Guest guest Posted March 25, 2012 Report Share Posted March 25, 2012 AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > I had taken MMS for about 2 weeks after ending the coil usage. > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > Angie. "Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 I never had abdominal symptoms prior to using the coil machine. This all started back in May 2009 when I decided to go the coil route. This is after I had been thru Doxy and Rocephin PIC line for 5weeks, Salt and C. All helped me but the symptoms lingered. So i found and joined the last lyme group that now morphed into this one. I started with 570hz for Babesia. I have never herxed, so I was advised that i could ramp up quickly since it was herxing that makes folks go slowly. Anyway I was doing 10 mins on my central abdomen. I used it like this for about 14 sessions at every other day. I was also doing 832hz for Bartonella. I did about 7 sessions of that. I was doing it everyday because the thinking at the time is that it reproduces quickly and you have to be aggressive with it. I noticed after the 6th session with the 570, that I developed constant burping and a feelin like my stomach was coming out back up my throat. Afetr each session after that 6th one, I would get the same feeling. It would subside by the end of the day. Then the next day after coiling and hugging the coil to my abdomen, that feeling would come back again. I was made to believe I was finally herxing and advised to continue. So I did. However after about 2 months of using the coil, I decided it was not for me. So I quit. Couple of days after I quit, the burping feeling,and acid reflux feeling went away. I waited two weeks and then started my next protocol, which was MMS.I swas taking it 3drops 3x a day. I took it for two weeks.however one week into taking the MMS, the heartburn returned, and this time, it stayed. Then about 2weeks after i had discontinued the MMS, I woke up one morning with a feeling of bunched up intestines under my right rib, in arear of where I used to hug the coil over. It came with bloating, nausea, fullness, intestinal audible growling and churning, and the dreaded constant burping with a feeling of stomach coming up my throat. The intestinal mass seems to move around in my abdomen but its mainly over under my right rib. I have constant burping, not related to eating. I have intestinal growling unrelated to eating. The most disconcerting is the feeling of constant reflux. This has been going on for two and half years now. I have had numerous ultrasound that are normal. I have been treated for worms and parasites, to no avail. I have been treated with what i hear is a powerful antibiotic called Xifanan for intestinal bacteria. No help. The only thing that did help once was Align Probiotic. It actually controlled it for a while, but suddenly it quit working. Don't know why. I then started this other probiotic that has 100 million cfu units. It has been no help. i have had my stool tested and they found level 1 intestinal yeast and low Elastase 1 enzyme. The Dr. put me on a Candida diet since last December. I have tried to stick to it despite how hard it is, yet no relief. I am also on Nystatin, some powerful digestive enzymes. Yet the symptoms keep flaring. So you see why I wish I had never heard of coiling nor MMS. Between them, they have ruined my life in the last two and half years.I am bitter because I have suffered so much, and still suffering with no help in sight. Jan like I said, I take a pretty powerful probiotic that has 100 billion of those units. They have not helped. Probiotics Align helped me initially, but not anymore. That was why I went to supposedly this superior one, but it has not helped either. I am open to any insights on how I can get over this. Thanks. Angie. > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > Angie. > > " Im not trying to counsel any of you to do anything > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Angie,Antibiotics kill also the good bacteria and make your body highly acidic.I had similar experience and the doc gave me Prilosec which dose not help the real problem. So instead I started coiling my liver on 751 once daily. Started with 1 min and went up to 3. Every time I put coil on the liver I was feeling soothing warmth. I was doing this for couple of weeks 'till symptoms went a way and also try to eliminate sugar and gluten from my diet.I hope this helps a little. Good luck!BozenaConnected by DROID on Verizon Wireless Re: wish I had never heard of the coil or MMS I never had abdominal symptoms prior to using the coil machine. This all started back in May 2009 when I decided to go the coil route. This is after I had been thru Doxy and Rocephin PIC line for 5weeks, Salt and C. All helped me but the symptoms lingered. So i found and joined the last lyme group that now morphed into this one.I started with 570hz for Babesia. I have never herxed, so I was advised that i could ramp up quickly since it was herxing that makes folks go slowly. Anyway I was doing 10 mins on my central abdomen. I used it like this for about 14 sessions at every other day. I was also doing 832hz for Bartonella. I did about 7 sessions of that. I was doing it everyday because the thinking at the time is that it reproduces quickly and you have to be aggressive with it.I noticed after the 6th session with the 570, that I developed constant burping and a feelin like my stomach was coming out back up my throat. Afetr each session after that 6th one, I would get the same feeling. It would subside by the end of the day. Then the next day after coiling and hugging the coil to my abdomen, that feeling would come back again. I was made to believe I was finally herxing and advised to continue. So I did. However after about 2 months of using the coil, I decided it was not for me. So I quit.Couple of days after I quit, the burping feeling,and acid reflux feeling went away. I waited two weeks and then started my next protocol, which was MMS.I swas taking it 3drops 3x a day. I took it for two weeks.however one week into taking the MMS, the heartburn returned, and this time, it stayed.Then about 2weeks after i had discontinued the MMS, I woke up one morning with a feeling of bunched up intestines under my right rib, in arear of where I used to hug the coil over. It came with bloating, nausea, fullness, intestinal audible growling and churning, and the dreaded constant burping with a feeling of stomach coming up my throat. The intestinal mass seems to move around in my abdomen but its mainly over under my right rib. I have constant burping, not related to eating. I have intestinal growling unrelated to eating. The most disconcerting is the feeling of constant reflux.This has been going on for two and half years now.I have had numerous ultrasound that are normal. I have been treated for worms and parasites, to no avail. I have been treated with what i hear is a powerful antibiotic called Xifanan for intestinal bacteria. No help. The only thing that did help once was Align Probiotic. It actually controlled it for a while, but suddenly it quit working. Don't know why. I then started this other probiotic that has 100 million cfu units. It has been no help.i have had my stool tested and they found level 1 intestinal yeast and low Elastase 1 enzyme. The Dr. put me on a Candida diet since last December. I have tried to stick to it despite how hard it is, yet no relief. I am also on Nystatin, some powerful digestive enzymes. Yet the symptoms keep flaring.So you see why I wish I had never heard of coiling nor MMS. Between them, they have ruined my life in the last two and half years.I am bitter because I have suffered so much, and still suffering with no help in sight.Jan like I said, I take a pretty powerful probiotic that has 100 billion of those units. They have not helped. Probiotics Align helped me initially, but not anymore. That was why I went to supposedly this superior one, but it has not helped either.I am open to any insights on how I can get over this.Thanks.Angie.>> AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan>  One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > Angie. > > " Im not trying to counsel any of you to do anything > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Angie, it might not be the number of organisms in the probiotic but rather that you haven't found the brand you need. I remember reading that someone had persisted in trying brand after brand and eventually found one that really did the trick though the previous ones didn't work. Also, taking a probiotic enema could be useful. I am using an occasional kefir grain as a suppository, and it has been beneficial. I've used Custom Probiotics--and they are strong and excellent. Kombucha seems to help some folk as well. On lymenet there is a long thread on rifing, and I remember reading where one person had a severe stomach pain response, but not to the coil as I recall. Sorry I don't remember the name or what she did that worked but as I recall, it did resolve. You might try posting there as well, or reading the thread. Do you notice that the problem worsens when you eat fat? Could this be gall bladder related? In addition to using betaine as has been suggested, I also take ox bile to help with digestion. Diet is hard but certainly is worth exploring. I follow a stricter version of the specific carbohydrate diet. This diet has also helped tons of people with severe abdominal symptoms, as has the GAPS diet. Both help with rebalancing the gut flora, and that is a particular focus of the GAPS diet. If you haven't read about these or tried them, it might be worth it. Sherry > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > Angie. > > > > " Im not trying to counsel any of you to do anything > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Hi Angie-- I am new to this group, but not new to lyme with myself, my husband, and 2 kids battling it for 3 years. I had unhealthy intestinal flora that only was corrected with VSL3 probiotic which has 900 billion living organisms per dose, which many people take 2x a day. They also have 450 billion strength dose which worked for me 2x a day. They call it "the living shield" because it protects your gut lining so well from bad organisms. You buy it on line or bring a prescription for the stronger strength to the pharmacy--some insurance covers it. Good luck. na To: Lyme_and_Rife Sent: Sunday, March 25, 2012 8:43 PM Subject: Re: wish I had never heard of the coil or MMS Angie, it might not be the number of organisms in the probiotic but rather that you haven't found the brand you need. I remember reading that someone had persisted in trying brand after brand and eventually found one that really did the trick though the previous ones didn't work. Also, taking a probiotic enema could be useful. I am using an occasional kefir grain as a suppository, and it has been beneficial. I've used Custom Probiotics--and they are strong and excellent. Kombucha seems to help some folk as well. On lymenet there is a long thread on rifing, and I remember reading where one person had a severe stomach pain response, but not to the coil as I recall. Sorry I don't remember the name or what she did that worked but as I recall, it did resolve. You might try posting there as well, or reading the thread. Do you notice that the problem worsens when you eat fat? Could this be gall bladder related? In addition to using betaine as has been suggested, I also take ox bile to help with digestion. Diet is hard but certainly is worth exploring. I follow a stricter version of the specific carbohydrate diet. This diet has also helped tons of people with severe abdominal symptoms, as has the GAPS diet. Both help with rebalancing the gut flora, and that is a particular focus of the GAPS diet. If you haven't read about these or tried them, it might be worth it. Sherry > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > Angie. > > > > "Im not trying to counsel any of you to do anything > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Hi Angie, I wonder if the gut pain is related to low HCL levels. I had terrible gut pain and acid reflux long before I started rifing. I was diagnosed with Achlorhydria which means no stomach acid. I used to eat Rhizinate or deglycerized licorice by the handfuls to sooth the chronic gastritis pain that I experienced. I would drink aloe juice mixed with cabbage juice all of that would temporarily relieve the symptoms, but did not fix the problem. I finally went to Dr athon at the Tahoma Clinic in Seattle. He is also Suzanne Sommer's doctor. The first thing they did was the Heidelburg Capsule test on me to test my stomach acid levels. This test is a small capsule that is tied to a string that you swallow. The capsule sends a signal back to the computer program. The give you a baking soda drink and then measure how long it takes for your stomach to reacidify. Other then my gag reflex going off from the string hanging out of my mouth, it was a pretty painless test and it is worth it for you to look into it. www.phcapsule.com. I also suspect that the antibiotics wiped out your good flora. I love a probiotic by Dr. Ohira. It is the best probiotic out there, however only available through practitioners although you might be able to find it online. I do one in the AM and one in the PM along with one cheap costco brand probiotic twice a day. I also do pancreatic enzymes, twice daily. I went from chronic constipation to being as regular as clockwork on Dr. Ohira's. They are one supplement that will stay in my arsenal. I think that it was really a coincidence that your symptoms came on after coiling. Although jumping from one minute up to ten without really taking the time to slowly ramp up, could cause a massive herx. One question, did you ever herx otherwise from running 570 or 832 after ramping up? You are the first person that I have heard of that has had any negative long term side effects from coiling, so I suspect there are other things at play causing your problems. > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > Angie. > > > > " Im not trying to counsel any of you to do anything > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 , About the Heidelburg test, was the string used to pull the capsule back up from your stomach? If so, didn't that hurt? Wasn't there an option to just let it continue out of your body into the stool? I'm anxious to hear your answer because I am considering the test, but don't think I could do that with the string method. Thanks. Susie > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > Angie. > > > > > > " Im not trying to counsel any of you to do anything > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Thanks all for our responses as I continue to go thru this maze of suffering. How is it possible to burp every minute of every day and feel like something is either stuck in your throat or trying to come up from your abdomen. If I wasn't experiencing and have been for two and half years, I would never have believed it was possible. My endoscopy has been normal too so there really is nothing stuck there. It's just a feeling, a very disconcerting one. @Sherry, the stomach issues are always there. It is not associated with eating fatty foods. I'll look into the GAPS diet as you suggested. Thanks. @Jim, I don't think it's coincidental that this started right when I was coiling. I have no doubt that it is coil related. Maybe the 10 mins over the abdomen was too much for my own constitution. I just wish to find a way out of this maze. It is coil related. I am currently being treated for yeast infection with Nystatin, Candida diet and Probiotics. Just when I think it's helping, all the symptoms surge again. Sigh. The next step is that I am going for a breath test to check for bacterial overgrowth in the small intestines. @na and , like I said, so far only Align probiotic recommended by my GI doctor worked initially, then it quit working after about 3 months. I really thought I was over this at the time, but it quit working. Since then I have been placed and I'm still on a probiotic with 1 billion cfu from a company called Prothera. The name is Therbiotic and it is supposedly really good. It needs to be refrigerated and all. I hear the refrigerated ones are better. It hasn't helped me though. The Align which is over the counter helped me more when it was working for me. But I am willing to try a different brand. I just want this to go away. Sometimes I think about killing myself. That's how bad these symptom are. Question is, which one now should I get? The VSL3 or Dr. Ohira's? Any thoughts. @ , no I never did herx on any frequency. Even if jumping from 1 to 10 mins coil time would produce a massive herx, would the person still be herxing 2 and half years later? I doubt it. Anyway thanks so far. Angie. > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > Angie. > > > > > > " Im not trying to counsel any of you to do anything > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Hi Susie, The capsule that you swallow is the size of a vitamin pill very small. The string is for retreaving it from the stomach and probably to transmit a signal to the computer, I don't know. The test doesn't last very long and it really was not that bad. I do have a pretty strong gag reflex and if I could tolerate, I am sure you could as well. > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > Angie. > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Hi Angie, I like the Doctor Ohiras better then any other probiotic that I have taken because it does have a small amount of herb in it that keeps you regular. Since that was a huge issue for me, I found this probiotic to work better then any others. You might have an entirely different set of issues, but I am now going daily like I did when I was a kid. The reason I asked about the herxing, with the coil and I am not trying to throw you under the bus, but hopefully allow others to learn from your experience, is that jumping from such a small amount of time to such a long run time is hard for me to wrap my head around. Did you ramp up slowly adding in 15 seconds at a time? If you weren't herxing after about 4 minutes on the coil on any given frequency, I would have assumed I was either on the wrong frequencies or not infected with the organism you were attempting to treat or the disease as in the case of Lyme was encysted. The other issue is, I was told by not to run more then 6 minutes on the stomach and to very slowly work up to this time. Hindsight is always twenty twenty, and now the focus should be on how to correct your digestive issues and not look back at what you might have done differently. I do believe others who may be just starting out with the coil machine needs to learn from this and realize that this is experimental technology. Any protocol that works for one person may not work for another given each person has their own unique set of circumstances. I really do appreciate your posting your experience as I believe that it does remind us that we are all just a big experiment and must be careful not to succumb to the lure of the quick and easy fix when there really isn't one. It is pace not race when it comes to treating this disease and trust me I understand how people get tired of the fight and just want to get better by pushing treatment too hard too fast. I have read about people in the salt/c group ramping up too fast and experiencing excruciating herx symptoms in spite of repeated warnings to go slow. You are worth the fight and I do believe you can turn this around, you might have to think outside the box a bit since most MDs don't. Listen to others who have had serious gastrointestinal symptoms who may have come through them and see if there are suggestions that you might resonate with you to get you through this crisis. Please let us know how it is going with you from time to time. I am thinking that the stomach acid issue could be a HUGE one for you. I had very similar gastrointestinal distress that you describe until I started HCL/Betaine. Also as others mentioned with antibiotic usage, you probably have a huge fungal overgrowth and you may even have some Aspergillis issues compounding your problems. Unfortunately, the diet for treating molds and yeasts is so very restrictive, that most people can't follow it. It is possible that one of the frequencies that you ran killed some gut flora off. I don't know for sure and we can all only speculate, but I really do think you should buy some HCL/Betaine and try 1 -3 caps with each meal for awhile and see if you notice improvement. Gastrointestinal problems can really set your immune function back, so the first thing you need to do is get that corrected before you try to do anything else. If you knew how much Gastro support I do, it would floor you. I take 8 systemic enzymes a day, 4 in the AM, 4 in the PM (Infzyme by American Biologics) I take enzymes for digestion with each meal along with HCL and Betaine. I take at least 4-6 probiotics a day 2 are the Dr. Ohiras and the rest are just cheap Costco brand with 20 billion cells. I have done homeopathics to correct constipation etc. I know that Dr. often put Cancer patients on as much as 12 Pancreatic enzymes. It gets expensive to take this much, but it may be what your body needs to correct itself. If you need to get practitioner prices on anything, let me know and I will give you my friends email address. > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > Angie. > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 thanks for the time you are taking. In truth, at the time I was advised to use it as I did. The thinking was that since I was not herxing at the shorter times, that I could ramp up quickly, which I did. Of course now in hindsight, it was all wrong advice and wrong methodology which I hugely regret. Like you said however, problem is how to get over this if at all possible. I only used frequencies 570 for Babesia and 832 for Bartonella. Maybe they killed good bacteria in my gut. Maybe such long sessions ie 10 mins on abdomen was too much for me, but not for others. Or maybe the others ramped up slower than me. I take my lumps in all of this. I just need to find a way around, over or under this. Can you share more about the actual Dr Ohira product you take please. Does yours have to be refrigerated? Is it caps, liquid etc ? Thanks again all. Angie. > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > Angie. > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 , Thanks for answering. At least there would be no surprises now that I know. Susie > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > Angie. > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 , As far as gastro support goes, did doctors tell you to take all of those products, or did you just try them on your own? I suffer from constipation myself, but Dr. Ohiras made it worse. (Although I was also on PCA_RX at the time which is a detox product. Maybe that made it worse). Do you think low stomach acid contributes to constipation or is that a separate issue? I'm going to be making the Essiac tea & hope that will help with constipation because there is an herb in there that is supposed to help. Right now I just take 1 Primadophilus Bifidus in am & 1 in pm. It took me a long time to find a probiotic that wouldn't give me gas, but I feel that maybe it's still not enough. I do drink store unsweetened kefir & eat organic yogurt so that's a plus. Do you take any kind of supplemental fiber too? Thanks for your help. Susie > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > Angie. > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Hi Angie, I am sending a link that has the supplement facts on this probiotic. http://www.mynaturalmarket.com/essential-formulas-dr-ohhira-s-probiotics-12-plus\ -professional-formula-120-capsules.html?osCsid=9b1211128050d54db39d24aba56ee30dM\ y friend gets them at cost as they are very expensive online, so make sure you let me know if you want to order some and I will give you her info. > > > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > > > Angie. > > > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2012 Report Share Posted March 27, 2012 Hi Susie, First, I would check and see if you have an underactive Thyroid. It often is the culprit for chronic constipation. I would also be curious about your HCL levels. Low HCL levels equate to Parasitic infections. I would then question if you have either roundworms or some other parasitic infection such as Cryptosporidium, Giardia all common or some other infection such as fungal overgrowth. For me, the problem was brought about by a low thyroid, combined with a fungal overgrowth, not drinking enough water and not eating enough vegies. All of these things are contributing factors. I avoid Kefir and yogurt now because it seems to cause gut inflammation and irritate my Gastritis issues. Also because of the fact that milk products feeds parasites, they love it! I learned about the different enzymes and probiotics partly from my doctor and from reading the body ecology book and other books by the same author. Louise Gittleman has a book called Gut Flush that recommends doing a large loading dose of probiotics for a week or so and then slowly backing down. > > > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > > > Angie. > > > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 , Yes, I do have Hashimoto's thyroiditis, basically low thyroid, but can also have intermittent over-active symptoms. I'm not currently taking any thyroid meds because I tried all of them & always felt worse, not better. So now I only take 1 drop of Magnascent iodine every other day (not even sure if I'm supposed to take that, because with Hashimoto's, iodine can be the wrong thing to take. I was on Iodoral briefly & it gave me blinding headaches & metallic taste in the mouth). I had Crypto last year from an ION panel & I'm waiting for the results of a stool test that I just did to see what's there now. Thanks. Susie > > > > > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > > > > > Angie. > > > > > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 Hi na, 450 billion good bacteria in VSL3, I honestly thought you made a mistake and it should be 450 million... But you were correct, that is the highest amount of good bacteria I have seen in a probiotic!! Thanks, Jim > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > >  One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > Angie. > > > > > > " Im not trying to counsel any of you to do anything > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 > some powerful digestive enzymes. It surprised me but I found that I the gas and flatulence i was experiencing stopped when I cut back to a much lower dose of digestive enzymes than I was taking. I also found that I was getting gas pains when I took Unizyme or Wobenzym in large quantities. I wonder if the same sort of thing can be affecting you. I hope you find relief soon. All the best, Blue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 Hi Susie, Have you tried using Glucomannan? It is good for constipation... Also good is prunes and prune juice, high amounts of Vitamin C hourly or mag citrate hourly (only as really needed). Store Kefir has no comparison to homemade Kefir... Store Kefir has approx 7 -10 strains of bacteria, homemade up to 57 strains and costs a lot less!! http://ezinearticles.com/?Homemade-Kefir-Vs-Commercial-Store-Bought-Kefir & id=451\ 2536 Take care, Jim > > > > > > > > > > > > AngieIt sounds like you may need heavy doses of a good probiotic.You maybe should get Swansons brand probiotics that have 66 billion units of probiotic per capsule and take 3 times a day.Also a product called Kolorex which is horopito , and Kandidaplex which is a herbal combinationBetaine HCL with meals is also helpful with candida.jan > > > > > > One or both of them have ruined my life. I used the coil heavily over three months for Bartonella and Babesia some three years ago. I was using it everyday for 10 mins over my liver area for Bartonella. I would get heartburn after each session, but I thot it was herxing. Since then I have the worst abdominal symptoms you can think of. I have tried everything and now I am in such despair over this condition. > > > > > > > > > > > > > > I had taken MMS for about 2 weeks after ending the coil usage. > > > > > > > > > > > > > > Why am I the only one who ever experienced this with the coil? Better yet how can I ever get out if this mess? Tests show I have low elastase level which indicates pancreatic insuffieciency, and level one yeast infection of the intestines. Did the coil hurt my intestines and pancrease? Just what is happening to me. I don't know where else to rant at. I am mad, just not sure at who. I have suffered so much with these weird abdominal symptoms. Sob. > > > > > > > > > > > > > > Angie. > > > > > > > > > > > > " Im not trying to counsel any of you to do anything > > > > > > > > > > > > really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely. " -R. Buckminster Fuller > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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