Fw: [mb12valtrex] Fw: crazy reactions to foods/overactive immune system?

[Guest guest]

> From: Vicki Eisen <vickieisen (DOT) com>

> Subject: crazy reactions to foods/overactive immune system?

> mb12 valtrexgroups

> Date: Tuesday, August 5, 2008, 12:39 AM

> I read everyones posts each night but now I need this groups

> expertise.

> My son has been on gfcf diet/anti yeast diet since last

> November.In the first month we saw a major change. He was

> much calmer, focused less outbursts. He then has maintained

> even lost weight and has overall stayed healthier.

> While following the DAN protocol, he went on custom

> probiotics and started having major outbursts.As amatter of

> fact, all supplements made him react. After alot of testing

> and research we recognized an immune dysfuction problem and

> started the Nids protocol.

> He has been on valtrex since April and diflucan since June.

> We have seen very positive subtle changes. The medications

> seem to be helping and Jake is tolerating them well. The

> problem I'm having is with foods. Since going on the

> diets my son seems soooooooomuch more sensitive to foods.

>

> He used to eat everything. He never had any stomach issues.

> Now I recognize that he has enormous food sensitivities.

> Since restricting his diet, if I give him any extra sugars

> like any fruit besides one pear a day he is ballistic. An

> ice pop caused screaming yelling hysterics, and gfcfsf

> brownies caused aggressive freaking out in the classroom

> that I had to pick him up from school.

>

> He is on diflucan and it does seem that these behaviors

> have peaked since June when he started. Potatoes , rice, and

> meats , veggies , preservative free chips and pears seem to

> be the only foods he can eat without issue.

> Why would he be getting more reactive to foods? This kid

> used to eat gummies, candy, chips galore and tons of fruits.

> Is this a yeast die off issue because of added sugar on

> diflucan?

>

> I know this is the right protocol for Jake. He has high

> virus titers, pandas and now obviously extreme food issues.

> Has anyone else experienced

> food sensitivities increasing while trying to calm the

> immune system?

> Please share related experiences or advice!

> Thanks Vicki

[Guest guest]

Hi Vicki-

It isn't common but not unheard of for food sensitivities to increase, or be

unmasked, early on in the protocol, but usually not so 'across the board' like

that.  I would have to suspect other triggers.

First, is there pink dye in the Diflucan - even the very pale pink pills?  Or is

he on the liquid one with the strong flavoring?  If your child is reactive to

that pink dye, it can set him off so that tons of other things trigger it too.

With PANDAS, you may have to avoid probiotics at this time.  I think I've talked

about that with you before ... sounds like he's already off them...  (not

everyone has to avoid them, but a few of us get worse - they trigger te wrong

immune reaction).

Sugars - or rather the insulin response TO sugar - has been shown to have a

direct effect on the immune system, setting off some cascades of cytokines or

interleukins - the details don't stick with me.  I could try to find it next

week when I get home if you'll remind me.  But anyway, insulin's effect on the

immune system could be one reason low carb low sugar diets are so helpful.  So

if he's reacting so badly to sugars, it may have anything to do with yeast

(feeding it, so to speak), but rather a very hot immune system right now. 

(Again, pink dye could do that).

Usually most kids can tolerate Diflucan, and a lot of times they can tolerate

the trace dye ... would you let me know if you're already getting it compounded

dye-free?  It really affected my son badly.  In me, it can trigger gastritis

(inflammation of the stomach like an allergy reaction - very painful, helped a

lot by tiny sips of dye-free liquid benedryl every couple of hours during an

attack, and useful as a preventative). 

If worst came to worst and things don't improve, would your doc consider

switching to Nizoral for a while to see if it really is the Diflucan?  Even if

it is, odds are you could return to it again later.  I may have only heard of

one or two kids in several years who just couldn't take it, and even then I'd

bet there was another factor involved.  With the kind of outbursts you describe,

I'd check to see if he's getting soy lecithen or other soy protein (that

excludes soybean oil - that's fine) ... and also check to see if his pupils seem

a little dilated even in bright light (like half size instead of constricting)

....    But the foods you describe as tolerated are about what my oldest

tolerated early on too, but that got much better eventually - so there's hope,

and hang in there!

HTH-

crazy reactions to foods/overactive immune system?

> mb12 valtrexgroups

> Date: Tuesday, August 5, 2008, 12:39 AM

> I read everyones posts each night but now I need this groups

> expertise.

> My son has been on gfcf diet/anti yeast diet since last

> November.In the first month we saw a major change. He was

> much calmer, focused less outbursts. He then has maintained

> even lost weight and has overall stayed healthier.

> While following the DAN protocol, he went on custom

> probiotics and started having major outbursts.As amatter of

> fact, all supplements made him react. After alot of testing

> and research we recognized an immune dysfuction problem and

> started the Nids protocol.

> He has been on valtrex since April and diflucan since June.

> We have seen very positive subtle changes. The medications

> seem to be helping and Jake is tolerating them well. The

> problem I'm having is with foods. Since going on the

> diets my son seems soooooooomuch more sensitive to foods.

>

> He used to eat everything. He never had any stomach issues.

> Now I recognize that he has enormous food sensitivities.

> Since restricting his diet, if I give him any extra sugars

> like any fruit besides one pear a day he is ballistic. An

> ice pop caused screaming yelling hysterics, and gfcfsf

> brownies caused aggressive freaking out in the classroom

> that I had to pick him up from school.

>

> He is on diflucan and it does seem that these behaviors

> have peaked since June when he started. Potatoes , rice, and

> meats , veggies , preservative free chips and pears seem to

> be the only foods he can eat without issue.

> Why would he be getting more reactive to foods? This kid

> used to eat gummies, candy, chips galore and tons of fruits.

> Is this a yeast die off issue because of added sugar on

> diflucan?

>

> I know this is the right protocol for Jake. He has high

> virus titers, pandas and now obviously extreme food issues.

> Has anyone else experienced

> food sensitivities increasing while trying to calm the

> immune system?

> Please share related experiences or advice!

> Thanks Vicki

[Guest guest]

and gfcfsf

> brownies caused aggressive freaking out in the classroom

> that I had to pick him up from school.

This happened to us too and it turned out to be the brown sugar and

brown rice used in the mix.