Neurofeedback- Has anyone tried this?

[Guest guest]

I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this?

Comments and suggestions would be appreciated.

Thank you

Colleen

[Guest guest]

We did neurofeedback last year at the Drake Institute. While certainly not a

" cure, " it was very helpful in promoting social awareness, emotional control,

and increased focus in my son. It was very expensive and insurance doesn't

cover it, but they do offer an interest-free financing program.

However, the Drake Institute does not treat children under five years old

because they need the child to be able to understand what is happening and to

follow simple directions. My son had just turned 10 when he started. Still,

it's worth looking into. I wish we had known about neurofeedback when he was

five!

HTH,

Donna

>

> I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this?

Comments and suggestions would be appreciated.

>

> Thank you

> Colleen

>

[Guest guest]

I do neurofeedback at home with my son - it is much more affordable and very

easy.

You can do it with any age child and once you learn how, it is actually fun.

Take a look at the group: autism-nf/ for

more info

A LOT of specialists and pros in the area belong to the group. While it is

quiet at times, you can ask any question about it and the info is very

valuable.

Arianne

From: [mailto: ] On Behalf Of

thefamily007

Sent: Sunday, April 05, 2009 4:30 PM

Subject: Re: Neurofeedback- Has anyone tried this?

We did neurofeedback last year at the Drake Institute. While certainly not a

" cure, " it was very helpful in promoting social awareness, emotional

control, and increased focus in my son. It was very expensive and insurance

doesn't cover it, but they do offer an interest-free financing program.

However, the Drake Institute does not treat children under five years old

because they need the child to be able to understand what is happening and

to follow simple directions. My son had just turned 10 when he started.

Still, it's worth looking into. I wish we had known about neurofeedback when

he was five!

HTH,

Donna

>

> I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this?

Comments and suggestions would be appreciated.

>

> Thank you

> Colleen

>

[Guest guest]

Yes. After seeing " JJ's Journey " on the autism website, - bought a copy and

watched it. JJ received neurofeedback from Dr. Dogris in Bishop, CA. We took my

son one time and are hoping to resume regular treatments with him It is just

very far. But he was excellent.

Sheryl

Sent via BlackBerry by AT & T

Neurofeedback- Has anyone tried this?

I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this?

Comments and suggestions would be appreciated.

Thank you

Colleen

[Guest guest]

My youngest son started neurofeedback several months ago aged 6 and his

language has noticeably shifted up several notches. Also his school have begun

to

comment on his 'significant language improvement' particularly comprehension

and expressive language and we had not discussed the programme with them. He

now seems to be catching up on that vital language development period

between ages 3 to 4 when why and what questions drive most parents crazy. We of

course are quite happy to be driven crazy by the why and what questions even if

several years late!

My son however is not diagnosed with Autism rather he has a significant

language delay with auditory and sensory processing difficulties following

regression aged 17 months and he never really had serious social communication

issues. Also I am not aware of there being a need to be able to follow basic

instructions for neurofeedback to commence since non invasive electrodes are

placed on the head and I have been lead to believe that it is the sounds being

generated which helps correct the brains aberrant electrical waves, though

clearly the whole process is more complex than that simple explanation.

Obviously though a child would need to be capable of being physically compliant

with

the process. When my son had the initial assessment there was indication of

extensive central nervous system dysfunction which correlated with Dr

Goldberg's findings when we saw him in December 08. Interestingly my older son

who

also saw Dr Goldberg had a SPECT scan by Dr Uzler on the recommendation of Dr

Goldberg and this physically confirms the QEEG results he had earlier in

London of significant central nervous dysfunction. He has just commenced

neurofeedback here and we hope to organise a further SPECT scan in about a

years time

to see if there is a corresponding improvement in the brains electrical

organisation!

Here are some of the links I used to research neurofeedback before giving it

a try because it is very expensive. We live in London so visit a practioner

in Harley St.

_http://www.eeginfo.com/research/learning_main.html_

(http://www.eeginfo.com/research/learning_main.html)

_http://www.q-metrx.com/neurofeedback.html_

(http://www.q-metrx.com/neurofeedback.html)

_http://www.dmghelpcenter.com/Selected_Publications_A/autism.pdf_

(http://www.dmghelpcenter.com/Selected_Publications_A/autism.pdf)

_http://www.eegfeedback.org/pdf/NEOCRTCL.pdf_

(http://www.eegfeedback.org/pdf/NEOCRTCL.pdf)

Also of potential interest is the fact that currently there is a company

selling a home unit which I have imported from the USA but which have not begun

using yet for various reasons. This option has various advantages and

disadvantages but I am not sure I would recommend this to anyone else yet as I

had a

very poor experience with the company who were very quick to take my money

but who had no interest in resolving problems so I have no idea whether it

will prove effective when I eventually try it on a third older boy who has ADD

type difficulties. The unit cost over $895 plus postage costs so is not cheap

and the company concerned are not helpful after they get your money!

In a message dated 05/04/2009 07:30:50 GMT Daylight Time,

donnaaron@... writes:

We did neurofeedback last year at the Drake Institute. While certainly not a

" cure, " it was very helpful in promoting social awareness, emotional

control, and increased focus in my son. It was very expensive and insurance

doesn't

cover it, but they do offer an interest-free financing program.

However, the Drake Institute does not treat children under five years old

because they need the child to be able to understand what is happening and to

follow simple directions. My son had just turned 10 when he started. Still,

it's worth looking into. I wish we had known about neurofeedback when he was

five!

HTH,

Donna

>

> I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this?

Comments and suggestions would be appreciated.

>

> Thank you

> Colleen

>

[Guest guest]

check into a home computer program called play attention.  I do not know if it

is classified as biofeedback or not, but you can watch a free webinar that is

live also and ask questions.  go to www.playattention.com .  It is for attention

issues.

Angie

From: coll64 <ires@...>

Subject: Neurofeedback- Has anyone tried this?

Date: Saturday, March 21, 2009, 8:18 AM

I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this? Comments

and suggestions would be appreciated.

Thank you

Colleen

[Guest guest]

check into a home computer program called play attention.  I do not know if it

is classified as biofeedback or not, but you can watch a free webinar that is

live also and ask questions.  go to www.playattention.com .  It is for attention

issues.

Angie

From: coll64 <ires@...>

Subject: Neurofeedback- Has anyone tried this?

Date: Saturday, March 21, 2009, 8:18 AM

I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this? Comments

and suggestions would be appreciated.

Thank you

Colleen

[Guest guest]

My sil uses this in her learning lab and she has had great success

with it.

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Apr 5, 2009, at 11:25 PM, angie huiz wrote:

> check into a home computer program called play attention. I do not

> know if it is classified as biofeedback or not, but you can watch a

> free webinar that is live also and ask questions. go to

> www.playattention.com . It is for attention issues.

> Angie

>

>

>

> From: coll64 <ires@...>

> Subject: Neurofeedback- Has anyone tried this?

>

> Date: Saturday, March 21, 2009, 8:18 AM

>

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> I'm looking into neurofeedback therapy for my 3.5 yr old autistic

> son. Has anyone done this before? What should I look for when

> researching this? Comments and suggestions would be appreciated.

>

> Thank you

> Colleen

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[Guest guest]

Cheryl-

Great to hear this, it is encouraging.

Angie

>

> From: coll64 <irescharter (DOT) net>

> Subject: Neurofeedback- Has anyone tried this?

> groups (DOT) com

> Date: Saturday, March 21, 2009, 8:18 AM

>

>

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> I'm looking into neurofeedback therapy for my 3.5 yr old autistic

> son. Has anyone done this before? What should I look for when

> researching this? Comments and suggestions would be appreciated.

>

> Thank you

> Colleen

>

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[Guest guest]

My son's been doing neurofeedback for 8 years - off and on (started when he was

almost 4). It's been really helpful, but if it's done wrong, it can really take

you backwards too. When he was little, it helped with anxiety and language. We

just started up again after a 2 year break to work on OCD. It started to help,

but got him so revved up that he got really anxious, which caused aggression and

meltdowns (it was very serious). Anyway, we have a better design now, and he's

getting back to normal. We train at home, mainly, because the cost is just

crazy. If you want to train at home, I would strongly recommend that you do so

under the care of a doctor who understands autism and can work closely with you.

It really has to be done right.

nne

[Guest guest]

I'm sorry, I did not follow the thread before. What is a

neurofeedback? Is it a therapy like brainwave therapy? I have bought a

product called Mindspa for my ADHD son but haven't started with it. I

will be very concerned if the thing will give him negative impact such

as anxiety and restlesness. Thanks for sharing

Cheers,

Marga

On May 4, 2009, at 23:40, " rosanne_achin " <rosanne_achin@...>

wrote:

>

>

> My son's been doing neurofeedback for 8 years - off and on (started

> when he was almost 4). It's been really helpful, but if it's done

> wrong, it can really take you backwards too. When he was little, it

> helped with anxiety and language. We just started up again after a 2

> year break to work on OCD. It started to help, but got him so revved

> up that he got really anxious, which caused aggression and meltdowns

> (it was very serious). Anyway, we have a better design now, and he's

> getting back to normal. We train at home, mainly, because the cost

> is just crazy. If you want to train at home, I would strongly

> recommend that you do so under the care of a doctor who understands

> autism and can work closely with you. It really has to be done right.

>

> nne

>

>

[Guest guest]

How do you do this at home? Aren't the equipment and programs expensive?

> >

> > I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

> anyone done this before? What should I look for when researching this?

> Comments and suggestions would be appreciated.

> >

> > Thank you

> > Colleen

> >

>

>

>

>

>

>

[Guest guest]

Are there safety concerns / any serious side effects , what are they?

From: donnaaron@...

Date: Tue, 5 May 2009 17:24:41 +0000

Subject: Re: Neurofeedback- Has anyone tried this?

How do you do this at home? Aren't the equipment and programs expensive?

> >

> > I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

> anyone done this before? What should I look for when researching this?

> Comments and suggestions would be appreciated.

> >

> > Thank you

> > Colleen

> >

>

>

>

>

>

>

[Guest guest]

I paid about 2,000$ about 6 or 7 years ago and have needed repairs (100$) a few

times. I pay 100$/mo for the doctor to oversee it and write the designs. I

would NEVER do it without a good dr to oversee it. You need a decent computer

to run the software.

nne

> > >

> > > I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

> > anyone done this before? What should I look for when researching this?

> > Comments and suggestions would be appreciated.

> > >

> > > Thank you

> > > Colleen

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

My son has been doing QEEG-guided neurofeedback for a few years with good

success. This method measures brain waves and works on very targeted areas

using either games or movies hooked up to fade or stop working when the

brain waves aren't where you want them to be. Our insurance has covered most

of the treatments.

Many years ago, he did several Flexyx neurofeedback treatments, which are a

more passive form. I know this is one of the forms some people do at home

but we did it in a doctor's office. It was a huge mistake. He suffered

a big regression and increase in seizures. Later, I attended an event that

featured a speaker talking about this type of neurofeedback. He said it

should never be done on a sensitive person with sensory integration issues.

Wish we had known that beforehand.

Gaylen

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[Guest guest]

For the QEEG-guided neurofeedback, my son's doctor charges $120 per session

if you have insurance, $75 per session if you don't. The treatment is

done in rounds of 5-6 treatment sessions per location they're working on. A

typical QEEG recommends between 4-8 areas to work on. The Q test typically

costs about $700. Our insurance usually covers half of the test and 70% of

the treatment sessions.

Gaylen

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[Guest guest]

gaylen,

what insurance do you have?

dawn

 

________________________________

From: " Googahly@... " <Googahly@...>

Sent: Thursday, May 7, 2009 2:54:29 PM

Subject: Re: Re: Neurofeedback- Has anyone tried this?

For the QEEG-guided neurofeedback, my son's doctor charges $120 per session

if you have insurance, $75 per session if you don't. The treatment is

done in rounds of 5-6 treatment sessions per location they're working on. A

typical QEEG recommends between 4-8 areas to work on. The Q test typically

costs about $700. Our insurance usually covers half of the test and 70% of

the treatment sessions.

Gaylen

************ **Big savings on Dell’s most popular laptops. Now starting at

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[Guest guest]

We currently have BCBS but have also had coverage for this under Aetna.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

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[Guest guest]

Happy Mother's Day to all you awesome mothers of all these awesome kids. Have a

great day. Candi

From: Googahly@...

Date: Sat, 9 May 2009 23:28:47 -0400

Subject: Re: Re: Neurofeedback- Has anyone tried this?

We currently have BCBS but have also had coverage for this under Aetna.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

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[Guest guest]

Whenever my son starts a new med, we look for side effects. Maybe its the wrong

med or the wrong dose. Same goes for neurofeedback.

It can be a great help, but it can also cause side effects. For example, if an

area of the child's brain has too much slow activity, and you slow it more,

that's a problem. With my son (and many with ASD), he needs lots of work on the

left side (for language) - but every time we try to train there, his anxiety

goes through the roof.

Most recently, we trained for OCD, and it helped, but his anxiety went way up.

So, now we are training to decrease anxiety and will add in a minute or two for

OCD in a few months. He is very sensitive.

Anyway, I would never do it without guidance - just like I would never put my

son on a new med without guidance. The side effects have always been

reversible.

nne

>

>

> Are there safety concerns / any serious side effects , what are they?

>

>

>

>

[Guest guest]

Hi,

I am curious... What is Dr. Goldberg's opinion on the Neurofeedback therapy?

Thanks,

JR

From: rosanne_achin@...

Date: Tue, 12 May 2009 12:24:57 +0000

Subject: Re: Neurofeedback- Has anyone tried this?

Whenever my son starts a new med, we look for side effects. Maybe its the wrong

med or the wrong dose. Same goes for neurofeedback.

It can be a great help, but it can also cause side effects. For example, if an

area of the child's brain has too much slow activity, and you slow it more,

that's a problem. With my son (and many with ASD), he needs lots of work on the

left side (for language) - but every time we try to train there, his anxiety

goes through the roof.

Most recently, we trained for OCD, and it helped, but his anxiety went way up.

So, now we are training to decrease anxiety and will add in a minute or two for

OCD in a few months. He is very sensitive.

Anyway, I would never do it without guidance - just like I would never put my

son on a new med without guidance. The side effects have always been reversible.

nne

>

>

> Are there safety concerns / any serious side effects , what are they?

>

>

>

>

[Guest guest]

Hi,

Do you or somebody that you know is using playattention?

Rocio

From: coll64 <irescharter (DOT) net>

Subject: Neurofeedback- Has anyone tried this?

groups (DOT) com

Date: Saturday, March 21, 2009, 8:18 AM

I'm looking into neurofeedback therapy for my 3.5 yr old autistic son. Has

anyone done this before? What should I look for when researching this? Comments

and suggestions would be appreciated.

Thank you

Colleen

[Guest guest]

This is one of the reasons I would never do neurofeedback without it being

guided by a QEEG map. The Q shows exactly whether the waves are too fast

or too slow and which area's aren't working together efficiently.

Gaylen

In a message dated 5/12/2009 7:25:50 A.M. Central Daylight Time,

rosanne_achin@... writes:

<<It can be a great help, but it can also cause side effects. For example,

if an area of the child's brain has too much slow activity, and you slow

it more, that's a problem. With my son (and many with ASD), he needs lots of

work on the left side (for language) - but every time we try to train

there, his anxiety goes through the roof.

Most recently, we trained for OCD, and it helped, but his anxiety went way

up. So, now we are training to decrease anxiety and will add in a minute

or two for OCD in a few months. He is very sensitive. >>

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[Guest guest]

I agree - we always use qEEG as a guide. My son is so sensitive that he really

can't train on the left or much frontally without increases in anxiety (although

the q shows that he does need it). It's complicated stuff, even with a q. My

point is just that I wouldn't do it without a good doctor to oversee it.

>

>

> This is one of the reasons I would never do neurofeedback without it being

> guided by a QEEG map. The Q shows exactly whether the waves are too fast

> or too slow and which area's aren't working together efficiently.

> Gaylen

>

> In a message dated 5/12/2009 7:25:50 A.M. Central Daylight Time,

> rosanne_achin@... writes:

>

> <<It can be a great help, but it can also cause side effects. For example,

> if an area of the child's brain has too much slow activity, and you slow

> it more, that's a problem. With my son (and many with ASD), he needs lots of

> work on the left side (for language) - but every time we try to train

> there, his anxiety goes through the roof.

>

> Most recently, we trained for OCD, and it helped, but his anxiety went way

> up. So, now we are training to decrease anxiety and will add in a minute

> or two for OCD in a few months. He is very sensitive. >>

>

>

>

>

> **************Dell Mini Netbooks: Great deals starting at $299 after

> instant savings!

>

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F%2Fad.doubleclick.net%2Fclk%3B214819460%3B36680227%3Bi)

>

>

>