Re: Sharon's LDN update and life update

March 17, 2007

3.5 to start. I think my fatigue is related to the warming temps here. I can't wait to start the LDN. It will probably come by Mon. or Tues. Trista

(does Challis get the fatigue also?)

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

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March 17, 2007

Yes Challis gets very fatigued, too. It's lousy, isn't it? I started at 3 mg. and I think I could have easily started at 3.5. I'm excited for you and I'm crossing my fingers for good results. Sharon Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

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March 18, 2007

Thank you. I can't wait to try it. Hope Challis can come back soon.

hugs, Trista

Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

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March 19, 2007

the one good thing I can say about my MS is that I never have had fatigue with my MS thank goodness. Does your fatigue force you to rest or can you ignore it and get through it with medicine?

Bill

Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut.

March 19, 2007

Bill, most days I can ignore it and be just fine with sitting down for a little while or just pushing through. There are those days when I just feel to weak to do most anything and have to stop. It is mostly in the summer or if the heater gets turned on to high in the winter. Heat is my worst reactor and I just watch the weather.... but here in Oklahoma that is not always right. We use to live in Arizona, a long time ago back in the early 1990's and even though I wasn't DX'ed with MS I had really bad problems from the heat. My first summer in AZ it was 122 degrees. My husband just returned from there, and wanted to know why I would never go back out there to live, DUH.... heat is my enemy. I gained some weight since the begining of MS I think that has allot to do with fatigue too. (depressed eating)

MS-Bill wrote: the one good thing I can say about my MS is that I never have had fatigue with my MS thank goodness. Does your fatigue force you to rest or can you ignore it and get through it with medicine? Bill Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand

I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at

night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89

today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown,

Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Get your own web address. Have a HUGE year through Yahoo! Small Business.

March 19, 2007

Heat is my biggest enemy when my MS first hit me and went on disability I thought this won't be too bad I can set up my chair out back and take it easy in the sun which I love to do. I found out very quick that was not going to work. I use a walker all the time but can still ride our riding lawn mower and I tried my first year to mow on a hot day and it was a bad way to find out how bad the heat was on me. The heat messes with both my legs and vision. I also have skipped many of my boys summer sportting events.

Bill

Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Get your own web address.Have a HUGE year through Yahoo! Small Business.

March 19, 2007

I love to mow the lawn, but for a few years now I can only be out on cool days, overcasted cloudy days. I can still only stay out for about 20-30 minutes at a time and thats pushing it. Thats just being outside as a supervisor not getting to do any of the work. (or very little) I miss going out and getting a tan, just laying there, which I know is bad for me. But now to get hot enough to tan takes my energy to all time level low. I think I need to look for a tanning bed, at least I would feel like I was getting some sun. LOL MS-Bill wrote: Heat is my biggest enemy when my MS first hit me and went on disability I thought this won't be too bad I can set up my chair out back and take it easy in the sun which I love to do. I found out very quick that was not going to work. I use a walker all the time but can still ride our riding lawn mower and I tried my first year to mow on a hot day and it was a bad way to find out how bad the heat was on me. The heat messes with both my legs and vision. I also have skipped many of my boys summer sportting events. Bill Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night)

in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher

who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been

pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees

what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Get your own web address.Have a HUGE year through Yahoo! Small Business. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown,

Jr.

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March 19, 2007

My fatigue fells like I have 100 pound of extra wt that I'm trying to carry, like a wet blanket over me 'MS-Bill wrote: the one good thing I can say about my MS is that I never have had fatigue with my MS thank goodness. Does your fatigue force you to rest or can you ignore it and get through it with medicine? Bill Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last

year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a

grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it

yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees

what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 19, 2007

Bill, what a blessing to not have the fatigue too. I know that I feel really bad because my boys want to go do things in the summer, and sometimes I can't do it. My fatigue is so overwhelming, that a nap won't fix it. I could literally sleep well all night, wake horribly fatigues, sleep all day and still go to bed that night. My legs feel weak (whole body really) and like Jello. I know we both have young children who like to be active. I wish I could bottle their energy! Trista

Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

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Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

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March 19, 2007

Trista, AMEN to that. It would be so much easier to have a pill to give us energy with out any side effects. My doc said there are some pills out there to help, but I don't want the side effects to go along with the problems I already have. Trista wrote: Bill, what a blessing to not have the fatigue too. I know that I feel really bad because my boys want to go do things in the summer, and sometimes

I can't do it. My fatigue is so overwhelming, that a nap won't fix it. I could literally sleep well all night, wake horribly fatigues, sleep all day and still go to bed that night. My legs feel weak (whole body really) and like Jello. I know we both have young children who like to be active. I wish I could bottle their energy! Trista Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights

while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the

LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So

far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo!

Search Marketing. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown,

Jr.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

March 19, 2007

, I've tried Ritalin before, and it did nothing for me that I could tell. Just felt a little jittery. I'm sure my Dr. would let me try something else if I asked. I'm just on too many pills as it is. Never thought I'd be 36 and falling apart. lol. Trista

Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

March 20, 2007

I would spend just one more day out in the sun, just one more time pushing my daughter on her swing, justone more time riding a bicycle with the kids or just one more lap around the block. I would have never waited until I retired to start painting, knitting, crocheting, sketching and writing again, when I said I'd have more time to do it. I would run one more mile, climb one more hill, hike one more trail and swim one more lap. Today I promise, next remission, I'll mark some of these wishes of this list, the one's I can. I used to remember a saying to live for today because you are not promised tomorrow. That will be me new motto in my life is to live each day to the fullest so that I don't add more wishes to this list ' in Texas Kathi Benedict wrote: I wish I could paint and draw again. I wish I could write my name. I wish I could hold a pen. I wish I could open my hand. I wish I could walk. I wish I could pick up my feet. I wish I could get in my own shower. I wish my right foot would lay flat and not dump me. I wish I could stand at the sink. Kathi Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night)

in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher

who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been

pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees

what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is

invisible to the eyes. -H. Brown, Jr. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.11/723 - Release Date: 3/15/2007 11:27 AM ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 20, 2007

Bill, Mine would be 1. Wish I could mow the yard on a beautiful hot summer day with out any body malfuntions 2. Wish that sitting still at the movies or show was not painful. 3. Wish I could drive to see my family more. 2-10 hours to drive. 4. Wish I could carry my grand daughter around more. 5. Wish that my family understood how MS feels just for 1 day. (my kids and husband) even though the're great to me I still have those days when I know they think it's all in my head. Lots of wishes, none are to ever be though. MS-Bill

wrote: Do both of you have a wish list to go with your MS? Mine is. 1 Wish I had another day to walk around the neighborhood with my family. My walker makes it impossible. 2. Wish I could still do simple things like just climb a ladder to change a light bulb or help paint our 9 foot ceiling. 3. Wish I had another chance to visit Mammoth Cave again for

the cave tours. 4. Wish I could still dive off a high diving board at the pool. 5. Wish I could both bowl and rollerskate with my family. I could go on and on. I am very thankful for my wife and 2 boy's though having good support through this MS is very important to me. What all do you wish for? Bill Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do

and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had.

Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert.

lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown,

Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown,

Jr. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users.

March 20, 2007

Trimm wrote: I would spend just one more day out in the sun, just one more time pushing my daughter on her swing, justone more time riding a bicycle with the kids or just one more lap around the block. I would have never waited until I retired to start painting, knitting, crocheting, sketching and writing again, when I said I'd have more time to do it. I would run one more mile, climb one more hill, hike one more trail and swim one more lap. Today I promise, next remission, I'll mark some of these wishes

of this list, the one's I can. I used to remember a saying to live for today because you are not promised tomorrow. That will be me new motto in my life is to live each day to the fullest so that I don't add more wishes to this list ' in Texas Kathi Benedict wrote: I wish I could paint and draw again. I wish I could write my name. I wish I could hold a pen. I wish I could open my hand. I wish I could walk. I wish I could pick up my feet. I wish I could get in my own shower. I wish my right foot would lay flat and not dump

me. I wish I could stand at the sink. Kathi Re: Sharon's LDN update and life update Sharon, Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with

fatique I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!! Sharon Marsden <wobbletowalk@ yahoo.com> wrote: I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and

cleaned the "crabetorium" for the hermit crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon The fish are biting.Get more visitors on your site using Yahoo! Search Marketing. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. 8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut. Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr. Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.18.11/723 - Release Date: 3/15/2007

11:27 AM ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 20, 2007

Where were you living on June 26, 1990? Sharon Re: Sharon's LDN update and life update

Sharon,

Sounds like you are having bursts of energy like I did with the LDN. I noticed right away that I could do more with out the pain and returing fatique all day long. I have to watch what I do because if I do feel extra good I tend to push my self and pay for it the next day with fatique

I have only had about a weeks worth of BAD days while on LDN ( I take at night) in the last year and a half. I did have a problem with my left hand in Sept of 06 I lost the ability to move my hand I could not lift a finger litary. It only lasted 8 days but I was in shock and horrified to not be able to tell my hand or fingers what to do and they do it. If you start having bad nights while on 4.5 they (my docs) suggested to me to just go back to 3.0 for a week and 2 days a month I dont take any LDN just to make sure that I do not get "toxic" it has worked very well for me. SO HAPPY YOUR DOING GOOD.!!!!

Sharon Marsden <wobbletowalk@ yahoo.com> wrote:

I went up to 4.5 mg. of LDN about a week ago. I had been taking my LDN in the morning because a researcher who just got a grant from the NMSS said it didn't matter. LDN can cause some sleep disturbances and I tried it at night at first but couldn't handle it. With my nocturnal leg pain I couldn't stand any further disturbance than I already had. Now our group member Dana has started the LDN clinical trial at UCSF. His instructions are very specific to take the LDN at night between 10 p.m. and 3 a.m. if I remember correctly. So I decided I would try it again and I switched to nigh-time for my LDN dose. I haven't had any sleep disturbance at all, in fact, I am sleeping better than I have in years. And I'm feeling better. I'm feeling better! Yesterday I scrubbed my bathtub and toilet and did some other cleaning. This morning I did some laundry and cleaned the "crabetorium" for the hermit

crabs. I'm waiting to see how the rest of the day goes. My ribs are hurting right now so I may have been pushing it yesterday by bending over the bathtub and toilet for so long to scrub them. The forecast is for 89 today and for the next few days. It's going to be in the low 90s again by the weekend. This is spring in the Arizona Desert. lol We are planting our "garden". So far we have a dozen plus tomato plants (Early Girl, Beefsteak, and Cherry), planted corn seeds as well as some heirloom Red Malabar Spinach seeds. There are a ton of sunflower seeds planted all around the yard. We just buy Black Oil Sunflower seeds that are sold for birdseed. It's cheap and gives a variety of sunflowers. There are also marigolds and some other climbing flowers planted. What's going on with all of you?Sharon

The fish are biting.Get more visitors on your site using Yahoo! Search Marketing.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV.

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

8:00? 8:25? 8:40? Find a flick in no timewith theYahoo! Search movie showtime shortcut.

Always,

Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

Get your own web address.Have a HUGE year through Yahoo! Small Business.

Finding fabulous fares is fun.Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.

March 20, 2007

What about Provigil.I have heard many good things about provigil.and its taken

on a as needed basis.And you dont withdraw,and side effects are minimal(I think)

so you could take it one day and wait a week and not have any reactions.They say

it isnt habit forming.Just what iv heard. hugz,cassy

[tabeloe@...] wrote:

, I've tried Ritalin before, and it did nothing for me that I could tell.

Just felt a little jittery. I'm sure my Dr. would let me try something else if

I asked. I'm just on too many pills as it is. Never thought I'd be 36 and

falling apart. lol. Trista

Re: Sharon's LDN update and life update

I pray that this is true for me as well. My LDN is in the mail.

For the last....

March 20, 2007

I'll have to read up on it, before I talk to my doc. Thanks, cassandra workmn wrote: What about Provigil.I have heard many good things about provigil.and its taken on a as needed basis.And you dont withdraw,and side effects are minimal(I think) so you could take it one day and wait a week and not have any reactions.They say it isnt habit forming.Just what iv heard. hugz,cassy[tabeloecharter (DOT) net] wrote:, I've tried Ritalin before, and it did nothing for me that I could tell. Just felt a little jittery. I'm sure my Dr. would let me try something else if I asked. I'm just on too many pills as it is. Never thought I'd be 36 and falling apart. lol. Trista Re: Sharon's LDN update and life updateI pray that this is true for me as well. My LDN is in the mail. For the last.... Always, Sometimes the heart sees what is invisible to the eyes. -H. Brown, Jr.

The fish are biting.

Get more visitors on your site using Yahoo! Search Marketing.

March 21, 2007

Hey .What meds do you take?Im gonna ask for provigil once I go back to

UCD.Im taking 2400 mg of neurontin and I feel the same now since before I

started it.So I think thatl be the first to go out the window.The baclofen is

what saves my but.I was using a walker everyday til I started that then moved to

the cane.I think it may need highered cuz the spasms are worse especially in my

back feels like im being jolted by a taser gun or something.lol.no iv never been

tasered just cant think of a good example.I take 60mg of baclofen I wonder how

high you can go? HAVE a good one today! Big hugz, cassy

[dixmstx@...] wrote:

I've heard good things too and I which my doc would to conteract all the

sedation that comes from my other meds

" lastinline10@... " wrote: I'll have to

read up on it, before I talk to my doc. Thanks,

cassandra workmn wrote: What about Provigil.I have

heard many good things about provigil.and its taken on a as needed basis.And you

dont withdraw,and side effects are minimal(I think) so you could take it one day

and wait a week and not have any reactions.They say it isnt habit forming.Just

what iv heard. hugz,cassy

[tabeloe@...] wrote:

, I've tried Ritalin before, and it did nothing for me that I could tell.

Just felt a little jittery. I'm sure my Dr. would let me try something else if I

asked. I'm just on too many pills as it is. Never thought I'd be 36 and falling

apart. lol. Trista

Re: Sharon's LDN update and life update

What dose are you getting? I'm hoping for....

March 22, 2007

I take Cymbalta 90mg, Klonipin 0.5mg three times a day, Flexeril 10 mg twice a day, Neurontin 1800mg a day, Colace 100mg twice a day, miralax 17grams with 8 oz h20, ibuprofen 400mg, pepcid 20mg. I think that's all. I have to do a med box each week so that I remember to take my meds. I also have hydrocodone5mg as needed, Toradol 10mg as needed, and I also have some left over Methadone a dr tried to put me on. I don't remember much during that time period. in Texascassandra workmn wrote: Hey .What meds do you take?Im gonna ask for provigil once I go back to UCD.Im taking 2400 mg of neurontin and I feel the same now since before I started it.So I think thatl be the first to go out the window.The baclofen is what saves my but.I was using a walker everyday til I started that then moved to the cane.I think it may need highered cuz the spasms are worse especially in my back feels like im being jolted by a taser gun or something.lol.no iv never been tasered just cant think of a good example.I take 60mg of baclofen I wonder how high you can go? HAVE a good one today! Big hugz, cassy[dixmstx] wrote:I've heard good things too and I which my doc would to conteract all the sedation that comes from my other meds"lastinline10Yahoo" <lastinline10> wrote: I'll have to read up on it, before I talk to my doc. Thanks, cassandra workmn <payngabby72> wrote: What about Provigil.I have heard many good things about provigil.and its taken on a as needed basis.And you dont withdraw,and side effects are minimal(I think) so you could take it one day and wait a week and not have any reactions.They say it isnt habit forming.Just what iv heard. hugz,cassy[tabeloecharter (DOT) net] wrote:, I've tried Ritalin before, and it did nothing for me that I could tell. Just felt a little jittery. I'm sure my Dr. would let me try something else if I asked. I'm just on too many pills as it is. Never thought I'd be 36 and falling apart. lol. Trista Re: Sharon's LDN update and life updateWhat dose are you getting? I'm hoping for....'

in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 25, 2007

Bird poop.... White Vinegar will remove even the worst splotches. If they are

really bad, you might have to let the white vinegar soak in for a minute or

two.. sometimes three... But white vinegar sprayed on bird poop (any kind of

bird) will clean it right up.

We have parrots, and learned early on that White Vinegar for the doo-doo's and

then peroxide for cleaning their cage. Bird's lungs do not regenerate or fix

themselves from any damage they receive, and strong chemicals cause damage...

and I don't know who came up with this cleaning solution for bird rooms, but

they did and it works great.... They also found out that the combination of

spraying white vinegar then peroxide (two spray bottles) in any order on a

kitchen counter, and wiping it dry, will kill even the Salmonella bacteria... go

figure.. something so cheap and so easy to clean with..

Be careful with your teflon skillets as well, if you use them... they produce

toxic fumes when overheated... fatal for birds, and not real healthy for humans

either.

Not sure about ducks, but suspect it would be any avian creature, but you can't

burn candles with lead in the wicks (I think it's lead.. it's some kind of metal

if it's not lead).. If you use candles, a candle warmer is best, but if you

actually light them, then be sure that they state " lead free " on the bottom or

somewhere... Any imported candle is a danger, because they aren't regulated like

they are here in the states. My niece told me though that Mall-Marts (Wal-Mart)

candles specifically state whatever the metal is.. Free on the bottoms... No

incense.. no chlorox close to duckie, or anywhere near where he can breathe

it... I'm careful with spic-n-span even.. not sure if the fumes from it are too

strong for my fids (feathered kids) but don't want to risk it.. though if you're

cleaning carpets, and have some tough spots you can use a capful of ammonia to a

gallon of the water that goes into the carpets scrubber (hey.. ammonia brightens

the carpet color too.. go figure... well

my mother used to soak white socks in a bucket of ammonia water before she'd

wash them... my brother's & dad's white socks always looked brand new...)..

And FIDS, can be a lot of company... and they are much much like doggies.. they

don't realize they aren't human... Got one little green goober that either

stressed out enough over our move - 4 years ago - or the acquisition of a dog -

or the fact that he was now in hormonal (breeding age) that he started to pluck

out his pretty green feathers.. now we have a partially nekkid partially green

parrot... Though he stills holler... " Gimme Kiss!!!!!!

mmmmmmmmmmmmwwwwwwwwaaaaa " ... he also sings Lollipop and Hey Good Lookin'.... I

knew he sang the Heyyyyyyyy Good Lookin' part... but was kinda surprise when I

was cleaning cages one day and hear.. " I got a hot rod Ford and two dollar bill "

and he seems to be particularly fond of Elvis

Hope your Duckie brings as many smiles as my FIDS have brought!

|)onna

--------- Re: Sharon's LDN update and life updateTrista, AMEN to that. It would be so much easier to have a pill to give us energy with out any side effects. My doc said there are some pills out there to help, but I don't want the side effects to go along with the problems I already have. Trista <tabeloecharter (DOT) net> wrote: Bill, what a blessing to not have the fatigue too. I know that I feel really bad because my boys want to go do things in the summer, and sometimes I can't do it. My fatigue is so overwhelming, that a nap won't fix it. I

could literally sleep well all night, wake horribly fatigues, sleep all day and still go to bed that night. My legs feel weak (whole body really) and like Jello. I know we both have young children who like to be active. I wish I could bottle their energy! Trista....' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 25, 2007

...

I only take the Baclofen more than once a day, and then not always.. (don't

really care how the doc prescribes them to be taken.. if I don't need the 2nd

one, I'm not taking it, and if I need the 3rd, I will take it, though he

prescribed 2 a day)... Provigil, I sometimes break in two, and only take 100mg

instead of the 200mg.. depends on how I feel in the morning after I've gotten

up...

But my trick to remembering to take my pills???? Even the ones I take once a

day... is to have them all lined up here on my computer desk... now I do spend

most of my waking hours in front of the computer, so that helps.. but the fact

that every time I reach for something on my desk ( calls it the " black

hole " ) I knock the pill bottles over...

The pillbox thing that Sharon uses is a good idea.. and if I get to the point

that I'm taking more than what I'm taking now, I will probably use them as

well.... I know that my brother takes (or took) at least 4 different meds each

day at different times and different dosages.. it was horrendous trying to keep

track of how many of which type he got at this time during the day.. And I

didn't live really close by (20 minute drive)... and my dad just tossed his arms

up in the air and said I give up!!... So I purchased enough pillboxes and a

Permanent Marker for a week of pills.. I think it amounted to like 21 cases..

and once a week I'd go up and put all his pills in order for him.. all he needed

to do at breakfast was open that days breakfast slot and take his pills.. same

for lunch and dinner.. he might have even had some bedtime meds.. I don't

remember too well, and he has since gone into a personal care home, where the

nursing staff keeps track of his meds for him (they have to..

left on his own.... it can get to be a hairy situation.. his meds are for a

mental illness)..

Now.. when my mother was on hospice, they had a TON of medications for her, and

my dad REFUSED to giver her ANY of them (so I had to move in for the duration)

because he was afraid that he'd screw up on her morphine and give her too much..

or get the other ones confused and really well.. bring the end about a lot

sooner than would happen naturally. Well, I took my computer with me when I

went to stay (it was my sanity at the time, my lifeline).. but I created a

spreadsheet, that I printed out and taped to the kitchen cupboard doors with all

the medications and dosages and times.. So that even a child could understand it

(I did have to sleep sometime, though most of the time dad woke me up when it

was time for meds)... But I left spaces where as each medication was given the

space could be checked off.. then there wasn't any question about did she get

it, or didn't she? I also tied a piece of yarn around an ink pen and tied that

to the door handle of the cupboard.. Always a pen ha

ndy that way...

" Necessity IS the mother of invention " ............ Did I mention that I invented

the automatic toilet seat lifter???? LOL..

|)onna

--------- Re: Sharon's LDN update

and life updateTrista, AMEN to that. It would be so much easier to have a pill to give us energy with out any side effects. My doc said there are some pills out there to help, but I don't want the side effects to go along with the problems I already have. Trista <tabeloecharter (DOT) net> wrote: Bill, what a blessing to not have the fatigue too. I know that I feel really bad because my boys want to go do things in the summer, and sometimes I can't do it. My fatigue is so overwhelming, that a nap won't fix it. I could literally sleep well all night, wake horribly fatigues, sleep all day and still go to bed that night. My legs feel weak (whole body really) and like Jello. I know we both have young children who like to be active. I wish I could bottle their energy! Trista.... Bored stiff? Loosen up...Download and play hundreds of games for free on Yahoo! Games. ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

March 25, 2007

My Grandfather's second wife passed that way...she took her meds too many times in a day...Lordy knows what all she was on, I know if I took mine more then once I'd be fine, nothing I take is that dangerous!

I keep all my meds and supplements in a small carrying case, except for the liquids in gelcap, they stay in the fridge. I have a ritual, every day at the same time I take them all, since it is so habitual I tend to not mess them up. Only time I really have to "think" about it is when I add a new supplement or run out of something.

Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com

-- Re: Sharon's LDN update and life update

...I only take the Baclofen more than once a day, and then not always.. (don't really care how the doc prescribes them to be taken.. if I don't need the 2nd one, I'm not taking it, and if I need the 3rd, I will take it, though he prescribed 2 a day)... Provigil, I sometimes break in two, and only take 100mg instead of the 200mg.. depends on how I feel in the morning after I've gotten up...But my trick to remembering to take my pills???? Even the ones I take once a day... is to have them all lined up here on my computer desk... now I do spend most of my waking hours in front of the computer, so that helps.. but the fact that every time I reach for something on my desk ( calls it the "black hole") I knock the pill bottles over... The pillbox thing that Sharon uses is a good idea.. and if I get to the point that I'm taking more than what I'm taking now, I will probably use them as well.... I know that my brother takes (or took) at least 4 different meds each day at different times and different dosages.. it was horrendous trying to keep track of how many of which type he got at this time during the day.. And I didn't live really close by (20 minute drive)... and my dad just tossed his arms up in the air and said I give up!!... So I purchased enough pillboxes and a Permanent Marker for a week of pills.. I think it amounted to like 21 cases.. and once a week I'd go up and put all his pills in order for him.. all he needed to do at breakfast was open that days breakfast slot and take his pills.. same for lunch and dinner.. he might have even had some bedtime meds.. I don't remember too well, and he has since gone into a personal care home, where the nursing staff keeps track of his meds for him (they have to..left on his own.... it can get to be a hairy situation.. his meds are for a mental illness)..Now.. when my mother was on hospice, they had a TON of medications for her, and my dad REFUSED to giver her ANY of them (so I had to move in for the duration) because he was afraid that he'd screw up on her morphine and give her too much.. or get the other ones confused and really well.. bring the end about a lot sooner than would happen naturally. Well, I took my computer with me when I went to stay (it was my sanity at the time, my lifeline).. but I created a spreadsheet, that I printed out and taped to the kitchen cupboard doors with all the medications and dosages and times.. So that even a child could understand it (I did have to sleep sometime, though most of the time dad woke me up when it was time for meds)... But I left spaces where as each medication was given the space could be checked off.. then there wasn't any question about did she get it, or didn't she? I also tied a piece of yarn around an ink pen and tied that to the door handle of the cupboard.. Always a pen handy that way... "Necessity IS the mother of invention"............ Did I mention that I invented the automatic toilet seat lifter???? LOL..|)onna-------------- Original message ----------------------From: Trimm <dixmstx>> I do good with breakfast but at times I'll for forget lunch or fall asleep > without taking my pm> > in Texas

March 25, 2007

My pill box is a tool chest

I have it locked up from the kids and I take it camping.

When I take it camping I have an ice chest in it that keeps things cool for at least 2 days.

When it is at home it is locked and in a closed off place in my room.

The kids all know that it is off limits.

March 25, 2007

Hi .Thats a great idea.A tool box.I had never even thought about that

one.I worry about my 3 yr.old.So I keep most in my purse and the rest are on the

top of my hutch.I dont keep them in the bathroom.never have.I have alot of em

that are junk and I havnt trashed yet,but the ones I take 3 or 4 times a day

stay in my purse.I may just steal your idea.lol..... hugz,cassy

[koala5@...] wrote:

My pill box is a tool chest

I have it locked up from the kids and I take it camping.

When I take it camping I have an ice chest in it that keeps things cool for at

least 2 days.

When it is at home it is locked and in a closed off place in my room.

The kids all know that it is off limits.

March 25, 2007

I've always wanted a parrot but knew the commitment and wasn't in a place that I knew I could have a bird that long. donnaisalwayz@... wrote: Bird poop.... White Vinegar will remove even the worst splotches. If they are really bad, you might have to let the white vinegar soak in for a minute or two.. sometimes three... But white vinegar sprayed on bird poop (any kind of bird) will clean it right up. We have parrots, and learned early on that White Vinegar for

the doo-doo's and then peroxide for cleaning their cage. Bird's lungs do not regenerate or fix themselves from any damage they receive, and strong chemicals cause damage... and I don't know who came up with this cleaning solution for bird rooms, but they did and it works great.... They also found out that the combination of spraying white vinegar then peroxide (two spray bottles) in any order on a kitchen counter, and wiping it dry, will kill even the Salmonella bacteria... go figure.. something so cheap and so easy to clean with.. Be careful with your teflon skillets as well, if you use them... they produce toxic fumes when overheated... fatal for birds, and not real healthy for humans either.Not sure about ducks, but suspect it would be any avian creature, but you can't burn candles with lead in the wicks (I think it's lead.. it's some kind of metal if it's not lead).. If you use candles, a candle warmer is best, but if you actually light them, then

be sure that they state "lead free" on the bottom or somewhere... Any imported candle is a danger, because they aren't regulated like they are here in the states. My niece told me though that Mall-Marts (Wal-Mart) candles specifically state whatever the metal is.. Free on the bottoms... No incense.. no chlorox close to duckie, or anywhere near where he can breathe it... I'm careful with spic-n-span even.. not sure if the fumes from it are too strong for my fids (feathered kids) but don't want to risk it.. though if you're cleaning carpets, and have some tough spots you can use a capful of ammonia to a gallon of the water that goes into the carpets scrubber (hey.. ammonia brightens the carpet color too.. go figure... well my mother used to soak white socks in a bucket of ammonia water before she'd wash them... my brother's & dad's white socks always looked brand new...).. And FIDS, can be a lot of company... and they are much much like doggies.. they don't

realize they aren't human... Got one little green goober that either stressed out enough over our move - 4 years ago - or the acquisition of a dog - or the fact that he was now in hormonal (breeding age) that he started to pluck out his pretty green feathers.. now we have a partially nekkid partially green parrot... Though he stills holler... "Gimme Kiss!!!!!! mmmmmmmmmmmmwwwwwwwwaaaaa"... he also sings Lollipop and Hey Good Lookin'.... I knew he sang the Heyyyyyyyy Good Lookin' part... but was kinda surprise when I was cleaning cages one day and hear.. "I got a hot rod Ford and two dollar bill" and he seems to be particularly fond of ElvisHope your Duckie brings as many smiles as my FIDS have brought!|)onna--------- Re: Sharon's LDN update and life updateTrista, AMEN to that. It would be so much easier to have a pill to give us energy with out any side effects. My doc said there are some pills out there to help, but I don't want the side effects to go along with the problems I already have. Trista <tabeloecharter (DOT) net> wrote: Bill, what a blessing to not have the fatigue too. I know that I feel really bad because my boys want to go do things in the summer, and sometimes I can't do it. My fatigue is so overwhelming, that

a nap won't fix it. I could literally sleep well all night, wake horribly fatigues, sleep all day and still go to bed that night. My legs feel weak (whole body really) and like Jello. I know we both have young children who like to be active. I wish I could bottle their energy! Trista.... ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover! ' in Texas Courage is not being fearless, courage is facing

your fears and not running for cover!

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