27, then I got pregnant after I turned 28 and the pains > > > went away during the fourth month of pregnancy. Now my son is four > > > months old, and I think I have full blown arthritis in my fingers and > > > toes. > > > > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 .Shortcuts.hasSensitiveText = false; .Shortcuts.sensitivityType = []; .Shortcuts.doUlt = false; .Shortcuts.location = " us " ; .Shortcuts.lang = " us " ; .Shortcuts.document_id = 0; .Shortcuts.document_type = " " ; .Shortcuts.document_title = " " ; .Shortcuts.document_publish_date = " " ; .Shortcuts.document_author = " " ; .Shortcuts.document_url = " " ; .Shortcuts.document_tags = " " ; .Shortcuts.document_language = " english " ; .Shortcuts.hostSpaceId = " 97546168 " ; .Shortcuts.overlaySpaceId = " 97546169 " ; .Shortcuts.annotationSet = { " lw_1213121179_0 " : { ult: " http://us.lrd./_ylt=AkCKXun9bTv5l_TAE1Hfcke4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=Ar28Rul02xSBcoyUj_UIg7i4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Leiden University Medical Center " , " extended " : 1, " startchar " : 1021, " endchar " : 1052, " start " : 1025, " end " : 1056, " extendedFrom " : " Leiden " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 3, " type " : [ " shortcuts:/concept " ], " category " : [ " CONCEPT " ], " context " : " 1 Karolinska Institute, Sweden 2 University Hospital Maastricht, Netherlands 3 Leiden University Medical Center, Netherlands 4 University of Maastricht, Netherlands 5 University of Lund " , " metaData " : { " visible " : " true " } }, " lw_1213121179_1 " : { ult: " http://us.lrd./_ylt=Au.IFRZYoPX.9xgb.SCYt8G4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=ArrvdYsNhRPl2tvjCr9U4Pa4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " DMARD " , " extended " : 0, " startchar " : 2662, " endchar " : 2666, " start " : 2666, " end " : 2670, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 0.57142, " type " : [ " shortcuts:/concept " ], " category " : [ " CONCEPT " ], " context " : " treatment groups. Conclusion: Prednisolone 7.5 mg daily in addition to DMARD increases the rate of remission in patients with early RA " , " metaData " : { " visible " : " true " } }, " lw_1213121179_2 " : { ult: " http://us.lrd./_ylt=ApVoHiOcaCwksswSy_S4j_m4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=AqOm1FlxoBdf75Q2LgABcuy4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Messages in this topic " , " extended " : 0, " startchar " : 3474, " endchar " : 3495, " start " : 3478, " end " : 3499, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " " , " metaData " : { " linkHref " : " /message/112537;_ylc=X3oDMTM3Y3N0bG9uBF\ 9TAzk3MzU5NzE0BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEbXNnSWQDMTEyNTM3BHNlYw\ NmdHIEc2xrA3Z0cGMEc3RpbWUDMTIwOTUxOTkzMgR0cGNJZAMxMTI1Mzc- " , " linkProtocol " : " http " , " linkRel " : " nofollow " , " linkTarget " : " _blank " , " visible " : " true " } }, " lw_1213121179_3 " : { ult: " http://us.lrd./_ylt=AnLcuVL_McRelVf9FHYSIpm4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=AhR3szJxsB5njEpENrWxxx.4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Start a new topic " , " extended " : 0, " startchar " : 4166, " endchar " : 4182, " start " : 4170, " end " : 4186, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " " , " metaData " : { " linkClass " : " bld " , " linkHref " : " /post;_ylc=X3oDMTJkZzRqZ3BnBF9TAzk3MzU5\ NzE0BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEc2VjA2Z0cgRzbGsDbnRwYwRzdGltZQMx\ MjA5NTE5OTMy " , " linkProtocol " : " http " , " linkRel " : " nofollow " , " linkTarget " : " _blank " , " visible " : " true " } }, " lw_1213121179_4 " : { ult: " http://us.lrd./_ylt=ApHXBKenLmMhERibBXuXk0.4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=AvZ5d5ur2YGuTmwi9BAQxia4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Messages " , " extended " : 0, " startchar " : 4484, " endchar " : 4491, " start " : 4488, " end " : 4495, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " topic (1) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar This is a private list " , " metaData " : { " linkHref " : " /messages;_ylc=X3oDMTJkN25yOXM4BF9TAzk3\ MzU5NzE0BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEc2VjA2Z0cgRzbGsDbXNncwRzdGlt\ ZQMxMjA5NTE5OTMy " , " linkProtocol " : " http " , " linkRel " : " nofollow " , " linkTarget " : " _blank " , " visible " : " true " } }, " lw_1213121179_5 " : { ult: " http://us.lrd./_ylt=Av26s4118VhY7denQdztp4W4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=Am.gl6Fd5VUMb5sm9H5ri.a4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Files " , " extended " : 0, " startchar " : 4734, " endchar " : 4738, " start " : 4738, " end " : 4742, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " 1) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar This is a private list. Should " , " metaData " : { " linkHref " : " /files;_ylc=X3oDMTJlc2dvaG5sBF9TAzk3MzU\ 5NzE0BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEc2VjA2Z0cgRzbGsDZmlsZXMEc3RpbWU\ DMTIwOTUxOTkzMg-- " , " linkProtocol " : " http " , " linkRel " : " nofollow " , " linkTarget " : " _blank " , " visible " : " true " } }, " lw_1213121179_6 " : { ult: " http://us.lrd./_ylt=Aviw_Npgv7pbkveC32G7niO4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=Aq1_6cfdSM_i6CUYwgHrQmS4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Photos " , " extended " : 0, " startchar " : 4978, " endchar " : 4983, " start " : 4982, " end " : 4987, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar This is a private list. Should you " , " metaData " : { " linkHref " : " /photos;_ylc=X3oDMTJkNm02NzRiBF9TAzk3Mz\ U5NzE0BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDUwNjE0OTgEc2VjA2Z0cgRzbGsDcGhvdARzdGltZQ\ MxMjA5NTE5OTMy " , " linkProtocol " : " http " , " linkRel " : " nofollow " , " linkTarget " : " _blank " , " visible " : " true " } }, " lw_1213121179_7 " : { ult: " http://us.lrd./_ylt=AmF1KtRz6W644k7bybhZ3zm4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , ult_hover: " http://us.lrd./_ylt=AklhkRYnw0eWEMyI40sDP8K4b9AF/SIG=11fn4v5sl/**http%\ 3a//fe.shortcuts.search./build " , " text " : " Database " , " extended " : 0, " startchar " : 5234, " endchar " : 5241, " start " : 5238, " end " : 5245, " extendedFrom " : " " , " predictedCategory " : " " , " predictionProbability " : " 0 " , " weight " : 1, " type " : [ " shortcuts:/us/instance/identifier/hyperlink/http " ], " category " : [ " IDENTIFIER " ], " context " : " via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Kate, It's true that prednisone has been shown to have DMARD-like properties, but, so far, only for early RA. Chronic use, even at low doses, is associated with myriad side effects - fracture, osteoporosis, cataracts, diabetes, hypertension, increased susceptibility to infections such as pneumonia, heart disease, and skin fragility, to name a few. I'll re-post that study. Not an MD On Tue, Jun 10, 2008 at 8:21 AM, Fair <kalfoley@...> wrote: > , it might be helpful to give your mom some articles about low dose > prednisone. It has a place in the management of RA and there was even a > paper that came out recently (eek, , do you know the one?) that said > low-dose pred is actually bone *sparing* in RA. Bad things happen if you > take high doses for long periods of time, but many of us have to take low > dose for quite a long time. Every drug has its trade offs, but encourage > her to see that having inflamed joints is a bad thing and it's important to > do whatever it takes to put on the brakes. I hope you get that 2nd opinion > soon, Kate F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 I found this article on another cite. http://www.theoneclickgroup.co.uk/documents/ME-CFS_docs/Hannah% 20Poling,%20Autism%20and%20ME%20CFS.pdf Well I have CFS and LQT. My son regressed into Autism the day he had the MMR. Is their something I should be doing, finding out etc. A bit worried and confused as I didn't realise LQT was connected to CFS or Autism. Advice and more info greatly accepted. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.