Jourdan needs help

[Guest guest]

Jourdan is not doing well. We have gone back to the hospital, home again for a few days, and now it looks like she might be back in the hospital again tomorrow. We just can't make any headway with the secretion problem. She builds up these secretions, they start getting thick and gluey, then her oxygen saturations go down and it's back to the hospital. The doctors are putting her on lasix and then taking her off. Too much swelling for her heart when she's off, and when she's on the secretions dry out. Does anyone have any suggestions?

We are using saline nose drops. She is under a tent for humidity whenever she is asleep. They are trying not to suction any more than needed to avoid swelling of the nasal and throat tissues. Is there something else we can try? The baby is just miserable. She seems to be struggling for breath all the time when she is awake. When she is sleeping, she seems to be most comfortable.

Lynn (grandmother of Jourdan - CHARGE 3months old)

[Guest guest]

Hi There Lynn

My daughter was more in hospital than at home at that age with pnuemoia

and one has to build up there immune system so that they don't conract

everything. Old fashioned steaming worked and we got her onto beriglobin

that built up her immune system. Milk also had an influence on the secretions

so I put her onto soya products. Today she is 11 and I still give her a

beriglobin injection so that we keep her immune system tough.

Hang in there!

Elna

RSFARMS@... wrote:

Jourdan is

not doing well. We have gone back to the hospital, home again

for a few days, and now it looks like

she might be back in the hospital again

tomorrow. We just can't make

any headway with the secretion problem. She

builds up these secretions, they start

getting thick and gluey, then her

oxygen saturations go down and it's

back to the hospital. The doctors are

putting her on lasix and then taking

her off. Too much swelling for her

heart when she's off, and when she's

on the secretions dry out. Does anyone

have any suggestions?

We are using saline nose drops. She is under a tent for humidity

whenever she

is asleep. They are trying not to suction any more than needed

to avoid swelling

of the nasal and throat tissues. Is there something else

we can try?

The baby is just miserable. She seems to be struggling for

breath all the

time when she is awake. When she is sleeping, she seems to be

most comfortable.

Lynn (grandmother of Jourdan - CHARGE 3months old)

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