Re: About to start Imunovir -- need help!

April 4, 2009

Hi,

Have you considered getting the Immunovir compounded into liquid by a

compounding pharmacy?

JR

From: donnaaron@...

Date: Sat, 4 Apr 2009 06:53:39 +0000

Subject: About to start Imunovir -- need help!

Okay, so our three-month supply of Imunovir arrived today. It is a capsule with

powder inside. During the week, my son is supposed to take 1/2 of the contents

of each capsule four times a day, and one whole capsule at bedtime; and 1/2 and

1 (two doses) on weekend days. He doesn't swallow pills yet because of his

over-reactive gag reflex (we've tried the pill-swallowing cup...worthless). I

normally administer meds for him in a tablespoon of non-dairy frozen dessert.

My problem is dosing during the week. That many doses will require having meds

administered at school. They will have to break open the capsule and give him

half of the powder, and they can't exactly give it to him in frozen dessert!

Plus, are they prepared to store the rest of the powder and give it to him the

next day? The thought of someone else administering meds to (and there's

no full-time nurse there; meds are usually dispensed by an aide) really makes me

nervous.

Those of you doing Imunovir with your kids...how do you deal with meds being

administered at school?

TIA,

Donna

April 4, 2009

Are you getting it out of canada? Ours is a tablet.....just curious

Sincerely Noel

From: thefamily007 <donnaaron@...>

Subject: About to start Imunovir -- need help!

Date: Friday, April 3, 2009, 11:53 PM

Okay, so our three-month supply of Imunovir arrived today. It is a capsule with

powder inside. During the week, my son is supposed to take 1/2 of the contents

of each capsule four times a day, and one whole capsule at bedtime; and 1/2 and

1 (two doses) on weekend days. He doesn't swallow pills yet because of his

over-reactive gag reflex (we've tried the pill-swallowing cup...worthless) . I

normally administer meds for him in a tablespoon of non-dairy frozen dessert.

My problem is dosing during the week. That many doses will require having meds

administered at school. They will have to break open the capsule and give him

half of the powder, and they can't exactly give it to him in frozen dessert!

Plus, are they prepared to store the rest of the powder and give it to him the

next day? The thought of someone else administering meds to (and there's

no full-time nurse there; meds are usually dispensed by an aide) really makes me

nervous.

Those of you doing Imunovir with your kids...how do you deal with meds being

administered at school?

TIA,

Donna

April 4, 2009

Thank you,

Sincerely Noel

From: thefamily007 <donnaaron@...>

Subject: Re: About to start Imunovir -- need help!

Date: Saturday, April 4, 2009, 9:35 AM

Yes, from Rivex Pharma; Dr. G is now sending everyone to them because they have

the best price.

Donna

>

> From: thefamily007 <donnaaron@. ..>

> Subject: About to start Imunovir -- need help!

> groups (DOT) com

> Date: Friday, April 3, 2009, 11:53 PM

>

> Okay, so our three-month supply of Imunovir arrived today. It is a capsule

with powder inside. During the week, my son is supposed to take 1/2 of the

contents of each capsule four times a day, and one whole capsule at bedtime; and

1/2 and 1 (two doses) on weekend days. He doesn't swallow pills yet because of

his over-reactive gag reflex (we've tried the pill-swallowing cup...worthless) .

I normally administer meds for him in a tablespoon of non-dairy frozen dessert.

>

> My problem is dosing during the week. That many doses will require having meds

administered at school. They will have to break open the capsule and give him

half of the powder, and they can't exactly give it to him in frozen dessert!

Plus, are they prepared to store the rest of the powder and give it to him the

next day? The thought of someone else administering meds to (and there's

no full-time nurse there; meds are usually dispensed by an aide) really makes me

nervous.

>

> Those of you doing Imunovir with your kids...how do you deal with meds being

administered at school?

>

> TIA,

>

> Donna

>

April 4, 2009

Oops, my mistake! Blame it on my terrible eyesight -- they are caplets

(tablets shaped like capsules).

Still -- I don't know how I'm going to work out the issue with having it

administered at school.

Donna

> >

> > From: thefamily007 <donnaaron@ ..>

> > Subject: About to start Imunovir -- need help!

> > groups (DOT) com

> > Date: Friday, April 3, 2009, 11:53 PM

> >

> > Okay, so our three-month supply of Imunovir arrived today. It is a capsule

with powder inside. During the week, my son is supposed to take 1/2 of the

contents of each capsule four times a day, and one whole capsule at bedtime; and

1/2 and 1 (two doses) on weekend days. He doesn't swallow pills yet because of

his over-reactive gag reflex (we've tried the pill-swallowing cup...worthless) .

I normally administer meds for him in a tablespoon of non-dairy frozen dessert.

> >

> > My problem is dosing during the week. That many doses will require having

meds administered at school. They will have to break open the capsule and give

him half of the powder, and they can't exactly give it to him in frozen dessert!

Plus, are they prepared to store the rest of the powder and give it to him the

next day? The thought of someone else administering meds to (and there's

no full-time nurse there; meds are usually dispensed by an aide) really makes me

nervous.

> >

> > Those of you doing Imunovir with your kids...how do you deal with meds being

administered at school?

> >

> > TIA,

> >

> > Donna

> >

April 4, 2009

How much is it through them?

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Apr 4, 2009, at 9:35 AM, thefamily007 wrote:

>

> Yes, from Rivex Pharma; Dr. G is now sending everyone to them

> because they have the best price.

>

> Donna

>

>>

>> From: thefamily007 <donnaaron@...>

>> Subject: About to start Imunovir -- need help!

>>

>> Date: Friday, April 3, 2009, 11:53 PM

>>

>> Okay, so our three-month supply of Imunovir arrived today. It is a

>> capsule with powder inside. During the week, my son is supposed to

>> take 1/2 of the contents of each capsule four times a day, and one

>> whole capsule at bedtime; and 1/2 and 1 (two doses) on weekend

>> days. He doesn't swallow pills yet because of his over-reactive

>> gag reflex (we've tried the pill-swallowing cup...worthless) . I

>> normally administer meds for him in a tablespoon of non-dairy

>> frozen dessert.

>>

>> My problem is dosing during the week. That many doses will require

>> having meds administered at school. They will have to break open

>> the capsule and give him half of the powder, and they can't

>> exactly give it to him in frozen dessert! Plus, are they prepared

>> to store the rest of the powder and give it to him the next day?

>> The thought of someone else administering meds to (and

>> there's no full-time nurse there; meds are usually dispensed by an

>> aide) really makes me nervous.

>>

>> Those of you doing Imunovir with your kids...how do you deal with

>> meds being administered at school?

>>

>> TIA,

>>

>> Donna

>>

April 5, 2009

Hi Cheryl,

With shipping and handling, it was $260.00 (US) for 300 tablets -- a three

months' supply.

Donna

>

> How much is it through them?

>

> Cheryl

> ~ http://www.gryffins-tail.blogspot.com ~

>

> On Apr 4, 2009, at 9:35 AM, thefamily007 wrote:

>

> >

> > Yes, from Rivex Pharma; Dr. G is now sending everyone to them

> > because they have the best price.

> >

> > Donna

> >

> >>

> >> From: thefamily007 <donnaaron@>

> >> Subject: About to start Imunovir -- need help!

> >>

> >> Date: Friday, April 3, 2009, 11:53 PM

> >>

> >> Okay, so our three-month supply of Imunovir arrived today. It is a

> >> capsule with powder inside. During the week, my son is supposed to

> >> take 1/2 of the contents of each capsule four times a day, and one

> >> whole capsule at bedtime; and 1/2 and 1 (two doses) on weekend

> >> days. He doesn't swallow pills yet because of his over-reactive

> >> gag reflex (we've tried the pill-swallowing cup...worthless) . I

> >> normally administer meds for him in a tablespoon of non-dairy

> >> frozen dessert.

> >>

> >> My problem is dosing during the week. That many doses will require

> >> having meds administered at school. They will have to break open

> >> the capsule and give him half of the powder, and they can't

> >> exactly give it to him in frozen dessert! Plus, are they prepared

> >> to store the rest of the powder and give it to him the next day?

> >> The thought of someone else administering meds to (and

> >> there's no full-time nurse there; meds are usually dispensed by an

> >> aide) really makes me nervous.

> >>

> >> Those of you doing Imunovir with your kids...how do you deal with

> >> meds being administered at school?

> >>

> >> TIA,

> >>

> >> Donna

> >>

April 5, 2009

Rivex Pharma is the Newport Pharmaceuticals (Immunovir manufacturer in

Dublin) official distributor in Canada and were recommended to us by

Newport's General Manager a couple of months ago. Newport used to ship

directly, however due to new European Community regulations, drug

manufacturers in Europe are not allowed to supply directly to consumers in

efforts to stop the drug counterfeiting trade.

Rivex are very efficient - takes less than 5-7 days to send it by Express

Mail. Cost is $100CN for 100 x 500mg tablets plus $30 CN shipping. Maximum

order is 3 months worth with a supervising Doctors prescription and cover

letter. Costs us $330CN or $270US for three months..a lot less I believe

than through the on-line pharmacies.

Dr Golberg's office has all the pro-forma paperwork need, and fax the

prescriptions to Rivex.

R

_____

From: [mailto: ] On Behalf Of

thefamily007

Sent: Saturday, April 04, 2009 9:36 AM

Subject: Re: About to start Imunovir -- need help!

Yes, from Rivex Pharma; Dr. G is now sending everyone to them because they

have the best price.

Donna

>

> From: thefamily007 <donnaaron@...>

> Subject: About to start Imunovir -- need help!

> groups (DOT) <mailto:%40> com

> Date: Friday, April 3, 2009, 11:53 PM

>

> Okay, so our three-month supply of Imunovir arrived today. It is a capsule

with powder inside. During the week, my son is supposed to take 1/2 of the

contents of each capsule four times a day, and one whole capsule at bedtime;

and 1/2 and 1 (two doses) on weekend days. He doesn't swallow pills yet

because of his over-reactive gag reflex (we've tried the pill-swallowing

cup...worthless) . I normally administer meds for him in a tablespoon of

non-dairy frozen dessert.

>

> My problem is dosing during the week. That many doses will require having

meds administered at school. They will have to break open the capsule and

give him half of the powder, and they can't exactly give it to him in frozen

dessert! Plus, are they prepared to store the rest of the powder and give it

to him the next day? The thought of someone else administering meds to

(and there's no full-time nurse there; meds are usually dispensed by an

aide) really makes me nervous.

>

> Those of you doing Imunovir with your kids...how do you deal with meds

being administered at school?

>

> TIA,

>

> Donna

>

April 5, 2009

Wow, I guess they finally found a place with a decent price! I think

that's a much better price than $300/month! Let us know how it goes.

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Apr 4, 2009, at 11:23 PM, thefamily007 wrote:

> Hi Cheryl,

>

> With shipping and handling, it was $260.00 (US) for 300 tablets --

> a three months' supply.

>

> Donna

>

>>

>> How much is it through them?

>>

>> Cheryl

>> ~ http://www.gryffins-tail.blogspot.com ~

>>

>> On Apr 4, 2009, at 9:35 AM, thefamily007 wrote:

>>

>>>

>>> Yes, from Rivex Pharma; Dr. G is now sending everyone to them

>>> because they have the best price.

>>>

>>> Donna

>>>

>>>>

>>>> From: thefamily007 <donnaaron@>

>>>> Subject: About to start Imunovir -- need help!

>>>>

>>>> Date: Friday, April 3, 2009, 11:53 PM

>>>>

>>>> Okay, so our three-month supply of Imunovir arrived today. It is a

>>>> capsule with powder inside. During the week, my son is supposed to

>>>> take 1/2 of the contents of each capsule four times a day, and one

>>>> whole capsule at bedtime; and 1/2 and 1 (two doses) on weekend

>>>> days. He doesn't swallow pills yet because of his over-reactive

>>>> gag reflex (we've tried the pill-swallowing cup...worthless) . I

>>>> normally administer meds for him in a tablespoon of non-dairy

>>>> frozen dessert.

>>>>

>>>> My problem is dosing during the week. That many doses will require

>>>> having meds administered at school. They will have to break open

>>>> the capsule and give him half of the powder, and they can't

>>>> exactly give it to him in frozen dessert! Plus, are they prepared

>>>> to store the rest of the powder and give it to him the next day?

>>>> The thought of someone else administering meds to (and

>>>> there's no full-time nurse there; meds are usually dispensed by an

>>>> aide) really makes me nervous.

>>>>

>>>> Those of you doing Imunovir with your kids...how do you deal with

>>>> meds being administered at school?

>>>>

>>>> TIA,

>>>>

>>>> Donna

>>>>

April 5, 2009

A compounding pharmacy would be great, if I could find one locally. I live in

Palmdale. Any suggestions, listmates?

Donna

>

> Hi,

>

> Have you considered getting the Immunovir compounded into liquid by a

compounding pharmacy?

>

> JR

>

> From: donnaaron@...

> Date: Sat, 4 Apr 2009 06:53:39 +0000

> Subject: About to start Imunovir -- need help!

>

> Okay, so our three-month supply of Imunovir arrived today. It is a capsule

with powder inside. During the week, my son is supposed to take 1/2 of the

contents of each capsule four times a day, and one whole capsule at bedtime; and

1/2 and 1 (two doses) on weekend days. He doesn't swallow pills yet because of

his over-reactive gag reflex (we've tried the pill-swallowing cup...worthless).

I normally administer meds for him in a tablespoon of non-dairy frozen dessert.

>

> My problem is dosing during the week. That many doses will require having meds

administered at school. They will have to break open the capsule and give him

half of the powder, and they can't exactly give it to him in frozen dessert!

Plus, are they prepared to store the rest of the powder and give it to him the

next day? The thought of someone else administering meds to (and there's

no full-time nurse there; meds are usually dispensed by an aide) really makes me

nervous.

>

> Those of you doing Imunovir with your kids...how do you deal with meds being

administered at school?

>

> TIA,

>

> Donna

>

April 6, 2009

Hey Donna,

Burns Pharmacy on Lancaster Bl. is a compounding pharmacy. I use to get

progesterone compounded by them when I was pregnant.

All the best,

Robyn

p.s. Sorry the pill cup didn't work. Did you use Oraflo? I used it to teach both

Noah and Elijah with great success. Elijah has a gag reflex but only for

vegetables. Just goes to show you how different they all are.

> From: thefamily007 <donnaaron@...>

> Subject: Re: About to start Imunovir -- need help!

>

> Date: Sunday, April 5, 2009, 10:24 AM

> A compounding pharmacy would be great, if I could find one

> locally. I live in Palmdale. Any suggestions, listmates?

>

> Donna

>

> >

> > Hi,

> >

> > Have you considered getting the Immunovir compounded

> into liquid by a compounding pharmacy?

> >

> > JR

> >

> > From: donnaaron@...

> > Date: Sat, 4 Apr 2009 06:53:39 +0000

> > Subject: About to start Imunovir -- need help!

> >

> > Okay, so our three-month supply of Imunovir arrived

> today. It is a capsule with powder inside. During the week,

> my son is supposed to take 1/2 of the contents of each

> capsule four times a day, and one whole capsule at bedtime;

> and 1/2 and 1 (two doses) on weekend days. He doesn't

> swallow pills yet because of his over-reactive gag reflex

> (we've tried the pill-swallowing cup...worthless). I

> normally administer meds for him in a tablespoon of

> non-dairy frozen dessert.

> >

> > My problem is dosing during the week. That many doses

> will require having meds administered at school. They will

> have to break open the capsule and give him half of the

> powder, and they can't exactly give it to him in frozen

> dessert! Plus, are they prepared to store the rest of the

> powder and give it to him the next day? The thought of

> someone else administering meds to (and there's no

> full-time nurse there; meds are usually dispensed by an

> aide) really makes me nervous.

> >

> > Those of you doing Imunovir with your kids...how do

> you deal with meds being administered at school?

> >

> > TIA,

> >

> > Donna

> >

April 6, 2009

That's great news. Elijah has low NK cells; kind of wondering if we're going to

have to add immunovir at some point.

Robyn

> >>

> >>>

> >>> Yes, from Rivex Pharma; Dr. G is now sending

> everyone to them

> >>> because they have the best price.

> >>>

> >>> Donna

> >>>

> >>>>

> >>>> From: thefamily007 <donnaaron@>

> >>>> Subject: About to start Imunovir --

> need help!

> >>>>

> >>>> Date: Friday, April 3, 2009, 11:53 PM

> >>>>

> >>>> Okay, so our three-month supply of

> Imunovir arrived today. It is a

> >>>> capsule with powder inside. During the

> week, my son is supposed to

> >>>> take 1/2 of the contents of each capsule

> four times a day, and one

> >>>> whole capsule at bedtime; and 1/2 and 1

> (two doses) on weekend

> >>>> days. He doesn't swallow pills yet

> because of his over-reactive

> >>>> gag reflex (we've tried the

> pill-swallowing cup...worthless) . I

> >>>> normally administer meds for him in a

> tablespoon of non-dairy

> >>>> frozen dessert.

> >>>>

> >>>> My problem is dosing during the week. That

> many doses will require

> >>>> having meds administered at school. They

> will have to break open

> >>>> the capsule and give him half of the

> powder, and they can't

> >>>> exactly give it to him in frozen dessert!

> Plus, are they prepared

> >>>> to store the rest of the powder and give

> it to him the next day?

> >>>> The thought of someone else administering

> meds to (and

> >>>> there's no full-time nurse there; meds

> are usually dispensed by an

> >>>> aide) really makes me nervous.

> >>>>

> >>>> Those of you doing Imunovir with your

> kids...how do you deal with

> >>>> meds being administered at school?

> >>>>

> >>>> TIA,

> >>>>

> >>>> Donna

> >>>>

> >>>> [Non-text portions of this message have

> been removed]

> >>>>

> >>>

> >>> ------------------------------------

> >>>

> >>> Responsibility for the content of this message

> lies strictly with

> >>> the original author(s), and is not necessarily

> endorsed by or the

> >>> opinion of the Research Institute, the

> Parent Coalition,

> >>> or the list moderator(s).

> >>>

April 6, 2009

Hey, Robyn, thanks for the tip on the pharmacy!

Yes, we used the Oraflo cup. The pill would just get stuck right there in the

little tube -- it would dissolve, and also, probably because 's tongue

would stop the darn thing from flowing into his mouth! I'm impressed that you

were able to get it to work!

Donna

..

> > >

> > > Hi,

> > >

> > > Have you considered getting the Immunovir compounded

> > into liquid by a compounding pharmacy?

> > >

> > > JR

> > >

> > > From: donnaaron@

> > > Date: Sat, 4 Apr 2009 06:53:39 +0000

> > > Subject: About to start Imunovir -- need help!

> > >

> > > Okay, so our three-month supply of Imunovir arrived

> > today. It is a capsule with powder inside. During the week,

> > my son is supposed to take 1/2 of the contents of each

> > capsule four times a day, and one whole capsule at bedtime;

> > and 1/2 and 1 (two doses) on weekend days. He doesn't

> > swallow pills yet because of his over-reactive gag reflex

> > (we've tried the pill-swallowing cup...worthless). I

> > normally administer meds for him in a tablespoon of

> > non-dairy frozen dessert.

> > >

> > > My problem is dosing during the week. That many doses

> > will require having meds administered at school. They will

> > have to break open the capsule and give him half of the

> > powder, and they can't exactly give it to him in frozen

> > dessert! Plus, are they prepared to store the rest of the

> > powder and give it to him the next day? The thought of

> > someone else administering meds to (and there's no

> > full-time nurse there; meds are usually dispensed by an

> > aide) really makes me nervous.

> > >

> > > Those of you doing Imunovir with your kids...how do

> > you deal with meds being administered at school?

> > >

> > > TIA,

> > >

> > > Donna

> > >

April 6, 2009

's been swallowing pills since he was four. He just did it by himself. I

bought the Oraflo when teaching Noah to swallow pills. He took quite a bit of

work and Elijah learned after the second or third try. Once they learned,

though, none of them wanted to use the pill cup any more.

> From: thefamily007 <donnaaron@...>

> Subject: Re: About to start Imunovir -- need help!

>

> Date: Monday, April 6, 2009, 12:47 PM

> Hey, Robyn, thanks for the tip on the pharmacy!

>

> Yes, we used the Oraflo cup. The pill would just get stuck

> right there in the little tube -- it would dissolve, and

> also, probably because 's tongue would stop the

> darn thing from flowing into his mouth! I'm impressed

> that you were able to get it to work!

>

> Donna

>

> .

> > > >

> > > > Hi,

> > > >

> > > > Have you considered getting the Immunovir

> compounded

> > > into liquid by a compounding pharmacy?

> > > >

> > > > JR

> > > >

> > > > From: donnaaron@

> > > > Date: Sat, 4 Apr 2009 06:53:39 +0000

> > > > Subject: About to start Imunovir --

> need help!

> > > >

> > > > Okay, so our three-month supply of Imunovir

> arrived

> > > today. It is a capsule with powder inside. During

> the week,

> > > my son is supposed to take 1/2 of the contents of

> each

> > > capsule four times a day, and one whole capsule

> at bedtime;

> > > and 1/2 and 1 (two doses) on weekend days. He

> doesn't

> > > swallow pills yet because of his over-reactive

> gag reflex

> > > (we've tried the pill-swallowing

> cup...worthless). I

> > > normally administer meds for him in a tablespoon

> of

> > > non-dairy frozen dessert.

> > > >

> > > > My problem is dosing during the week. That

> many doses

> > > will require having meds administered at school.

> They will

> > > have to break open the capsule and give him half

> of the

> > > powder, and they can't exactly give it to him

> in frozen

> > > dessert! Plus, are they prepared to store the

> rest of the

> > > powder and give it to him the next day? The

> thought of

> > > someone else administering meds to (and

> there's no

> > > full-time nurse there; meds are usually dispensed

> by an

> > > aide) really makes me nervous.

> > > >

> > > > Those of you doing Imunovir with your

> kids...how do

> > > you deal with meds being administered at school?

> > > >

> > > > TIA,

> > > >

> > > > Donna

> > > >

> > > > [Non-text portions of this message have been

> removed]

> > > >

> >

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