Re: 4 month regression to meds

[Guest guest]

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use

BOLD/CAPITAL letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak,

cedar/juniper, or even azaleas... or the combination of all.)

- in Mobile, AL

______________________________________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

What kind of regression are you talking about? Behavioral or cognitive/speech?

My daughter was doing great on the meds and started going downhill

(behaviorally) because of her allergies flaring up really bad. Its not your

ordinary run of the mill runny nose thing. My daughter goes from Jekyll to Hyde

based on what food she eats. We are seeing an allergist a week from now for

this (recommended by Dr. )

HTH

>

> My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

> How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will he

keep on these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

[Guest guest]

His allergies have been bothering him.  I mentioned it to Dr. G office and he

told me to give him Clariten and prescribed a nose spray.  I just started this

tonight.  I hope this improves his dire situation.  

I do believe allergies have magnified his problems.  However, the teacher has

been complaining of his regression since he started taking the meds in January.

He has regressed academically and socially.  I feel like I am dealing with

him before I began the diet.  So I am spending all this time and money and

no results.

       

From: C. - Wonderwegian <carriecox@...>

Subject: Re: 4 month regression to meds

Date: Wednesday, April 15, 2009, 7:40 PM

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use BOLD/CAPITAL

letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak, cedar/juniper,

or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

HE is 8 years old in 1st grade.  He has regressed academically and socially. 

His cognitive and speech has regressed as well.      

From: <jlhank80@...>

Subject: Re: 4 month regression to meds

Date: Wednesday, April 15, 2009, 9:15 PM

What kind of regression are you talking about? Behavioral or cognitive/speech?

My daughter was doing great on the meds and started going downhill

(behaviorally) because of her allergies flaring up really bad. Its not your

ordinary run of the mill runny nose thing. My daughter goes from Jekyll to Hyde

based on what food she eats. We are seeing an allergist a week from now for this

(recommended by Dr. )

HTH

>

> My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

> How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

[Guest guest]

Hi Freda -

I agree w/ - I would first suspect the SSRI because of the time factor. 

Some kids may have a bit of a problem w/Nizoral, and the rare kid can't tolerate

Valtrex, but I wouldn't look there until everything else is ruled out  - mainly,

the SSRI 1st (Zoloft made my youngest regress - my oldest does great on it),

then diet, then environmental.  Rarely would the other 2 meds be the primary

problem.

With the Valtrex - are you washing off the blue dye?

What does your kid " look " like - dark circles, or any paleness, etc?  What are

the symptoms - what area did he regress in?  We'll be glad to pick apart details

with you.  Please remember that sometimes we will see improvements w/things that

over the long term can be negatives ... I just got my son off diflucan because I

couldn't afford the compounding to get dye free, so we switched him to Nizoral,

and he has really really perked up - it has been extraordinary.  But he had

improved soooo much on the diflucan that I overlooked how he started to decline

and I didn't suspect it for a while.  Same w/the Zoloft... he did better on it

when he first started, but when other meds were added and he started improving

from those, the zoloft became a big big negative, and I stopped it abruptly one

week when it dawned on me (it was very low dose so I was able to stop w/out

tapering), and I saw INSTANT improvement.

The same thing happens in our diets all the time.  A food that was just fine for

the first couple of weeks slowly starts building up - especially things w/soy,

and especially anything w/any coloring.  By the time the negatives have really

shown up, I've long forgotten that we added this food in, and we'll go months

before I figure it out and realize they're eating something w/soy lecithen in it

more often than they did at first.

If you saw improvement on the diet, you will surely see something good from the

meds when you get that right combination.  Something is off, but you can solve

that puzzle over the next few months.

BTW - if you end up on Diflucan - get it compounded dye free.  Don't even go

there w/the pale pink dye - it doesn't look like it has enough to be a problem,

but give it a few weeks and it will.

If you decide to play w/the meds by stopping one to see if symptoms improve -

which I don't recommend but many people do without admitting it, and I'll admit

that I have... don't stop the antiviral.  That is the most important med NOT to

stop (they're all important and I hope Dr G will cycle some of them for you very

very soon) - the viruses can build up an immunity to them during that period. 

The same can happen by forgetting doses often (I had a horrible time remembering

the middle of the day one).  I once ran out of antivirals and Dr G chewed me two

new ones.  He will get very upset if you stop the meds to test them. 

HTH-

 

________________________________

From: C. - Wonderwegian <carriecox@...>

Sent: Wednesday, April 15, 2009 7:40:37 PM

Subject: Re: 4 month regression to meds

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use BOLD/CAPITAL

letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak, cedar/juniper,

or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

Which med did you start first and which one began the initial complaints?

________________________________

From: FREDA CURL <fredacurl@...>

Sent: Wednesday, April 15, 2009 9:25:39 PM

Subject: Re: 4 month regression to meds

His allergies have been bothering him.  I mentioned it to Dr. G office and he

told me to give him Clariten and prescribed a nose spray.  I just started this

tonight.  I hope this improves his dire situation.  

I do believe allergies have magnified his problems.  However, the teacher has

been complaining of his regression since he started taking the meds in January.

He has regressed academically  and socially.  I feel like I am dealing with

him before I began the diet.  So I am spending all this time and money and

no results.

       

From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

Subject: Re: 4 month regression to meds

groups (DOT) com

Date: Wednesday, April 15, 2009, 7:40 PM

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use BOLD/CAPITAL

letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak, cedar/juniper,

or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

Allergies will really cause regression, but since you're concerned about the

timing, listen to those instincts, especially if it's nagging at you.  Beware of

zyrtec if you have to move to that and watch out for aggression.  Clariten would

probably be ok though.  Nose sprays are very important.

If your kid isn't tolerating Valtrex or Nizoral (I think it's the zoloft

though), then Famvir is usually the opposite and so is Diflucan.  Usually at

least one of those is going to be a great med for him (for many of us they both

are great)- rarely is it the case that a kid that can't take one can't take the

other.

Hang in there!  Even when my boys have regressed, once we found that piece of

the puzzle, things look up very rapidly most of the time.

BTW - sometimes they get sinus infections or other bacterial infections when

they first start meds, and we don't always notice them.  A round of Cefzil could

help rule that out.  Dr G is usually agreeable to a trial of antibiotics. 

________________________________

From: FREDA CURL <fredacurl@...>

Sent: Wednesday, April 15, 2009 9:25:39 PM

Subject: Re: 4 month regression to meds

His allergies have been bothering him.  I mentioned it to Dr. G office and he

told me to give him Clariten and prescribed a nose spray.  I just started this

tonight.  I hope this improves his dire situation.  

I do believe allergies have magnified his problems.  However, the teacher has

been complaining of his regression since he started taking the meds in January.

He has regressed academically  and socially.  I feel like I am dealing with

him before I began the diet.  So I am spending all this time and money and

no results.

       

From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

Subject: Re: 4 month regression to meds

groups (DOT) com

Date: Wednesday, April 15, 2009, 7:40 PM

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use BOLD/CAPITAL

letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak, cedar/juniper,

or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

has gone downhill since he started Valtrex in January. 

When he started the Zoloft, the teacher saw some improvements last month. 

However, he was still worse off than when he was just on the diet.

The teacher describes  as pale with dark circles under his eyes. 

I am washing off the blue dye. 

He regressed socially and academically. 

We live in Mississippi and the polen is everywhere.  He is miserable. 

Dr. G's office told me tonight to give him clariten and prescribed him nose

spray.  I just started to this tonight so I hope this gives him some relief. 

I am doing the same diet that I did last fall. 

             

 

-- On Wed, 4/15/09, <thecolemans4@...> wrote:

From: <thecolemans4@...>

Subject: Re: 4 month regression to meds

Date: Wednesday, April 15, 2009, 9:33 PM

Hi Freda -

I agree w/ - I would first suspect the SSRI because of the time factor. 

Some kids may have a bit of a problem w/Nizoral, and the rare kid can't tolerate

Valtrex, but I wouldn't look there until everything else is ruled out  - mainly,

the SSRI 1st (Zoloft made my youngest regress - my oldest does great on it),

then diet, then environmental.  Rarely would the other 2 meds be the primary

problem.

With the Valtrex - are you washing off the blue dye?

What does your kid " look " like - dark circles, or any paleness, etc?  What are

the symptoms - what area did he regress in?  We'll be glad to pick apart details

with you.  Please remember that sometimes we will see improvements w/things that

over the long term can be negatives ... I just got my son off diflucan because I

couldn't afford the compounding to get dye free, so we switched him to Nizoral,

and he has really really perked up - it has been extraordinary.  But he had

improved soooo much on the diflucan that I overlooked how he started to decline

and I didn't suspect it for a while.  Same w/the Zoloft... he did better on it

when he first started, but when other meds were added and he started improving

from those, the zoloft became a big big negative, and I stopped it abruptly one

week when it dawned on me (it was very low dose so I was able to stop w/out

tapering), and I saw INSTANT improvement.

The same thing happens in our diets all the time.  A food that was just fine for

the first couple of weeks slowly starts building up - especially things w/soy,

and especially anything w/any coloring.  By the time the negatives have really

shown up, I've long forgotten that we added this food in, and we'll go months

before I figure it out and realize they're eating something w/soy lecithen in it

more often than they did at first.

If you saw improvement on the diet, you will surely see something good from the

meds when you get that right combination.  Something is off, but you can solve

that puzzle over the next few months.

BTW - if you end up on Diflucan - get it compounded dye free.  Don't even go

there w/the pale pink dye - it doesn't look like it has enough to be a problem,

but give it a few weeks and it will.

If you decide to play w/the meds by stopping one to see if symptoms improve -

which I don't recommend but many people do without admitting it, and I'll admit

that I have... don't stop the antiviral.  That is the most important med NOT to

stop (they're all important and I hope Dr G will cycle some of them for you very

very soon) - the viruses can build up an immunity to them during that period. 

The same can happen by forgetting doses often (I had a horrible time remembering

the middle of the day one).  I once ran out of antivirals and Dr G chewed me two

new ones.  He will get very upset if you stop the meds to test them. 

HTH-

 

____________ _________ _________ __

From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

groups (DOT) com

Sent: Wednesday, April 15, 2009 7:40:37 PM

Subject: Re: 4 month regression to meds

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids do

seem worse before they improve. And the progress is usually slow, but steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect the

SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is WORSE

than when we started 4 months ago " (and list all the negatives. Use BOLD/CAPITAL

letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or ask

to speak to Laurie when you are called back about your update, if she's not the

one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due to

a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak, cedar/juniper,

or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only better. "

-Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested, and

I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

The regressions are really hard, and they seem to last forever. My son has

been through a few (3.5 years with Dr. G), and each time I feel like we are

going through %$(@, but afterwards..there usually are BIG gains. My son no

longer gets sick all the time (and he used to stay sick for months at a

time), he's in a regular 1st grade classroom, his language is developing

nicely, he has lots of social skills and pretend play, etc. He is not

'recovered' yet, but I see light at the end of the tunnel.

He did not do well with either Claritin or Zyrtec. Chlortrimatine works

great for him, and it's really inexpensive, too. I have to ask the

pharmacist for it, even though it's " OTC " .

Kristy

From: [mailto: ] On Behalf Of FREDA

CURL

Sent: Wednesday, April 15, 2009 7:48 PM

Subject: Re: 4 month regression to meds

has gone downhill since he started Valtrex in January.

When he started the Zoloft, the teacher saw some improvements last month.

However, he was still worse off than when he was just on the diet.

The teacher describes as pale with dark circles under his eyes.

I am washing off the blue dye.

He regressed socially and academically.

We live in Mississippi and the polen is everywhere. He is miserable.

Dr. G's office told me tonight to give him clariten and prescribed him nose

spray. I just started to this tonight so I hope this gives him some relief.

I am doing the same diet that I did last fall.

-- On Wed, 4/15/09, <thecolemans4@...

<mailto:thecolemans4%40> > wrote:

From: <thecolemans4@...

<mailto:thecolemans4%40> >

Subject: Re: 4 month regression to meds

<mailto:%40>

Date: Wednesday, April 15, 2009, 9:33 PM

Hi Freda -

I agree w/ - I would first suspect the SSRI because of the time

factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

can't tolerate Valtrex, but I wouldn't look there until everything else is

ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

oldest does great on it), then diet, then environmental. Rarely would the

other 2 meds be the primary problem.

With the Valtrex - are you washing off the blue dye?

What does your kid " look " like - dark circles, or any paleness, etc? What

are the symptoms - what area did he regress in? We'll be glad to pick apart

details with you. Please remember that sometimes we will see improvements

w/things that over the long term can be negatives ... I just got my son off

diflucan because I couldn't afford the compounding to get dye free, so we

switched him to Nizoral, and he has really really perked up - it has been

extraordinary. But he had improved soooo much on the diflucan that I

overlooked how he started to decline and I didn't suspect it for a while.

Same w/the Zoloft... he did better on it when he first started, but when

other meds were added and he started improving from those, the zoloft became

a big big negative, and I stopped it abruptly one week when it dawned on me

(it was very low dose so I was able to stop w/out tapering), and I saw

INSTANT improvement.

The same thing happens in our diets all the time. A food that was just fine

for the first couple of weeks slowly starts building up - especially things

w/soy, and especially anything w/any coloring. By the time the negatives

have really shown up, I've long forgotten that we added this food in, and

we'll go months before I figure it out and realize they're eating something

w/soy lecithen in it more often than they did at first.

If you saw improvement on the diet, you will surely see something good from

the meds when you get that right combination. Something is off, but you can

solve that puzzle over the next few months.

BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

there w/the pale pink dye - it doesn't look like it has enough to be a

problem, but give it a few weeks and it will.

If you decide to play w/the meds by stopping one to see if symptoms improve

- which I don't recommend but many people do without admitting it, and I'll

admit that I have... don't stop the antiviral. That is the most important

med NOT to stop (they're all important and I hope Dr G will cycle some of

them for you very very soon) - the viruses can build up an immunity to them

during that period. The same can happen by forgetting doses often (I had a

horrible time remembering the middle of the day one). I once ran out of

antivirals and Dr G chewed me two new ones. He will get very upset if you

stop the meds to test them.

HTH-

____________ _________ _________ __

From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

groups (DOT) com

Sent: Wednesday, April 15, 2009 7:40:37 PM

Subject: Re: 4 month regression to meds

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids

do seem worse before they improve. And the progress is usually slow, but

steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect

the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

WORSE than when we started 4 months ago " (and list all the negatives. Use

BOLD/CAPITAL letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or

ask to speak to Laurie when you are called back about your update, if she's

not the one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due

to a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak,

cedar/juniper, or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only

better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested,

and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the

diet was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will he

keep on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

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[Guest guest]

My 6 year old son had gotten the fifth disease during winter break. I showed his

DAN doctor the tests that the site has and she ran the ones that were not

on the DAN list. We found out that his viral load was very high so she put him

on Valtrex. In the last four months he has regressed also. He put himself back

in pull-ups ( he was potty trained except for bms) his diet is horrible, he is

hitting at school,running, ect. His teachers and therapists say that he is not

the same child anymore. He has become very withdrawn at home and stimming again.

We have tried many different meds and they will dope him up or he gets more out

of control. Today we took him off Valtrex and are going to try Favmir. She is

going to the DAN convention this weekend so hopefully next week we will know

more. It has been a long year so far I hope we find out what is triggering his

regression soon. I wish you lots of luck.

Sandy Roll

>

> From: <thecolemans4@...

> <mailto:thecolemans4%40> >

> Subject: Re: 4 month regression to meds

> <mailto:%40>

> Date: Wednesday, April 15, 2009, 9:33 PM

>

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because of the time

> factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> can't tolerate Valtrex, but I wouldn't look there until everything else is

> ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> oldest does great on it), then diet, then environmental. Rarely would the

> other 2 meds be the primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or any paleness, etc? What

> are the symptoms - what area did he regress in? We'll be glad to pick apart

> details with you. Please remember that sometimes we will see improvements

> w/things that over the long term can be negatives ... I just got my son off

> diflucan because I couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up - it has been

> extraordinary. But he had improved soooo much on the diflucan that I

> overlooked how he started to decline and I didn't suspect it for a while.

> Same w/the Zoloft... he did better on it when he first started, but when

> other meds were added and he started improving from those, the zoloft became

> a big big negative, and I stopped it abruptly one week when it dawned on me

> (it was very low dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time. A food that was just fine

> for the first couple of weeks slowly starts building up - especially things

> w/soy, and especially anything w/any coloring. By the time the negatives

> have really shown up, I've long forgotten that we added this food in, and

> we'll go months before I figure it out and realize they're eating something

> w/soy lecithen in it more often than they did at first.

>

> If you saw improvement on the diet, you will surely see something good from

> the meds when you get that right combination. Something is off, but you can

> solve that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> there w/the pale pink dye - it doesn't look like it has enough to be a

> problem, but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if symptoms improve

> - which I don't recommend but many people do without admitting it, and I'll

> admit that I have... don't stop the antiviral. That is the most important

> med NOT to stop (they're all important and I hope Dr G will cycle some of

> them for you very very soon) - the viruses can build up an immunity to them

> during that period. The same can happen by forgetting doses often (I had a

> horrible time remembering the middle of the day one). I once ran out of

> antivirals and Dr G chewed me two new ones. He will get very upset if you

> stop the meds to test them.

>

> HTH-

>

>

>

>

> ____________ _________ _________ __

> From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> groups (DOT) com

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

> We too saw immediate improvements with diet, the medication is slower.

>

> Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> depending on the person and the levels of fungus/virus involved. (The kids

> do seem worse before they improve. And the progress is usually slow, but

> steady.)

> Since your son's regression is so long/consistant/ non-ending, I'd suspect

> the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> WORSE than when we started 4 months ago " (and list all the negatives. Use

> BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in translation. It'd

> probably be best to talk over the phone to Dr. G at a phone consultation or

> ask to speak to Laurie when you are called back about your update, if she's

> not the one calling you. (She's been there the longest, I believe.)

>

> Another thing to consider is location/allergies. My son has been with Dr. G

> since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> to a seasonal allergy that lasts until March. We step-up allergy meds and

> everything but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do for adults, only

> better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The results were great.

> However, he began the meds in January and he is going down hill. His teacher

> told me that he had " hit rock bottom " . She was so impressed with how the

> diet was working for him last fall.

> How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> have told Dr. G over and over in emails of his regression. How long will he

> keep on these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

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> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

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>

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> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

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>

>

[Guest guest]

Freda have you actually had a response from Dr Goldberg regarding the

concerns you have clearly expressed in a number of emails? It seems an obvious

thing I know but I think you should email again and specifically request an

email response or a phone consultation regarding the issues concerning to

you.

I have to say that our number one frustration with Dr Goldberg's office

has been asking for reasonable information (if we are to successfully

implement the protocol here on the UK side of the Atlantic) and either

having

no response, a confusing response, an unhelpful response or a response

which seemed tangential to the original question.The net result of our

experience has left us feeling very frustrated (an experience which is at odds

with the very positive one we had whilst having a direct consultation at his

office!) and with the view that the line of meaningful communication to and

from Dr Goldberg's office needs serious review if it is to be truly

effective particularly where geographical distance or complying with

International

or non US medical practice etc present an added layer of difficulty! I

also feel and with all due respect to the considerable experience and

knowledge of vanguard parents that on a number of occasions on this forum that

parents are directing questions to other parents which should in my view be

more appropriately responded to by Dr Goldberg's office.

In a message dated 16/04/2009 01:08:10 GMT Daylight Time,

fredacurl@... writes:

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the

diet was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will

he keep on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

[Guest guest]

I agree with the comments regarding the ssri. Noah did not do well with Zoloft.

He was intolerable - very grouchy, irritated, and self stimulatory behavior was

out of control. Paxil was much better for him. I was exactly the opposite, so an

ssri that works for one person can be problematic for someone else.

Also, I noticed with all three of my kids that once we started the diet and were

on it a few months, dietary infractions caused way more of a problem than when

they used to eat the offending food all the time. The food allergy panel really

helped me identify things that were setting the kids off, my oldest son

especially. Not only does his eczema flare when he's eaten something he

shouldn't, but he becomes obnoxious, confrontational and very emotional. I know

that he feels it too and has done a great job with monitoring his own diet.

With my youngest (and least affected)son, the protocol's effects have been more

subtle. We go along for a couple of weeks and he's doing great. Then I get the

mother of all meltdowns. Overall, all of the kids are doing better, but it can

be a two steps forward/two steps back proposition sometimes, but that does pass.

Good luck,

Robyn

> From: <thecolemans4@...>

> Subject: Re: 4 month regression to meds

>

> Date: Wednesday, April 15, 2009, 7:33 PM

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because

> of the time factor.  Some kids may have a bit of a problem

> w/Nizoral, and the rare kid can't tolerate Valtrex, but

> I wouldn't look there until everything else is ruled

> out  - mainly, the SSRI 1st (Zoloft made my youngest

> regress - my oldest does great on it), then diet, then

> environmental.  Rarely would the other 2 meds be the

> primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or

> any paleness, etc?  What are the symptoms - what area

> did he regress in?  We'll be glad to pick

> apart details with you.  Please remember that sometimes we

> will see improvements w/things that over the long term can

> be negatives ... I just got my son off diflucan because I

> couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up

> - it has been extraordinary.  But he had improved soooo

> much on the diflucan that I overlooked how he started to

> decline and I didn't suspect it for a while.  Same

> w/the Zoloft... he did better on it when he first started,

> but when other meds were added and he started improving from

> those, the zoloft became a big big negative, and I stopped

> it abruptly one week when it dawned on me (it was very low

> dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time.  A food

> that was just fine for the first couple of weeks slowly

> starts building up - especially things w/soy, and especially

> anything w/any coloring.  By the time the negatives have

> really shown up, I've long forgotten that we added this

> food in, and we'll go months before I figure it out and

> realize they're eating something w/soy lecithen in it

> more often than they did at first.

>

> If you saw improvement on the diet, you will surely see

> something good from the meds when you get that right

> combination.  Something is off, but you can solve

> that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye

> free.  Don't even go there w/the pale pink dye - it

> doesn't look like it has enough to be a problem,

> but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if

> symptoms improve - which I don't recommend but many

> people do without admitting it, and I'll admit that I

> have... don't stop the antiviral.  That is the most

> important med NOT to stop (they're all important and I

> hope Dr G will cycle some of them for you very very soon) -

> the viruses can build up an immunity to them during that

> period.  The same can happen by forgetting doses often (I

> had a horrible time remembering the middle of the day

> one).  I once ran out of antivirals and Dr G chewed me two

> new ones.  He will get very upset if you stop the meds to

> test them. 

>

> HTH-

>

>

>  

>

>

>

> ________________________________

> From: C. - Wonderwegian <carriecox@...>

>

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

>

>

>

>

> We too saw immediate improvements with diet, the medication

> is slower.

>

> Die-off from an anti-fungal or anti-viral usually only

> lasts a couple weeks, depending on the person and the levels

> of fungus/virus involved. (The kids do seem worse before

> they improve. And the progress is usually slow, but steady.)

>

> Since your son's regression is so long/consistant/

> non-ending, I'd suspect the SSRI. You might need to be

> firm with a " we NEED to try a new SSRI- he is WORSE

> than when we started 4 months ago " (and list all the

> negatives. Use BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in

> translation. It'd probably be best to talk over the

> phone to Dr. G at a phone consultation or ask to speak to

> Laurie when you are called back about your update, if

> she's not the one calling you. (She's been there the

> longest, I believe.)

>

> Another thing to consider is location/allergies. My son has

> been with Dr. G since Oct 2002 but every year, in mid/late

> Janurary he starts regressing due to a seasonal allergy that

> lasts until March. We step-up allergy meds and everything

> but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of

> all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do

> for adults, only better. " -Maxim Gorky (Aleksey

> Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made

> up of the lamb he's digested, and I've been reading

> all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The

> results were great. However, he began the meds in January

> and he is going down hill. His teacher told me that he had

> " hit rock bottom " . She was so impressed with how

> the diet was working for him last fall.

> How long does this regression last? He is on Valtrex

> Nizoral and Zoloft. I have told Dr. G over and over in

> emails of his regression. How long will he keep on

> these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

> No virus found in this incoming message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

> No virus found in this outgoing message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

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>

>

[Guest guest]

This is my problem all together. had allergy problems up until last

summer when he began the diet.  When he started the diet, no more allergy

problems.  He was off all meds allergy meds.  He was progressing in school and I

was seeing improvements daily. 

Even though he had come so far, he still had some issues.  I took him to Dr. G

and he put him on these meds and he is worse now than ever before. Since

January, he has only had a two week break from the regression.  However, not as

good as he was last December before meds. 

HE IS WORSE NOW ON THE MEDS THAN JUST WITH DIET ALONE.     

From: <thecolemans4

<mailto:thecolemans 4%40. com> >

Subject: Re: 4 month regression to meds

groups (DOT) com <mailto:% 40groups. com>

Date: Wednesday, April 15, 2009, 9:33 PM

Hi Freda -

I agree w/ - I would first suspect the SSRI because of the time

factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

can't tolerate Valtrex, but I wouldn't look there until everything else is

ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

oldest does great on it), then diet, then environmental. Rarely would the

other 2 meds be the primary problem.

With the Valtrex - are you washing off the blue dye?

What does your kid " look " like - dark circles, or any paleness, etc? What

are the symptoms - what area did he regress in? We'll be glad to pick apart

details with you. Please remember that sometimes we will see improvements

w/things that over the long term can be negatives ... I just got my son off

diflucan because I couldn't afford the compounding to get dye free, so we

switched him to Nizoral, and he has really really perked up - it has been

extraordinary. But he had improved soooo much on the diflucan that I

overlooked how he started to decline and I didn't suspect it for a while.

Same w/the Zoloft... he did better on it when he first started, but when

other meds were added and he started improving from those, the zoloft became

a big big negative, and I stopped it abruptly one week when it dawned on me

(it was very low dose so I was able to stop w/out tapering), and I saw

INSTANT improvement.

The same thing happens in our diets all the time. A food that was just fine

for the first couple of weeks slowly starts building up - especially things

w/soy, and especially anything w/any coloring. By the time the negatives

have really shown up, I've long forgotten that we added this food in, and

we'll go months before I figure it out and realize they're eating something

w/soy lecithen in it more often than they did at first.

If you saw improvement on the diet, you will surely see something good from

the meds when you get that right combination. Something is off, but you can

solve that puzzle over the next few months.

BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

there w/the pale pink dye - it doesn't look like it has enough to be a

problem, but give it a few weeks and it will.

If you decide to play w/the meds by stopping one to see if symptoms improve

- which I don't recommend but many people do without admitting it, and I'll

admit that I have... don't stop the antiviral. That is the most important

med NOT to stop (they're all important and I hope Dr G will cycle some of

them for you very very soon) - the viruses can build up an immunity to them

during that period. The same can happen by forgetting doses often (I had a

horrible time remembering the middle of the day one). I once ran out of

antivirals and Dr G chewed me two new ones. He will get very upset if you

stop the meds to test them.

HTH-

____________ _________ _________ __

From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

groups (DOT) com

Sent: Wednesday, April 15, 2009 7:40:37 PM

Subject: Re: 4 month regression to meds

We too saw immediate improvements with diet, the medication is slower.

Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

depending on the person and the levels of fungus/virus involved. (The kids

do seem worse before they improve. And the progress is usually slow, but

steady.)

Since your son's regression is so long/consistant/ non-ending, I'd suspect

the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

WORSE than when we started 4 months ago " (and list all the negatives. Use

BOLD/CAPITAL letters.

Sometimes the e-mail/fax updates can be watered down in translation. It'd

probably be best to talk over the phone to Dr. G at a phone consultation or

ask to speak to Laurie when you are called back about your update, if she's

not the one calling you. (She's been there the longest, I believe.)

Another thing to consider is location/allergies. My son has been with Dr. G

since Oct 2002 but every year, in mid/late Janurary he starts regressing due

to a seasonal allergy that lasts until March. We step-up allergy meds and

everything but *it* still affects him. (Not sure if it's the oak,

cedar/juniper, or even azaleas... or the combination of all.)

- in Mobile, AL

____________ _________ _________ ________

" You must write for children in the same way as you do for adults, only

better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

" Don't ask who's influenced me. A lion is made up of the lamb he's digested,

and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

Reality lies beyond the horizon... Wonderwegian

4 month regression to meds

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the

diet was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

have told Dr. G over and over in emails of his regression. How long will he

keep on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

No virus found in this incoming message

Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

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Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

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[Guest guest]

what is ssri???????????????????????

he had the food panel done. The only major problem he has with food is egg.    

> From: <thecolemans4>

> Subject: Re: 4 month regression to meds

> groups (DOT) com

> Date: Wednesday, April 15, 2009, 7:33 PM

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because

> of the time factor.  Some kids may have a bit of a problem

> w/Nizoral, and the rare kid can't tolerate Valtrex, but

> I wouldn't look there until everything else is ruled

> out  - mainly, the SSRI 1st (Zoloft made my youngest

> regress - my oldest does great on it), then diet, then

> environmental.  Rarely would the other 2 meds be the

> primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or

> any paleness, etc?  What are the symptoms - what area

> did he regress in?  We'll be glad to pick

> apart details with you.  Please remember that sometimes we

> will see improvements w/things that over the long term can

> be negatives ... I just got my son off diflucan because I

> couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up

> - it has been extraordinary.  But he had improved soooo

> much on the diflucan that I overlooked how he started to

> decline and I didn't suspect it for a while.  Same

> w/the Zoloft... he did better on it when he first started,

> but when other meds were added and he started improving from

> those, the zoloft became a big big negative, and I stopped

> it abruptly one week when it dawned on me (it was very low

> dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time.  A food

> that was just fine for the first couple of weeks slowly

> starts building up - especially things w/soy, and especially

> anything w/any coloring.  By the time the negatives have

> really shown up, I've long forgotten that we added this

> food in, and we'll go months before I figure it out and

> realize they're eating something w/soy lecithen in it

> more often than they did at first.

>

> If you saw improvement on the diet, you will surely see

> something good from the meds when you get that right

> combination.  Something is off, but you can solve

> that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye

> free.  Don't even go there w/the pale pink dye - it

> doesn't look like it has enough to be a problem,

> but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if

> symptoms improve - which I don't recommend but many

> people do without admitting it, and I'll admit that I

> have... don't stop the antiviral.  That is the most

> important med NOT to stop (they're all important and I

> hope Dr G will cycle some of them for you very very soon) -

> the viruses can build up an immunity to them during that

> period.  The same can happen by forgetting doses often (I

> had a horrible time remembering the middle of the day

> one).  I once ran out of antivirals and Dr G chewed me two

> new ones.  He will get very upset if you stop the meds to

> test them. 

>

> HTH-

>

>

>  

>

>

>

> ____________ _________ _________ __

> From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> groups (DOT) com

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

>

>

>

>

> We too saw immediate improvements with diet, the medication

> is slower.

>

> Die-off from an anti-fungal or anti-viral usually only

> lasts a couple weeks, depending on the person and the levels

> of fungus/virus involved. (The kids do seem worse before

> they improve. And the progress is usually slow, but steady.)

>

> Since your son's regression is so long/consistant/

> non-ending, I'd suspect the SSRI. You might need to be

> firm with a " we NEED to try a new SSRI- he is WORSE

> than when we started 4 months ago " (and list all the

> negatives. Use BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in

> translation. It'd probably be best to talk over the

> phone to Dr. G at a phone consultation or ask to speak to

> Laurie when you are called back about your update, if

> she's not the one calling you. (She's been there the

> longest, I believe.)

>

> Another thing to consider is location/allergies. My son has

> been with Dr. G since Oct 2002 but every year, in mid/late

> Janurary he starts regressing due to a seasonal allergy that

> lasts until March. We step-up allergy meds and everything

> but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of

> all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do

> for adults, only better. " -Maxim Gorky (Aleksey

> Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made

> up of the lamb he's digested, and I've been reading

> all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The

> results were great. However, he began the meds in January

> and he is going down hill. His teacher told me that he had

> " hit rock bottom " . She was so impressed with how

> the diet was working for him last fall.

> How long does this regression last? He is on Valtrex

> Nizoral and Zoloft. I have told Dr. G over and over in

> emails of his regression. How long will he keep on

> these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

> No virus found in this incoming message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

> No virus found in this outgoing message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

>

[Guest guest]

IF SSRI is the Zoloft, that can not be it because he has regressed since

with the first  Zertec  pill and not really come out of it since.   

> From: <thecolemans4>

> Subject: Re: 4 month regression to meds

> groups (DOT) com

> Date: Wednesday, April 15, 2009, 7:33 PM

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because

> of the time factor.  Some kids may have a bit of a problem

> w/Nizoral, and the rare kid can't tolerate Valtrex, but

> I wouldn't look there until everything else is ruled

> out  - mainly, the SSRI 1st (Zoloft made my youngest

> regress - my oldest does great on it), then diet, then

> environmental.  Rarely would the other 2 meds be the

> primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or

> any paleness, etc?  What are the symptoms - what area

> did he regress in?  We'll be glad to pick

> apart details with you.  Please remember that sometimes we

> will see improvements w/things that over the long term can

> be negatives ... I just got my son off diflucan because I

> couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up

> - it has been extraordinary.  But he had improved soooo

> much on the diflucan that I overlooked how he started to

> decline and I didn't suspect it for a while.  Same

> w/the Zoloft... he did better on it when he first started,

> but when other meds were added and he started improving from

> those, the zoloft became a big big negative, and I stopped

> it abruptly one week when it dawned on me (it was very low

> dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time.  A food

> that was just fine for the first couple of weeks slowly

> starts building up - especially things w/soy, and especially

> anything w/any coloring.  By the time the negatives have

> really shown up, I've long forgotten that we added this

> food in, and we'll go months before I figure it out and

> realize they're eating something w/soy lecithen in it

> more often than they did at first.

>

> If you saw improvement on the diet, you will surely see

> something good from the meds when you get that right

> combination.  Something is off, but you can solve

> that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye

> free.  Don't even go there w/the pale pink dye - it

> doesn't look like it has enough to be a problem,

> but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if

> symptoms improve - which I don't recommend but many

> people do without admitting it, and I'll admit that I

> have... don't stop the antiviral.  That is the most

> important med NOT to stop (they're all important and I

> hope Dr G will cycle some of them for you very very soon) -

> the viruses can build up an immunity to them during that

> period.  The same can happen by forgetting doses often (I

> had a horrible time remembering the middle of the day

> one).  I once ran out of antivirals and Dr G chewed me two

> new ones.  He will get very upset if you stop the meds to

> test them. 

>

> HTH-

>

>

>  

>

>

>

> ____________ _________ _________ __

> From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> groups (DOT) com

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

>

>

>

>

> We too saw immediate improvements with diet, the medication

> is slower.

>

> Die-off from an anti-fungal or anti-viral usually only

> lasts a couple weeks, depending on the person and the levels

> of fungus/virus involved. (The kids do seem worse before

> they improve. And the progress is usually slow, but steady.)

>

> Since your son's regression is so long/consistant/

> non-ending, I'd suspect the SSRI. You might need to be

> firm with a " we NEED to try a new SSRI- he is WORSE

> than when we started 4 months ago " (and list all the

> negatives. Use BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in

> translation. It'd probably be best to talk over the

> phone to Dr. G at a phone consultation or ask to speak to

> Laurie when you are called back about your update, if

> she's not the one calling you. (She's been there the

> longest, I believe.)

>

> Another thing to consider is location/allergies. My son has

> been with Dr. G since Oct 2002 but every year, in mid/late

> Janurary he starts regressing due to a seasonal allergy that

> lasts until March. We step-up allergy meds and everything

> but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of

> all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do

> for adults, only better. " -Maxim Gorky (Aleksey

> Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made

> up of the lamb he's digested, and I've been reading

> all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The

> results were great. However, he began the meds in January

> and he is going down hill. His teacher told me that he had

> " hit rock bottom " . She was so impressed with how

> the diet was working for him last fall.

> How long does this regression last? He is on Valtrex

> Nizoral and Zoloft. I have told Dr. G over and over in

> emails of his regression. How long will he keep on

> these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

> No virus found in this incoming message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

> No virus found in this outgoing message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

>

[Guest guest]

Hi-

Re the food panel - the egg typically reacts on everyone, so unless Dr G says

so, you usually don't have to remove that - unless your child has eczema.

It sounds like my kids - their food panel was good - quite clean really, their

eosiniphils are typically low, but boy can they have food reactions

behaviorally.

HTH-

________________________________

From: FREDA CURL <fredacurl@...>

Sent: Thursday, April 16, 2009 9:10:39 AM

Subject: Re: 4 month regression to meds

what is ssri???????? ????????? ??????

he had the food panel done. The only major problem he has with food is egg.    

> From: <thecolemans4>

> Subject: Re: 4 month regression to meds

> groups (DOT) com

> Date: Wednesday, April 15, 2009, 7:33 PM

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because

> of the time factor.  Some kids may have a bit of a problem

> w/Nizoral, and the rare kid can't tolerate Valtrex, but

> I wouldn't look there until everything else is ruled

> out  - mainly, the SSRI 1st (Zoloft made my youngest

> regress - my oldest does great on it), then diet, then

> environmental.  Rarely would the other 2 meds be the

> primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or

> any paleness, etc?  What are the symptoms - what area

> did he regress in?  We'll be glad to pick

> apart details with you.  Please remember that sometimes we

> will see improvements w/things that over the long term can

> be negatives ... I just got my son off diflucan because I

> couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up

> - it has been extraordinary.  But he had improved soooo

> much on the diflucan that I overlooked how he started to

> decline and I didn't suspect it for a while.  Same

> w/the Zoloft... he did better on it when he first started,

> but when other meds were added and he started improving from

> those, the zoloft became a big big negative, and I stopped

> it abruptly one week when it dawned on me (it was very low

> dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time.  A food

> that was just fine for the first couple of weeks slowly

> starts building up - especially things w/soy, and especially

> anything w/any coloring.  By the time the negatives have

> really shown up, I've long forgotten that we added this

> food in, and we'll go months before I figure it out and

> realize they're eating something w/soy lecithen in it

> more often than they did at first.

>

> If you saw improvement on the diet, you will surely see

> something good from the meds when you get that right

> combination.  Something is off, but you can solve

> that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye

> free.  Don't even go there w/the pale pink dye - it

> doesn't look like it has enough to be a problem,

> but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if

> symptoms improve - which I don't recommend but many

> people do without admitting it, and I'll admit that I

> have... don't stop the antiviral.  That is the most

> important med NOT to stop (they're all important and I

> hope Dr G will cycle some of them for you very very soon) -

> the viruses can build up an immunity to them during that

> period.  The same can happen by forgetting doses often (I

> had a horrible time remembering the middle of the day

> one).  I once ran out of antivirals and Dr G chewed me two

> new ones.  He will get very upset if you stop the meds to

> test them. 

>

> HTH-

>

>

>  

>

>

>

> ____________ _________ _________ __

> From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> groups (DOT) com

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

>

>

>

>

> We too saw immediate improvements with diet, the medication

> is slower.

>

> Die-off from an anti-fungal or anti-viral usually only

> lasts a couple weeks, depending on the person and the levels

> of fungus/virus involved. (The kids do seem worse before

> they improve. And the progress is usually slow, but steady.)

>

> Since your son's regression is so long/consistant/

> non-ending, I'd suspect the SSRI. You might need to be

> firm with a " we NEED to try a new SSRI- he is WORSE

> than when we started 4 months ago " (and list all the

> negatives. Use BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in

> translation. It'd probably be best to talk over the

> phone to Dr. G at a phone consultation or ask to speak to

> Laurie when you are called back about your update, if

> she's not the one calling you. (She's been there the

> longest, I believe.)

>

> Another thing to consider is location/allergies. My son has

> been with Dr. G since Oct 2002 but every year, in mid/late

> Janurary he starts regressing due to a seasonal allergy that

> lasts until March. We step-up allergy meds and everything

> but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of

> all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do

> for adults, only better. " -Maxim Gorky (Aleksey

> Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made

> up of the lamb he's digested, and I've been reading

> all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The

> results were great. However, he began the meds in January

> and he is going down hill. His teacher told me that he had

> " hit rock bottom " . She was so impressed with how

> the diet was working for him last fall.

> How long does this regression last? He is on Valtrex

> Nizoral and Zoloft. I have told Dr. G over and over in

> emails of his regression. How long will he keep on

> these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

> No virus found in this incoming message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

> No virus found in this outgoing message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

>

[Guest guest]

My son started seeing Dr. G in December and up until recently we were seeing the

same thing. seemed to not be coming out of the regressions. He would

have a few good days right before a new appointment and then a new drug would

make things worse. The low point was when we tried Zoloft. I thought about

quitting all together, it was so bad!!!! I had to sit down and really do some

searching to decide what was really going on. What I realized was that

had made some wonderful gains in a lot of areas but it was hard to notice

because he was having a lot of aggressive and unfocussed behavior. Now that we

have found the right SSRI and are working out his allergy panel I can honestly

say I am working with a different kid. I don't think what Dr. G does is a FIX

ALL but he does get our children to a place where they are really receptive to

learning and catching up developmentally. just now seems to be truly open

to LEARNING socially not just memorizing!! I also think when you wake a child

up developmentally you are going to get some negative behavior. My son has been

testing me and questioning me in ways he has never done before!! His big thing

right now is keeping secrets from me. I never thought I would be so happy to

see my son try to out smart me!! My son is seven and in a lot of ways he seems

to be acting a lot younger than before but I think that is a good thing!! Now

we can start over and hopefully start the road to recovery!!!

>

> From: <thecolemans4

> <mailto:thecolemans 4%40. com> >

> Subject: Re: 4 month regression to meds

> groups (DOT) com <mailto:% 40groups. com>

> Date: Wednesday, April 15, 2009, 9:33 PM

>

> Hi Freda -

> I agree w/ - I would first suspect the SSRI because of the time

> factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> can't tolerate Valtrex, but I wouldn't look there until everything else is

> ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> oldest does great on it), then diet, then environmental. Rarely would the

> other 2 meds be the primary problem.

>

> With the Valtrex - are you washing off the blue dye?

>

> What does your kid " look " like - dark circles, or any paleness, etc? What

> are the symptoms - what area did he regress in? We'll be glad to pick apart

> details with you. Please remember that sometimes we will see improvements

> w/things that over the long term can be negatives ... I just got my son off

> diflucan because I couldn't afford the compounding to get dye free, so we

> switched him to Nizoral, and he has really really perked up - it has been

> extraordinary. But he had improved soooo much on the diflucan that I

> overlooked how he started to decline and I didn't suspect it for a while.

> Same w/the Zoloft... he did better on it when he first started, but when

> other meds were added and he started improving from those, the zoloft became

> a big big negative, and I stopped it abruptly one week when it dawned on me

> (it was very low dose so I was able to stop w/out tapering), and I saw

> INSTANT improvement.

>

> The same thing happens in our diets all the time. A food that was just fine

> for the first couple of weeks slowly starts building up - especially things

> w/soy, and especially anything w/any coloring. By the time the negatives

> have really shown up, I've long forgotten that we added this food in, and

> we'll go months before I figure it out and realize they're eating something

> w/soy lecithen in it more often than they did at first.

>

> If you saw improvement on the diet, you will surely see something good from

> the meds when you get that right combination. Something is off, but you can

> solve that puzzle over the next few months.

>

> BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> there w/the pale pink dye - it doesn't look like it has enough to be a

> problem, but give it a few weeks and it will.

>

> If you decide to play w/the meds by stopping one to see if symptoms improve

> - which I don't recommend but many people do without admitting it, and I'll

> admit that I have... don't stop the antiviral. That is the most important

> med NOT to stop (they're all important and I hope Dr G will cycle some of

> them for you very very soon) - the viruses can build up an immunity to them

> during that period. The same can happen by forgetting doses often (I had a

> horrible time remembering the middle of the day one). I once ran out of

> antivirals and Dr G chewed me two new ones. He will get very upset if you

> stop the meds to test them.

>

> HTH-

>

>

> ____________ _________ _________ __

> From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> groups (DOT) com

> Sent: Wednesday, April 15, 2009 7:40:37 PM

> Subject: Re: 4 month regression to meds

>

> We too saw immediate improvements with diet, the medication is slower.

>

> Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> depending on the person and the levels of fungus/virus involved. (The kids

> do seem worse before they improve. And the progress is usually slow, but

> steady.)

> Since your son's regression is so long/consistant/ non-ending, I'd suspect

> the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> WORSE than when we started 4 months ago " (and list all the negatives. Use

> BOLD/CAPITAL letters.

> Sometimes the e-mail/fax updates can be watered down in translation. It'd

> probably be best to talk over the phone to Dr. G at a phone consultation or

> ask to speak to Laurie when you are called back about your update, if she's

> not the one calling you. (She's been there the longest, I believe.)

>

> Another thing to consider is location/allergies. My son has been with Dr. G

> since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> to a seasonal allergy that lasts until March. We step-up allergy meds and

> everything but *it* still affects him. (Not sure if it's the oak,

> cedar/juniper, or even azaleas... or the combination of all.)

>

> - in Mobile, AL

>

> ____________ _________ _________ ________

>

> " You must write for children in the same way as you do for adults, only

> better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

>

> " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

>

> Reality lies beyond the horizon... Wonderwegian

>

> 4 month regression to meds

>

> My son started the protocol diet last July. The results were great.

> However, he began the meds in January and he is going down hill. His teacher

> told me that he had " hit rock bottom " . She was so impressed with how the

> diet was working for him last fall.

> How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> have told Dr. G over and over in emails of his regression. How long will he

> keep on these meds before he trys to switch.

> I am very discouraged.

> Thanks,

>

> Freda

>

> No virus found in this incoming message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

> No virus found in this outgoing message

> Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> http://www.pctools. com/free- antivirus/

>

>

[Guest guest]

Selective Seratonin Reuptake Inhibitors...

Zoloft

Paxil

Prozac

Celexa

From: FREDA CURL <fredacurl@...>

Reply-< >

Date: Thu, 16 Apr 2009 07:10:39 -0700 (PDT)

< >

Subject: Re: 4 month regression to meds

what is ssri???????????????????????

[Guest guest]

what if your kid acts out because of foods? just curious what Dr. G says to do

about that. My kid gets really bad with Ketchup. Crazy, huh?

-

>

> > From: <thecolemans4>

> > Subject: Re: 4 month regression to meds

> > groups (DOT) com

> > Date: Wednesday, April 15, 2009, 7:33 PM

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because

> > of the time factor.  Some kids may have a bit of a problem

> > w/Nizoral, and the rare kid can't tolerate Valtrex, but

> > I wouldn't look there until everything else is ruled

> > out  - mainly, the SSRI 1st (Zoloft made my youngest

> > regress - my oldest does great on it), then diet, then

> > environmental.  Rarely would the other 2 meds be the

> > primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or

> > any paleness, etc?  What are the symptoms - what area

> > did he regress in?  We'll be glad to pick

> > apart details with you.  Please remember that sometimes we

> > will see improvements w/things that over the long term can

> > be negatives ... I just got my son off diflucan because I

> > couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up

> > - it has been extraordinary.  But he had improved soooo

> > much on the diflucan that I overlooked how he started to

> > decline and I didn't suspect it for a while.  Same

> > w/the Zoloft... he did better on it when he first started,

> > but when other meds were added and he started improving from

> > those, the zoloft became a big big negative, and I stopped

> > it abruptly one week when it dawned on me (it was very low

> > dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time.  A food

> > that was just fine for the first couple of weeks slowly

> > starts building up - especially things w/soy, and especially

> > anything w/any coloring.  By the time the negatives have

> > really shown up, I've long forgotten that we added this

> > food in, and we'll go months before I figure it out and

> > realize they're eating something w/soy lecithen in it

> > more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see

> > something good from the meds when you get that right

> > combination.  Something is off, but you can solve

> > that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye

> > free.  Don't even go there w/the pale pink dye - it

> > doesn't look like it has enough to be a problem,

> > but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if

> > symptoms improve - which I don't recommend but many

> > people do without admitting it, and I'll admit that I

> > have... don't stop the antiviral.  That is the most

> > important med NOT to stop (they're all important and I

> > hope Dr G will cycle some of them for you very very soon) -

> > the viruses can build up an immunity to them during that

> > period.  The same can happen by forgetting doses often (I

> > had a horrible time remembering the middle of the day

> > one).  I once ran out of antivirals and Dr G chewed me two

> > new ones.  He will get very upset if you stop the meds to

> > test them. 

> >

> > HTH-

> >

> >

> >  

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> >

> >

> >

> >

> > We too saw immediate improvements with diet, the medication

> > is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only

> > lasts a couple weeks, depending on the person and the levels

> > of fungus/virus involved. (The kids do seem worse before

> > they improve. And the progress is usually slow, but steady.)

> >

> > Since your son's regression is so long/consistant/

> > non-ending, I'd suspect the SSRI. You might need to be

> > firm with a " we NEED to try a new SSRI- he is WORSE

> > than when we started 4 months ago " (and list all the

> > negatives. Use BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in

> > translation. It'd probably be best to talk over the

> > phone to Dr. G at a phone consultation or ask to speak to

> > Laurie when you are called back about your update, if

> > she's not the one calling you. (She's been there the

> > longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has

> > been with Dr. G since Oct 2002 but every year, in mid/late

> > Janurary he starts regressing due to a seasonal allergy that

> > lasts until March. We step-up allergy meds and everything

> > but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of

> > all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do

> > for adults, only better. " -Maxim Gorky (Aleksey

> > Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made

> > up of the lamb he's digested, and I've been reading

> > all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The

> > results were great. However, he began the meds in January

> > and he is going down hill. His teacher told me that he had

> > " hit rock bottom " . She was so impressed with how

> > the diet was working for him last fall.

> > How long does this regression last? He is on Valtrex

> > Nizoral and Zoloft. I have told Dr. G over and over in

> > emails of his regression. How long will he keep on

> > these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >

[Guest guest]

My son did well on what I fed him under the diet and I am not doing

anything different now with the Diet.  I feel in my heart it is the drugs that

is causing much of his current problems.     

From: <jlhank80@...>

Subject: Re: 4 month regression to meds

Date: Thursday, April 16, 2009, 2:41 PM

what if your kid acts out because of foods? just curious what Dr. G says to do

about that. My kid gets really bad with Ketchup. Crazy, huh?

-

>

> > From: <thecolemans4>

> > Subject: Re: 4 month regression to meds

> > groups (DOT) com

> > Date: Wednesday, April 15, 2009, 7:33 PM

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because

> > of the time factor.  Some kids may have a bit of a problem

> > w/Nizoral, and the rare kid can't tolerate Valtrex, but

> > I wouldn't look there until everything else is ruled

> > out  - mainly, the SSRI 1st (Zoloft made my youngest

> > regress - my oldest does great on it), then diet, then

> > environmental.  Rarely would the other 2 meds be the

> > primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or

> > any paleness, etc?  What are the symptoms - what area

> > did he regress in?  We'll be glad to pick

> > apart details with you.  Please remember that sometimes we

> > will see improvements w/things that over the long term can

> > be negatives ... I just got my son off diflucan because I

> > couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up

> > - it has been extraordinary.  But he had improved soooo

> > much on the diflucan that I overlooked how he started to

> > decline and I didn't suspect it for a while.  Same

> > w/the Zoloft... he did better on it when he first started,

> > but when other meds were added and he started improving from

> > those, the zoloft became a big big negative, and I stopped

> > it abruptly one week when it dawned on me (it was very low

> > dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time.  A food

> > that was just fine for the first couple of weeks slowly

> > starts building up - especially things w/soy, and especially

> > anything w/any coloring.  By the time the negatives have

> > really shown up, I've long forgotten that we added this

> > food in, and we'll go months before I figure it out and

> > realize they're eating something w/soy lecithen in it

> > more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see

> > something good from the meds when you get that right

> > combination.  Something is off, but you can solve

> > that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye

> > free.  Don't even go there w/the pale pink dye - it

> > doesn't look like it has enough to be a problem,

> > but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if

> > symptoms improve - which I don't recommend but many

> > people do without admitting it, and I'll admit that I

> > have... don't stop the antiviral.  That is the most

> > important med NOT to stop (they're all important and I

> > hope Dr G will cycle some of them for you very very soon) -

> > the viruses can build up an immunity to them during that

> > period.  The same can happen by forgetting doses often (I

> > had a horrible time remembering the middle of the day

> > one).  I once ran out of antivirals and Dr G chewed me two

> > new ones.  He will get very upset if you stop the meds to

> > test them. 

> >

> > HTH-

> >

> >

> >  

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> >

> >

> >

> >

> > We too saw immediate improvements with diet, the medication

> > is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only

> > lasts a couple weeks, depending on the person and the levels

> > of fungus/virus involved. (The kids do seem worse before

> > they improve. And the progress is usually slow, but steady.)

> >

> > Since your son's regression is so long/consistant/

> > non-ending, I'd suspect the SSRI. You might need to be

> > firm with a " we NEED to try a new SSRI- he is WORSE

> > than when we started 4 months ago " (and list all the

> > negatives. Use BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in

> > translation. It'd probably be best to talk over the

> > phone to Dr. G at a phone consultation or ask to speak to

> > Laurie when you are called back about your update, if

> > she's not the one calling you. (She's been there the

> > longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has

> > been with Dr. G since Oct 2002 but every year, in mid/late

> > Janurary he starts regressing due to a seasonal allergy that

> > lasts until March. We step-up allergy meds and everything

> > but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of

> > all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do

> > for adults, only better. " -Maxim Gorky (Aleksey

> > Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made

> > up of the lamb he's digested, and I've been reading

> > all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The

> > results were great. However, he began the meds in January

> > and he is going down hill. His teacher told me that he had

> > " hit rock bottom " . She was so impressed with how

> > the diet was working for him last fall.

> > How long does this regression last? He is on Valtrex

> > Nizoral and Zoloft. I have told Dr. G over and over in

> > emails of his regression. How long will he keep on

> > these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >

[Guest guest]

Freda,

My daughter wasn't reacting to any foods, then she started after about 3 mo. on

the protocol. But you may be right, it may be the drugs.

Did you ever have a " break " in between die-offs? Have you ever had a " good day "

with him?

-

> >

> > > From: <thecolemans4>

> > > Subject: Re: 4 month regression to meds

> > > groups (DOT) com

> > > Date: Wednesday, April 15, 2009, 7:33 PM

> > > Hi Freda -

> > > I agree w/ - I would first suspect the SSRI because

> > > of the time factor.  Some kids may have a bit of a problem

> > > w/Nizoral, and the rare kid can't tolerate Valtrex, but

> > > I wouldn't look there until everything else is ruled

> > > out  - mainly, the SSRI 1st (Zoloft made my youngest

> > > regress - my oldest does great on it), then diet, then

> > > environmental.  Rarely would the other 2 meds be the

> > > primary problem.

> > >

> > > With the Valtrex - are you washing off the blue dye?

> > >

> > > What does your kid " look " like - dark circles, or

> > > any paleness, etc?  What are the symptoms - what area

> > > did he regress in?  We'll be glad to pick

> > > apart details with you.  Please remember that sometimes we

> > > will see improvements w/things that over the long term can

> > > be negatives ... I just got my son off diflucan because I

> > > couldn't afford the compounding to get dye free, so we

> > > switched him to Nizoral, and he has really really perked up

> > > - it has been extraordinary.  But he had improved soooo

> > > much on the diflucan that I overlooked how he started to

> > > decline and I didn't suspect it for a while.  Same

> > > w/the Zoloft... he did better on it when he first started,

> > > but when other meds were added and he started improving from

> > > those, the zoloft became a big big negative, and I stopped

> > > it abruptly one week when it dawned on me (it was very low

> > > dose so I was able to stop w/out tapering), and I saw

> > > INSTANT improvement.

> > >

> > > The same thing happens in our diets all the time.  A food

> > > that was just fine for the first couple of weeks slowly

> > > starts building up - especially things w/soy, and especially

> > > anything w/any coloring.  By the time the negatives have

> > > really shown up, I've long forgotten that we added this

> > > food in, and we'll go months before I figure it out and

> > > realize they're eating something w/soy lecithen in it

> > > more often than they did at first.

> > >

> > > If you saw improvement on the diet, you will surely see

> > > something good from the meds when you get that right

> > > combination.  Something is off, but you can solve

> > > that puzzle over the next few months.

> > >

> > > BTW - if you end up on Diflucan - get it compounded dye

> > > free.  Don't even go there w/the pale pink dye - it

> > > doesn't look like it has enough to be a problem,

> > > but give it a few weeks and it will.

> > >

> > > If you decide to play w/the meds by stopping one to see if

> > > symptoms improve - which I don't recommend but many

> > > people do without admitting it, and I'll admit that I

> > > have... don't stop the antiviral.  That is the most

> > > important med NOT to stop (they're all important and I

> > > hope Dr G will cycle some of them for you very very soon) -

> > > the viruses can build up an immunity to them during that

> > > period.  The same can happen by forgetting doses often (I

> > > had a horrible time remembering the middle of the day

> > > one).  I once ran out of antivirals and Dr G chewed me two

> > > new ones.  He will get very upset if you stop the meds to

> > > test them. 

> > >

> > > HTH-

> > >

> > >

> > >  

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > > groups (DOT) com

> > > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > > Subject: Re: 4 month regression to meds

> > >

> > >

> > >

> > >

> > >

> > > We too saw immediate improvements with diet, the medication

> > > is slower.

> > >

> > > Die-off from an anti-fungal or anti-viral usually only

> > > lasts a couple weeks, depending on the person and the levels

> > > of fungus/virus involved. (The kids do seem worse before

> > > they improve. And the progress is usually slow, but steady.)

> > >

> > > Since your son's regression is so long/consistant/

> > > non-ending, I'd suspect the SSRI. You might need to be

> > > firm with a " we NEED to try a new SSRI- he is WORSE

> > > than when we started 4 months ago " (and list all the

> > > negatives. Use BOLD/CAPITAL letters.

> > > Sometimes the e-mail/fax updates can be watered down in

> > > translation. It'd probably be best to talk over the

> > > phone to Dr. G at a phone consultation or ask to speak to

> > > Laurie when you are called back about your update, if

> > > she's not the one calling you. (She's been there the

> > > longest, I believe.)

> > >

> > > Another thing to consider is location/allergies. My son has

> > > been with Dr. G since Oct 2002 but every year, in mid/late

> > > Janurary he starts regressing due to a seasonal allergy that

> > > lasts until March. We step-up allergy meds and everything

> > > but *it* still affects him. (Not sure if it's the oak,

> > > cedar/juniper, or even azaleas... or the combination of

> > > all.)

> > >

> > > - in Mobile, AL

> > >

> > > ____________ _________ _________ ________

> > >

> > > " You must write for children in the same way as you do

> > > for adults, only better. " -Maxim Gorky (Aleksey

> > > Maksimovich Peshkov)

> > >

> > > " Don't ask who's influenced me. A lion is made

> > > up of the lamb he's digested, and I've been reading

> > > all my life. " -Giorgos Seferis (Greek Poet)

> > >

> > > Reality lies beyond the horizon... Wonderwegian

> > >

> > > 4 month regression to meds

> > >

> > > My son started the protocol diet last July. The

> > > results were great. However, he began the meds in January

> > > and he is going down hill. His teacher told me that he had

> > > " hit rock bottom " . She was so impressed with how

> > > the diet was working for him last fall.

> > > How long does this regression last? He is on Valtrex

> > > Nizoral and Zoloft. I have told Dr. G over and over in

> > > emails of his regression. How long will he keep on

> > > these meds before he trys to switch.

> > > I am very discouraged.

> > > Thanks,

> > >

> > > Freda

> > >

> > > No virus found in this incoming message

> > > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > > http://www.pctools. com/free- antivirus/

> > >

> > > No virus found in this outgoing message

> > > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > > http://www.pctools. com/free- antivirus/

> > >

> > >

[Guest guest]

Dear Freda,

We're sort of going thru the same thing with our 10yrs old son.  We started this

protocol last January also.  We had to twick the diet just a little bit from

where we were, so i can't say that the diet helped.  The first thing we started

was Famvir & claritin and my son seemed to do well with it for a little while. 

He was sleeping very good & was calmer etc.  Then we started nizoral after may

be a month, that's when things got really bad daily.  Dr. G suspected the

generic nizoral may be the problem, so we just switched to the compounded

version of it about 6 days ago.  We've not seen any improvement yet, infact

today was sooo bad for him with lots of stimming & just jumping around the

house, crying in pain etc.  I gave him motrin which seemed to calm him a

little.  We're thinking it's another round of die off because we took about 4

days off from the generic nizoral while waiting for the compounded nizoral. 

 

I hear what you're saying... IT IS very frustrating especially when you have no

idea which one is the problem med.!  Dr. G. had told us we may switch to

diflucan if my son continues

to have problems with the compounded nizoral also.  I'm thinking may be your son

can't handle nizoral also.  You should ask to switch to diflucan??  From what I

read nizoral is the strongest antifungal and more side effects than the

others(make sure you're checking the liver mthly.)   Also, if you started seeing

the problem when your son was on valtrex, can you ask him to switch to famvir

since that seemed to start the problem??  My son was on valtrex about a year ago

with a DAN doc, but we didn't see any gains so we stopped it after 3mths on

it. We're not able to start the SSRI's yet until we get him to be stable, so I

can't say much about it.

 

I wish you all the best and God bless!!! hang in there, you're not alone!!!!

p.s. How old is your son????

 

From: fredacurl <fredacurl@...>

Subject: 4 month regression to meds

Date: Wednesday, April 15, 2009, 8:07 PM

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

[Guest guest]

My son is 8 in a main stream classroom private school. He is in 1st

grade. Mainly is a good sleeper.  If gets bored his stemming is

running back and forth, but he usually does this at home. 

When was on the diet, he was almost like a " normal child " . 

With the meds, it is almost as bad as it was before the diet.

He did come out of the regression for about 2 weeks. However, it has not has

been good since before the meds.  I have been increasing the Zoloft and that is

when the teacher said he had hit rock bottom.  It all began with the Valtrex.   

 

This is what his teacher has noticed this year.

  

Before meds he was sitting up strait in chair, now he slouches in his

chair.  Before the meds, his writing was neat, now it is awful. Before meds, his

listening skills were improving, now he most of the time stays in a fog.  Before

the meds, he was decoding words more fluently, now he is struggling to pronounce

the words. 

She tells me that the weeks he showed improvement in March, it still was not as

good as December before meds. She tells me she is just sad about his

regression. 

     

  

  On Thu, 4/16/09, Bekele <bekeleelizabeth@...> wrote:

From: Bekele <bekeleelizabeth@...>

Subject: Re: 4 month regression to meds

Date: Thursday, April 16, 2009, 11:54 PM

Dear Freda,

We're sort of going thru the same thing with our 10yrs old son.  We started this

protocol last January also.  We had to twick the diet just a little bit from

where we were, so i can't say that the diet helped.  The first thing we started

was Famvir & claritin and my son seemed to do well with it for a little while. 

He was sleeping very good & was calmer etc.  Then we started nizoral after may

be a month, that's when things got really bad daily.  Dr. G suspected the

generic nizoral may be the problem, so we just switched to the compounded

version of it about 6 days ago.  We've not seen any improvement yet, infact

today was sooo bad for him with lots of stimming & just jumping around the

house, crying in pain etc.  I gave him motrin which seemed to calm him a

little.  We're thinking it's another round of die off because we took about 4

days off from the generic nizoral while waiting for the compounded nizoral. 

 

I hear what you're saying... IT IS very frustrating especially when you have no

idea which one is the problem med.!  Dr. G. had told us we may switch to

diflucan if my son continues

to have problems with the compounded nizoral also.  I'm thinking may be your son

can't handle nizoral also.  You should ask to switch to diflucan??  From what I

read nizoral is the strongest antifungal and more side effects than the

others(make sure you're checking the liver mthly.)   Also, if you started seeing

the problem when your son was on valtrex, can you ask him to switch to famvir

since that seemed to start the problem??  My son was on valtrex about a year ago

with a DAN doc, but we didn't see any gains so we stopped it after 3mths on

it. We're not able to start the SSRI's yet until we get him to be stable, so I

can't say much about it.

 

I wish you all the best and God bless!!! hang in there, you're not alone!!!!

p.s. How old is your son????

 

From: fredacurl <fredacurl (DOT) com>

Subject: 4 month regression to meds

groups (DOT) com

Date: Wednesday, April 15, 2009, 8:07 PM

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

[Guest guest]

I go by what the teacher says mainly, because she is the one that has him most

often.  Also, he is in a structered setting and that is where it is most

difficult for him.  She said he improved for about 2 weeks, but it was not as

good as December before the drugs.    

So, we had about a 2 week break since Janaury. 

He is not having any disipline problems really, just his academics are

suffering. 

The teacher tells me he has been in such a fog and daze that he might as well

stayed home from school since January. 

However, he has a strict teacher and I am trying to keep that in mind. 

She also says he is regressing socially and the children are noticing and

becoming less accepting of him. 

 

 

From: <jlhank80@...>

Subject: Re: 4 month regression to meds

Date: Thursday, April 16, 2009, 9:56 PM

Freda,

My daughter wasn't reacting to any foods, then she started after about 3 mo. on

the protocol. But you may be right, it may be the drugs.

Did you ever have a " break " in between die-offs? Have you ever had a " good day "

with him?

-

> >

> > > From: <thecolemans4>

> > > Subject: Re: 4 month regression to meds

> > > groups (DOT) com

> > > Date: Wednesday, April 15, 2009, 7:33 PM

> > > Hi Freda -

> > > I agree w/ - I would first suspect the SSRI because

> > > of the time factor.  Some kids may have a bit of a problem

> > > w/Nizoral, and the rare kid can't tolerate Valtrex, but

> > > I wouldn't look there until everything else is ruled

> > > out  - mainly, the SSRI 1st (Zoloft made my youngest

> > > regress - my oldest does great on it), then diet, then

> > > environmental.  Rarely would the other 2 meds be the

> > > primary problem.

> > >

> > > With the Valtrex - are you washing off the blue dye?

> > >

> > > What does your kid " look " like - dark circles, or

> > > any paleness, etc?  What are the symptoms - what area

> > > did he regress in?  We'll be glad to pick

> > > apart details with you.  Please remember that sometimes we

> > > will see improvements w/things that over the long term can

> > > be negatives ... I just got my son off diflucan because I

> > > couldn't afford the compounding to get dye free, so we

> > > switched him to Nizoral, and he has really really perked up

> > > - it has been extraordinary.  But he had improved soooo

> > > much on the diflucan that I overlooked how he started to

> > > decline and I didn't suspect it for a while.  Same

> > > w/the Zoloft... he did better on it when he first started,

> > > but when other meds were added and he started improving from

> > > those, the zoloft became a big big negative, and I stopped

> > > it abruptly one week when it dawned on me (it was very low

> > > dose so I was able to stop w/out tapering), and I saw

> > > INSTANT improvement.

> > >

> > > The same thing happens in our diets all the time.  A food

> > > that was just fine for the first couple of weeks slowly

> > > starts building up - especially things w/soy, and especially

> > > anything w/any coloring.  By the time the negatives have

> > > really shown up, I've long forgotten that we added this

> > > food in, and we'll go months before I figure it out and

> > > realize they're eating something w/soy lecithen in it

> > > more often than they did at first.

> > >

> > > If you saw improvement on the diet, you will surely see

> > > something good from the meds when you get that right

> > > combination.  Something is off, but you can solve

> > > that puzzle over the next few months.

> > >

> > > BTW - if you end up on Diflucan - get it compounded dye

> > > free.  Don't even go there w/the pale pink dye - it

> > > doesn't look like it has enough to be a problem,

> > > but give it a few weeks and it will.

> > >

> > > If you decide to play w/the meds by stopping one to see if

> > > symptoms improve - which I don't recommend but many

> > > people do without admitting it, and I'll admit that I

> > > have... don't stop the antiviral.  That is the most

> > > important med NOT to stop (they're all important and I

> > > hope Dr G will cycle some of them for you very very soon) -

> > > the viruses can build up an immunity to them during that

> > > period.  The same can happen by forgetting doses often (I

> > > had a horrible time remembering the middle of the day

> > > one).  I once ran out of antivirals and Dr G chewed me two

> > > new ones.  He will get very upset if you stop the meds to

> > > test them. 

> > >

> > > HTH-

> > >

> > >

> > >  

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > > groups (DOT) com

> > > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > > Subject: Re: 4 month regression to meds

> > >

> > >

> > >

> > >

> > >

> > > We too saw immediate improvements with diet, the medication

> > > is slower.

> > >

> > > Die-off from an anti-fungal or anti-viral usually only

> > > lasts a couple weeks, depending on the person and the levels

> > > of fungus/virus involved. (The kids do seem worse before

> > > they improve. And the progress is usually slow, but steady.)

> > >

> > > Since your son's regression is so long/consistant/

> > > non-ending, I'd suspect the SSRI. You might need to be

> > > firm with a " we NEED to try a new SSRI- he is WORSE

> > > than when we started 4 months ago " (and list all the

> > > negatives. Use BOLD/CAPITAL letters.

> > > Sometimes the e-mail/fax updates can be watered down in

> > > translation. It'd probably be best to talk over the

> > > phone to Dr. G at a phone consultation or ask to speak to

> > > Laurie when you are called back about your update, if

> > > she's not the one calling you. (She's been there the

> > > longest, I believe.)

> > >

> > > Another thing to consider is location/allergies. My son has

> > > been with Dr. G since Oct 2002 but every year, in mid/late

> > > Janurary he starts regressing due to a seasonal allergy that

> > > lasts until March. We step-up allergy meds and everything

> > > but *it* still affects him. (Not sure if it's the oak,

> > > cedar/juniper, or even azaleas... or the combination of

> > > all.)

> > >

> > > - in Mobile, AL

> > >

> > > ____________ _________ _________ ________

> > >

> > > " You must write for children in the same way as you do

> > > for adults, only better. " -Maxim Gorky (Aleksey

> > > Maksimovich Peshkov)

> > >

> > > " Don't ask who's influenced me. A lion is made

> > > up of the lamb he's digested, and I've been reading

> > > all my life. " -Giorgos Seferis (Greek Poet)

> > >

> > > Reality lies beyond the horizon... Wonderwegian

> > >

> > > 4 month regression to meds

> > >

> > > My son started the protocol diet last July. The

> > > results were great. However, he began the meds in January

> > > and he is going down hill. His teacher told me that he had

> > > " hit rock bottom " . She was so impressed with how

> > > the diet was working for him last fall.

> > > How long does this regression last? He is on Valtrex

> > > Nizoral and Zoloft. I have told Dr. G over and over in

> > > emails of his regression. How long will he keep on

> > > these meds before he trys to switch.

> > > I am very discouraged.

> > > Thanks,

> > >

> > > Freda

> > >

> > > No virus found in this incoming message

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> > >

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> > >

> > >

[Guest guest]

>

> I go by what the teacher says mainly, because she is the one that has him most

often.  Also, he is in a structered setting and that is where it is most

difficult for him.  She said he improved for about 2 weeks, but it was not as

good as December before the drugs.    

> So, we had about a 2 week break since Janaury. 

> He is not having any disipline problems really, just his academics are

suffering. 

> The teacher tells me he has been in such a fog and daze that he might as well

stayed home from school since January. 

> However, he has a strict teacher and I am trying to keep that in mind. 

> She also says he is regressing socially and the children are noticing and

becoming less accepting of him. 

>  

The daze and fog *really* sounds like a bad reaction to the Zoloft to me. My

son improved on it for about two weeks, and then he was GONE. It was awful.

Celexa has turned out to be the best SSRI choice for him. I don't know if you

said you were washing off the dye on the Valtrex pills, but that blue dye can

cause bad reactions, as can the dye in the Diflucan. We get that compounded by

Friendly Hills Pharmacy. I think you also mentioned in one of your posts that

he regressed since the first Zyrtec pill...I can't find where I saw that, but

Zyrtec can be a possible cause of all kinds of behavior issues for some kids.

As far as your updates to Dr. G are concerned, it's really important that you

make it as clear as you can that what is happening right now is simply NOT

livable and that you are very discouraged. Four months is too long to not see

*some* kind of progress.

Good luck,

Donna