Re: 4 month regression to meds

[Guest guest]

We have seen regressions in handwriting due to SSRIs, but also due to a

sinus infection. You might want to have your pediatrician take look at his

sinuses, throat and ears just to be sure that they look OK. I believe you

will figure this out. Be very careful as you change variables... if you

change more than one at a time, it may be harder to pinpoint the trouble.

We saw a terrible spaciness with high strep antibodies that was fixed almost

immediately with ERY-Ped.

There are many things that could be the cause, but if you are methodical

about this (and concise and straightforward with Dr. Goldberg about it) I

think you can get it under control.

Be sure to stress how serious these concerns are during your updates and

next phone consultation, and that this is your biggest concern right now.

Some kids do better on Zovirax than Valtrex (one of my sons is this way).

I know that dealing with these things seems like an eternity, but things do

get better for most kids, albeit much of the time at an almost imperceptible

rate, which can be frustrating. It¹s two steps forward, one step back much

of the time.

You might want to ask if there are any labs he wants to run (i.e. an ASO

titer for strep) that might give him some extra clues.

Best of luck.

Caroline G.

[Guest guest]

I do wash off the blue dye. 

From: thefamily007 <donnaaron@...>

Subject: Re: 4 month regression to meds

Date: Saturday, April 18, 2009, 12:41 PM

>

> I go by what the teacher says mainly, because she is the one that has him most

often.  Also, he is in a structered setting and that is where it is most

difficult for him.  She said he improved for about 2 weeks, but it was not as

good as December before the drugs.    

> So, we had about a 2 week break since Janaury. 

> He is not having any disipline problems really, just his academics are

suffering. 

> The teacher tells me he has been in such a fog and daze that he might as well

stayed home from school since January. 

> However, he has a strict teacher and I am trying to keep that in mind. 

> She also says he is regressing socially and the children are noticing and

becoming less accepting of him. 

>  

The daze and fog *really* sounds like a bad reaction to the Zoloft to me. My son

improved on it for about two weeks, and then he was GONE. It was awful. Celexa

has turned out to be the best SSRI choice for him. I don't know if you said you

were washing off the dye on the Valtrex pills, but that blue dye can cause bad

reactions, as can the dye in the Diflucan. We get that compounded by Friendly

Hills Pharmacy. I think you also mentioned in one of your posts that he

regressed since the first Zyrtec pill...I can't find where I saw that, but

Zyrtec can be a possible cause of all kinds of behavior issues for some kids.

As far as your updates to Dr. G are concerned, it's really important that you

make it as clear as you can that what is happening right now is simply NOT

livable and that you are very discouraged. Four months is too long to not see

*some* kind of progress.

Good luck,

Donna

[Guest guest]

This gives me so much info.  I am going to do further research. 

He is not the same child since starting the very first Valtrex pill.  We have

been going backwards since January.  I have really been letting Dr. G know in my

updates, but I have been putting all my faith and trust in him.  Since the

teacher told me he has hit rock bottom, I really put all the info I can think of

in my last update.  We just switch his allergie meds and Dr. G wanted me to wait

until Monday to see how that helped.  It has not.  I have a phone consult on

Tuesday.  I even faxed Dr. G 's hand writing on the DIET to with

the MEDS.  He went from very neat handwriting to chicken stratch.    

 HVV6 went down from 1:60 to 1:10, but that is the only good result I

have seen from all of this.     

From: thefamily007 <donnaaron@...>

Subject: Re: 4 month regression to meds

Date: Saturday, April 18, 2009, 12:41 PM

>

> I go by what the teacher says mainly, because she is the one that has him most

often.  Also, he is in a structered setting and that is where it is most

difficult for him.  She said he improved for about 2 weeks, but it was not as

good as December before the drugs.    

> So, we had about a 2 week break since Janaury. 

> He is not having any disipline problems really, just his academics are

suffering. 

> The teacher tells me he has been in such a fog and daze that he might as well

stayed home from school since January. 

> However, he has a strict teacher and I am trying to keep that in mind. 

> She also says he is regressing socially and the children are noticing and

becoming less accepting of him. 

>  

The daze and fog *really* sounds like a bad reaction to the Zoloft to me. My son

improved on it for about two weeks, and then he was GONE. It was awful. Celexa

has turned out to be the best SSRI choice for him. I don't know if you said you

were washing off the dye on the Valtrex pills, but that blue dye can cause bad

reactions, as can the dye in the Diflucan. We get that compounded by Friendly

Hills Pharmacy. I think you also mentioned in one of your posts that he

regressed since the first Zyrtec pill...I can't find where I saw that, but

Zyrtec can be a possible cause of all kinds of behavior issues for some kids.

As far as your updates to Dr. G are concerned, it's really important that you

make it as clear as you can that what is happening right now is simply NOT

livable and that you are very discouraged. Four months is too long to not see

*some* kind of progress.

Good luck,

Donna

[Guest guest]

Are the meds strictly necessary? Could a supplement replacement do the same

thing? If the diet worked why not stick with what worked?

 Tammy

________________________________

From: FREDA CURL <fredacurl@...>

Sent: Saturday, April 18, 2009 9:51:35 AM

Subject: Re: 4 month regression to meds

My son is 8 in a main stream classroom private school. He is in 1st

grade. Mainly is a good sleeper.  If gets bored his stemming is

running back and forth, but he usually does this at home. 

When was on the diet, he was almost like a " normal child " . 

With the meds, it is almost as bad as it was before the diet.

He did come out of the regression for about 2 weeks. However, it has not has

been good since before the meds.  I have been increasing the Zoloft and that is

when the teacher said he had hit rock bottom.  It all began with the Valtrex.   

 

This is what his teacher has noticed this year.

  

Before meds he was sitting up strait in chair, now he slouches in his

chair.  Before the meds, his writing was neat, now it is awful. Before meds, his

listening skills were improving, now he most of the time stays in a fog.  Before

the meds, he was decoding words more fluently, now he is struggling to pronounce

the words. 

She tells me that the weeks he showed improvement in March, it still was not as

good as December before meds. She tells me she is just sad about his

regression. 

     

  

  On Thu, 4/16/09, Bekele <bekeleelizabeth> wrote:

From: Bekele <bekeleelizabeth>

Subject: Re: 4 month regression to meds

groups (DOT) com

Date: Thursday, April 16, 2009, 11:54 PM

Dear Freda,

We're sort of going thru the same thing with our 10yrs old son.  We started this

protocol last January also.  We had to twick the diet just a little bit from

where we were, so i can't say that the diet helped.  The first thing we started

was Famvir & claritin and my son seemed to do well with it for a little while. 

He was sleeping very good & was calmer etc..  Then we started nizoral after may

be a month, that's when things got really bad daily.  Dr. G suspected the

generic nizoral may be the problem, so we just switched to the compounded

version of it about 6 days ago.  We've not seen any improvement yet, infact

today was sooo bad for him with lots of stimming & just jumping around the

house, crying in pain etc.  I gave him motrin which seemed to calm him a

little.  We're thinking it's another round of die off because we took about 4

days off from the generic nizoral while waiting for the compounded nizoral. 

 

I hear what you're saying... IT IS very frustrating especially when you have no

idea which one is the problem med.!  Dr. G. had told us we may switch to

diflucan if my son continues

to have problems with the compounded nizoral also.  I'm thinking may be your son

can't handle nizoral also.  You should ask to switch to diflucan??  From what I

read nizoral is the strongest antifungal and more side effects than the

others(make sure you're checking the liver mthly.)   Also, if you started seeing

the problem when your son was on valtrex, can you ask him to switch to famvir

since that seemed to start the problem??  My son was on valtrex about a year ago

with a DAN doc, but we didn't see any gains so we stopped it after 3mths on

it. We're not able to start the SSRI's yet until we get him to be stable, so I

can't say much about it.

 

I wish you all the best and God bless!!! hang in there, you're not alone!!!!

p.s. How old is your son????

 

From: fredacurl <fredacurl (DOT) com>

Subject: 4 month regression to meds

groups (DOT) com

Date: Wednesday, April 15, 2009, 8:07 PM

My son started the protocol diet last July. The results were great.

However, he began the meds in January and he is going down hill. His teacher

told me that he had " hit rock bottom " . She was so impressed with how the diet

was working for him last fall.

How long does this regression last? He is on Valtrex Nizoral and Zoloft. I have

told Dr. G over and over in emails of his regression. How long will he keep

on these meds before he trys to switch.

I am very discouraged.

Thanks,

Freda

[Guest guest]

No supplements aren't enough, they aren't near

effective enough. And they aren't tested the way

pharmaceuticals are. Many supplements are impure and

they just make the immune system flare up in our kids.

Diet is not usually enough, if your child have a

Herpes related virus you really need to address it.

I tried supplement after supplement and nothing worked

like has for my kid.

-

May the Lord bless you and keep you!

Visit my blog

http://bloominwhereyourplanted.blogspot.com/

[Guest guest]

I want to give you a follow-up on my son. We took Elijah off of Valtrex a couple

weeks ago. It was a Wednesday. By Friday afternoon he was coming out of the fog.

Monday he was his old self again. His teachers and therapists asked me what I

had done because he was calm, made jokes and played appropriately. I was so

happy. He kept coming up to me and smiling and giving great big bear hugs. The

only common meds that we can attribute his regression to was the Valtrex. He

started it early Jan. and by February started to regress. Unfortuatly we are in

the middle of a yeast flair up now but I finally have my old Elijah back.

Sandy Roll

> >

> > From: <thecolemans4@

> > <mailto:thecolemans4%40> >

> > Subject: Re: 4 month regression to meds

> > <mailto:%40>

> > Date: Wednesday, April 15, 2009, 9:33 PM

> >

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because of the time

> > factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> > can't tolerate Valtrex, but I wouldn't look there until everything else is

> > ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> > oldest does great on it), then diet, then environmental. Rarely would the

> > other 2 meds be the primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or any paleness, etc? What

> > are the symptoms - what area did he regress in? We'll be glad to pick apart

> > details with you. Please remember that sometimes we will see improvements

> > w/things that over the long term can be negatives ... I just got my son off

> > diflucan because I couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up - it has been

> > extraordinary. But he had improved soooo much on the diflucan that I

> > overlooked how he started to decline and I didn't suspect it for a while.

> > Same w/the Zoloft... he did better on it when he first started, but when

> > other meds were added and he started improving from those, the zoloft became

> > a big big negative, and I stopped it abruptly one week when it dawned on me

> > (it was very low dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time. A food that was just fine

> > for the first couple of weeks slowly starts building up - especially things

> > w/soy, and especially anything w/any coloring. By the time the negatives

> > have really shown up, I've long forgotten that we added this food in, and

> > we'll go months before I figure it out and realize they're eating something

> > w/soy lecithen in it more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see something good from

> > the meds when you get that right combination. Something is off, but you can

> > solve that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> > there w/the pale pink dye - it doesn't look like it has enough to be a

> > problem, but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if symptoms improve

> > - which I don't recommend but many people do without admitting it, and I'll

> > admit that I have... don't stop the antiviral. That is the most important

> > med NOT to stop (they're all important and I hope Dr G will cycle some of

> > them for you very very soon) - the viruses can build up an immunity to them

> > during that period. The same can happen by forgetting doses often (I had a

> > horrible time remembering the middle of the day one). I once ran out of

> > antivirals and Dr G chewed me two new ones. He will get very upset if you

> > stop the meds to test them.

> >

> > HTH-

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> > We too saw immediate improvements with diet, the medication is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> > depending on the person and the levels of fungus/virus involved. (The kids

> > do seem worse before they improve. And the progress is usually slow, but

> > steady.)

> > Since your son's regression is so long/consistant/ non-ending, I'd suspect

> > the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> > WORSE than when we started 4 months ago " (and list all the negatives. Use

> > BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in translation. It'd

> > probably be best to talk over the phone to Dr. G at a phone consultation or

> > ask to speak to Laurie when you are called back about your update, if she's

> > not the one calling you. (She's been there the longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has been with Dr. G

> > since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> > to a seasonal allergy that lasts until March. We step-up allergy meds and

> > everything but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do for adults, only

> > better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> > and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The results were great.

> > However, he began the meds in January and he is going down hill. His teacher

> > told me that he had " hit rock bottom " . She was so impressed with how the

> > diet was working for him last fall.

> > How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> > have told Dr. G over and over in emails of his regression. How long will he

> > keep on these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >

[Guest guest]

I switched from Zyrtec to Claritan and he improved a little. We

stayed on the zoloft to see if it was just the Zyrtec and he is still bad off.

I believe Dr. G will switch to paxil, but I have heard of some bad reactions

with it. Please anyone out there, tell me about there experience with Paxil.

Hankinson wrote:

> No supplements aren't enough, they aren't near

> effective enough. And they aren't tested the way

> pharmaceuticals are. Many supplements are impure and

> they just make the immune system flare up in our kids.

> Diet is not usually enough, if your child have a

> Herpes related virus you really need to address it.

> I tried supplement after supplement and nothing worked

> like has for my kid.

> -

> May the Lord bless you and keep you!

> Visit my blog

> http://bloominwhere yourplanted. blogspot. com/

>

[Guest guest]

My kids that did bad on Zyrtec did quite well on Paxil.  Paxil was better for

one of my boys, while zoloft was better for another, but they both did well on

it the first time they took it. 

________________________________

From: FREDA CURL <fredacurl@...>

" jlhank80@... " <jlhank80@...>

Cc: " " < >

Sent: Sunday, May 3, 2009 7:16:16 PM

Subject: RE: Re: 4 month regression to meds

I switched from Zyrtec to Claritan and he improved a little. We

stayed on the zoloft to see if it was just the Zyrtec and he is still bad off. I

believe Dr. G will switch to paxil, but I have heard of some bad reactions with

it. Please anyone out there, tell me about there experience with Paxil.

Hankinson wrote:

> No supplements aren't enough, they aren't near

> effective enough. And they aren't tested the way

> pharmaceuticals are. Many supplements are impure and

> they just make the immune system flare up in our kids.

> Diet is not usually enough, if your child have a

> Herpes related virus you really need to address it.

> I tried supplement after supplement and nothing worked

> like has for my kid.

> -

> May the Lord bless you and keep you!

> Visit my blog

> http://bloominwhere yourplanted. blogspot. com/

>

[Guest guest]

I feel like a broken record.  I have told them over and over he has regressed

since taking the valtrex and I do not know what DR. G is waiting for.  This last

increase of Zoloft has my son so hyper that he is bouncing off the walls.  I can

manage it, but when a teacher is trying to teach a class room full of kids with

no assistant, it is a lot to ask. 

He has got to do an oral prensentation on a science fair project tomorrow and I

am praying it goes well.     

 

-- On Sat, 5/2/09, sandy.roll <roll_house@...> wrote:

From: sandy.roll <roll_house@...>

Subject: Re: 4 month regression to meds

Date: Saturday, May 2, 2009, 7:59 AM

I want to give you a follow-up on my son. We took Elijah off of Valtrex a couple

weeks ago. It was a Wednesday. By Friday afternoon he was coming out of the fog.

Monday he was his old self again. His teachers and therapists asked me what I

had done because he was calm, made jokes and played appropriately. I was so

happy. He kept coming up to me and smiling and giving great big bear hugs. The

only common meds that we can attribute his regression to was the Valtrex. He

started it early Jan. and by February started to regress. Unfortuatly we are in

the middle of a yeast flair up now but I finally have my old Elijah back.

Sandy Roll

> >

> > From: <thecolemans4@

> > <mailto:thecolemans 4%40. com> >

> > Subject: Re: 4 month regression to meds

> > groups (DOT) com <mailto:% 40groups. com>

> > Date: Wednesday, April 15, 2009, 9:33 PM

> >

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because of the time

> > factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> > can't tolerate Valtrex, but I wouldn't look there until everything else is

> > ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> > oldest does great on it), then diet, then environmental. Rarely would the

> > other 2 meds be the primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or any paleness, etc? What

> > are the symptoms - what area did he regress in? We'll be glad to pick apart

> > details with you. Please remember that sometimes we will see improvements

> > w/things that over the long term can be negatives ... I just got my son off

> > diflucan because I couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up - it has been

> > extraordinary. But he had improved soooo much on the diflucan that I

> > overlooked how he started to decline and I didn't suspect it for a while.

> > Same w/the Zoloft... he did better on it when he first started, but when

> > other meds were added and he started improving from those, the zoloft became

> > a big big negative, and I stopped it abruptly one week when it dawned on me

> > (it was very low dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time. A food that was just fine

> > for the first couple of weeks slowly starts building up - especially things

> > w/soy, and especially anything w/any coloring. By the time the negatives

> > have really shown up, I've long forgotten that we added this food in, and

> > we'll go months before I figure it out and realize they're eating something

> > w/soy lecithen in it more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see something good from

> > the meds when you get that right combination. Something is off, but you can

> > solve that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> > there w/the pale pink dye - it doesn't look like it has enough to be a

> > problem, but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if symptoms improve

> > - which I don't recommend but many people do without admitting it, and I'll

> > admit that I have... don't stop the antiviral. That is the most important

> > med NOT to stop (they're all important and I hope Dr G will cycle some of

> > them for you very very soon) - the viruses can build up an immunity to them

> > during that period. The same can happen by forgetting doses often (I had a

> > horrible time remembering the middle of the day one). I once ran out of

> > antivirals and Dr G chewed me two new ones. He will get very upset if you

> > stop the meds to test them.

> >

> > HTH-

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> > We too saw immediate improvements with diet, the medication is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> > depending on the person and the levels of fungus/virus involved. (The kids

> > do seem worse before they improve. And the progress is usually slow, but

> > steady.)

> > Since your son's regression is so long/consistant/ non-ending, I'd suspect

> > the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> > WORSE than when we started 4 months ago " (and list all the negatives. Use

> > BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in translation. It'd

> > probably be best to talk over the phone to Dr. G at a phone consultation or

> > ask to speak to Laurie when you are called back about your update, if she's

> > not the one calling you. (She's been there the longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has been with Dr. G

> > since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> > to a seasonal allergy that lasts until March. We step-up allergy meds and

> > everything but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do for adults, only

> > better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> > and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The results were great.

> > However, he began the meds in January and he is going down hill. His teacher

> > told me that he had " hit rock bottom " . She was so impressed with how the

> > diet was working for him last fall.

> > How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> > have told Dr. G over and over in emails of his regression. How long will he

> > keep on these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >

[Guest guest]

My son did the same thing. Every thing that was supposed to calm him did the

opposite. The only time he was calm was if he was knocked out or really drugged

up. Which we hated but he was becoming violent. We spent a fortune on

prescriptions that did not work. His Dr. went to an Autism conference in April

and they said that the new thing is a nicotine patch. We are not going to try

that until we get the yeast under control. She also said getting off Vatrex is

also a good idea. I hope everything works out. You could take him off of it for

a week and see if there is a difference. Good luck

Sandy Roll

From: fredacurl@...

Date: Wed, 6 May 2009 17:19:21 -0700

Subject: Re: Re: 4 month regression to meds

I feel like a broken record. I have told them over and over he has regressed

since taking the valtrex and I do not know what DR. G is waiting for. This last

increase of Zoloft has my son so hyper that he is bouncing off the walls. I can

manage it, but when a teacher is trying to teach a class room full of kids with

no assistant, it is a lot to ask.

He has got to do an oral prensentation on a science fair project tomorrow and I

am praying it goes well.

-- On Sat, 5/2/09, sandy.roll <roll_house@...> wrote:

From: sandy.roll <roll_house@...>

Subject: Re: 4 month regression to meds

Date: Saturday, May 2, 2009, 7:59 AM

I want to give you a follow-up on my son. We took Elijah off of Valtrex a couple

weeks ago. It was a Wednesday. By Friday afternoon he was coming out of the fog.

Monday he was his old self again. His teachers and therapists asked me what I

had done because he was calm, made jokes and played appropriately. I was so

happy. He kept coming up to me and smiling and giving great big bear hugs. The

only common meds that we can attribute his regression to was the Valtrex. He

started it early Jan. and by February started to regress. Unfortuatly we are in

the middle of a yeast flair up now but I finally have my old Elijah back.

Sandy Roll

> >

> > From: <thecolemans4@

> > <mailto:thecolemans 4%40. com> >

> > Subject: Re: 4 month regression to meds

> > groups (DOT) com <mailto:% 40groups. com>

> > Date: Wednesday, April 15, 2009, 9:33 PM

> >

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because of the time

> > factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> > can't tolerate Valtrex, but I wouldn't look there until everything else is

> > ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> > oldest does great on it), then diet, then environmental. Rarely would the

> > other 2 meds be the primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or any paleness, etc? What

> > are the symptoms - what area did he regress in? We'll be glad to pick apart

> > details with you. Please remember that sometimes we will see improvements

> > w/things that over the long term can be negatives ... I just got my son off

> > diflucan because I couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up - it has been

> > extraordinary. But he had improved soooo much on the diflucan that I

> > overlooked how he started to decline and I didn't suspect it for a while.

> > Same w/the Zoloft... he did better on it when he first started, but when

> > other meds were added and he started improving from those, the zoloft became

> > a big big negative, and I stopped it abruptly one week when it dawned on me

> > (it was very low dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time. A food that was just fine

> > for the first couple of weeks slowly starts building up - especially things

> > w/soy, and especially anything w/any coloring. By the time the negatives

> > have really shown up, I've long forgotten that we added this food in, and

> > we'll go months before I figure it out and realize they're eating something

> > w/soy lecithen in it more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see something good from

> > the meds when you get that right combination. Something is off, but you can

> > solve that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> > there w/the pale pink dye - it doesn't look like it has enough to be a

> > problem, but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if symptoms improve

> > - which I don't recommend but many people do without admitting it, and I'll

> > admit that I have... don't stop the antiviral. That is the most important

> > med NOT to stop (they're all important and I hope Dr G will cycle some of

> > them for you very very soon) - the viruses can build up an immunity to them

> > during that period. The same can happen by forgetting doses often (I had a

> > horrible time remembering the middle of the day one). I once ran out of

> > antivirals and Dr G chewed me two new ones. He will get very upset if you

> > stop the meds to test them.

> >

> > HTH-

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> > We too saw immediate improvements with diet, the medication is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> > depending on the person and the levels of fungus/virus involved. (The kids

> > do seem worse before they improve. And the progress is usually slow, but

> > steady.)

> > Since your son's regression is so long/consistant/ non-ending, I'd suspect

> > the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> > WORSE than when we started 4 months ago " (and list all the negatives. Use

> > BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in translation. It'd

> > probably be best to talk over the phone to Dr. G at a phone consultation or

> > ask to speak to Laurie when you are called back about your update, if she's

> > not the one calling you. (She's been there the longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has been with Dr. G

> > since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> > to a seasonal allergy that lasts until March. We step-up allergy meds and

> > everything but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do for adults, only

> > better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> > and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The results were great.

> > However, he began the meds in January and he is going down hill. His teacher

> > told me that he had " hit rock bottom " . She was so impressed with how the

> > diet was working for him last fall.

> > How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> > have told Dr. G over and over in emails of his regression. How long will he

> > keep on these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >

[Guest guest]

Have you tried Famvir yet?  I know several people who didn't do well on Valtrex

for different reasons but some like you described, and they did well on Famvir. 

An antiviral can be extremely helpful if it is matching up to the child.

HTH

________________________________

From: sandy.roll <roll_house@...>

Sent: Saturday, May 2, 2009 7:59:51 AM

Subject: Re: 4 month regression to meds

I want to give you a follow-up on my son. We took Elijah off of Valtrex a couple

weeks ago. It was a Wednesday. By Friday afternoon he was coming out of the fog.

Monday he was his old self again. His teachers and therapists asked me what I

had done because he was calm, made jokes and played appropriately. I was so

happy. He kept coming up to me and smiling and giving great big bear hugs. The

only common meds that we can attribute his regression to was the Valtrex. He

started it early Jan. and by February started to regress. Unfortuatly we are in

the middle of a yeast flair up now but I finally have my old Elijah back.

Sandy Roll

> >

> > From: <thecolemans4@

> > <mailto:thecolemans 4%40. com> >

> > Subject: Re: 4 month regression to meds

> > groups (DOT) com <mailto:% 40groups. com>

> > Date: Wednesday, April 15, 2009, 9:33 PM

> >

> > Hi Freda -

> > I agree w/ - I would first suspect the SSRI because of the time

> > factor. Some kids may have a bit of a problem w/Nizoral, and the rare kid

> > can't tolerate Valtrex, but I wouldn't look there until everything else is

> > ruled out - mainly, the SSRI 1st (Zoloft made my youngest regress - my

> > oldest does great on it), then diet, then environmental. Rarely would the

> > other 2 meds be the primary problem.

> >

> > With the Valtrex - are you washing off the blue dye?

> >

> > What does your kid " look " like - dark circles, or any paleness, etc? What

> > are the symptoms - what area did he regress in? We'll be glad to pick apart

> > details with you. Please remember that sometimes we will see improvements

> > w/things that over the long term can be negatives ... I just got my son off

> > diflucan because I couldn't afford the compounding to get dye free, so we

> > switched him to Nizoral, and he has really really perked up - it has been

> > extraordinary. But he had improved soooo much on the diflucan that I

> > overlooked how he started to decline and I didn't suspect it for a while.

> > Same w/the Zoloft... he did better on it when he first started, but when

> > other meds were added and he started improving from those, the zoloft became

> > a big big negative, and I stopped it abruptly one week when it dawned on me

> > (it was very low dose so I was able to stop w/out tapering), and I saw

> > INSTANT improvement.

> >

> > The same thing happens in our diets all the time. A food that was just fine

> > for the first couple of weeks slowly starts building up - especially things

> > w/soy, and especially anything w/any coloring. By the time the negatives

> > have really shown up, I've long forgotten that we added this food in, and

> > we'll go months before I figure it out and realize they're eating something

> > w/soy lecithen in it more often than they did at first.

> >

> > If you saw improvement on the diet, you will surely see something good from

> > the meds when you get that right combination. Something is off, but you can

> > solve that puzzle over the next few months.

> >

> > BTW - if you end up on Diflucan - get it compounded dye free. Don't even go

> > there w/the pale pink dye - it doesn't look like it has enough to be a

> > problem, but give it a few weeks and it will.

> >

> > If you decide to play w/the meds by stopping one to see if symptoms improve

> > - which I don't recommend but many people do without admitting it, and I'll

> > admit that I have... don't stop the antiviral. That is the most important

> > med NOT to stop (they're all important and I hope Dr G will cycle some of

> > them for you very very soon) - the viruses can build up an immunity to them

> > during that period. The same can happen by forgetting doses often (I had a

> > horrible time remembering the middle of the day one). I once ran out of

> > antivirals and Dr G chewed me two new ones. He will get very upset if you

> > stop the meds to test them.

> >

> > HTH-

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: C. - Wonderwegian <carriecoxcomcast (DOT) net>

> > groups (DOT) com

> > Sent: Wednesday, April 15, 2009 7:40:37 PM

> > Subject: Re: 4 month regression to meds

> >

> > We too saw immediate improvements with diet, the medication is slower.

> >

> > Die-off from an anti-fungal or anti-viral usually only lasts a couple weeks,

> > depending on the person and the levels of fungus/virus involved. (The kids

> > do seem worse before they improve. And the progress is usually slow, but

> > steady.)

> > Since your son's regression is so long/consistant/ non-ending, I'd suspect

> > the SSRI. You might need to be firm with a " we NEED to try a new SSRI- he is

> > WORSE than when we started 4 months ago " (and list all the negatives. Use

> > BOLD/CAPITAL letters.

> > Sometimes the e-mail/fax updates can be watered down in translation. It'd

> > probably be best to talk over the phone to Dr. G at a phone consultation or

> > ask to speak to Laurie when you are called back about your update, if she's

> > not the one calling you. (She's been there the longest, I believe.)

> >

> > Another thing to consider is location/allergies. My son has been with Dr. G

> > since Oct 2002 but every year, in mid/late Janurary he starts regressing due

> > to a seasonal allergy that lasts until March. We step-up allergy meds and

> > everything but *it* still affects him. (Not sure if it's the oak,

> > cedar/juniper, or even azaleas... or the combination of all.)

> >

> > - in Mobile, AL

> >

> > ____________ _________ _________ ________

> >

> > " You must write for children in the same way as you do for adults, only

> > better. " -Maxim Gorky (Aleksey Maksimovich Peshkov)

> >

> > " Don't ask who's influenced me. A lion is made up of the lamb he's digested,

> > and I've been reading all my life. " -Giorgos Seferis (Greek Poet)

> >

> > Reality lies beyond the horizon... Wonderwegian

> >

> > 4 month regression to meds

> >

> > My son started the protocol diet last July. The results were great.

> > However, he began the meds in January and he is going down hill. His teacher

> > told me that he had " hit rock bottom " . She was so impressed with how the

> > diet was working for him last fall.

> > How long does this regression last? He is on Valtrex Nizoral and Zoloft. I

> > have told Dr. G over and over in emails of his regression. How long will he

> > keep on these meds before he trys to switch.

> > I am very discouraged.

> > Thanks,

> >

> > Freda

> >

> > No virus found in this incoming message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> > No virus found in this outgoing message

> > Checked by PC Tools AntiVirus (5.0.1.1 - 10.100.118).

> > http://www.pctools. com/free- antivirus/

> >

> >