Re: Sherry some suggestions/Questions re: this whole thing with King's

[Guest guest]

 

Sherry - if this is a certified NH, they can't kick her out without finding

another suitable place for her that you approve of as well.  Contact a social

worker immediately and find out her rights.  Also, you might contact the

ombudsman for the elderly as to her rights as well.

 

The NH made my husband go to the hospital to have meds adjusted and then

indicated they wouldn't take him back.  The social worker told them in no

uncertain terms that they had to take him back or find a place that was suitable

for him and to my satisfaction.  They dropped it.  Don't go quietly into the

night on this.  June C.

Subject: Re: Sherry some suggestions/Questions re: this whole

thing with King's

To: LBDcaregivers

Date: Wednesday, December 10, 2008, 1:02 PM

Sherry, I know you don't have enough time between now and your appointment time,

but if you could talk to an Elder Care Attorney that is Pro Bono (Free) to get

some information on your rights it might help. I found a Pro Bono Elder Care

Attorney at our Senior Community Center that is very helpful and offers his

advice monthly.

Sherry, my husband's room has two other men that snore loudly, plus Jim has a

mattress compressor to prevent bed sores and now an oxygen machine that all make

noise. I have bought a White Sound Machine that masks all noises

http://www.target. com/Marpac- Dual-Speed- Sound-Machine- 980A/dp/B000MFJK

HW/sr=1-13/ qid=1228934882/ ref=sr_1_ 13/191-2037562- 1565511?ie= UTF8 & rh=k%

3Awhite%20machin e & page=1

It is very helpful in keeping the room quiet. Here are other types of White

Sound Machines. They are perfect in nh rooms.

http://www.google. com/products? hl=en & q=white+ sound+machine & um=1 & ie=UTF-

8 & sa=X & oi= product_result_ group & resnum= 1 & ct=title

I think like you, that there is something more underlying at Kings, there are

all kinds of ways to make things more comfortable for everyone before just

kicking a person out that has really not harmed anyone, but made a comment. It's

like " throwing the baby out with the bathwater. " " Something smells rotten in

Denmark! "

I hope you can all put your heads together for a better solution.

Jan

 

____________ _________ _________ __

From: Sherry UpNorth <upnorthowly (DOT) net>

To: LBDcaregivers@ yahoogroups. com

Sent: Wednesday, December 10, 2008 9:41:45 AM

Subject: Questions re: this whole thing with King's

I have an appointment with the admin at 2:00, about 90 minutes from now.

I'm reviewing patients' rights for the state and King's own declaration. ..

I'm wondering, in the case of LBD, if a resident is saying things that can

be construed as threatening, and since such statements are a manifestation

of their disease, would it follow that her symptoms aren't being

appropriately managed?

Also, I believe her right to sleep (not specifically outlined anywhere but I

would assume it is a given) was violated when she was put into the room with

the noisy woman on the mattress with the air compressor. For all these

weeks my mom hasn't been able to get a good night's sleep because of the

noise - that would make ME say things I didn't mean, let alone someone with

dementia who isn't able to verbalize exactly what her issues are! A symptom

of the disease is the inability to use language appropriately, after all,

and I believe she was expressing her frustration with the situation using

inappropriate language, nothing more.

I will ask who actually heard my mother " threaten to kill " her roommate, and

what her exact words were, also. I believe that perhaps a medication

adjustment may be in order, but I do NOT believe my mother is a danger to

anyone. As I said earlier, I think there is more to it than this and I hope

that (admin) and I can discuss it reasonably, and I can find out.

BTW, the nursing home that has the " lock-down " unit where wants to

send my mother has had 6 deaths in the last 5 weeks (per the obits in the

county paper, there could be more), and when I checked at the

medicare/medicaid website I saw that they had THIRTY!!!! health violations

at their last inspection!! !!!!! Any other NH's anywhere in a 50-mile radius

had maybe 6 or 7 minor ones. I don't want my mom to go there - but now that

she's been " branded " as potentially violent her options will be severely

limited...

I just have to calm down and take one step at a time here, I think...any

words of advice or wisdom will be GREATLY appreciated, as my " bamaged drain "

is really having a hard time putting things in perspective.

His,

Sherry

www.owly.net

daughter of , (mis?)diagnosed with AD in 2005, descent slowed by

Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my

house. We're learning to live with Lewy...