Sinusitis

[Guest guest]

<<<Dabs-

The MRI I had in Sep of 98 showed " severe Maxillary sinus disease " more

so on the left which just happens to be the same side of my neck that I

had the rash on in July. I do have allergies and had sinus surgery in

91 for chronic sinus problems but my Maxillary sinuses were the only

ones that WERE ok. Now the MRI shows severe disease. I am having

another one done on the 29th of this month so we will see what that

shows. I am wondering about the coincidence thing too.

L(MI) >>>

Oh boy! DOn't I feel like a member of the sinus gang! LOL I think there are

groups I'd much rather belong to, no offense. ;o) MRI shows one sidd (forget

which side) sinusitis and ethmoiditis. Oh joy, not exactly what they were

looking for on MRI. lol

Oh, and the tummy probs. Had a lot before getting dx'd. Never pinpointed.

Tried every tummy med with no success at that time.

time for ginger snaps.....argh....anyone else get severe nausa that waks up in

middle of nite, despite not being on any meds?? sheesh My dog has been giving

me dirty looks for distrubing HER sleep. poor thang.

)

sunglass girl...or is it computer shades girl???

who else has to read with one eye closed? so much for 2 being better than one.

;o)

ok, now that you all KNOW i am insane....lol...I refuse to sign my name ;o)

That's ok, I'm sure I won't remember this in the am, and YOU will be the one

sounding insane referring to my post that I won't recall sending. *giggle*

now where is that send button....

[Guest guest]

Judy,

I've wondered about sinus and inner ear trouble, that was the first problem

that I saw a Dr about. He prescribed Zithromax for 5-6 days, and 3 days

after the prescription ended the Lyme took off!

Jim

[Guest guest]

I can always tell when I am about to have a flare because my sinuses start

hurting and I get the dreaded sinus headache/eye ache. I've found that

Tylenol Sinus med. really does help.

Ann (TX)

[Guest guest]

Hi Judy,

the only thing that helps me with lyme is Zithromax. had to go off it a few

months back, severe sinus and other infection. the lyme got really bad. It

is weird how Zith does not help my sinus, but works well on lyme?

go figure?

Connie, MI

[Guest guest]

In a message dated 6/26/99 10:45:23 AM Eastern Daylight Time, jeand@...

writes:

<< my sinuses start

hurting and I get the dreaded sinus headache/eye ache. >>

This is so strange to me. I was bitten last year and I was stuck with a

dormant strain that flared up and kicked butt about a month ago for me. The

strange part was I had been having memory loss and major sinus problems for

about six months before the Lyme flare up. They were all signs of what was to

come and no one, not even me, was able to know.

, New Bedford, MA.

<A HREF= " http://members.tripod.com/LymeDizzez/ " >Lyme Disease and Me</A>

ICQ # 26791014

Need a new FREE E-mail Address: www.phlexmail.net

[Guest guest]

Sue:

Thank you so much for posting this article. I am one of those who suffers

from chronic sinusitis, which my doctor attacks with a different antibiotic

every 6 weeks or so. None of these abx has helped the condition.

Additionally, I've had what the dermatologist wants to believe is

folliculitis on my scalp that will NOT go away. Carol (Cslyme) has shared

with me that this is also probably yeast or some sort of fungus and that she

attacks it with loads of acidophilus, which I just picked up before reading

your post. Now I'm thinking that the acidophilus may help both conditions

better than anything else I've tried. At any rate, I'm giving it a shot and

will let you know. I am printing this article out to take to my PCP. Thanks

again!!

(Michigan)

[Guest guest]

Thanks Sue,

My recent Brain MRI showed acute bilateral maxillary sinusitis, as well

as two more lesions (now have 3) so this was of special interest to me,

makes a lot of sense as I knew I was allergic to dust and molds, and take

Zyrtec daily to help with this....but obviously it is not working.

Good work,

Hugs,

Marta NJ

>From: Sue <tlizzy@...>

>

>(Just in case this has never been posted here before - I have sinus

>problems, and have seen others on this list write about theirs. Sue)

>

>

>Study Implicates Fungus As Cause Of Chronic Sinusitis

>

>ROCHESTER, MN -- Sept. 9, 1999 -- Mayo Clinic

>researchers say they have found the cause of most chronic

>sinus infections -- an immune system response to fungus.

>They say this discovery opens the door to the first effective

>treatment for this problem, the most common chronic disease

>in the United States.

>

>An estimated 37 million people in the U.S. suffer from

>chronic sinusitis, an inflammation of the membranes of the

>nose and sinus cavity. Its incidence has been increasing

>steadily over the last decade. Common symptoms are runny

>nose, nasal congestion, loss of smell and headaches.

>Frequently the chronic inflammation leads to polyps, small

>growths in the nasal passages which hinder breathing.

>

> " Up to now, the cause of chronic sinusitis has not been

>known, " said the Mayo researchers: Drs. Sherris,

>Eugene Kern and Jens Ponikau of the department of

>otorhinolargygology (ENT) at Mayo Clinic.

>

>Their report appears in this month's issue of the journal

>Mayo Clinic Proceedings.

>

> " Fungus allergy was thought to be involved in less than 10

>percent of cases, " they write. " Our studies indicate that, in

>fact, fungus is likely the cause of nearly all of these problems.

>And it is not an allergic reaction, but an immune reaction. "

>

>The researchers studied 210 patients with chronic sinusitis.

>Using new methods of collecting and testing mucus from the

>nose, they discovered fungus in 96 percent of the patients'

>mucus. They identified a total of 40 different kinds of fungi in

>these patients, with an average of 2.7 kinds per patient.

>

>In a subset of 101 patients who had surgery to remove nasal

>polyps, the researchers found eosinophils (a type of white

>blood cell activated by the body's immune system) in the

>nasal tissue and mucus of 96 percent of the patients.

>

>The results, the researchers say, clearly portray a disease

>process in which, in sensitive individuals, the body's immune

>system sends eosinophils to attack fungi and the eosinophils

>irritate the membranes in the nose. As long as fungi remain,

>so will the irritation.

>

> " This is a potential breakthrough that offers great hope for

>the millions of people who suffer from this problem, " they

>said. " We can now begin to treat the cause of the problem

>instead of the symptoms. "

>

>More research is underway at Mayo Clinic to confirm that the

>immune response to the fungus is the cause of the sinus

>inflammation. The researchers are also working with

>pharmaceutical companies to set up trials to test medications

>to control the fungus. They estimate that it will be at least two

>years before any treatments will be available.

>

>The researchers distinguish chronic sinusitis -- sinusitis that

>lasts three months or longer -- from acute sinusitis, which

>lasts a month or less. They say that the cause of the acute

>condition is usually a bacterial infection.

>

>Antibiotics and over-the-counter decongestants are widely

>used to treat chronic sinusitis. In most cases, antibiotics are

>not effective for chronic sinusitis because they target

>bacteria, not fungi, " they write. " The over-the-counter drugs

>may offer some relief of symptoms, but they have no effect

>on the inflammation.

>

> " Medications haven't worked for chronic sinusitis because

>we didn't know what the cause of the problem was. Finally

>we are on the trail of a treatment that may actually work. "

>

>Thousands of kinds of single-cell fungi (moulds and yeasts)

>are found everywhere in the world. Fungal spores (the

>reproductive part of the organism) become airborne like

>pollen. Some people develop allergies to fungi. The new

>evidence from the Mayo study suggests that many people

>also develop a different kind of immune system response.

>

[Guest guest]

>Additionally, I've had what the dermatologist wants to believe is

>folliculitis on my scalp that will NOT go away. Carol (Cslyme) has shared

I actually had to have scalp biopsies done ~8 yrs ago. The dx ruled out

cancer, and said the lesions were due to 2 kinds of psoriatic conditions.

For whatever reason, the dermatologist decided to treat these w/abx -

which didn't help at all. At that time, I tried acidophilus, tea tree

oil, pau d'arco, etc. (Course, now I know that I need to use a lot more

acidophilus than I did back then.) Oddly, these finally began going away

after starting to use Xanax (coincidentally - due to my reaction to

Zoloft, for depression). They disappeared completely!

But a nurse I know, at the time, said she'd gotten something very similar

from wrapping up her hair while it was wet - said she had a heck of a time

getting rid of it, so I'd have to assume it could very easily be related to

yeast/mold/fungi;-(

Not sure what your places look like, but I've got little red bumps on my

upper arms (mostly) that my LLMD said are most likely due to the HGE + HME.

(These are nothing like my scalp lesions.) My youngest nephew (and son) have

the same bumps, and his pediatrician says there's some kind of hereditary

condition that causes this (forget the name, but it's got follicula... in

it;-) He's got him using some kind of lactic acid for his bumps - can't wait

to see if it works, but am afraid if it does, sis will stop considering

getting him tested for Lyme - despite having had several ticks on him, at

various times.

Anyway, good luck, !

Sue

[Guest guest]

>PLEASE,PLEASE just TRY MSM.

kay,

Thanks - hehe, I just started this a week ago. At the time, I was

trying to break a very bad low-back pain cycle - hadn't read about

MSM for yeast, etc, at that point. I'd added OPCs (from grape seed

extract, for connective tissues) first, having heard from various

people that it's really helped them - sinuses, allergies, etc. I

don't think the OPC helped my sinus congestion (still using ~300 mg/day

of guaifenisin, for that), but I do think it's partly responsible for

my decrease in lower-back pain. It became more dramatic once I added

the 2000 mg of MSM. But I'm also taking ~2200 mg/day of marshmallow

root (as a substitute for the higher guaifenisin dose I'd been on).

It's mucilaginous, and mucous is flowing more freely, now;-) I do think

that xtra acidophilus has helped my sinuses, and just discovered that the

milk thistle I'm taking to protect my liver might've also helped reduce

my back pain.

Sue

[Guest guest]

I took MSM for 6 months without noticing any difference in my sinuses or my

lower back pain, which my main reason for taking it. Perhaps it's more

effective in combination with other things?

[Guest guest]

EVERYBODY!

i keep posting this!

PLEASE,PLEASE just TRY

MSM.

1000mg. twice a day!

my kids do not have asthma anymore. i swear to God!

almost NO colds, NO bronchitis, NO pnuemonia!

this is a site that has info! you can NOT take TOO MUCH!

we have used it for over 1 year! it helps with joints too. it is literally

too good to be true! but it is!

please just give it a try! 2000mg. daily for a month.

meredith had NEVER breathed through her nose! we had to teach her!

PLEASE TRY IT!

kay

http://www.lowfat4life.com/articles/msm.html

[Guest guest]

>I took MSM for 6 months without noticing any difference in my sinuses or my

>lower back pain, which my main reason for taking it. Perhaps it's more

>effective in combination with other things?

,

That's what I'm thinking, too. The OPC's supposed to build up, in the

beginning, but even after a week on it, I felt minimal relief. Then I

added the MSM (1000 mg, to start with), and after feeling unsure as to

whether I was getting relief or not, I checked about safe MSM dosages,

and added another 1000 mg/day. The day after doing that, I felt

significant relief from my lower back pain. Now I'm running low on

OPCs & so am taking less, still taking the 2000 mg/day of MSM, but the

back pain's increased again. ('Course, I'm trying to keep in mind it's

close to my time of the month, too;-)

Maybe it's just a fluke - but since I hadn't had any relief for the past

8 mos, I kinda doubt it. I'll pick up more OPCs today or tomorrow, and

increase them back up to see if that was the magic combo;-) I guess it

might also matter what the source of the back pain is? (In my case, I

don't know.)

Sue

[Guest guest]

Kay - For your kids - did you ask your pediatrician about it - what did

he/she say, and what dosage are you giving the kids (based upon

age/weight??). Thanks because this sounds like what my daughter needs. Did

I read somewhere that the sinusitis could actually be caused by candida??

Sorry so many questions but it sounds like you know what you're talking

about here.!!!...

Vicki S, NJ

Re: [Lyme-aid] Sinusitis

>From: " Kay " <b10g7@...>

>

>EVERYBODY!

>

>i keep posting this!

>

>PLEASE,PLEASE just TRY

>

>MSM.

>

>1000mg. twice a day!

>

>my kids do not have asthma anymore. i swear to God!

>

>almost NO colds, NO bronchitis, NO pnuemonia!

>

>this is a site that has info! you can NOT take TOO MUCH!

>

>we have used it for over 1 year! it helps with joints too. it is literally

>too good to be true! but it is!

>

>please just give it a try! 2000mg. daily for a month.

>

>meredith had NEVER breathed through her nose! we had to teach her!

>

>PLEASE TRY IT!

>kay

>

>http://www.lowfat4life.com/articles/msm.html

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

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>You may substitute " subscribe " , or " digest " or " normal " for

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[Guest guest]

hi vicki,

no, i never asked any doctor, i just researched and found that it was water

soluble (will not accumulate in the body) and tried it. i always recommend

doctors try it though when i list meds to them, so they all know we are

taking it.

i could get off on a HUGH stinking doctor rampage right now, but i will

control myself. ( and write a new post after this!) lol

we take 1000mg. twice per day. have for over a year, maybe even 2. meredith

weighed about 50 lbs and max weighed about 130 lbs and i weighed about 142

when we started. we are all a lot heavier now! we still take the same dose.

i think brands are very important. the brand i just picked up is tablet and

just something off the shelf, GNC is what we usually take, it comes in a

capsule.

hope this helps.

let me know if you need more info.

[Guest guest]

Sue,

Yes the Mayo (ugh) did a study finding that 90% of chronic sinus

infections are caused by a fungus. They are currently trying to find the

medication to eradicate it. By the way, all docs I've seen ignore this even

though I've supplies the Mayo abstract.

Larry NV

[Guest guest]

Larry,

if this is a fungus...not bacteria ....does it need an anti-fungal? or

maybe this is a combo infection of fungus and bacteria? evidently a person in

lyme-aid got 'relief' and recovery from sinusitis with i.v. Rochephin....why

has this not been implemented..???? i have late-stage lyme...only have taken

oral ABX's/5 months..

like you ..i feel the docs ...are not paying attenition to this.like its

a samll anyoance like a headache .i've presented this sinus issue to 7

medical doctors...

come on...guess i'll have to start screaming and demanding that

'something' be done...gees.......i am seeing an ENT at cedar's ...he has me

do nasal irrigation ...i don't think that's gonna do it....alone...it helps

but not for a 7 month lingering symptoms and face pain...

thanks

cherlyme

In a message dated 6/11/00 9:34:40 AM, larryy@... writes:

<<Sue,

Yes the Mayo (ugh) did a study finding that 90% of chronic sinus

infections are caused by a fungus. They are currently trying to find the

medication to eradicate it. By the way, all docs I've seen ignore this even

though I've supplies the Mayo abstract.

Larry NV

>>

[Guest guest]

My suggestion would be to try and stop ALL dairy & cheese products for at

least month and see if that makes a difference. The casein protein in milk

products is highly allergenic.

When I stopped dairy after a few weeks I could actually breathe adequately

through my nose, something I had never been able to do up to that point.

Until then, since childhood, I had incorrectly assumed that I had small

nasal passages.

E.

At 10:09 PM 12/2/2003, Talia Ortiz wrote:

>Does anybody in this group suffer from sinus problems?. I began to have

>problems with my sinus about a month ago and as a result I get really

>dizzy. Nothing seems to fix it definitely. I received temporary relief

>when I sleep with a vaporizer on, I am also taking pseudofed and it helps

>me a little. It might be the cold weather, I live in Minnesota. I would

>appreciate very much any recommendations.

>

> Talia

[Guest guest]

Talia,

This article might help. When anyone in our family gets a sinus infection,

in place of the saline solution, we use a colloidal silver solution in the

irrigator. If you have an infection in your sinuses you need to treat the

lungs as well. We use colloidal silver in a nebulizer to reach the lungs.

Ethel

rheumatic sinusitis

> Does anybody in this group suffer from sinus problems?. I began to have

> problems with my sinus about a month ago and as a result I get really

> dizzy. Nothing seems to fix it definitely. I received temporary relief

> when I sleep with a vaporizer on, I am also taking pseudofed and it helps

> me a little. It might be the cold weather, I live in Minnesota. I would

> appreciate very much any recommendations.

>

> Talia

>

>

> ________________________________________________________________

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>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

I agree. I used to take decongestants daily, had sinus headaches all the

time with congestion. I always had Sudafed on hand. Since changing my

diet and eliminating dairy products I rarely have any problems. Instead

of daily problems its once or twice a year that I have any kind of

congestion.

Re: rheumatic sinusitis

My suggestion would be to try and stop ALL dairy & cheese products for

at

least month and see if that makes a difference. The casein protein in

milk

products is highly allergenic.

When I stopped dairy after a few weeks I could actually breathe

adequately

through my nose, something I had never been able to do up to that point.

Until then, since childhood, I had incorrectly assumed that I had small

nasal passages.

E.

At 10:09 PM 12/2/2003, Talia Ortiz wrote:

>Does anybody in this group suffer from sinus problems?. I began to

have

>problems with my sinus about a month ago and as a result I get really

>dizzy. Nothing seems to fix it definitely. I received temporary relief

>when I sleep with a vaporizer on, I am also taking pseudofed and it

helps

>me a little. It might be the cold weather, I live in Minnesota. I

would

>appreciate very much any recommendations.

>

> Talia

[Guest guest]

Hi Talia,

I know for me, I also had the same problem into ap.I was told sinus

can be bacterial BUT also allergies and for me it was fungus!

Are you treating yeast because that did help me.

Also, some claim the use of a neti pot helps a lot as it irrigates

the sinus. I also find when things are nasty, I get colliodal silver

and use that( spray) just a few days as it has natural antibiotic

qualities.

Love

Marge

> Does anybody in this group suffer from sinus problems?. I began to

have

> problems with my sinus about a month ago and as a result I get

really

> dizzy. Nothing seems to fix it definitely. I received temporary

relief

> when I sleep with a vaporizer on, I am also taking pseudofed and it

helps

> me a little. It might be the cold weather, I live in Minnesota. I

would

> appreciate very much any recommendations.

>

> Talia

>

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

Some people have used grapefruit seed extract successfully. Nutrobiotics

puts out a nasal spray. It's pretty cheap, too.

I use a neti pot to rinse out the sinuses. I use sea salt without iodine

and make the solution to the saltiness of tears.

Take care,

Ute

[Guest guest]

a

Have you tried flushing out your sinuses with salt water? You would be amazed

at what comes out when you do that. 1/4 tsp of kosher or sea salt in a cup of

warm water.

The last time I had a sinus infection I went to my chiropractor and he did 2

sessions of accupuncture and it was gone in 2 days! I blew out a lot of stuff

and it was just gone.

I also found out that sometimes when I thought I was having sinus problems it

was really a migraine. It can mimic it with a stuffy nose and just pain on one

side of the face. Mine was always on my left side and would also wrap around my

ear.

magnesium helps that and getting your candida in control.

Jeanne otn

[Guest guest]

Thanks, Jean! I do flush with salt water. I have nose washings, which is

natural and cleansed seawater under pressure, so that it will come very

far into your sinuses. It helps a bit. I also had a bath with salt from

the Dead Sea and put my head in it and took it in. That helped too.

The migraine pains I have never experienced, but it is the same pain.

That could be the problem too, but I'm pretty sure it is a sinusitis,

for it shows on the radios that were made by the dentist.

The acupuncture, I'm thinking about that as well. I had to wait until

the new year, for I'm out of refunds on that part. And my money is

disappearing fast with all these troubles.

So I will make another appointment with my acupuncturist asap.

For the moment I'm on megadoses of vit C. I'll add some more magnesium,

I've got citrate at home. Good idea.

a

a

Have you tried flushing out your sinuses with salt water? You would be

amazed at what comes out when you do that. 1/4 tsp of kosher or sea

salt in a cup of warm water.

The last time I had a sinus infection I went to my chiropractor and he

did 2 sessions of accupuncture and it was gone in 2 days! I blew out a

lot of stuff and it was just gone.

I also found out that sometimes when I thought I was having sinus

problems it was really a migraine. It can mimic it with a stuffy nose

and just pain on one side of the face. Mine was always on my left side

and would also wrap around my ear.

magnesium helps that and getting your candida in control.

Jeanne otn

[Guest guest]

Argie and Joan,

Thanks for your advice. I stopped giving my son egg because I felt that could

be the culprid for his sinus problems, even when it was not shown in the ELISA

test that he was allergic to egg. He has not had eggs for a week and the

sinusitis is gone already. Now I am certain is the egg and also realized that

testing is not 100% accurate.

Kind Regards

Olga

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