Re: My Lyme Story.

[Guest guest]

Hi,

I was on antibiody when I got the coil ,

I waited until the end of my treatment only because it was a life saving situation . If I would not have been in a cirticall condition I would have stopped because the coil to me is many time more effective than antibiody

and because it gives cysts. These cysts multiply by several folds the power fo the deease when they awake as they continue to multiply inside the cyst they become many .

A spirotheque under threat is able to change it self into a several cyst 5 or more and inside the cyst they are mushrooming up to 8.

according to what I remmebered having read. When I took my decision I made a quick compution that is of course theorical 5*8 my load of borella = 40 times more in the th eunlikly hypothesis of each spirotheque change into a cyst .

So I asked the question on the forum I was in and the synopsis of the answeres were : when their life was jeoperdised they elect to continue the abx with the rife fr a while when they were not such jeoperdised situation they elected not to continue it . So I choose to continue a little bit .

This i snot an advise, I am not a Doct . I have been asking mysefl your question andhere is the way I decided for myself. Everyone is different and everyone decid for himself

Kindly Marie

To: Lyme_and_Rife Sent: Wednesday, March 7, 2012 4:07 PMSubject: Re: My Lyme Story.

So in your opinion its better to be of the antibiotics while you rife?

Hi,

your story sounds like mine. i've gone through over 39 yrs of every test and med. they could do, several diagnosis like fibro, tested for lyme, but mine was negative, which means nothing. it really helps to have a positive dx, at least you know why you feel crazy.

when a lyme dr dx lyme he put me on 18 mos. of abx and many other meds to help the abx. after that i was actually sicker than before i went on the abx. i also had more candida, which is a real problem. also, if you are rifing, the abx cause the lyme to encyst, where the rife can't kill them. just something to think about, maybe do some research here on this site because the abx will be counter productive to rifing. i know many rely on abx, but for me it just made it worse.

also, i found detoxing made a big difference in moving me forward. there is lots of info here on detoxing.

barbara

Hi yes ,

Me too , it looks like most of our history . Now that you know you will find a lot of help here we share much support and information .

I recovered from paralysi swith what I found here in thi sforum so gather yoru courage you are on yoru way out even thought ti looks very long to began with and very slow sometime .

Kindly Marie

To: lyme_and_rife Sent: Wednesday, March 7, 2012 1:43 PMSubject: RE: My Lyme Story.

HiWow, i feel a lote of empathy for you. I cannot believe you went through all that, You were sick with so many things and not one doctor could diagnois you. At least your family doctor led you in the right direction to at least consider that you have lyme. and That is the cause of all your illnesses. At least you know what you have and can concentrate on a path that will help cure you. I wish you all the best. If you protocals seem to be slow, try to consider metal toxity also, having too much metal like lead and merucury can stop your progresss. i would also have a metal toxity test. take care Damarise

To: Lyme_and_Rife From: sanderschantel@...Date: Wed, 7 Mar 2012 16:33:03 +0000Subject: My Lyme Story.

My Lyme story March, 2012 For the past 10+ years I have been walking around feeling like a Hypochondriac. I have had a lot medical problems, went to several doctors, had lots of test done, and I have never found a definite answer to what the problem was. Only their best guess based on symptoms. I have spent a lot of money in MRI’s, CAT scans, ultrasounds, Upper GI, Physical therapy, chiropractors, and so on. It’s really frustrating not having an answer and feeling like no one believes me. Here is part of my story.I have had several symptoms for years. In 2002 (?) I had severe migraines that caused black outs. I never found out why. In 2004(?) I was diagnosed with fibromyalgia . I had several years of extremely bad periods that produced a lot of blood clots and severe pain which later led to a hysterectomy in 2007. In 2009 my arm was going numb and I had a lot of neck pain. I lost a lot of muscle and had to do

physical therapy. I was diagnosed with Degenerative disc disease. I have also been diagnosed with High blood pressure, Anxiety, irritable bowel syndrome, migraines, depression, Insomnia, muscle spasms, not to mention Back pain and sore muscles for no reason. There are others but i cant remember. I suffer a lot now with Memory loss and confusion. I loose track of what i am thinking. I have problems with my vision although when i go in the test are not bad. I have been told that my eye test show a question for Glaucoma. I cant remember the last time i woke up without any pain. Not to mention it takes sleeping pills to give me an almost good nights sleep. I know my body and i know when something is wrong.I recently found out I have Lyme from my family doctor. I was doing OK for a while until I had a Root Canal done on 12/8/11. I went in to the doctor on 12/20/2011 because of severe stomach pains. I was at that time, so tired of being sick and not

knowing why. I went in with a long list of all my complaints and my past diagnoses. After entering it all in it came up Lyme. So he asked if i have ever been bitten by a tick. Then knowing that I have in the past he decided to do the test. I did not go back for the results, Instead I called and asked the nurse. She said everything looks fine. (Never get your results from a nurse). Well I got even more sick with a bad cough and severe migraines. I could not take the pain anymore so I went back in to my doctor on 1/31/12. He asked why i didn't come back for a follow up and to get my results. I explained that I called. He then told me I had Lyme. The Western Blot AB IGM WB 41 KD Band was reactive. He put me on Doxycline and ordered a Brain MRI, An Upper GI, and an abdomen complete ultra sound. MRI was good except sinuses: Right maxillary antrum mucous retention cyst. Upper GI showed Minimal gastroesophageal reflux. Ultra Sound shows Fatty infiltration of

the liver. When it came back he said you have Lyme. He knew nothing more about treating it besides putting me on Doxy. So he referred me to an Infectious disease doctor. Well, the Infectious Disease doctor disagreed. He looked at the blood test that was given by my doctor. He said in his opinion I don’t have Lyme and I should not have been put on Doxycline. He ordered the C6 peptide test along with others. When that came back he had his nurse call and she said, "you don't have Lyme." Well I picked up my test so i could see it for myself. The Lyme total antibody had a reading of 0.14 which states that below 0.90 is Negative by their standards. I didn't take his advice and searched for another doctor. After being referred by another Lyme patient, I went on to an ND for a second opinion. During our 3 hour visit, she said "Your not crazy. You have Lyme". So later I called the infectious disease doctor back. After arguing with him, he finally said " I

cant tell you that you have Lyme." Well that i understand. He goes by the CDC standards. Why is it so hard to get a true diagnosis. We should not have to be so far gone in order for us to get the treatment we deserve. I remember being bit by a tick when I was young and a few times as I was older but I can’t recall when. I don’t remember ever seeing a rash. So I have no idea how long I have had this. This is what I have learned. Most of everything I have ever had has been listed for symptoms of Lyme. I have had enough tests to know that so far, in most of the major organs I have no damage. I feel that most can be healed. And with the support of my family and friends I can make it through anything.. I also know that EMF electro-magnetic frequencies with the bed mat + sauna are a big part to healing. So is Rife. On top of that I am going to continue with the Doxycycline until I'm out, eat better and try to find ways to detox. That's

the plan for now. All we can do is go a step at a time. And Pray for more good days than bad.

[Guest guest]

good info maria, thanksbarbara

 

Hi,

 

I was on antibiody when I got the coil ,

 

I waited until the end of my treatment only because it was a life saving situation . If I would not have been in a cirticall condition I would have stopped because the coil to  me is many time more effective than antibiody

and because it gives cysts. These cysts multiply by several folds the power fo the deease when they awake as they continue to multiply inside the cyst they become many .

A spirotheque under  threat  is able to change it self into a several cyst 5 or more and inside the cyst  they are mushrooming up to 8.

according to what I remmebered having read. When I took my decision I made a quick compution that is of course theorical 5*8 my load of borella = 40 times more in the th eunlikly hypothesis of each spirotheque change into a cyst .

So I asked the question on the forum I was in and the synopsis of the answeres were : when their life was jeoperdised they elect to continue the abx with the rife fr a while when they were not such jeoperdised situation they elected not to continue it . So I choose to continue a little bit .

 

This i snot an advise, I am not a Doct . I have been asking mysefl your question andhere is the way I decided for myself. Everyone is different and everyone decid for himself

 

Kindly Marie

 

To: Lyme_and_Rife Sent: Wednesday, March 7, 2012 4:07 PM

Subject: Re: My Lyme Story.

 

So in your opinion its better to be of the antibiotics while you rife?

 

Hi,

your story sounds like mine.  i've gone through over 39 yrs of every test and med. they could do, several diagnosis like fibro, tested for lyme, but mine was negative, which means nothing. it really helps to have a positive dx, at least you know why you feel crazy.  

when a lyme dr dx lyme he put me on 18 mos. of abx and many other meds to help the abx.  after that i was actually sicker than before i went on the abx.  i also had more candida, which is a real problem.  also, if you are rifing, the abx cause the lyme to encyst, where the rife can't kill them.  just something to think about, maybe do some research here on this site because the abx will be counter productive to rifing.  i know many rely on abx, but for me it just made it worse.

also, i found detoxing made a big difference in moving me forward. there is lots of info here on detoxing.

barbara

  

 

Hi yes ,

Me too , it looks like most of our history . Now that you know you will find a lot of help here we share much support and information .

I recovered from paralysi swith what I found here in thi sforum so gather yoru courage you are on yoru way out even thought ti looks very long to began with and very slow sometime .

Kindly Marie

To: lyme_and_rife Sent: Wednesday, March 7, 2012 1:43 PM

Subject: RE: My Lyme Story.

 

HiWow, i feel a lote of empathy for you. I cannot believe you went through all that, You were sick with so many things and not one doctor could diagnois you. At least your family doctor led you in the right direction to at least consider that you have lyme. and That is the cause of all your illnesses. At least you know what you have and can concentrate on a path that will help cure you. I wish you all the best. If you protocals seem to be slow, try to consider metal toxity also, having too much metal like lead and merucury can stop your progresss. i would also have a metal toxity test. take care Damarise

To: Lyme_and_Rife

From: sanderschantel@...Date: Wed, 7 Mar 2012 16:33:03 +0000Subject: My Lyme Story. 

My Lyme story March, 2012 For the past 10+ years I have been walking around feeling like a Hypochondriac. I have had a lot medical problems, went to several doctors, had lots of test done, and I have never found a definite answer to what the problem was. Only their best guess based on symptoms. I have spent a lot of money in MRI’s, CAT scans, ultrasounds, Upper GI, Physical therapy, chiropractors, and so on. It’s really frustrating not having an answer and feeling like no one believes me. Here is part of my story.

I have had several symptoms for years. In 2002 (?) I had severe migraines that caused black outs. I never found out why. In 2004(?) I was diagnosed with fibromyalgia . I had several years of extremely bad periods that produced a lot of blood clots and severe pain which later led to a hysterectomy in 2007. In 2009 my arm was going numb and I had a lot of neck pain. I lost a lot of muscle and had to do

physical therapy. I was diagnosed with Degenerative disc disease. I have also been diagnosed with High blood pressure, Anxiety, irritable bowel syndrome, migraines, depression, Insomnia, muscle spasms, not to mention Back pain and sore muscles for no reason. There are others but i cant remember. I suffer a lot now with Memory loss and confusion. I loose track of what i am thinking. I have problems with my vision although when i go in the test are not bad. I have been told that my eye test show a question for Glaucoma. I cant remember the last time i woke up without any pain. Not to mention it takes sleeping pills to give me an almost good nights sleep. I know my body and i know when something is wrong.

I recently found out I have Lyme from my family doctor. I was doing OK for a while until I had a Root Canal done on 12/8/11. I went in to the doctor on 12/20/2011 because of severe stomach pains. I was at that time, so tired of being sick and not

knowing why. I went in with a long list of all my complaints and my past diagnoses. After entering it all in it came up Lyme. So he asked if i have ever been bitten by a tick. Then knowing that I have in the past he decided to do the test. I did not go back for the results, Instead I called and asked the nurse. She said everything looks fine. (Never get your results from a nurse). Well I got even more sick with a bad cough and severe migraines. I could not take the pain anymore so I went back in to my doctor on 1/31/12. He asked why i didn't come back for a follow up and to get my results. I explained that I called. He then told me I had Lyme. The Western Blot AB IGM WB 41 KD Band was reactive. He put me on Doxycline and ordered a Brain MRI, An Upper GI, and an abdomen complete ultra sound. MRI was good except sinuses: Right maxillary antrum mucous retention cyst. Upper GI showed Minimal gastroesophageal reflux. Ultra Sound shows Fatty infiltration of

the liver. When it came back he said you have Lyme. He knew nothing more about treating it besides putting me on Doxy. So he referred me to an Infectious disease doctor. Well, the Infectious Disease doctor disagreed. He looked at the blood test that was given by my doctor. He said in his opinion I don’t have Lyme and I should not have been put on Doxycline. He ordered the C6 peptide test along with others. When that came back he had his nurse call and she said, " you don't have Lyme. " Well I picked up my test so i could see it for myself. The Lyme total antibody had a reading of 0.14 which states that below 0.90 is Negative by their standards. I didn't take his advice and searched for another doctor. After being referred by another Lyme patient, I went on to an ND for a second opinion. During our 3 hour visit, she said " Your not crazy. You have Lyme " . So later I called the infectious disease doctor back. After arguing with him, he finally said " I

cant tell you that you have Lyme. " Well that i understand. He goes by the CDC standards. Why is it so hard to get a true diagnosis. We should not have to be so far gone in order for us to get the treatment we deserve.

I remember being bit by a tick when I was young and a few times as I was older but I can’t recall when. I don’t remember ever seeing a rash. So I have no idea how long I have had this. This is what I have learned. Most of everything I have ever had has been listed for symptoms of Lyme. I have had enough tests to know that so far, in most of the major organs I have no damage. I feel that most can be healed. And with the support of my family and friends I can make it through anything.. I also know that EMF electro-magnetic frequencies with the bed mat + sauna are a big part to healing. So is Rife. On top of that I am going to continue with the Doxycycline until I'm out, eat better and try to find ways to detox. That's

the plan for now. All we can do is go a step at a time. And Pray for more good days than bad.