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I would do anything to get this kind of future. A little pain so worth it. There

is some numbing cream I heard.

From: gonza_mom <debgonzalez@...>

Subject: B-12 shots

Date: Friday, January 15, 2010, 12:09 PM

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My

first DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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I give them at night. I wait 20-40 minutes after he falls asleep and most of

the time he doesn't feel it. When he does he just flinches, rolls over and goes

back to sleep.

>

> From: gonza_mom <debgonzalez@...>

> Subject: B-12 shots

>

> Date: Friday, January 15, 2010, 12:09 PM

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> O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My

first DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

>

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>

> P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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Are you going in at an angle? They really should not hurt. Do one on

yourself. We used to do them when she slept and she never even woke up.

Sent from my iPhone

On Jan 15, 2010, at 7:40 PM, Evangeline

<eaofthehills@...> wrote:

> I would do anything to get this kind of future. A little pain so

> worth it. There is some numbing cream I heard.

>

>

>

> From: gonza_mom <debgonzalez@...>

> Subject: B-12 shots

>

> Date: Friday, January 15, 2010, 12:09 PM

>

>

>

> O.K. for 3 years I put off giving my now 6 year old son B-12 shots.

> My first DAN doc prescribed them, I got them in and couldn't do it.

> My current doc convinced me and we have been doing it for 3 weeks.

> It is tough!! We use the lidocaine patch and ice, but he tells me

> how much it hurts every time (he never complains about

> anything!).The reason I am posting this is that even through all

> that, it is SOOOO worth it. He has improved so much I can't believe

> it. One of his therapists is actually talking about having him

> reassessed to change his diagnosis from AS to PDD. I know it is not

> one single thing but everything we have been doing, but WOW!

>

> P.S. If anyone has any other ideas of how to get around giving the

> shot or making it easier, I am open to suggestions!

>

>

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We gave my son the shots while he was sleeping. It was so much easier. We gave

my 7 year old son the shots every 3 days for 2 years. You can not even tell that

he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum

worked for him. His blood work indicated he was majorly deficient in Zinc. He is

no longer on the spectrum. Yes, he is still extremely intelligent and can tell

you what major routes can take you to anywhere in the US. But, he does not

" obsess " about it. If it comes up in conversation he just rolls with it. I am so

proud of his progress. I feel like I really pulled him out of that window.

Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

 Kim

________________________________

From: gonza_mom <debgonzalez@...>

Sent: Fri, January 15, 2010 3:09:37 PM

Subject: B-12 shots

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN

doc prescribed them, I got them in and couldn't do it. My current doc convinced

me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine

patch and ice, but he tells me how much it hurts every time (he never complains

about anything!).The reason I am posting this is that even through all that, it

is SOOOO worth it. He has improved so much I can't believe it. One of his

therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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No kids like shots. I don't either! I give them to my three year old without

numbing cream and he does very well. Sometimes he complains but it's so quick as

long as you administer the shot correctly maybe he'll just get used to it over

time

On Fri Jan 15th, 2010 3:09 PM EST gonza_mom wrote:

>O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first

DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

>

>P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

>

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Thank you for that beautiful and encouraging note!! We will keep it up!! We did

try the sleeping thing and he woke up every time. I think he is just really

sensitive. Thank you for the encouragement! We won't stop!

>

> We gave my son the shots while he was sleeping. It was so much easier. We

gave my 7 year old son the shots every 3 days for 2 years. You can not even tell

that he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

> I truly believe that the B12 shots, Super nu thera, glutithione, Zinc,

Molydenum worked for him. His blood work indicated he was majorly deficient in

Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent

and can tell you what major routes can take you to anywhere in the US. But, he

does not " obsess " about it. If it comes up in conversation he just rolls with

it. I am so proud of his progress. I feel like I really pulled him out of that

window. Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

>  Kim

>

>

>

>

> ________________________________

> From: gonza_mom <debgonzalez@...>

>

> Sent: Fri, January 15, 2010 3:09:37 PM

> Subject: B-12 shots

>

>  

> O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first

DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

>

> P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

>

>

>

>

>

>

>

>

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We also give our son shots while he's awake. We do it first thing in the

morning. Our son is 3 1/2 and has been getting MB-12 shots for a very long time.

We don't use any cream and it does bother him a little, but as soon as I'm done

administering the shot, I rub and massage the area for 45 seconds or more and

it's usually ok after that. Our son some what looks forward to the shots because

he gets to drop the syringe into the bio-hazard sharpie container and I guess

that works for him. He actually come over to me when I say " it's time for your

shot " and show it to him.

>O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first

DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

>

>P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

>

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You really have to find that " sweet spot " in his sleep where you can turn him

over and he doesn't wake up at all. For my son it's about 35 mins after he falls

asleep. Any other time outside of that...he wakes up at the slightest tug on his

pajamas.

> >

> > We gave my son the shots while he was sleeping. It was so much easier. We

gave my 7 year old son the shots every 3 days for 2 years. You can not even tell

that he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

> > I truly believe that the B12 shots, Super nu thera, glutithione, Zinc,

Molydenum worked for him. His blood work indicated he was majorly deficient in

Zinc. He is no longer on the spectrum. Yes, he is still extremely intelligent

and can tell you what major routes can take you to anywhere in the US. But, he

does not " obsess " about it. If it comes up in conversation he just rolls with

it. I am so proud of his progress. I feel like I really pulled him out of that

window. Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

> >  Kim

> >

> >

> >

> >

> > ________________________________

> > From: gonza_mom <debgonzalez@>

> >

> > Sent: Fri, January 15, 2010 3:09:37 PM

> > Subject: B-12 shots

> >

> >  

> > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first

DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

> >

> > P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

> >

> >

> >

> >

> >

> >

> >

> >

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We have followed a gluten free diet for 3 years. We just started the B-12 shots

2 months ago. The two were not connected for us.

>

>

> Regarding these shots is it recommended to follow a certain diet?

>

>

>

>

>

>

>

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________________________________

> > > From: gonza_mom <debgonzalez@>

> > >

> > > Sent: Fri, January 15, 2010 3:09:37 PM

I would ask him if he feels better? Tell him that these shots are going to help

him and that you don't want to give them to him but he needs them and it will

not be forever. I would also suggest to him that you give them to him during the

day. Let him be part of it. If you came into my room at night and gave me a shot

in the bum I wouldn't be too happy about that either. Let him have some control

over the situation. I talked my son through it and after a few days he was

bending over while watching tv for me to give him the shot.

Be sure you are giving them at an angle and not strait in. Are you going into

the upper quadrant of the cheek? Give yourself one to see what it is like.

They really don't sting anymore than a bug bite. The needle is so tiny.

HTH,

> > >  

> > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My

first DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

> > >

> > > P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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B-12 does not work for all kids, for some it helps a lot , for some it does

nothing and others it can cause irritability and aggression, for many kids it

might be worth starting low with sublinguals/ lozenges and building up, if

improvements are still being made then shots might be worth doing when giving

orally becomes too impractical

due to the amount to be given IMO.

Kenny

>

> ________________________________

> > > > From: gonza_mom <debgonzalez@>

> > > >

> > > > Sent: Fri, January 15, 2010 3:09:37 PM

> I would ask him if he feels better? Tell him that these shots are going to

help him and that you don't want to give them to him but he needs them and it

will not be forever. I would also suggest to him that you give them to him

during the day. Let him be part of it. If you came into my room at night and

gave me a shot in the bum I wouldn't be too happy about that either. Let him

have some control over the situation. I talked my son through it and after a

few days he was bending over while watching tv for me to give him the shot.

>

> Be sure you are giving them at an angle and not strait in. Are you going into

the upper quadrant of the cheek? Give yourself one to see what it is like.

They really don't sting anymore than a bug bite. The needle is so tiny.

>

> HTH,

>

>

>

>

> > > >  

> > > > O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My

first DAN doc prescribed them, I got them in and couldn't do it. My current doc

convinced me and we have been doing it for 3 weeks. It is tough!! We use the

lidocaine patch and ice, but he tells me how much it hurts every time (he never

complains about anything!).The reason I am posting this is that even through all

that, it is SOOOO worth it. He has improved so much I can't believe it. One of

his therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

> > > >

> > > > P.S. If anyone has any other ideas of how to get around giving the shot

or making it easier, I am open to suggestions!

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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  • 4 weeks later...

Hi Kim,

Just 2 little questions :)

1. How long do the B-12 shots have to be continued, if you miss a couple of

days, is there an impact.

 

2. Could you advise on which DAN Doctor you're using, I know there is probably a

waiting list, but I'd like to get on it sooner than later (I'll wait for 2 years

if that's what it takes).

 

Thanks, I'm glad things worked out great for you and your son :)

 

My son is 5 now, he's coming along but slips back sometimes... gives me little

heart tremors, I'm concerned that if I don't get him to a DAN Doctor, he'll flip

back to how he was between 2 and 3.5 (small improvements started at about 4).

 

Thanks

From: kim lathe <kimberlylathe@...>

Subject: Re: B-12 shots

Date: Saturday, January 16, 2010, 5:04 AM

 

We gave my son the shots while he was sleeping. It was so much easier. We gave

my 7 year old son the shots every 3 days for 2 years. You can not even tell that

he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician  because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum

worked for him. His blood work indicated he was majorly deficient in Zinc. He is

no longer on the spectrum. Yes, he is still extremely intelligent and can tell

you what major routes can take you to anywhere in the US. But, he does not

" obsess " about it. If it comes up in conversation he just rolls with it. I am so

proud of his progress. I feel like I really pulled him out of that window.

Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

 Kim

____________ _________ _________ __

From: gonza_mom <debgonzalez@ mac.com>

Sent: Fri, January 15, 2010 3:09:37 PM

Subject: B-12 shots

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN

doc prescribed them, I got them in and couldn't do it. My current doc convinced

me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine

patch and ice, but he tells me how much it hurts every time (he never complains

about anything!).The reason I am posting this is that even through all that, it

is SOOOO worth it. He has improved so much I can't believe it. One of his

therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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Share on other sites

If you have the MTHFR mutations,you need to be on MB12 all of your life.You need

to have your son tested.

 

________________________________

From: nick aylward <nick_aylward@...>

Sent: Thu, February 11, 2010 5:45:37 AM

Subject: Re: B-12 shots

 

Hi Kim,

Just 2 little questions :)

1. How long do the B-12 shots have to be continued, if you miss a couple of

days, is there an impact.

 

2. Could you advise on which DAN Doctor you're using, I know there is probably a

waiting list, but I'd like to get on it sooner than later (I'll wait for 2 years

if that's what it takes).

 

Thanks, I'm glad things worked out great for you and your son :)

 

My son is 5 now, he's coming along but slips back sometimes... gives me little

heart tremors, I'm concerned that if I don't get him to a DAN Doctor, he'll flip

back to how he was between 2 and 3.5 (small improvements started at about 4).

 

Thanks

From: kim lathe <kimberlylathe>

Subject: Re: B-12 shots

Date: Saturday, January 16, 2010, 5:04 AM

 

We gave my son the shots while he was sleeping. It was so much easier. We gave

my 7 year old son the shots every 3 days for 2 years. You can not even tell that

he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician  because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum

worked for him. His blood work indicated he was majorly deficient in Zinc. He is

no longer on the spectrum. Yes, he is still extremely intelligent and can tell

you what major routes can take you to anywhere in the US. But, he does not

" obsess " about it. If it comes up in conversation he just rolls with it. I am so

proud of his progress. I feel like I really pulled him out of that window.

Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

 Kim

____________ _________ _________ __

From: gonza_mom <debgonzalez@ mac.com>

Sent: Fri, January 15, 2010 3:09:37 PM

Subject: B-12 shots

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN

doc prescribed them, I got them in and couldn't do it. My current doc convinced

me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine

patch and ice, but he tells me how much it hurts every time (he never complains

about anything!).The reason I am posting this is that even through all that, it

is SOOOO worth it. He has improved so much I can't believe it. One of his

therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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Share on other sites

There are so many mutations.

How do I know what to ask from my neurologist?

T

From: kim lathe <kimberlylathe>

Subject: Re: B-12 shots

Date: Saturday, January 16, 2010, 5:04 AM

 

We gave my son the shots while he was sleeping. It was so much easier. We gave

my 7 year old son the shots every 3 days for 2 years. You can not even tell that

he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician  because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum

worked for him. His blood work indicated he was majorly deficient in Zinc. He is

no longer on the spectrum. Yes, he is still extremely intelligent and can tell

you what major routes can take you to anywhere in the US. But, he does not

" obsess " about it. If it comes up in conversation he just rolls with it. I am so

proud of his progress. I feel like I really pulled him out of that window.

Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

 Kim

____________ _________ _________ __

From: gonza_mom <debgonzalez@ mac.com>

Sent: Fri, January 15, 2010 3:09:37 PM

Subject: B-12 shots

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN

doc prescribed them, I got them in and couldn't do it. My current doc convinced

me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine

patch and ice, but he tells me how much it hurts every time (he never complains

about anything!).The reason I am posting this is that even through all that, it

is SOOOO worth it. He has improved so much I can't believe it. One of his

therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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A1298C and 

  C677T are the most common ones.Also high  homocysteine levels,and

megaloblastic anemia.If you have all of these,you have problems.These can also

cause stroke-like episodes,which I have,usually starting in young adults or

older children.

________________________________

From: Yarkoni <tanya.yarkoni@...>

Sent: Thu, February 11, 2010 1:56:42 PM

Subject: Re: B-12 shots

 

There are so many mutations.

How do I know what to ask from my neurologist?

T

From: kim lathe <kimberlylathe>

Subject: Re: B-12 shots

Date: Saturday, January 16, 2010, 5:04 AM

 

We gave my son the shots while he was sleeping. It was so much easier. We gave

my 7 year old son the shots every 3 days for 2 years. You can not even tell that

he was once autistic. He is so social. He no longer needs an aid or speech

therapy at school. He is in a regular 2nd grade class & is just soaring. He gets

100's on all his spelling & Math tests, Reads like a high schooler, has many

friends and has much empathy, I no longer see any signs of autism. I brought him

to his pediatrician  because he was not feeling well. His doctor said " Wow, Kim

I can't believe this is the same kid " " He is so social & articulate " " He is not

showing any signs of being on the spectrum anymore " " You have really worked hard

with him " .  

I truly believe that the B12 shots, Super nu thera, glutithione, Zinc, Molydenum

worked for him. His blood work indicated he was majorly deficient in Zinc. He is

no longer on the spectrum. Yes, he is still extremely intelligent and can tell

you what major routes can take you to anywhere in the US. But, he does not

" obsess " about it. If it comes up in conversation he just rolls with it. I am so

proud of his progress. I feel like I really pulled him out of that window.

Helping my son fight autism has been the most rewarding experience of my

life. I know I saved him. I truly encourage you to Keep up with the shots &

therapies that are needed for your child. They take a while but DO work. Good

luck. 

 Kim

____________ _________ _________ __

From: gonza_mom <debgonzalez@ mac.com>

Sent: Fri, January 15, 2010 3:09:37 PM

Subject: B-12 shots

 

O.K. for 3 years I put off giving my now 6 year old son B-12 shots. My first DAN

doc prescribed them, I got them in and couldn't do it. My current doc convinced

me and we have been doing it for 3 weeks. It is tough!! We use the lidocaine

patch and ice, but he tells me how much it hurts every time (he never complains

about anything!).The reason I am posting this is that even through all that, it

is SOOOO worth it. He has improved so much I can't believe it. One of his

therapists is actually talking about having him reassessed to change his

diagnosis from AS to PDD. I know it is not one single thing but everything we

have been doing, but WOW!

P.S. If anyone has any other ideas of how to get around giving the shot or

making it easier, I am open to suggestions!

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I am still in the midst of research on this, but your comment is intriguing. My

DAN and I have long thought my son has the MTHFR mutation, but we haven't

checked it yet. My daughter and I both got Genova testing done, as did my son,

and it showed possible MTHFR-related issues, but it all manifested in different

ways.

The Genova NutraEval only showed that my daughter needed B12. I was in huge need

of folate only. We all had really high methylmalonic acid. There were other

indications too but I just don't have time to detail them right now.

So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

The more I study about biochemistry, the more complex it becomes!

Sara

> If you have the MTHFR mutations,you need to be on MB12 all of your life.You

need to have your son tested.

>

>

>  

>

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I have to continually fool around with my MB12 dosing,in order to control my

" metabolic strokes " .Initially it made them worse.What kind of a reactions did he

have?

 

________________________________

From: sebrown1126a <sarabrown@...>

Sent: Fri, February 12, 2010 6:20:56 AM

Subject: Re: B-12 shots

 

I am still in the midst of research on this, but your comment is intriguing. My

DAN and I have long thought my son has the MTHFR mutation, but we haven't

checked it yet. My daughter and I both got Genova testing done, as did my son,

and it showed possible MTHFR-related issues, but it all manifested in different

ways.

The Genova NutraEval only showed that my daughter needed B12. I was in huge need

of folate only. We all had really high methylmalonic acid. There were other

indications too but I just don't have time to detail them right now.

So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

The more I study about biochemistry, the more complex it becomes!

Sara

> If you have the MTHFR mutations,you need to be on MB12 all of your life.You

need to have your son tested.

>

>

>  

>

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My son had huge aggression and rage on MB12. We tried many different dosing

strategies and folinic acid, over the span of four months. Since we

unfortunately saw no benefits, we gave up. It was absolutely horrible.

>

> I have to continually fool around with my MB12 dosing,in order to control my

" metabolic strokes " .Initially it made them worse.What kind of a reactions did he

have?

>

>

>  

> ________________________________

> From: sebrown1126a <sarabrown@...>

>

> Sent: Fri, February 12, 2010 6:20:56 AM

> Subject: Re: B-12 shots

> So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

>

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Maybe he didn't need it in the first place.I think there is a big problem with

DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids

for MTHFR mutations,megaloblastic anemia,or homocystene levels.This is why the

skeptics say it doesn't work.

________________________________

From: sebrown1126a <sarabrown@...>

Sent: Tue, February 16, 2010 7:10:02 AM

Subject: Re: B-12 shots

 

My son had huge aggression and rage on MB12. We tried many different dosing

strategies and folinic acid, over the span of four months. Since we

unfortunately saw no benefits, we gave up. It was absolutely horrible.

>

> I have to continually fool around with my MB12 dosing,in order to control

my " metabolic strokes " .Initially it made them worse.What kind of a reactions did

he have?

>

>

>  

> ____________ _________ _________ __

> From: sebrown1126a <sarabrown@. ..>

>

> Sent: Fri, February 12, 2010 6:20:56 AM

> Subject: Re: B-12 shots

> So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

>

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MB12 caused nastiness here also w/w-o folinic. The folinic aggravated things++.

After reading Yasko,I gave a few months of 5-methyl folate, which has been the

only folate my D has tolerated. After loading w the 5-methyl folate, she was

able to tolerate the MB12.

> >

> > I have to continually fool around with my MB12 dosing,in order to control

my " metabolic strokes " .Initially it made them worse.What kind of a reactions did

he have?

> >

> >

> >  

>

> > ____________ _________ _________ __

> > From: sebrown1126a <sarabrown@ ..>

> >

> > Sent: Fri, February 12, 2010 6:20:56 AM

> > Subject: Re: B-12 shots

>

> > So might it be possible that MTHFR mutations do not always indicate a need

for MB12, but might indicate another problem along the folate pathway? My son

did HORRIBLY on MB12. It was actually a nightmare. He was one of the very few

who don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

> >

>

>

>

>

>

>

>

>

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My son has been on mb12 and folinic acid along with other supplements for over a

year, noticed change for better at first, but over the last 6 months or so

gotten VERY aggressive especially last 2 months.  Thinking about stopping for a

while but not sure if I should, DAN says no but I don't see changes for better

recently and can't keep putting out money for things not sure are working. 

Although this week my sis in law hit me with her observation that he has not had

any changes that she sees (mind you she sees him once or twice a year) my did

notice his temper this week and thinks that I should just keep medicating him

with risperdal and not do any supp or diet because no benefits and just wasting

money, says just spinning my wheels.  boy did that make me feel miserable. 

________________________________

From: Kulp <thorenstd124@...>

Sent: Tue, February 16, 2010 10:51:49 AM

Subject: Re: Re: B-12 shots

 

Maybe he didn't need it in the first place.I think there is a big problem with

DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids

for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why

the skeptics say it doesn't work.

____________ _________ _________ __

From: sebrown1126a <sarabrownfastmail (DOT) fm>

Sent: Tue, February 16, 2010 7:10:02 AM

Subject: Re: B-12 shots

 

My son had huge aggression and rage on MB12. We tried many different dosing

strategies and folinic acid, over the span of four months. Since we

unfortunately saw no benefits, we gave up. It was absolutely horrible.

>

> I have to continually fool around with my MB12 dosing,in order to control

my " metabolic strokes " .Initially it made them worse.What kind of a reactions did

he have?

>

>

>  

> ____________ _________ _________ __

> From: sebrown1126a <sarabrown@. ..>

>

> Sent: Fri, February 12, 2010 6:20:56 AM

> Subject: Re: B-12 shots

> So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

>

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What is MTHFR?

 

Thanks

Tisha

From: Kulp <thorenstd124@...>

Subject: Re: Re: B-12 shots

Date: Tuesday, February 16, 2010, 6:51 PM

 

Maybe he didn't need it in the first place.I think there is a big problem with

DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids

for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why

the skeptics say it doesn't work.

____________ _________ _________ __

From: sebrown1126a <sarabrownfastmail (DOT) fm>

Sent: Tue, February 16, 2010 7:10:02 AM

Subject: Re: B-12 shots

 

My son had huge aggression and rage on MB12. We tried many different dosing

strategies and folinic acid, over the span of four months. Since we

unfortunately saw no benefits, we gave up. It was absolutely horrible.

>

> I have to continually fool around with my MB12 dosing,in order to control

my " metabolic strokes " .Initially it made them worse.What kind of a reactions did

he have?

>

>

>  

> ____________ _________ _________ __

> From: sebrown1126a <sarabrown@. ..>

>

> Sent: Fri, February 12, 2010 6:20:56 AM

> Subject: Re: B-12 shots

> So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

>

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My son has been on mb12 and folinic acid along with other supplements for

over a year, noticed change for better at first, but over the last 6 months

or so gotten VERY aggressive especially last 2 months.

Hi Barbara

Just to come from a different angle - my son's aggression is always related

to overgrowth of (intestinal) bad bacteria. It may possibly be entirely

separate from the mb 12. What other supplements is he on? Have there been

any recent changes to the supplement schedule?

Also, I know some say that when a good effect goes, it may mean the

supplement is no longer needed, or dose needs to be reduced.

Good luck

:-)

__________ Information from ESET Smart Security, version of virus signature

database 4883 (20100220) __________

The message was checked by ESET Smart Security.

http://www.eset.com

__________ Information from ESET Smart Security, version of virus signature

database 4883 (20100220) __________

The message was checked by ESET Smart Security.

http://www.eset.com

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 http://www.pregnancy-info.net/mthfr.html

________________________________

From: Tisha -Brown <tkb1922@...>

Sent: Thu, February 18, 2010 9:32:31 PM

Subject: Re: Re: B-12 shots

 

What is MTHFR?

 

Thanks

Tisha

From: Kulp <thorenstd124>

Subject: Re: Re: B-12 shots

Date: Tuesday, February 16, 2010, 6:51 PM

 

Maybe he didn't need it in the first place.I think there is a big problem with

DAN!s prescribing MB12,and folinic acid,when they have not even tested the kids

for MTHFR mutations,megalobla stic anemia,or homocysten e levels.This is why

the skeptics say it doesn't work.

____________ _________ _________ __

From: sebrown1126a <sarabrown@fastmail . fm>

Sent: Tue, February 16, 2010 7:10:02 AM

Subject: Re: B-12 shots

 

My son had huge aggression and rage on MB12. We tried many different dosing

strategies and folinic acid, over the span of four months. Since we

unfortunately saw no benefits, we gave up. It was absolutely horrible.

>

> I have to continually fool around with my MB12 dosing,in order to control

my " metabolic strokes " .Initially it made them worse.What kind of a reactions did

he have?

>

>

>  

> ____________ _________ _________ __

> From: sebrown1126a <sarabrown@. ..>

>

> Sent: Fri, February 12, 2010 6:20:56 AM

> Subject: Re: B-12 shots

> So might it be possible that MTHFR mutations do not always indicate a need for

MB12, but might indicate another problem along the folate pathway? My son did

HORRIBLY on MB12. It was actually a nightmare. He was one of the very few who

don't respond (but he has responded to other stuff, thankfully!) We threw in

folinic acid too, and it got even worse.

>

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