Re: OT: Feeling Pretty Hopeless

[Guest guest]

Juli, I really like Sherry's suggestion to learn self-kinesiology. I myself

have not been able to learn it, but using a pendulum has worked very well for

me. It helps me focus and eventually, sometimes after quite a few questions, I

am able to make effective choices. When I first began my treatment I was so

overwhelmed that I lost all my self-confidence and felt totally confused. Even

without learning to use a pendulum, I think we all eventually get most of our

old self back, perhaps even with most of our faculties restored. But having a

tool to help with day-to-day questions (sometimes as simple as what to cook for

breakfast or how many vitamin C's to take) is very useful.

I also agree with Sherry and others that more information would be helpful for

us to see the whole picture so we can understand how we can help you.

Khaya

> >

> > I have had Lyme now for about 5 years. I have tried numerous protocols and

still have not exhausted all my options but I find the ups and downs have just

worn me down.

> >

> > When I was first hammered with lyme symptoms, I was flat out. I got

treatment right away but it never took. I tried severel different things and

herxed as a result but it's like playing whak a mole. Sometimes things work,

sometimes they don't. I have a Doug Coil machine and while it eliminated my

daughter's warts, it has yet to give me a herx.

> >

> > I now tried Rifampin, which I never have before and two to four days at a

time is all I can tolerate but it has sent me into night sweats, mental

fogginess, feeling like I'm a bit crazy, massive headaches and I get really

scared. I can't tell weather it's a herx or I am just sicker...it begins to feel

all the same and I can't tell heads from tails.

> >

> > I am about to lose my medical insurance and am going through a divorce with

an unsympathetic partner and no job after raising my kids for 11 years. It is

really tough trying to pull through here. I know I'm not as bad as many others

on this forum, but I am just so sad that I cannot seem to turn this around.

> >

> > Not really sure what to do next.

> >

> > Juli

> >

>

[Guest guest]

Dear Juli,

Not having a sauna can be overcome, although it is an excellent way to detox and

also to kill LD, since they hate the heat. I don't have a sauna either, and I

don't detox as well as my husband, because he sweats profusely when he runs,

mows the lawn, etc (none of which I do) and I rarely sweat. My solution is to

take hot baths. I get my husband to clean the bathtub for me. Use my dry-skin

brush first and make myself a cup of hot water with a little lemon and some

celtic sea salt, and set that on a stool next to the bathtub. There are many

things you can add to your bath water. Epsom salts or magnesium flakes not only

help you detox, but also help you absorb magnesium through the skin, which

really helps with aching and cramping muscles. But usually i use a combination

of 1/2 cup sea salt, 1/2 cup baking soda, and 1/4 cup food grade hydrogen

peroxide. (You can use drug-store H2O2, but I think you have to use 6X as

much.) I make the bath water as hot as i can make it, and turn up the heat in

the house a couple of degrees. There is room on my bathroom counter for a DVD

player, and once I have everything set up I turn down the lights. I relax in

the bathtub for about 20 minutes, with a slow drip of hot water coming in to

help keep the water warm. I have a 3-minute timer as well as a 20-minute timer,

and every 3 minutes I take a few sips of saltwater, redistribute the hot water

from the foot of the tub, and submerge my head. Then I use my wash cloth to put

the hot water on my face. The water doesn't have to be burning hot--if it feels

to hot, i cool it off a little. Afterward I rinse off under the shower.

Sometimes if I don't feel like taking a bath (in the summer time), I take a foot

bath at the kitchen table, sipping hot tea. Ten minutes go by, and I call for

my husband to add more hot water. After 20 minutes, he pulls the dishpan

(dedicated only for this) out from under the table and I rinse my feet off in

the bathroom sink. A lot of toxins collect in the feet, so I think this is

fairly effective. I think the amounts i use in the foot bath are 1/4 cup each

of sea salt and baking soda, and 1 Tablespoon food-grade H2O2.

There are other ways to detox, as well. I hope you get some more good

suggestions. Another thought--winter is hard. Now the sun is getting stronger,

and natural sunlight is very therapeutic.

Khaya

>

> Thank you Barbara, Marie and Sherry for responding. I have had some virtually

symptom free stretches and I have had some awful stretches, but none like this.

The Lyme has also reactivated Epstien barr and HPV in my system. So, there's a

lot going on. 

>

> As far as coil, you can read below how I handled it. I did everything

Stolar said. I coiled for Bart, I think it was 832(whichever he recommended), 2x

a day, but never had any response. I find the coil frustrating because I feel

like I'm looking for a herx which is like a needle in a haystack when using one

frequency at a time. And the truth is I don't really know what I'm treating, I

just know what I respond to.

>

> I have given every protocol at least 6 months with some short breaks. I saw a

naturopath who had me on CS 2t a day with nosodes and herbs. I had another LLMD

who had me on hh/abab/antibiotics, supplements and toxease. Another doctor had

me on plaquenil/biaxin for a year which helped but then leveled off. 

>

> So I tried salt C which gave me a herx but ultimately hurt my stomach. Tried

MMS but found it really challenging to take every hour and to remember and stay

cosistent.

>

> I had been using my sauna to detox but don't have it now, so I need to find a

new way to detox. I know some but am open to any suggestions.

>

> I have the coil, so helpful tips on how to find the right frequencies would be

good. Just moral support is good too. Hearing everyone's stories is really

helpful and hopeful. This is such a challenging time and I don't really

understand it...I've spent my life with such compassion for other people adn

then to be hammered by Lyme and adandoned...it's not where I saw my life going

and it seems so unfair...but I am sure there's a lesson burried in here

somewhere...just have to keep my eyes open.

>  

> Warmest Regards,

> Juli 

>

[Guest guest]

Hi Juli,

I am praying that you will find the answers you need...

Unfortunately, this has happened to others, mostly women, when their spouses no

longer

can deal with Lyme disease.. I guess " in sickness and in health " leaves out

Lyme..

Are you unable to work because of Lyme? If so, then you should look into SSI and

SSDI...

http://health.groups.yahoo.com/group/Lyme_and_Rife/message/16976

As for your Doug Coil machine, to produce a herx you need the correct frequency

(frx) and the

the right amount of session time.. 432 is the frx most respond to, but there are

other frx's you

can also use... If you need them just post and I will post them for you..

I hope you have an attorney to help you through this, someone who will look

after your legal

interests...

Take care,

Jim

>

> I have had Lyme now for about 5 years. I have tried numerous protocols and

still have not exhausted all my options but I find the ups and downs have just

worn me down.

>

> When I was first hammered with lyme symptoms, I was flat out. I got treatment

right away but it never took. I tried severel different things and herxed as a

result but it's like playing whak a mole. Sometimes things work, sometimes they

don't. I have a Doug Coil machine and while it eliminated my daughter's warts,

it has yet to give me a herx.

>

> I now tried Rifampin, which I never have before and two to four days at a time

is all I can tolerate but it has sent me into night sweats, mental fogginess,

feeling like I'm a bit crazy, massive headaches and I get really scared. I can't

tell weather it's a herx or I am just sicker...it begins to feel all the same

and I can't tell heads from tails.

>

> I am about to lose my medical insurance and am going through a divorce with an

unsympathetic partner and no job after raising my kids for 11 years. It is

really tough trying to pull through here. I know I'm not as bad as many others

on this forum, but I am just so sad that I cannot seem to turn this around.

>

> Not really sure what to do next.

>

> Juli

>

[Guest guest]

Hi again Juli,

If MMS is used correctly, you may not experience a herx...

However, we usually will experience a few herxes then we scale down by

a drop or two from there to where we are not herxing.

MMS protocol #1000 calls for up to 3 drops each hour for 8 hours or more...

MMS protocol #2000 calls for 4 - 10 drops per hour for 8 hours or more. This

protocol is

actually part of the Lyme/MMS protocol..

You only herx from MMS if you are killing more pathogens than you body can

handle,

meaning killing to many too quickly.. When MMS comes in contact with a pathogen,

that

pathogen is history, it can not survive this.. If you are not herxing, then you

are killing

only enough pathogens you body can handle and MMS tends to neutralize much of

the

toxins up to a certain point.

Are you activating your MMS correctly? If you have 50% citric acid (commonly

used today)

then you add 1 drop of CA for each 1 drop of MMS. Swirl the glass and wait 20

seconds

for it to activate, then add your distilled water and drink it down..

If you have the 10% citric acid, use 5 drops of CA for each 1 drop of MMS, swirl

the glass

and wait 3 minutes for activation, then add water and drink it down.

After activation and before you add in the water, look at the solution in the

glass, is it a

brownish color? Take a sniff of it, should be very powerful. Then add you water

and hold

the glass up to a light, should be a yellowish/greenish color.

MMS kills 95% of all known pathogens and its founder, Jim Humble says it is more

powerful

than any antibiotic. MMS also oxidizes heavy metals.

Using 15 frequencies a day is watering down your Coil treatments... One frx is

all that should

be used. It is doubtful your body would respond to 15 Lyme frx's, seldom we

respond to

just a few, but still should only use one at a time.

Please take one day at a time, I can only imagine what you are going though..

Only deal with

the important stuff, the rest can wait until another time.. Definitely do some

deep breathing

exercises, in times of stress these really help..

And please remain active on the group, you will get some good ideas I am sure,

some

of which may help you... I've found at times when I could not think clearly,

someone

would say something to me and I would be off and running.. This is what a good

group of

people do for each other...

Take care,

Jim

>

> Marie,

>

> Thank you for your encouragement...I don't often write although I have been a

member here for a while...but it's been a tough week. I have tried salt C,

almost every antibiotic treament, herbs, CS, MMS, Coil. But for me, as soon as I

beat something back another one comes up and the sypmtoms are subltley different

so I treat the new thing...so feels like I'm jumping around a lot. When I tried

salt C and MMS I stuck with both for 6 months, the salt C really irritated my

stomach and the MMS did not cause me to herx...I was too affraid to go higher

than the recommended dose.  Rifing I have done periodically but had no herxing,

so I went to someone who has an f-scan and a different rife and I responded

twice to his with a herx but that was it. I would take the printout from the

f-scan and bring it home and I would cover 15 frequencies a day at 4 to 5

minutes each trying to find one that I reacted to. I respond mostly to

antibotics but and fearful of staying

> on any one longer than one month without breaks. I developed a hernia, acid

reflux and yeast issues which I try to clean up in between. Lately, my skin

feels like its cold or burning...and I have been sweating at night both new

symptoms in addition to the headaches, anxiety, craziness and brain fog. I guess

my problem is that I have so many things going on, I'm so overwhelmed. I know I

have heavy metal issues too.

>

>

>

>  

> Warmest Regards,

> Juli Mancini

> Blume Design Creative Services

> Designer.Photographer.Writer

>

>

[Guest guest]

Thank you everyone...this forum is so great for advice and well...just for being in good company. I have always been a bit of a loner but this disease is so isolating and has actually driven me the opposite direction. Lessons abound with Lyme for sure. I will try all of the recommended suggestions and remind myself not to panic. That's the worst part and I tend to overreact and load on treatment which I know is not the way to go. I know I detox well, I clear herxes pretty quickly and they come on very quickly too when I have them. I just get confused with treatment when I don't feel one, I have always used it as a guide for what works and dosen't...but I'm often just confused sometimes things seem to work and other times not. Something else may work instead...I do feel like I'm playing whack a

mole. I ordered the enema supplies and will do reasearch but will gladly take tips from others on how this works best. I also have ordered some supplements for detox and will try mms/dmso transdermally. I have lung inflamation right now and any tinctures or liquids need to be incapsulated or my lungs go crazy. It is a rough time emotionally and I thank everyone from the bottom of my heart for the support and encouragement...it's tough sometimes to forage forward...I want, as we all do, to just feel well and to be able to enjoy small things life has to offer. I want to be well for my little girls so they don't always remember me as a sick person. I'm sure everyone can relate. Warmest

Regards,Juli

[Guest guest]

Hi Juli,

You are right, everyone here relates to you and to what is happening.. Nice

thing

is you really don't have to try to convince us of anything, we've either been

there

or have seen it already...

If you are going to use MMS transdermally, please follow the instructions in

this link...

Important to note, you should also use MMS orally while using the transdermal

protocol

as the transdermal protocol mostly bypasses the stomach and you still need to

kill the pathogens

in your stomach.

http://jimhumble.biz/protocol-3000.html

The full Lyme/MMS protocol is #2000, #3000, Bag and Bath. I explained the #2000

protocol

to you earlier, now the transdermal is the #3000 protocol..

Take care,

Jim

>

> Thank you everyone...this forum is so great for advice and well...just for

being in good company.  I have always been a bit of a loner but this disease is

so isolating and has actually driven me the opposite direction. Lessons abound

with Lyme for sure. I will try all of the recommended suggestions and remind

myself not to panic. That's the worst part and I tend to overreact and load on

treatment which I know is not the way to go. I know I detox well, I clear herxes

pretty quickly and they come on very quickly too when I have them. I just get

confused with treatment when I don't feel one, I have always used it as a guide

for what works and dosen't...but I'm often just confused sometimes things seem

to work and other times not. Something else may work instead...I do feel like

I'm playing whack a mole. 

>

> I ordered the enema supplies and will do reasearch but will gladly take tips

from others on how this works best. I also have ordered some supplements for

detox and will try mms/dmso transdermally. I have lung inflamation right now and

any tinctures or liquids need to be incapsulated or my lungs go crazy.  

>

> It is a rough time emotionally and I thank everyone from the bottom of my

heart for the support and encouragement...it's tough sometimes to forage

forward...I want, as we all do, to just feel well and to be able to enjoy small

things life has to offer. I want to be well for my little girls so they don't

always remember me as a sick person. I'm sure everyone can relate.

>  

> Warmest Regards,

> Juli 

>