My Lyme Story.

[Guest guest]

My Lyme story

March, 2012

For the past 10+ years I have been walking around feeling like a Hypochondriac.

I have had a lot medical problems, went to several doctors, had lots of test

done, and I have never found a definite answer to what the problem was. Only

their best guess based on symptoms. I have spent a lot of money in MRI’s, CAT

scans, ultrasounds, Upper GI, Physical therapy, chiropractors, and so on. It’s

really frustrating not having an answer and feeling like no one believes me.

Here is part of my story.

I have had several symptoms for years. In 2002 (?) I had severe migraines that

caused black outs. I never found out why. In 2004(?) I was diagnosed with

fibromyalgia . I had several years of extremely bad periods that produced a lot

of blood clots and severe pain which later led to a hysterectomy in 2007. In

2009 my arm was going numb and I had a lot of neck pain. I lost a lot of muscle

and had to do physical therapy. I was diagnosed with Degenerative disc disease.

I have also been diagnosed with High blood pressure, Anxiety, irritable bowel

syndrome, migraines, depression, Insomnia, muscle spasms, not to mention Back

pain and sore muscles for no reason. There are others but i cant remember. I

suffer a lot now with Memory loss and confusion. I loose track of what i am

thinking. I have problems with my vision although when i go in the test are not

bad. I have been told that my eye test show a question for Glaucoma. I cant

remember the last time i woke up without any pain. Not to mention it takes

sleeping pills to give me an almost good nights sleep. I know my body and i know

when something is wrong.

I recently found out I have Lyme from my family doctor. I was doing OK for a

while until I had a Root Canal done on 12/8/11. I went in to the doctor on

12/20/2011 because of severe stomach pains. I was at that time, so tired of

being sick and not knowing why. I went in with a long list of all my complaints

and my past diagnoses. After entering it all in it came up Lyme. So he asked if

i have ever been bitten by a tick. Then knowing that I have in the past he

decided to do the test. I did not go back for the results, Instead I called and

asked the nurse. She said everything looks fine. (Never get your results from a

nurse). Well I got even more sick with a bad cough and severe migraines. I

could not take the pain anymore so I went back in to my doctor on 1/31/12. He

asked why i didn't come back for a follow up and to get my results. I explained

that I called. He then told me I had Lyme. The Western Blot AB IGM WB 41 KD Band

was reactive. He put me on Doxycline and ordered a Brain MRI, An Upper GI, and

an abdomen complete ultra sound. MRI was good except sinuses: Right maxillary

antrum mucous retention cyst. Upper GI showed Minimal gastroesophageal reflux.

Ultra Sound shows Fatty infiltration of the liver. When it came back he said you

have Lyme. He knew nothing more about treating it besides putting me on Doxy. So

he referred me to an Infectious disease doctor. Well, the Infectious Disease

doctor disagreed. He looked at the blood test that was given by my doctor. He

said in his opinion I don’t have Lyme and I should not have been put on

Doxycline. He ordered the C6 peptide test along with others. When that came back

he had his nurse call and she said, " you don't have Lyme. " Well I picked up my

test so i could see it for myself. The Lyme total antibody had a reading of 0.14

which states that below 0.90 is Negative by their standards. I didn't take his

advice and searched for another doctor. After being referred by another Lyme

patient, I went on to an ND for a second opinion. During our 3 hour visit, she

said " Your not crazy. You have Lyme " . So later I called the infectious disease

doctor back. After arguing with him, he finally said " I cant tell you that you

have Lyme. " Well that i understand. He goes by the CDC standards. Why is it so

hard to get a true diagnosis. We should not have to be so far gone in order for

us to get the treatment we deserve.

I remember being bit by a tick when I was young and a few times as I was older

but I can’t recall when. I don’t remember ever seeing a rash. So I have no

idea how long I have had this. This is what I have learned. Most of everything I

have ever had has been listed for symptoms of Lyme. I have had enough tests to

know that so far, in most of the major organs I have no damage. I feel that most

can be healed. And with the support of my family and friends I can make it

through anything.. I also know that EMF electro-magnetic frequencies with the

bed mat + sauna are a big part to healing. So is Rife. On top of that I am going

to continue with the Doxycycline until I'm out, eat better and try to find ways

to detox. That's the plan for now. All we can do is go a step at a time. And

Pray for more good days than bad.