Does everyone here still believe its Autism?

[Guest guest]

Hi all. Newbie over here.

Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

then and I still do now. Some may say denial, but I believe of a different

sort. My son said his first words at 9 months, " quack, quack " . Next came; mom,

car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good girl " , to

our dog. Our Ped, commented on this milestone, saying he was going to talk

early. Then new words started to decreace, old words stop, tantrums, tummy

aches, sensory, etc. Going back through our med records and journals, I clearly

see this was after recieveing proquad by Merck MMRV, worse than the MMR alone.

Anyway, I see many people use the A word to describe there little ones here on

as well as DAN sites, and I am starting to wondering if anyone else rejects

this misdiagnosis.

When I first read Dr. G's words on our kids being mislabeled, I cried, as I felt

I finally found someone who got it, and can help.

[Guest guest]

What I usually tell people is that my son has " autistic behaviors " because of a

NeuroImmune Disorder. He does not have classic autism, which most children do

not have... that's why the system had to come up with " PDD-NOS " to label all

these kids with.

Translation = we don't know what it is or what causes it, but there are a few

things that over-lap autism.

-

______________________________________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

Does everyone here still believe its Autism?

Hi all. Newbie over here.

Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

then and I still do now. Some may say denial, but I believe of a different sort.

My son said his first words at 9 months, " quack, quack " . Next came; mom, car,

ball, dog, hi, etc and by 11 months his first 2 word combo, " good girl " , to our

dog. Our Ped, commented on this milestone, saying he was going to talk early.

Then new words started to decreace, old words stop, tantrums, tummy aches,

sensory, etc. Going back through our med records and journals, I clearly see

this was after recieveing proquad by Merck MMRV, worse than the MMR alone.

Anyway, I see many people use the A word to describe there little ones here on

as well as DAN sites, and I am starting to wondering if anyone else rejects

this misdiagnosis.

When I first read Dr. G's words on our kids being mislabeled, I cried, as I

felt I finally found someone who got it, and can help.

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[Guest guest]

I don't see why a label should make a difference at all. As long as the

child in question gets the help he/.she needs, I don't care what the label

is.

From: [mailto: ] On Behalf Of

robindriver@...

Sent: Tuesday, March 24, 2009 5:44 PM

Subject: Does everyone here still believe its Autism?

Hi all. Newbie over here.

Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

then and I still do now. Some may say denial, but I believe of a different

sort. My son said his first words at 9 months, " quack, quack " . Next came;

mom, car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good

girl " , to our dog. Our Ped, commented on this milestone, saying he was going

to talk early. Then new words started to decreace, old words stop, tantrums,

tummy aches, sensory, etc. Going back through our med records and journals,

I clearly see this was after recieveing proquad by Merck MMRV, worse than

the MMR alone.

Anyway, I see many people use the A word to describe there little ones here

on as well as DAN sites, and I am starting to wondering if anyone else

rejects this misdiagnosis.

When I first read Dr. G's words on our kids being mislabeled, I cried, as I

felt I finally found someone who got it, and can help.

[Guest guest]

I think everyone rejects this diagnosis but for better or worse, it's

the diagnosis we have and that people understand. Trying to explain

to people that it's " damage to the body through different

immunological, metabolic and neurological pathways caused by idiots

of the world that think toxicity is a relative term " is a bit of a

hard sentence for people to understand or swallow. Especially when

the rest of the medical community rejects any of it.

I don't think any of us that believe in biomedical treatments would

ever actually say they believe that autism is even a valid

diagnosis. But unfortunately, it's what we've got. We aren't going

to change people's thinking by not using the word " autism " , we need

to change people's *belief's* about autism. The definition of autism

is what is going to change in the future (hopefully). Autism itself

isn't likely ever going to be renamed.

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Mar 23, 2009, at 11:43 PM, robindriver@... wrote:

> Hi all. Newbie over here.

>

> Son diagnosed July 2008, mild Autism. Age 3. I fully rejected

> this diagnosis then and I still do now. Some may say denial, but I

> believe of a different sort. My son said his first words at 9

> months, " quack, quack " . Next came; mom, car, ball, dog, hi, etc and

> by 11 months his first 2 word combo, " good girl " , to our dog. Our

> Ped, commented on this milestone, saying he was going to talk

> early. Then new words started to decreace, old words stop,

> tantrums, tummy aches, sensory, etc. Going back through our med

> records and journals, I clearly see this was after recieveing

> proquad by Merck MMRV, worse than the MMR alone.

>

> Anyway, I see many people use the A word to describe there little

> ones here on as well as DAN sites, and I am starting to

> wondering if anyone else rejects this misdiagnosis.

>

> When I first read Dr. G's words on our kids being mislabeled, I

> cried, as I felt I finally found someone who got it, and can help.

>

>

>

> ------------------------------------

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute, the Parent Coalition,

> or the list moderator(s).

>

[Guest guest]

I tell NO ONE (except SD, RC and professionals) my son has the A word. I say he

has immune sysyem issues which made him very sick and affected his hearing

during crucial developmental years. It's still a mouthful but it is something

people can easily understand about my son and their difficulty communicating

with him. If they are interested in more, I talk about how I watch our diets

very carefully and how I use only natural cleaning products, etc. The A word is

very misunderstood and I think there is a lot of fear connected with it, fear

that does not need to be associated with my son.

Kristy

Sent from my Verizon Wireless BlackBerry

Re: Does everyone here still believe its Autism?

I think everyone rejects this diagnosis but for better or worse, it's

the diagnosis we have and that people understand. Trying to explain

to people that it's " damage to the body through different

immunological, metabolic and neurological pathways caused by idiots

of the world that think toxicity is a relative term " is a bit of a

hard sentence for people to understand or swallow. Especially when

the rest of the medical community rejects any of it.

I don't think any of us that believe in biomedical treatments would

ever actually say they believe that autism is even a valid

diagnosis. But unfortunately, it's what we've got. We aren't going

to change people's thinking by not using the word " autism " , we need

to change people's *belief's* about autism. The definition of autism

is what is going to change in the future (hopefully). Autism itself

isn't likely ever going to be renamed.

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Mar 23, 2009, at 11:43 PM, robindriver@... wrote:

> Hi all. Newbie over here.

>

> Son diagnosed July 2008, mild Autism. Age 3. I fully rejected

> this diagnosis then and I still do now. Some may say denial, but I

> believe of a different sort. My son said his first words at 9

> months, " quack, quack " . Next came; mom, car, ball, dog, hi, etc and

> by 11 months his first 2 word combo, " good girl " , to our dog. Our

> Ped, commented on this milestone, saying he was going to talk

> early. Then new words started to decreace, old words stop,

> tantrums, tummy aches, sensory, etc. Going back through our med

> records and journals, I clearly see this was after recieveing

> proquad by Merck MMRV, worse than the MMR alone.

>

> Anyway, I see many people use the A word to describe there little

> ones here on as well as DAN sites, and I am starting to

> wondering if anyone else rejects this misdiagnosis.

>

> When I first read Dr. G's words on our kids being mislabeled, I

> cried, as I felt I finally found someone who got it, and can help.

>

>

>

> ------------------------------------

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute, the Parent Coalition,

> or the list moderator(s).

>

[Guest guest]

Very well put....

Thank you

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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[Guest guest]

When I attempted to change the " Autism paradigm " with the school district -- by

illustrating for them that my son should be seen as someone who suffers from a

medical illness that can be reversed and recovered from, not a permanent,

hardwired disorder -- I was told that he would no longer qualify for special

education services! I had to point out that the eligibility language says

" Autistic-like behaviors, " not " Autism. "

Still, the point is, while " autism " is a hopelessly out-of-date and inaccurate

way to describe what ails our kids, it is still currently the *only* word that

will open any doors for in the educational system and in the community at large.

So far " Neuro-immune Dysfunction " , , and detailed explanations mostly get a

lot of uncomprehending stares (and probably a lot of rolling eyeballs behind my

back). I've actually been thinking for some time that maybe a term like

" immune-mediated autism syndrome, " with the A-word still present in the name,

but still differentiating it from Kanner's classic autism -- would make easier

for us. It's just too difficult to get people to just change to a completely

different way of thinking without some sort of segue from " old " to " new. "

JMHO,

Donna

>

> > Hi all. Newbie over here.

> >

> > Son diagnosed July 2008, mild Autism. Age 3. I fully rejected

> > this diagnosis then and I still do now. Some may say denial, but I

> > believe of a different sort. My son said his first words at 9

> > months, " quack, quack " . Next came; mom, car, ball, dog, hi, etc and

> > by 11 months his first 2 word combo, " good girl " , to our dog. Our

> > Ped, commented on this milestone, saying he was going to talk

> > early. Then new words started to decreace, old words stop,

> > tantrums, tummy aches, sensory, etc. Going back through our med

> > records and journals, I clearly see this was after recieveing

> > proquad by Merck MMRV, worse than the MMR alone.

> >

> > Anyway, I see many people use the A word to describe there little

> > ones here on as well as DAN sites, and I am starting to

> > wondering if anyone else rejects this misdiagnosis.

> >

> > When I first read Dr. G's words on our kids being mislabeled, I

> > cried, as I felt I finally found someone who got it, and can help.

> >

> >

> >

> > ------------------------------------

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute, the Parent Coalition,

> > or the list moderator(s).

> >

[Guest guest]

I totally agree, Donna.

Robyn

> From: thefamily007 <donnaaron@...>

> Subject: Re: Does everyone here still believe its Autism?

>

> Date: Monday, April 6, 2009, 12:39 AM

> When I attempted to change the " Autism paradigm "

> with the school district -- by illustrating for them that my

> son should be seen as someone who suffers from a medical

> illness that can be reversed and recovered from, not a

> permanent, hardwired disorder -- I was told that he would no

> longer qualify for special education services! I had to

> point out that the eligibility language says

> " Autistic-like behaviors, " not " Autism. "

>

> Still, the point is, while " autism " is a

> hopelessly out-of-date and inaccurate way to describe what

> ails our kids, it is still currently the *only* word that

> will open any doors for in the educational system and in the

> community at large. So far " Neuro-immune

> Dysfunction " , , and detailed explanations mostly

> get a lot of uncomprehending stares (and probably a lot of

> rolling eyeballs behind my back). I've actually been

> thinking for some time that maybe a term like

> " immune-mediated autism syndrome, " with the A-word

> still present in the name, but still differentiating it from

> Kanner's classic autism -- would make easier for us.

> It's just too difficult to get people to just change to

> a completely different way of thinking without some sort of

> segue from " old " to " new. "

>

> JMHO,

>

> Donna

>

>

>

> >

> > > Hi all. Newbie over here.

> > >

> > > Son diagnosed July 2008, mild Autism. Age 3. I

> fully rejected

> > > this diagnosis then and I still do now. Some may

> say denial, but I

> > > believe of a different sort. My son said his

> first words at 9

> > > months, " quack, quack " . Next came; mom,

> car, ball, dog, hi, etc and

> > > by 11 months his first 2 word combo, " good

> girl " , to our dog. Our

> > > Ped, commented on this milestone, saying he was

> going to talk

> > > early. Then new words started to decreace, old

> words stop,

> > > tantrums, tummy aches, sensory, etc. Going back

> through our med

> > > records and journals, I clearly see this was

> after recieveing

> > > proquad by Merck MMRV, worse than the MMR alone.

> > >

> > > Anyway, I see many people use the A word to

> describe there little

> > > ones here on as well as DAN sites, and I am

> starting to

> > > wondering if anyone else rejects this

> misdiagnosis.

> > >

> > > When I first read Dr. G's words on our kids

> being mislabeled, I

> > > cried, as I felt I finally found someone who got

> it, and can help.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Responsibility for the content of this message

> lies strictly with

> > > the original author(s), and is not necessarily

> endorsed by or the

> > > opinion of the Research Institute, the

> Parent Coalition,

> > > or the list moderator(s).

> > >

[Guest guest]

Which is why I still use the A word with the SD, RC, etc.

Kristy

Sent from my Verizon Wireless BlackBerry

Re: Does everyone here still believe its Autism?

When I attempted to change the " Autism paradigm " with the school district -- by

illustrating for them that my son should be seen as someone who suffers from a

medical illness that can be reversed and recovered from, not a permanent,

hardwired disorder -- I was told that he would no longer qualify for special

education services! I had to point out that the eligibility language says

" Autistic-like behaviors, " not " Autism. "

Still, the point is, while " autism " is a hopelessly out-of-date and inaccurate

way to describe what ails our kids, it is still currently the *only* word that

will open any doors for in the educational system and in the community at large.

So far " Neuro-immune Dysfunction " , , and detailed explanations mostly get a

lot of uncomprehending stares (and probably a lot of rolling eyeballs behind my

back). I've actually been thinking for some time that maybe a term like

" immune-mediated autism syndrome, " with the A-word still present in the name,

but still differentiating it from Kanner's classic autism -- would make easier

for us. It's just too difficult to get people to just change to a completely

different way of thinking without some sort of segue from " old " to " new. "

JMHO,

Donna

>

> > Hi all. Newbie over here.

> >

> > Son diagnosed July 2008, mild Autism. Age 3. I fully rejected

> > this diagnosis then and I still do now. Some may say denial, but I

> > believe of a different sort. My son said his first words at 9

> > months, " quack, quack " . Next came; mom, car, ball, dog, hi, etc and

> > by 11 months his first 2 word combo, " good girl " , to our dog. Our

> > Ped, commented on this milestone, saying he was going to talk

> > early. Then new words started to decreace, old words stop,

> > tantrums, tummy aches, sensory, etc. Going back through our med

> > records and journals, I clearly see this was after recieveing

> > proquad by Merck MMRV, worse than the MMR alone.

> >

> > Anyway, I see many people use the A word to describe there little

> > ones here on as well as DAN sites, and I am starting to

> > wondering if anyone else rejects this misdiagnosis.

> >

> > When I first read Dr. G's words on our kids being mislabeled, I

> > cried, as I felt I finally found someone who got it, and can help.

> >

> >

> >

> > ------------------------------------

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute, the Parent Coalition,

> > or the list moderator(s).

> >

[Guest guest]

I believe it is a toxic vaccine induced brain-injury...

Love, Gabby. :0)

http://stemcellforautism.blogspot.com/

 

" I know of nobody who is purely Autistic or purely neurotypical. Even God had

some Autistic moments, which is why the planets all spin. " ~ Jerry Newport

 

 

[Guest guest]

Ditto.

Cheryl

~ http://www.gryffins-tail.blogspot.com ~

On Apr 5, 2009, at 12:13 AM, A McCosh wrote:

>

>

> I don't see why a label should make a difference at all. As long as

> the

> child in question gets the help he/.she needs, I don't care what

> the label

> is.

>

> From: [mailto: ] On Behalf Of

> robindriver@...

> Sent: Tuesday, March 24, 2009 5:44 PM

>

> Subject: Does everyone here still believe its Autism?

>

> Hi all. Newbie over here.

>

> Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this

> diagnosis

> then and I still do now. Some may say denial, but I believe of a

> different

> sort. My son said his first words at 9 months, " quack, quack " . Next

> came;

> mom, car, ball, dog, hi, etc and by 11 months his first 2 word

> combo, " good

> girl " , to our dog. Our Ped, commented on this milestone, saying he

> was going

> to talk early. Then new words started to decreace, old words stop,

> tantrums,

> tummy aches, sensory, etc. Going back through our med records and

> journals,

> I clearly see this was after recieveing proquad by Merck MMRV,

> worse than

> the MMR alone.

>

> Anyway, I see many people use the A word to describe there little

> ones here

> on as well as DAN sites, and I am starting to wondering if

> anyone else

> rejects this misdiagnosis.

>

> When I first read Dr. G's words on our kids being mislabeled, I

> cried, as I

> felt I finally found someone who got it, and can help.

>

>

[Guest guest]

Do you know that the MMR vaccine is contraindicated for people with immune

deficiencies because the risks of encephalitis? That includes children with

recurrent infections. Have children with recurrent infections been tested for

immune deficiencies prior to the administration of the MMR vaccine? I don't

think so....

JR

From: nfbhometrainer@...

Date: Sun, 5 Apr 2009 17:13:36 +1000

Subject: RE: Does everyone here still believe its Autism?

I don't see why a label should make a difference at all. As long as the

child in question gets the help he/.she needs, I don't care what the label

is.

From: [mailto: ] On Behalf Of

robindriver@...

Sent: Tuesday, March 24, 2009 5:44 PM

Subject: Does everyone here still believe its Autism?

Hi all. Newbie over here.

Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

then and I still do now. Some may say denial, but I believe of a different

sort. My son said his first words at 9 months, " quack, quack " . Next came;

mom, car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good

girl " , to our dog. Our Ped, commented on this milestone, saying he was going

to talk early. Then new words started to decreace, old words stop, tantrums,

tummy aches, sensory, etc. Going back through our med records and journals,

I clearly see this was after recieveing proquad by Merck MMRV, worse than

the MMR alone.

Anyway, I see many people use the A word to describe there little ones here

on as well as DAN sites, and I am starting to wondering if anyone else

rejects this misdiagnosis.

When I first read Dr. G's words on our kids being mislabeled, I cried, as I

felt I finally found someone who got it, and can help.

[Guest guest]

The label is helpful if it targets and delivers appropriate intervention

both medically and educationally. However very often it implies limits to

some individuals who then have an excuse for their own failure to

appropriately respond!

In a message dated 02/05/2009 01:21:13 GMT Daylight Time,

cheryl.lowrance@... writes:

Ditto.

Cheryl

~ _http://www.gryffinshttp://www.gryfhtt_

(http://www.gryffins-tail.blogspot.com/) ~

On Apr 5, 2009, at 12:13 AM, A McCosh wrote:

>

>

> I don't see why a label should make a difference at all. As long as

> the

> child in question gets the help he/.she needs, I don't care what

> the label

> is.

>

> From: _@..._ (mailto: )

[mailto:_@..._ (mailto: ) ] On Behalf Of

> _robindriver@robindriverrob_ (mailto:robindriver@...)

> Sent: Tuesday, March 24, 2009 5:44 PM

> _@..._ (mailto: )

> Subject: Does everyone here still believe its Autism?

>

> Hi all. Newbie over here.

>

> Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this

> diagnosis

> then and I still do now. Some may say denial, but I believe of a

> different

> sort. My son said his first words at 9 months, " quack, quack " . Next

> came;

> mom, car, ball, dog, hi, etc and by 11 months his first 2 word

> combo, " good

> girl " , to our dog. Our Ped, commented on this milestone, saying he

> was going

> to talk early. Then new words started to decreace, old words stop,

> tantrums,

> tummy aches, sensory, etc. Going back through our med records and

> journals,

> I clearly see this was after recieveing proquad by Merck MMRV,

> worse than

> the MMR alone.

>

> Anyway, I see many people use the A word to describe there little

> ones here

> on as well as DAN sites, and I am starting to wondering if

> anyone else

> rejects this misdiagnosis.

>

> When I first read Dr. G's words on our kids being mislabeled, I

> cried, as I

> felt I finally found someone who got it, and can help.

>

> [Non-text portions of this message have been removed]

>

>

>

[Non-text portions of this message have been removed]

[Guest guest]

Hi all, i am the original poster of this question. I have tried to reply many

times, but it has not ever shown up. Thanks for all the great input, and

especially those who spoke up when a very " kind " person made some special

remarks to me! Thanks!

In case it does this time, I just wanted to say, that I have no problem with the

label, if it fit. For my son, it does not. Being misdiagnosed in any capacity

is a horrible diservice to the one mislabled.

Their needs to be a real medical evaluation and better ways to determine true

Autism. There is nothing wrong with true genetic Autism. They are beautiful and

have alot to share with the world. They are also not in pain like many of our

injured babies are. One is an injured being who's injuries minic some signs of

Autism. One is born this way, and with many traditional therapies, love, and

understanding, can have a very happy life.

It is not ok to mislabel and injury. Doing so will cause the parents not to

look into ways of making the child feel better, because they are told there's

nothing medically that they can do.

On very " kind " person on this board, said I was in denial about my son's Autism.

He was relating his story of his 19 yr old twins and assuming there story was

the same as my 3 year olds. Best wishes to he and his family, but its like

comparing apples and oranges. He said that I was doing a diservice by not

getting my son real therapy. I found this odd, as I never said I wasn't giving

traditional therapies. Isn't that basic? My son gets all the traditional

therpaies as well as some private. They have their place, but they will not get

ride of his measles titers being 5.64 or him having high hhv6 titers will they?

He has painful stools, mysterious fevers. he is also uber affectionate, social,

has huge imaginative play, has some language but chooses not to use much. When

he decides to speak it is always purposeful. I have both a younger and older

child so this helps me see that he developed normally, and then after he

recieved his MMRV, hep A, got sick.

I am not speaking for all of our kids, they each have their own story. But my

son is sick and mislabeling him delayed his medical care, as we were told there

was nothing medically to do.

If I get hit by a bus tommorow, and loose my cognitive. Will I be diagnosed as

Mentally retarted at 33 years old. No, because I had a injury that mimics the

look of MR, not true Mental retardation. This is how I see it.

Oh, and thanks JR for mentioning that people with immune deficiencies should not

recieve the MMR. I was just looking at the Physician's desk reference and

looking up Merck, Proquad (the one that injured my boy) and read the same thing.

As well as ones allergic to eggs, etc. In there own words they are saying who

should not recieve these multiple diseases and still are not testing to be safe.

Robin

- In , <jrodrig6605@...> wrote:

>

>

> Do you know that the MMR vaccine is contraindicated for people with immune

deficiencies because the risks of encephalitis? That includes children with

recurrent infections. Have children with recurrent infections been tested for

immune deficiencies prior to the administration of the MMR vaccine? I don't

think so....

>

>

>

> JR

>

>

>

>

> From: nfbhometrainer@...

> Date: Sun, 5 Apr 2009 17:13:36 +1000

> Subject: RE: Does everyone here still believe its Autism?

>

>

>

>

>

>

>

> I don't see why a label should make a difference at all. As long as the

> child in question gets the help he/.she needs, I don't care what the label

> is.

>

> From: [mailto: ] On Behalf Of

> robindriver@...

> Sent: Tuesday, March 24, 2009 5:44 PM

>

> Subject: Does everyone here still believe its Autism?

>

> Hi all. Newbie over here.

>

> Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

> then and I still do now. Some may say denial, but I believe of a different

> sort. My son said his first words at 9 months, " quack, quack " . Next came;

> mom, car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good

> girl " , to our dog. Our Ped, commented on this milestone, saying he was going

> to talk early. Then new words started to decreace, old words stop, tantrums,

> tummy aches, sensory, etc. Going back through our med records and journals,

> I clearly see this was after recieveing proquad by Merck MMRV, worse than

> the MMR alone.

>

> Anyway, I see many people use the A word to describe there little ones here

> on as well as DAN sites, and I am starting to wondering if anyone else

> rejects this misdiagnosis.

>

> When I first read Dr. G's words on our kids being mislabeled, I cried, as I

> felt I finally found someone who got it, and can help.

>

>

[Guest guest]

I had a conversation with Dr. Goldberg about this issue. He said that first we

need to concentrate in convincing the world that our children are medically ill.

I asked him, isn't it medical malpractice to give a child a medication for which

the label clearly indicates that the child shouldn't take it? He said " This is

a battle that we will never win if we concentrate in the vaccines " I told him

that in my son's case, based on IGG lab test that he has ordered that my son is

hypogammaglobulinemic meaning that he is low in IGG and that he has an acquired

immune deffiency disease which is a clear contraindication for the MMR vaccine

because it can cause encephalitis in these people. He agreed with me, but he

said again that we need to you the right semantics so we are listened to.

I called a medical malpractice lawyer just to hear what they had to say about my

son's case. The lawyer told me that because my son never had any recurrent

infections (ie. ear infections) and that he was a " healthy baby " that the

pediatrician didn't have to order any IGG lab tests before administering the MMR

vaccine and that the pediatrician followed the standard protocol of medical

care. In my son's case it was not a malpractice case. In the other hand I know

many, but many children with autism that they have recurrent infections, have

ear tubes, etc.... If the pediatricians don't order IGG lab test, IGG subclass

and immune panel lab tests prior to administering the MMR vaccine, would this be

breaking the standard protocol of care and could be considered malpractice? I

will let all you think about it..... Go to www.medicalmalpractice.com if you

are curious to hear what they have to say about your child's case.

Below is some information about the MMR vaccine and the manufacturer's drug

information facts about it. And by the way... encephalitis is inflammation in

the brain which all our children have.....

Thanks,

JR

Letter from the MMR Manufacturer to pediatricians about the MMR vaccine

https://www.merckvaccines.com/CustomerLetterPQD_0307.pdf

ProQuad should not be administered to certain individuals, including those with

any of the following: an immunodeficient condition.

http://www.merck.com/product/usa/pi_circulars/m/mmr_ii/mmr_ii_pi.pdf

MMR Vaccine CONTRAINDICATIONS

Primary and acquired immunodeficiency states, including patients who are

immunosuppressed in

association with AIDS or other clinical manifestations of infection with human

immunodeficiency

viruses;41-43 cellular immune deficiencies; and hypogammaglobulinemic and

dysgammaglobulinemic

states.

Encephalitis

http://www.merck.com/mmpe/sec16/ch217/ch217c.html

Encephalitis is inflammation of the parenchyma of the brain, resulting from

direct viral invasion or hypersensitivity initiated by a virus or another

foreign protein.

Encephalitis can occur as a secondary immunologic complication of certain viral

infections or vaccinations. Diagnosis requires CSF analysis and neuroimaging.

Treatment is supportive and, for certain causes, includes antiviral drugs.

http://www.cidpusa.org/IgG3deficiency.html

4.5 Indications for measuring IgG subclass levels

As already mentioned in the previous sections, several studies indicate that

(selective) IgG subclass deficiencies may be associated with disease. Specific

examples are: bronchiectasis and severe, recurrent stages of otitis media,

sinusitis, pneumonia and bronchitis. The possibility of an IgG subclass

deficiency should be considered in all children with recurrent infections and

chronic obstructive bronchitis. The association between IgG2 deficiency and

severe recurrent infections of the respiratory tract in young children, caused

by encapsulated bacteria, have led to an increasing demand for the determination

of IgG subclasses in sera from children. However, it should be kept in mind that

IgG subclass deficiencies in children may be transient. The levels of IgG2

increase relatively late in childhood. Thus, when low IgG2 levels are found in

children below the age of 2-3 years, it is advisable to monitor this level in

the course of time, since it may be due to a temporary maturation block.

Obviously, IgG subclass deficiencies may also occur in all patients at risk for

infections due to immunodeficiency, such as occurs e.g. in haematopoietic stem

cell transplantation.

In general, IgG subclass levels should be measured whenever the total IgG level

is decreased. However, and IgG subclass deficiency is not excluded by a normal

or even high total IgG concentration (62). Therefore, it is essential to measure

individual IgG subclass levels (107). A correct diagnosis is essential in

choosing the appropriate therapy (108). There are several specific disease

conditions in which measurement of IgG subclasses is recommended:

> >

> >

> > Do you know that the MMR vaccine is contraindicated for people with immune

deficiencies because the risks of encephalitis? That includes children with

recurrent infections. Have children with recurrent infections been tested for

immune deficiencies prior to the administration of the MMR vaccine? I don't

think so....

> >

> >

> >

> > JR

> >

> >

> >

> >

> > From: nfbhometrainer@

> > Date: Sun, 5 Apr 2009 17:13:36 +1000

> > Subject: RE: Does everyone here still believe its Autism?

> >

> >

> >

> >

> >

> >

> >

> > I don't see why a label should make a difference at all. As long as the

> > child in question gets the help he/.she needs, I don't care what the label

> > is.

> >

> > From: [mailto: ] On Behalf Of

> > robindriver@

> > Sent: Tuesday, March 24, 2009 5:44 PM

> >

> > Subject: Does everyone here still believe its Autism?

> >

> > Hi all. Newbie over here.

> >

> > Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

> > then and I still do now. Some may say denial, but I believe of a different

> > sort. My son said his first words at 9 months, " quack, quack " . Next came;

> > mom, car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good

> > girl " , to our dog. Our Ped, commented on this milestone, saying he was going

> > to talk early. Then new words started to decreace, old words stop, tantrums,

> > tummy aches, sensory, etc. Going back through our med records and journals,

> > I clearly see this was after recieveing proquad by Merck MMRV, worse than

> > the MMR alone.

> >

> > Anyway, I see many people use the A word to describe there little ones here

> > on as well as DAN sites, and I am starting to wondering if anyone else

> > rejects this misdiagnosis.

> >

> > When I first read Dr. G's words on our kids being mislabeled, I cried, as I

> > felt I finally found someone who got it, and can help.

> >

> >

[Guest guest]

Wow, great info JR!  I am all over it!  I have been thinking that the way " we "

have been going at this battle with the system, is the wrong way.  Not bringing

in cases to vaccine court saying " this caused autism " , but looking at what the

responsible party failed to do.  They failed to test our kids to see if they

could tolerate these many vaccines.  In their own words on the insert, it does

say certain ones should not recieve, yet they are not running these tests to

determine. 

I think going after them in this way makes sense.  I do also agree with that we

have to be careful with wording,  Like Goldberg said, " semantics " . 

Unfortunately the ones with the spot light on them, are not using the right

wording, and giving the nay sayers more cause to fluff us off. 

________________________________

From: <jrodrig6605@...>

Sent: Thursday, May 7, 2009 4:55:57 PM

Subject: Re: Does everyone here still believe its Autism?

I had a conversation with Dr. Goldberg about this issue. He said that first we

need to concentrate in convincing the world that our children are medically ill.

I asked him, isn't it medical malpractice to give a child a medication for which

the label clearly indicates that the child shouldn't take it? He said " This is a

battle that we will never win if we concentrate in the vaccines " I told him that

in my son's case, based on IGG lab test that he has ordered that my son is

hypogammaglobulinem ic meaning that he is low in IGG and that he has an acquired

immune deffiency disease which is a clear contraindication for the MMR vaccine

because it can cause encephalitis in these people. He agreed with me, but he

said again that we need to you the right semantics so we are listened to.

I called a medical malpractice lawyer just to hear what they had to say about my

son's case. The lawyer told me that because my son never had any recurrent

infections (ie. ear infections) and that he was a " healthy baby " that the

pediatrician didn't have to order any IGG lab tests before administering the MMR

vaccine and that the pediatrician followed the standard protocol of medical

care. In my son's case it was not a malpractice case. In the other hand I know

many, but many children with autism that they have recurrent infections, have

ear tubes, etc.... If the pediatricians don't order IGG lab test, IGG subclass

and immune panel lab tests prior to administering the MMR vaccine, would this be

breaking the standard protocol of care and could be considered malpractice? I

will let all you think about it..... Go to www.medicalmalpract ice.com if you

are curious to hear what they have to say about your child's case.

Below is some information about the MMR vaccine and the manufacturer' s drug

information facts about it. And by the way... encephalitis is inflammation in

the brain which all our children have.....

Thanks,

JR

Letter from the MMR Manufacturer to pediatricians about the MMR vaccine

https://www. merckvaccines. com/CustomerLett erPQD_0307. pdf

ProQuad should not be administered to certain individuals, including those with

any of the following: an immunodeficient condition.

http://www.merck. com/product/ usa/pi_circulars /m/mmr_ii/ mmr_ii_pi. pdf

MMR Vaccine CONTRAINDICATIONS

Primary and acquired immunodeficiency states, including patients who are

immunosuppressed in

association with AIDS or other clinical manifestations of infection with human

immunodeficiency

viruses;41-43 cellular immune deficiencies; and hypogammaglobulinem ic and

dysgammaglobulinemi c

states.

Encephalitis

http://www.merck. com/mmpe/ sec16/ch217/ ch217c.html

Encephalitis is inflammation of the parenchyma of the brain, resulting from

direct viral invasion or hypersensitivity initiated by a virus or another

foreign protein.

Encephalitis can occur as a secondary immunologic complication of certain viral

infections or vaccinations. Diagnosis requires CSF analysis and neuroimaging.

Treatment is supportive and, for certain causes, includes antiviral drugs.

http://www.cidpusa. org/IgG3deficien cy.html

4.5 Indications for measuring IgG subclass levels

As already mentioned in the previous sections, several studies indicate that

(selective) IgG subclass deficiencies may be associated with disease. Specific

examples are: bronchiectasis and severe, recurrent stages of otitis media,

sinusitis, pneumonia and bronchitis. The possibility of an IgG subclass

deficiency should be considered in all children with recurrent infections and

chronic obstructive bronchitis. The association between IgG2 deficiency and

severe recurrent infections of the respiratory tract in young children, caused

by encapsulated bacteria, have led to an increasing demand for the determination

of IgG subclasses in sera from children. However, it should be kept in mind that

IgG subclass deficiencies in children may be transient. The levels of IgG2

increase relatively late in childhood. Thus, when low IgG2 levels are found in

children below the age of 2-3 years, it is advisable to monitor this level in

the course of time, since it may be

due to a temporary maturation block. Obviously, IgG subclass deficiencies may

also occur in all patients at risk for infections due to immunodeficiency, such

as occurs e.g. in haematopoietic stem cell transplantation.

In general, IgG subclass levels should be measured whenever the total IgG level

is decreased. However, and IgG subclass deficiency is not excluded by a normal

or even high total IgG concentration (62). Therefore, it is essential to measure

individual IgG subclass levels (107). A correct diagnosis is essential in

choosing the appropriate therapy (108). There are several specific disease

conditions in which measurement of IgG subclasses is recommended:

> >

> >

> > Do you know that the MMR vaccine is contraindicated for people with immune

deficiencies because the risks of encephalitis? That includes children with

recurrent infections. Have children with recurrent infections been tested for

immune deficiencies prior to the administration of the MMR vaccine? I don't

think so....

> >

> >

> >

> > JR

> >

> >

> >

> > groups (DOT) com

> > From: nfbhometrainer@

> > Date: Sun, 5 Apr 2009 17:13:36 +1000

> > Subject: RE: Does everyone here still believe its Autism?

> >

> >

> >

> >

> >

> >

> >

> > I don't see why a label should make a difference at all. As long as the

> > child in question gets the help he/.she needs, I don't care what the label

> > is.

> >

> > From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of

> > robindriver@

> > Sent: Tuesday, March 24, 2009 5:44 PM

> > groups (DOT) com

> > Subject: Does everyone here still believe its Autism?

> >

> > Hi all. Newbie over here.

> >

> > Son diagnosed July 2008, mild Autism. Age 3. I fully rejected this diagnosis

> > then and I still do now. Some may say denial, but I believe of a different

> > sort. My son said his first words at 9 months, " quack, quack " . Next came;

> > mom, car, ball, dog, hi, etc and by 11 months his first 2 word combo, " good

> > girl " , to our dog. Our Ped, commented on this milestone, saying he was going

> > to talk early. Then new words started to decreace, old words stop, tantrums,

> > tummy aches, sensory, etc. Going back through our med records and journals,

> > I clearly see this was after recieveing proquad by Merck MMRV, worse than

> > the MMR alone.

> >

> > Anyway, I see many people use the A word to describe there little ones here

> > on as well as DAN sites, and I am starting to wondering if anyone else

> > rejects this misdiagnosis.

> >

> > When I first read Dr. G's words on our kids being mislabeled, I cried, as I

> > felt I finally found someone who got it, and can help.

> >

> >