Re: Famvir-not helping?? (probiotics)

February 24, 2009

I think probiotics are very important. BUT I can't take them. I react with bad

sensory issues, restless leg, hypersensitive to touch, OCD, anxiety.

Kyodophilus is the LEAST likely to set that off, and I take it when I can bring

myself to, but I do have to back off the doses if I start feeling very out of

sorts. 90% of the kids should do well on kyodophilus, though, without having

that kind of reaction, and even if you do, it may still be important to tolerate

it and do it anyway.

Septra is a rough antibiotic, though, so the combo of that and not having your

antifungal in place yet is probably half of it. I wouldn't want to stop

probiotics if yeast is kicked up right now. It is also not uncommon for

starting an antifungal to kick up yeast either - Mrs Goldberg posted some info

on how that happens recently - about how that initial shift that begins in the

immune system allows that to happen.

If life is in a total meltdown, I tend to stop what I can to get a baseline, but

most of this isn't negotiable. You don't stop the antivirals - ever - without

instruction - you don't want to give opportunity to resistance, and the same

goes w/the antifungal. You can stop probiotics for a few days (but you should

get permission from Dr G), but you could regret it (I never did). You can stop

the allergy med 3 days to see if it's a trigger or switch to another, but then

you're setting up the possibility of allergy onsets and sinus and ear

infections, so it's best to request a change .... you just can't do too many

changes at once, and you don't want to play around without the doctor's

permission.

You can also do rotation diets to rule out food triggers -my kids are more

sensitive to things they can usually handle after they've been sick, and we may

have to pull a food out for a couple of weeks, but then they can get them back.

I'm sorry you're going thru that. Few things make me shudder more than children

who aren't sleeping. Sleep deprivation is a monster and makes all the rest

difficult to cope with, so make sure you find someone somewhere who will help

you get some extra hours of sleep in!

HTH-

________________________________

From: <jrodrig6605@...>

Sent: Tuesday, February 24, 2009 12:44:57 AM

Subject: RE: Famvir-not helping??

Getting the immune system healthy is what will control the yeast in the long

run. Probiotics is a way to help our children's digestive systems heal and

to keep them working efficiently. The reason our children have all these

food allergies is because their digestive systems are not digesting the food

correctly most likely because the gut lining is damaged. Probiotics and

diet will help fix this problem. Now, based on my son's experience our kids

need large amounts of probiotics. I give my son Custom Probiotics.

www.customprobiotic s.com. Dr. G just ordered a second food allergies test

because he thinks my son's food allergies must be better based on how my son

is doing.

The two links have very good information about this subject.

What You Need to Know About Probiotics for Yeast That Will Restore Your

Health and Immune System to Normal

http://www.yeastinf ectionadvisor. com/probioticsfo ryeast.html

Food Allergies and probiotics

http://www.foodreac tions.org/ articles/ probiotics. html

Thanks,

JR

From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Kristy

Nardini

Sent: Tuesday, February 24, 2009 12:33 AM

groups (DOT) com

Subject: RE: Famvir-not helping??

My experience with probiotics is that they are helpful for maintenance, but

not really for ridding the body of yeast. Is this the case?

Kristy

From: groups (DOT) com <mailto:% 40groups. com>

[mailto:groups (DOT) com <mailto:% 40groups. com> ] On Behalf Of

Sent: Monday, February 23, 2009 10:13 PM

groups (DOT) com <mailto:% 40groups. com>

Subject: RE: Famvir-not helping??

It does sounds like yeast. I know that when kids are in Valtrex (another

antiviral medication) it is recommended that they are also in an antifungal

(Diflucan, Nizoral) to avoid a yeast infection. You need to ask Dr. G about

the antifungal medication and also I would ask about probiotics since your

son has been on antibiotics for 5 weeks.

From: groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com>

[mailto:groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com> ] On Behalf Of

Kristy

Nardini

Sent: Monday, February 23, 2009 11:52 PM

groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com>

Subject: RE: Famvir-not helping??

Dr. G really knows our kiddos, and has helped mine tremendously. It does

sound like yeast. Is your son off dairy and soy? The soy protein is very

similar to casein (cow milk protein), so my son does well off both. He gets

limited white processed wheat (so he's not GF, but he was for 3 years), and

does fine with it.

Kristy

From: groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com>

[mailto:groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com>

<mailto:% 40groups. com> ] On Behalf Of

bekeleelizabeth

Sent: Monday, February 23, 2009 9:20 PM

groups (DOT) com <mailto:% 40groups. com>

<mailto:% 40groups. com>

Subject: Famvir-not helping??

Hi All,

My son(9) has been on Famvir & antibiotic(septra) for about 5wks

now. When we first started he was really miserable... agitated, sleep

disturbance, lots of screaming(struggles with expressive

language),covering ear almost all day, very unsocial etc. etc. He

seemed very in pain all the time. About a week ago he started to

have better sleep and less screaming, a little happy and we were so

excited. Dr.G. had told me to expect that also. But that seemed to

last a couple days and now we're back on the screaming, severe sound

issues, less appetite, waking up at 1am or 2am and just stay wide

awake until 5 or so and back to sleep for about 1 or 2hrs & wakes

again with irritability. Not sure what's causing all this. He's

also on claritin & takes kyodiphilus. .could those be problems or

maybe the famvir is aggrevating something???

Our phone consult is next week, but just wanted to hear from you if

you had the same experience w/famvir & antibiotic. I feel there's

also a yeast flare up. I think Dr.G. will start us on antifungal on

our next consult.

Also, I wanted to ask are some of you on a g/f diet?? I'm suspecting

that it may be a problem also, not that we see a clear reaction, but

just wondering??! ! His food allergy showed very high on

gluten/wheat, but Dr.G. suggested to not do g/f & stick w/white

processed bread. We've been on and off with g/f for years in the

past.

Please share your experiences. Thank you so much.

God bless

February 25, 2009

I just wanted to second what is saying here... you have to be so

careful about making changes.

, my heart goes out to you because your child is having a very hard

time right now and it¹s so difficult to get through those times. I hope

that you can get things smoothed out quickly.

I think by the time your consultation rolls around next week, there¹s a good

change Dr. G will make a change. Make sure you think of everything that

might be a trigger and run those things by Dr. G. Keep everything as stable

as you can as far as diet, etc. I think from what you¹ve written that

you¹ve already got a pretty good running list of ideas. That¹s great...

that¹s just the way you need to be thinking. In my opinion, you have been

very patient in a difficult time waiting this out!

At the beginning of our journey with Dr. Goldberg over 7 years ago, I was

always so anxious to get to the next med... always so anxious to see what it

might help with. Now that we¹ve been at this awhile, our updates tend to

say at almost EVERY med change ³Need more time to observe.² It is so

important to take the time to understand what is going on... for instance

right now we are seeing some angriness and aggression in one of our kids

after a med increase, but he has also come down with a cold... so we¹re

riding this wave to try and figure it out. We know that until he is over

his cold and completely recovered from it, we won¹t be able to rule that out

as a cause. Maybe we¹ll never figure everything out, but we have to do

everything we can to be sure we don¹t make a wrong move on a med. I believe

that we are doing the best we have ever done on the med changes due to a

more conservative attitude as time wears on.

It is really hard to struggle through some of these issues, but the more

patient you can be, the more likely you are to be able to make good

decisions about the meds. Be careful just to make ONE change at a time and

watch it hard. That even means changes in diet, etc.

That said, you can also request to try changing a med (i.e. Maybe going to

Zovirax from Famvir if you suspect that Famvir is not completely controlling

the viral issue but maybe just ³kicking it up², which is what Dr. G

suspected went on with one of our boys... he switched him to Zovirax and has

expressed that he is not interested to go back to Famvir with this

particular child.).

Hang in there...

Caroline G.

From: <thecolemans4@...>

Reply-< >

Date: Tue, 24 Feb 2009 18:09:15 -0800 (PST)

< >

Subject: Re: Famvir-not helping?? (probiotics)

If life is in a total meltdown, I tend to stop what I can to get a baseline,

but most of this isn't negotiable. You don't stop the antivirals - ever -

without instruction - you don't want to give opportunity to resistance, and

the same goes w/the antifungal. You can stop probiotics for a few days (but

you should get permission from Dr G), but you could regret it (I never

did). You can stop the allergy med 3 days to see if it's a trigger or

switch to another, but then you're setting up the possibility of allergy

onsets and sinus and ear infections, so it's best to request a change ....

you just can't do too many changes at once, and you don't want to play

around without the doctor's permission.

February 25, 2009

I really appreciate everyone's respond!! It helps with our confusion here!

I'been noticing Joab not doing well if I do kyodophilus daily, so what I've been

doing was like you said , back off for a day or two when he's having a

terrible day & that seemed to help. I know he needs it now though! We used to

give him custom probiotics during our DAN days, and that didn't agree with him

either. So I'll try and keep it at every other day or so until I talk with

Dr.G. He had mentioned Nizoral before and I think we'll start next wk after

our consult.

I've not stopped the famvir or the antibiotic at all. I've asked if I could

stop the antibiotic but Dr.G. said no. We're trying 2-3 days off from claritin

to see if that's part of the problem. It sounds most of everyone's kid doesn't

seem to do well with it, so it may be the case here too. We'll try zertec if

this's the case, that was what Dr. G. suggested.

Joab had been off cows milk and soy ever since he was 3. He was having goat

products for a while and Dr.G. strictly said to stop due to his high casein

allergy on the test. That doesn't seem to make a difference yet but we'll see.

Thank you all very much again for the support!! We pray that he'll be out of

his pain soon!

God Bless!!!

From: <thecolemans4@...>

Subject: Re: Famvir-not helping?? (probiotics)

Date: Tuesday, February 24, 2009, 9:09 PM