Guest guest Posted March 2, 2009 Report Share Posted March 2, 2009 Dr is the only doctor who gave what I was complaining of a name, and I had already come to the conclusion myself that it was eosiniphilic gastritis because benedryl was the only thing that helped ... and then Allegra (but that made me crazy and crabby). I don't think he'll think you're crazy - I think he has probably heard it a few times by now (diahrrea improving on antihistamines). It's one of the reasons allergy meds are soooo important to him. He lived in upstate NY where allergy seasons are really really bad news - it's a big focus for him because he has seen so much firsthand how kids can regress due to allergies. He's going to remember I'm crazy when I tell him a toradol shot improved my ... um.... tummy, too. It's an non-steroidal anti-inflammatory shot that helps my pain from tmj or fibromyalgia or whatever, and it just cleared up a .... tummy problem. It's rough though - don't recommend it for just anyone (kids can't get them, but moms don't run out for it). When my gastritis is acute, my stomach will suddenly swell shut, eject it's contents, and feel like it is full of knives being twisted. It is extreme agony - worse than childbirth I assure you, and terrifying - you think your stomach must be ripping open. I've only had a few attacks like that, and they were triggered by something I ate each time, and probably exacerbated by some meds. Food dye, especially red, and even some red foods, will almost definitely trigger an acute attack. When it's just chronic, it could easily be mistaken for reflux or heartburn, except that benedryl relieves it when the heartburn meds do not, and it is a much bigger pain than just heartburn ... it aches all around the stomach, not just at the esophagus. It can also go up into the esophagus too - it did during it's worst phases with me. Anyway, the only way to know for sure if it is eosiniphilic gastritis is to do a stomach biopsy, which I need to schedule as soon as I can pay the deductible (I'm trying to save an emergency fund first because employment stuff is dicey right now). Right now it's mostly in remission. While it's chronic and inflamed, I also have problems digesting my food. If the zyrtec and allegra don't work out (for other reactions), then Dr will probably try singulair - that is supposed to do well with the gut too. I'm going to probably try it again here shortly. HTH- ________________________________ From: Hankinson <jlhank80@...> Sent: Monday, March 2, 2009 12:30:30 PM Subject: Allergic Gastritis/ , I was reading your post about the eosinophic gastritis and I was wondering what the symptoms are that you have. I have suspected that in my daughter, more intestinally, though, because when she is on the antihistamines her poops are normal! That made me think she has an allergic gut and I don't know if its foods that trigger it or what. I tried to talk to Dr. about it but I think he thinks I am nuts and I think too much. I am not sure. He is right if he thinks that though. While on Zyrtec, my daughter was so angry! But her poops were perfect. She stimmed a lot less but again she was a monster. I wish it weren't so. -Jen --- <thecolemans4> wrote: > I'm glad to know you have the same problem - not > glad that you have it - just that someone else who I > trust does too and I'm not just crazy! > > I worried that somehow I had a subtle paranoia about > the allergy meds and blamed them the same way people > do the placebo effects. (I have this incredible > amount of doubt from years of neuroimmune stuff that > was never understood and was therefore told that was > impossible.) Only in the last few years did anyone > give me reasonable explanations as to why that can > be so, and of course Dr Goldberg and Dr know > that they can be bad irritability triggers too, so > it's not as embarrassing to tell them that. > > Fortunately the Dytan doesn't seem to whack them > out, but it's not the best one either (or does > it?). My youngest can tell the nasal sprays help, > and reminds me when I forget. Now " the season " is > coming up, so I need to get tight with getting those > sprays going. > > Did you ever try singulair, and did you have any > negative reactions? I need to try it for my > gastritis (it might be eosiniphilic gastritis, > 'cause allegra helped it tremendously) ... but again, > I'm always nervous about the side effects and can't > remember if singulair did that to me or not. > > Thanks, > > > > > > > ____________ _________ _________ __ > From: Marcia Hinds <hindssiteverizon (DOT) net> > thecolemans4; groups (DOT) com > Sent: Monday, March 2, 2009 11:27:55 AM > Subject: Re: Soy question and good days/bad > days > > > , > > Both and I can't take Antihistamines because we > react to them. Dr. G > always wants him to take them but we just don't. > Instead we use a nasal > spray like Beconase, Flonase or Naselnex. For us > Beconase works best. Also > it is important to remember that due to lack of > language sometimes it is > hard to tell what is a reaction and what is > frustration. They know what > they want to say but can't express it. When I was > raising my " normal " > daughter the worst time was when she was 12-18 > months. She wanted to tell > me things but didn't know how to say the words yet, > > Marcia > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > May the Lord bless you and keep you! Visit my blog http://bloominwhere yourplanted. blogspot. com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 , My 2 1/2 year old son has been having the same thing you are describing. However, the biopsy from the EGD was negative for eospinophils. We then had him tested for allergies even though the GI doc said he didn't feel it was allergy related. He's allergic to eggs and peanuts. He also tested high for soy, milk, and wheat. We put him on a casein free/gluten free diet and he got much worse. After 2 months, we reintroduced all these foods minus the eggs and peanuts and he is thriving as long as he doesn't have any other sickness (GI virus, colds, flu, etc). We have never had him on any kind of anti-virals or any of the meds Dr. G apparently recommends. We've never even been to him!!! I have been doing research on my own and trying many things along the way to address him sensory processing disorder. He is also a very picky eater but with lots of speech, occupational, and feeding therapy we have been able to address this as well over the last 4-5 months. He is still only 22 pounds but he's much healthier and so much happier. His speech is catching up and he is starting to make his needs known etc. The key for us was EO28 Splash made by Nutricia. You can only purchase this online and it's very expensive BUT it works. I believe the website is nutritionandautism.com (????) It is nothing but pure amino acids and is easy for the gut to digest and absorb. Since we have been able to get his allergies and nutrition more stabilized he has been thriving. Like I said, he has NEVER taken any antivirals and very few antibiotics. By the way, Cincinnati Children's Hospital is the world's leader in research for Eosinophilic Disorders. They have great info on their website. We have been there and it's an outstanding hospital!!! Hope this helps!!! Joy ---- <thecolemans4@...> wrote: ============= Dr is the only doctor who gave what I was complaining of a name, and I had already come to the conclusion myself that it was eosiniphilic gastritis because benedryl was the only thing that helped ... and then Allegra (but that made me crazy and crabby). I don't think he'll think you're crazy - I think he has probably heard it a few times by now (diahrrea improving on antihistamines). It's one of the reasons allergy meds are soooo important to him. He lived in upstate NY where allergy seasons are really really bad news - it's a big focus for him because he has seen so much firsthand how kids can regress due to allergies. He's going to remember I'm crazy when I tell him a toradol shot improved my ... um.... tummy, too. It's an non-steroidal anti-inflammatory shot that helps my pain from tmj or fibromyalgia or whatever, and it just cleared up a .... tummy problem. It's rough though - don't recommend it for just anyone (kids can't get them, but moms don't run out for it). When my gastritis is acute, my stomach will suddenly swell shut, eject it's contents, and feel like it is full of knives being twisted. It is extreme agony - worse than childbirth I assure you, and terrifying - you think your stomach must be ripping open. I've only had a few attacks like that, and they were triggered by something I ate each time, and probably exacerbated by some meds. Food dye, especially red, and even some red foods, will almost definitely trigger an acute attack. When it's just chronic, it could easily be mistaken for reflux or heartburn, except that benedryl relieves it when the heartburn meds do not, and it is a much bigger pain than just heartburn ... it aches all around the stomach, not just at the esophagus. It can also go up into the esophagus too - it did during it's worst phases with me. Anyway, the only way to know for sure if it is eosiniphilic gastritis is to do a stomach biopsy, which I need to schedule as soon as I can pay the deductible (I'm trying to save an emergency fund first because employment stuff is dicey right now). Right now it's mostly in remission. While it's chronic and inflamed, I also have problems digesting my food. If the zyrtec and allegra don't work out (for other reactions), then Dr will probably try singulair - that is supposed to do well with the gut too. I'm going to probably try it again here shortly. HTH- ________________________________ From: Hankinson <jlhank80@...> Sent: Monday, March 2, 2009 12:30:30 PM Subject: Allergic Gastritis/ , I was reading your post about the eosinophic gastritis and I was wondering what the symptoms are that you have. I have suspected that in my daughter, more intestinally, though, because when she is on the antihistamines her poops are normal! That made me think she has an allergic gut and I don't know if its foods that trigger it or what. I tried to talk to Dr. about it but I think he thinks I am nuts and I think too much. I am not sure. He is right if he thinks that though. While on Zyrtec, my daughter was so angry! But her poops were perfect. She stimmed a lot less but again she was a monster. I wish it weren't so. -Jen --- <thecolemans4> wrote: > I'm glad to know you have the same problem - not > glad that you have it - just that someone else who I > trust does too and I'm not just crazy!  > > I worried that somehow I had a subtle paranoia about > the allergy meds and blamed them the same way people > do the placebo effects. (I have this incredible > amount of doubt from years of neuroimmune stuff that > was never understood and was therefore told that was > impossible.) Only in the last few years did anyone > give me reasonable explanations as to why that can > be so, and of course Dr Goldberg and Dr know > that they can be bad irritability triggers too, so > it's not as embarrassing to tell them that. > > Fortunately the Dytan doesn't seem to whack them > out, but it's not the best one either (or does > it?). My youngest can tell the nasal sprays help, > and reminds me when I forget. Now " the season " is > coming up, so I need to get tight with getting those > sprays going. > > Did you ever try singulair, and did you have any > negative reactions? I need to try it for my > gastritis (it might be eosiniphilic gastritis, > 'cause allegra helped it tremendously) ... but again, > I'm always nervous about the side effects and can't > remember if singulair did that to me or not. > > Thanks, > > >  > > > > ____________ _________ _________ __ > From: Marcia Hinds <hindssiteverizon (DOT) net> > thecolemans4; groups (DOT) com > Sent: Monday, March 2, 2009 11:27:55 AM > Subject: Re: Soy question and good days/bad > days > > > , > > Both and I can't take Antihistamines because we > react to them. Dr. G > always wants him to take them but we just don't. > Instead we use a nasal > spray like Beconase, Flonase or Naselnex. For us > Beconase works best. Also > it is important to remember that due to lack of > language sometimes it is > hard to tell what is a reaction and what is > frustration. They know what > they want to say but can't express it. When I was > raising my " normal " > daughter the worst time was when she was 12-18 > months. She wanted to tell > me things but didn't know how to say the words yet, > > Marcia > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > May the Lord bless you and keep you! Visit my blog http://bloominwhere yourplanted. blogspot. com/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.