Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 I would do anything to get this kind of future. A little pain so worth it. There is some numbing cream I heard. From: gonza_mom <debgonzalez@...> Subject: B-12 shots Date: Friday, January 15, 2010, 12:09 PM Â O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 I give them at night. I wait 20-40 minutes after he falls asleep and most of the time he doesn't feel it. When he does he just flinches, rolls over and goes back to sleep. > > From: gonza_mom <debgonzalez@...> > Subject: B-12 shots > > Date: Friday, January 15, 2010, 12:09 PM > > > > > > > > Â > > > > > > > > > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > > > > P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Are you going in at an angle? They really should not hurt. Do one on yourself. We used to do them when she slept and she never even woke up. Sent from my iPhone On Jan 15, 2010, at 7:40 PM, Evangeline <eaofthehills@...> wrote: > I would do anything to get this kind of future. A little pain so > worth it. There is some numbing cream I heard. > > > > From: gonza_mom <debgonzalez@...> > Subject: B-12 shots > > Date: Friday, January 15, 2010, 12:09 PM > > > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. > My first DAN doc prescribed them, I got them in and couldn't do it. > My current doc convinced me and we have been doing it for 3 weeks. > It is tough!! We use the lidocaine patch and ice, but he tells me > how much it hurts every time (he never complains about > anything!).The reason I am posting this is that even through all > that, it is SOOOO worth it. He has improved so much I can't believe > it. One of his therapists is actually talking about having him > reassessed to change his diagnosis from AS to PDD. I know it is not > one single thing but everything we have been doing, but WOW! > > P.S. If anyone has any other ideas of how to get around giving the > shot or making it easier, I am open to suggestions! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck.  Kim ________________________________ From: gonza_mom <debgonzalez@...> Sent: Fri, January 15, 2010 3:09:37 PM Subject: B-12 shots  O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 No kids like shots. I don't either! I give them to my three year old without numbing cream and he does very well. Sometimes he complains but it's so quick as long as you administer the shot correctly maybe he'll just get used to it over time On Fri Jan 15th, 2010 3:09 PM EST gonza_mom wrote: >O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > >P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 Thank you for that beautiful and encouraging note!! We will keep it up!! We did try the sleeping thing and he woke up every time. I think he is just really sensitive. Thank you for the encouragement! We won't stop! > > We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  > I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck. >  Kim > > > > > ________________________________ > From: gonza_mom <debgonzalez@...> > > Sent: Fri, January 15, 2010 3:09:37 PM > Subject: B-12 shots > >  > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > > P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 We also give our son shots while he's awake. We do it first thing in the morning. Our son is 3 1/2 and has been getting MB-12 shots for a very long time. We don't use any cream and it does bother him a little, but as soon as I'm done administering the shot, I rub and massage the area for 45 seconds or more and it's usually ok after that. Our son some what looks forward to the shots because he gets to drop the syringe into the bio-hazard sharpie container and I guess that works for him. He actually come over to me when I say " it's time for your shot " and show it to him. >O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > >P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Regarding these shots is it recommended to follow a certain diet? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 You really have to find that " sweet spot " in his sleep where you can turn him over and he doesn't wake up at all. For my son it's about 35 mins after he falls asleep. Any other time outside of that...he wakes up at the slightest tug on his pajamas. > > > > We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  > > I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck. > >  Kim > > > > > > > > > > ________________________________ > > From: gonza_mom <debgonzalez@> > > > > Sent: Fri, January 15, 2010 3:09:37 PM > > Subject: B-12 shots > > > >  > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > > > > P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 We have followed a gluten free diet for 3 years. We just started the B-12 shots 2 months ago. The two were not connected for us. > > > Regarding these shots is it recommended to follow a certain diet? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 ________________________________ > > > From: gonza_mom <debgonzalez@> > > > > > > Sent: Fri, January 15, 2010 3:09:37 PM I would ask him if he feels better? Tell him that these shots are going to help him and that you don't want to give them to him but he needs them and it will not be forever. I would also suggest to him that you give them to him during the day. Let him be part of it. If you came into my room at night and gave me a shot in the bum I wouldn't be too happy about that either. Let him have some control over the situation. I talked my son through it and after a few days he was bending over while watching tv for me to give him the shot. Be sure you are giving them at an angle and not strait in. Are you going into the upper quadrant of the cheek? Give yourself one to see what it is like. They really don't sting anymore than a bug bite. The needle is so tiny. HTH, > > > Â > > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > > > > > > P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 B-12 does not work for all kids, for some it helps a lot , for some it does nothing and others it can cause irritability and aggression, for many kids it might be worth starting low with sublinguals/ lozenges and building up, if improvements are still being made then shots might be worth doing when giving orally becomes too impractical due to the amount to be given IMO. Kenny > > ________________________________ > > > > From: gonza_mom <debgonzalez@> > > > > > > > > Sent: Fri, January 15, 2010 3:09:37 PM > I would ask him if he feels better? Tell him that these shots are going to help him and that you don't want to give them to him but he needs them and it will not be forever. I would also suggest to him that you give them to him during the day. Let him be part of it. If you came into my room at night and gave me a shot in the bum I wouldn't be too happy about that either. Let him have some control over the situation. I talked my son through it and after a few days he was bending over while watching tv for me to give him the shot. > > Be sure you are giving them at an angle and not strait in. Are you going into the upper quadrant of the cheek? Give yourself one to see what it is like. They really don't sting anymore than a bug bite. The needle is so tiny. > > HTH, > > > > > > > > Â > > > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! > > > > > > > > P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi Kim, Just 2 little questions 1. How long do the B-12 shots have to be continued, if you miss a couple of days, is there an impact.  2. Could you advise on which DAN Doctor you're using, I know there is probably a waiting list, but I'd like to get on it sooner than later (I'll wait for 2 years if that's what it takes).  Thanks, I'm glad things worked out great for you and your son  My son is 5 now, he's coming along but slips back sometimes... gives me little heart tremors, I'm concerned that if I don't get him to a DAN Doctor, he'll flip back to how he was between 2 and 3.5 (small improvements started at about 4).  Thanks From: kim lathe <kimberlylathe@...> Subject: Re: B-12 shots Date: Saturday, January 16, 2010, 5:04 AM  We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck.  Kim ____________ _________ _________ __ From: gonza_mom <debgonzalez@ mac.com> Sent: Fri, January 15, 2010 3:09:37 PM Subject: B-12 shots  O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 If you have the MTHFR mutations,you need to be on MB12 all of your life.You need to have your son tested.  ________________________________ From: nick aylward <nick_aylward@...> Sent: Thu, February 11, 2010 5:45:37 AM Subject: Re: B-12 shots  Hi Kim, Just 2 little questions 1. How long do the B-12 shots have to be continued, if you miss a couple of days, is there an impact.  2. Could you advise on which DAN Doctor you're using, I know there is probably a waiting list, but I'd like to get on it sooner than later (I'll wait for 2 years if that's what it takes).  Thanks, I'm glad things worked out great for you and your son  My son is 5 now, he's coming along but slips back sometimes... gives me little heart tremors, I'm concerned that if I don't get him to a DAN Doctor, he'll flip back to how he was between 2 and 3.5 (small improvements started at about 4).  Thanks From: kim lathe <kimberlylathe> Subject: Re: B-12 shots Date: Saturday, January 16, 2010, 5:04 AM  We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck.  Kim ____________ _________ _________ __ From: gonza_mom <debgonzalez@ mac.com> Sent: Fri, January 15, 2010 3:09:37 PM Subject: B-12 shots  O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 There are so many mutations. How do I know what to ask from my neurologist? T From: kim lathe <kimberlylathe> Subject: Re: B-12 shots Date: Saturday, January 16, 2010, 5:04 AM  We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck.  Kim ____________ _________ _________ __ From: gonza_mom <debgonzalez@ mac.com> Sent: Fri, January 15, 2010 3:09:37 PM Subject: B-12 shots  O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 A1298C and   C677T are the most common ones.Also high  homocysteine levels,and megaloblastic anemia.If you have all of these,you have problems.These can also cause stroke-like episodes,which I have,usually starting in young adults or older children. ________________________________ From: Yarkoni <tanya.yarkoni@...> Sent: Thu, February 11, 2010 1:56:42 PM Subject: Re: B-12 shots  There are so many mutations. How do I know what to ask from my neurologist? T From: kim lathe <kimberlylathe> Subject: Re: B-12 shots Date: Saturday, January 16, 2010, 5:04 AM  We gave my son the shots while he was sleeping. It was so much easier. We gave my 7 year old son the shots every 3 days for 2 years. You can not even tell that he was once autistic. He is so social. He no longer needs an aid or speech therapy at school. He is in a regular 2nd grade class & is just soaring. He gets 100's on all his spelling & Math tests, Reads like a high schooler, has many friends and has much empathy, I no longer see any signs of autism. I brought him to his pediatrician because he was not feeling well. His doctor said " Wow, Kim I can't believe this is the same kid " " He is so social & articulate " " He is not showing any signs of being on the spectrum anymore " " You have really worked hard with him " .  I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum worked for him. His blood work indicated he was majorly deficient in Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent and can tell you what major routes can take you to anywhere in the US. But, he does not " obsess " about it. If it comes up in conversation he just rolls with it. I am so proud of his progress. I feel like I really pulled him out of that window. Helping my son fight autism has been the most rewarding experience of my life. I know I saved him. I truly encourage you to Keep up with the shots & therapies that are needed for your child. They take a while but DO work. Good luck.  Kim ____________ _________ _________ __ From: gonza_mom <debgonzalez@ mac.com> Sent: Fri, January 15, 2010 3:09:37 PM Subject: B-12 shots  O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN doc prescribed them, I got them in and couldn't do it. My current doc convinced me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine patch and ice, but he tells me how much it hurts every time (he never complains about anything!).The reason I am posting this is that even through all that, it is SOOOO worth it. He has improved so much I can't believe it. One of his therapists is actually talking about having him reassessed to change his diagnosis from AS to PDD. I know it is not one single thing but everything we have been doing, but WOW! P.S. If anyone has any other ideas of how to get around giving the shot or making it easier, I am open to suggestions! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 I am still in the midst of research on this, but your comment is intriguing. My DAN and I have long thought my son has the MTHFR mutation, but we haven't checked it yet. My daughter and I both got Genova testing done, as did my son, and it showed possible MTHFR-related issues, but it all manifested in different ways. The Genova NutraEval only showed that my daughter needed B12. I was in huge need of folate only. We all had really high methylmalonic acid. There were other indications too but I just don't have time to detail them right now. So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. The more I study about biochemistry, the more complex it becomes! Sara > If you have the MTHFR mutations,you need to be on MB12 all of your life.You need to have your son tested. > > > Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have?  ________________________________ From: sebrown1126a <sarabrown@...> Sent: Fri, February 12, 2010 6:20:56 AM Subject: Re: B-12 shots  I am still in the midst of research on this, but your comment is intriguing. My DAN and I have long thought my son has the MTHFR mutation, but we haven't checked it yet. My daughter and I both got Genova testing done, as did my son, and it showed possible MTHFR-related issues, but it all manifested in different ways. The Genova NutraEval only showed that my daughter needed B12. I was in huge need of folate only. We all had really high methylmalonic acid. There were other indications too but I just don't have time to detail them right now. So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. The more I study about biochemistry, the more complex it becomes! Sara > If you have the MTHFR mutations,you need to be on MB12 all of your life.You need to have your son tested. > > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 My son had huge aggression and rage on MB12. We tried many different dosing strategies and folinic acid, over the span of four months. Since we unfortunately saw no benefits, we gave up. It was absolutely horrible. > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > >  > ________________________________ > From: sebrown1126a <sarabrown@...> > > Sent: Fri, February 12, 2010 6:20:56 AM > Subject: Re: B-12 shots > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Maybe he didn't need it in the first place.I think there is a big problem with DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids for MTHFR mutations,megaloblastic anemia,or homocystene levels.This is why the skeptics say it doesn't work. ________________________________ From: sebrown1126a <sarabrown@...> Sent: Tue, February 16, 2010 7:10:02 AM Subject: Re: B-12 shots  My son had huge aggression and rage on MB12. We tried many different dosing strategies and folinic acid, over the span of four months. Since we unfortunately saw no benefits, we gave up. It was absolutely horrible. > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > >  > ____________ _________ _________ __ > From: sebrown1126a <sarabrown@. ..> > > Sent: Fri, February 12, 2010 6:20:56 AM > Subject: Re: B-12 shots > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 MB12 caused nastiness here also w/w-o folinic. The folinic aggravated things++. After reading Yasko,I gave a few months of 5-methyl folate, which has been the only folate my D has tolerated. After loading w the 5-methyl folate, she was able to tolerate the MB12. > > > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > > > > >  > > > ____________ _________ _________ __ > > From: sebrown1126a <sarabrown@ ..> > > > > Sent: Fri, February 12, 2010 6:20:56 AM > > Subject: Re: B-12 shots > > > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 My son has been on mb12 and folinic acid along with other supplements for over a year, noticed change for better at first, but over the last 6 months or so gotten VERY aggressive especially last 2 months. Thinking about stopping for a while but not sure if I should, DAN says no but I don't see changes for better recently and can't keep putting out money for things not sure are working. Although this week my sis in law hit me with her observation that he has not had any changes that she sees (mind you she sees him once or twice a year) my did notice his temper this week and thinks that I should just keep medicating him with risperdal and not do any supp or diet because no benefits and just wasting money, says just spinning my wheels. boy did that make me feel miserable. ________________________________ From: Kulp <thorenstd124@...> Sent: Tue, February 16, 2010 10:51:49 AM Subject: Re: Re: B-12 shots  Maybe he didn't need it in the first place.I think there is a big problem with DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why the skeptics say it doesn't work. ____________ _________ _________ __ From: sebrown1126a <sarabrownfastmail (DOT) fm> Sent: Tue, February 16, 2010 7:10:02 AM Subject: Re: B-12 shots  My son had huge aggression and rage on MB12. We tried many different dosing strategies and folinic acid, over the span of four months. Since we unfortunately saw no benefits, we gave up. It was absolutely horrible. > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > >  > ____________ _________ _________ __ > From: sebrown1126a <sarabrown@. ..> > > Sent: Fri, February 12, 2010 6:20:56 AM > Subject: Re: B-12 shots > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 What is MTHFR?  Thanks Tisha From: Kulp <thorenstd124@...> Subject: Re: Re: B-12 shots Date: Tuesday, February 16, 2010, 6:51 PM  Maybe he didn't need it in the first place.I think there is a big problem with DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why the skeptics say it doesn't work. ____________ _________ _________ __ From: sebrown1126a <sarabrownfastmail (DOT) fm> Sent: Tue, February 16, 2010 7:10:02 AM Subject: Re: B-12 shots  My son had huge aggression and rage on MB12. We tried many different dosing strategies and folinic acid, over the span of four months. Since we unfortunately saw no benefits, we gave up. It was absolutely horrible. > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > >  > ____________ _________ _________ __ > From: sebrown1126a <sarabrown@. ..> > > Sent: Fri, February 12, 2010 6:20:56 AM > Subject: Re: B-12 shots > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 My son has been on mb12 and folinic acid along with other supplements for over a year, noticed change for better at first, but over the last 6 months or so gotten VERY aggressive especially last 2 months. Hi Barbara Just to come from a different angle - my son's aggression is always related to overgrowth of (intestinal) bad bacteria. It may possibly be entirely separate from the mb 12. What other supplements is he on? Have there been any recent changes to the supplement schedule? Also, I know some say that when a good effect goes, it may mean the supplement is no longer needed, or dose needs to be reduced. Good luck :-) __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset.com __________ Information from ESET Smart Security, version of virus signature database 4883 (20100220) __________ The message was checked by ESET Smart Security. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010  http://www.pregnancy-info.net/mthfr.html ________________________________ From: Tisha -Brown <tkb1922@...> Sent: Thu, February 18, 2010 9:32:31 PM Subject: Re: Re: B-12 shots  What is MTHFR?  Thanks Tisha From: Kulp <thorenstd124> Subject: Re: Re: B-12 shots Date: Tuesday, February 16, 2010, 6:51 PM  Maybe he didn't need it in the first place.I think there is a big problem with DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why the skeptics say it doesn't work. ____________ _________ _________ __ From: sebrown1126a <sarabrown@fastmail . fm> Sent: Tue, February 16, 2010 7:10:02 AM Subject: Re: B-12 shots  My son had huge aggression and rage on MB12. We tried many different dosing strategies and folinic acid, over the span of four months. Since we unfortunately saw no benefits, we gave up. It was absolutely horrible. > > I have to continually fool around with my MB12 dosing,in order to control my " metabolic strokes " .Initially it made them worse.What kind of a reactions did he have? > > >  > ____________ _________ _________ __ > From: sebrown1126a <sarabrown@. ..> > > Sent: Fri, February 12, 2010 6:20:56 AM > Subject: Re: B-12 shots > So might it be possible that MTHFR mutations do not always indicate a need for MB12, but might indicate another problem along the folate pathway? My son did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who don't respond (but he has responded to other stuff, thankfully!) We threw in folinic acid too, and it got even worse. > Quote Link to comment Share on other sites More sharing options...
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