To

[Guest guest]

Thanks so much!! She is getting way too big for my liking sometimes but

she's so much fun at this age.

Taryn

Indiana

>Taryn-

>

> is getting soooo big and is just a doll! Oh

>they grow so fast

>

>The new pics are great!

>

>

[Guest guest]

GREAT, thanks! I hope it works for you this time around! This isn't

too much fun is it?

On a lighter note, I think we're just about done w/Drew's band. I

think it's 3-4 more weeks which would make it a total of 7-8 weeks..

! It's going by quickly and just in time for Halloween...

Lisha

> > HI! new to the group. I have identical twin boys who are now 8

> > months old. We just had their pictures taken and Cranial Tech in

> > Charlotte, NC. and casts done.

> >

> > We have been denied coverage after a months long wait, what was

> > supposed to take 15 business days. HA!

> >

> > Does anyone have experience with appeals that won or know of a

> group

> > that can help you fight, FREE of charge?

> >

> > Seeing Red in Charlotte :-)

> >

> >

> >

[Guest guest]

In a message dated 10/3/2003 9:01:18 PM Eastern Daylight Time, wbilling@... writes:

I mean, we could be total wackos (my husband and I) and you would still be standing there with your hands extended, you know?

-

Well, you know, I do draw the line with wackos! LOLOL! Knowing that you were hopping on a plane to get out of the mess you were in with a prior ill fitting band, I figured you must be pretty good people to go the distance with that! Thank you SO much for your thoughtful post, it really keeps this all in perspective about the importance of helping members with whatever situation they have found themselves in.

I am so flattered that you trusted giving my phone # to your husband, I'm sure he was more worried about me being a wacko than anyone Please continue to share your experience with the board, it is equally important that you share the bad with the good, so that other members will be afforded a round about education on this entire process. I wanted to end my stay here with a summary of all that I've read from literally hundreds of parents, and put myself back in time with how I felt reading and worrying about this process. I hope that if you do keep my post in your backpack (which really made me cry!), it will give you a pick me up on a bad day- because I was offered that same encouragement and it really made a difference. All my best to you, and the offer to help you whenever your in Miami is still standing- whenever you need help, please feel free to call on us. You are such a wonderful mom to make things happen for , and your posts have already helped so many members with your knowledge of this process. Good luck to you and will be a graduate before you know it!

'mom

[Guest guest]

Good luck this afternoon. I cannot imagine that will be fun at all!

> > >

> > >

> > > Hi All...

> > >

> > > I am starting my New Year's Resolution early! I am hoping to

get

> > > tort and plagio on the agenda of our local childbirth/parenting

> > > classes and also provide some info to the lactation depts at

the

> > > hospitals in my town as well as my " old fashioned " family

doctor.

> > >

> > > My question for all of you who have done this before is, what

> kind

> > of

> > > general information did you include, was it successful, what

> didn't

> > > work, etc? I want to make this as effective as possible, but

> don't

> > > want to recreate the wheel.

> > >

> > > Thanks for any suggestions, comments, etc.

> > >

> > > -mom to Aidan banded 8/26/03

> > > GR MI

> > >

> > >

> > >

[Guest guest]

,

I know how you feel about any regression, But when my son got his helmet off he was about nine months. The kids are so mobile at this point they are no longer laying on the heads throughout the day and they move so much during thier sleep there is no way you can be getting up throughout the night to repo her you'll drive yourself crazy. About your other concern I think that you are more aware of it because you know where to look sometimes I look over the top of my son's head to see if I can see anything still off but, nobody else would even know he ever had a problem, especially with your daughter all the doctors told me that a girl is easy to cover a flat spot up because they grow long hair and with a boy you never know if they will shave thier heads or buzz it real short.

I hope this helps.....

(DOCband grads mom)designermother <shoude@...> wrote:

My daughter was DOC banded for 5.5 months (from 4.5-9.5 monthsof age). You could have classified her as a moderate case using the CTassessment graphs for plagiocephaly from the files section, whentreatment began. She had 2 bands - we flew through the first one in 8weeks. At that point our excellent CT orthotist said that she didn'tthink a second band was necessary but that ulimately it would ourdecision as parents to make. Our (also excellent) doctor said he sawit as a borderline case but that he would support us with a secondprescription if felt that we really wanted to do it. So we got thesecond one and got some more correction (we trudged through that onein 14 weeks). Through both bands got very good correction ofher face, ears, and forehead for which we are very thankful. However astubborn flatness behind her

right ear remained throughout treatement.It appears not to be very signifigant (my parents can't see it forexample and don't think there is any problem) but of course, as a nowplagio-aware mother, I can see that plus a tiny bit of forheadassymetry, and so can my husband if he tries. We didn't really consider a third band because the second one seemedto be pushing the extra distance already and a third certainly wasn'tadvised by doctor or orthotist. I didn't even raise the topic sincethe second one seemed to be pushing it. The only time I've reallyconsidered whether we should have done it is last week when I took to her 1 year appointment and saw that her head had grown alot since her nine month visit. I felt a stabbing pain of missedopportunity. In the end I think what it means is simply that shedoesn't have 100% correction, I still notice that, and I'm not "over"it. Perhaps I'm noticing more now that she

is bigger (or possiblybecause I can see her head all the time since its not covered by aband anymore).I was wondering if anyone who's in the post-banding stage couldcomment on whether further improvment continues to happen and/or thesethings become less noticeable (even to a parent). My three year old'shead is so much bigger than 's - do some small shape changeshappen from 1-3?And, a final question about 1 year olds. How important is it to keeprepositioning at night at this stage? Out of paranoia of anyregression I always correct her position at night to get her off theflat side if needed, just in case. The nice thing now (as opposed tothe newborn days) is that she usually stays asleep for a long time inthe new position. I just wondered if any one had any information on this.Thanks for "listening",-For more plagio info

[Guest guest]

I think I just posted an empty one. Sorry new to this. Dr. Blecher

is terrific and I actually did not know he had an office in London

as well. I did some reasearch last night and found it. I was

looking for ideas to decorate Willow's band. ) We don't even

have it yet and I'm all wanting to decorate it already. There was a

Mom there that was thinking of ways and hats to hide the band. I

said that was sad, b/c they are SOOO CUTE. She looked at me like I

had lost my mind. lol Guess Germans think a bit different about

these things. She said that people would look at her child as if he

was " retarded " was her word choice. Made my stomach turn to be

honest. Thanks for the warm welcome and I will post more once

Willow has her band.

Sandy Mom to Willow

--- In Plagiocephaly , " Filyaw " <filyaw@b...>

wrote:

> Sandy and Willow,

> Welcome to the group. She is adorable. She looks about the same

size as my daughter, na (who is also 5 1/2 months old,

6/11/03). I can't believe how calm she was! That is great. Let us

know how the fit goes. I hear Dr. Blecher is very good. I'm very

impressed that he has clinics in Germany and London.

>

>

>

> na/DOC/10-27-03 @ 4.5 mos/SC

> Pictures of Willow's casting

>

>

> Hello again.

> I have posted an album with pictures of Willow's casting and one

of

> her that you can actually see her smile. If I hadn't been there

I

> would have thought casting is the worst thing ever, but my baby

did

> not even cry till after the cast came off and I think it was

only to

> make her point of HEY WHAT ARE YOU DOING TO ME!!!! It was more

an

> angry cry.

> Sandy Mom to Willow tort/band next week

>

>

>

[Guest guest]

Hi Sandy,

I was just like you. I started shopping for paint and supplies a week or two before she got her band. Now I'm trying to decide how we will decorate band #2. We'll be getting it sometime around the 12/10. She's getting casted Tuesday (See I'm doing it again). I can't decide between a Christmas and New Year's theme or a flower and heart patchwork quilt. I'm going to try my hand at painting again. I think it helps people feel more comfortable asking questions when they look so cute in their decorated bands. Decorating it makes it so less medical. People are always saying hi to my daughter and using her name since it's right on her forehead LOL.

Happy hunting.

& na

Pictures of Willow's casting> > > Hello again.> I have posted an album with pictures of Willow's casting and one of > her that you can actually see her smile. If I hadn't been there I > would have thought casting is the worst thing ever, but my baby did > not even cry till after the cast came off and I think it was only to > make her point of HEY WHAT ARE YOU DOING TO ME!!!! It was more an > angry cry. > Sandy Mom to Willow tort/band next week> > >

[Guest guest]

Hi ,

Thanks for the info on your plan. Interesting that your state board helped. Did

they

speak to your employer and then the employer overruled the insurance company or

how did it all work in your case? We actually live in Maine so in the end I may

contact

the Maine insurance bureau for help if all else fails (even though, as you say,

they

have no jurisdiction over this). Very interesting to hear your case.

Thanks,

Mark

> Hi all,

>

> Thank you very much to those who provided me with information on dealing with

> employers' self-funded insurance plans. I found it extremely helpful to hear

from

> others with the same type of insurance and in the same boat as we are. We are

> sending a letter to the insurance company asking for the exact reason for the

denial

> and we will go from there with the appeals. Even though we cannot get help

from

the

> state insurance bureau (they don't get involved in self-funded plans) it is

good to

> know that in the end the employer has the final say in determining benefits. I

guess

if

> the employer refuses then the only option left is to sue them. How messy would

that

> be :-). I really can't imagine the employer refusing the claim, but who knows,

they

are

> quite fiscally minded. Guess the next contract negotiation would have to

include an

> extra few thousand dollars to cover the band :-).

>

> : is doing extremely well thank you and has grown quite a bit (as

the

> clinician said, " he is growing pretty well for an old man " ). He has been

banded 10

> weeks but we haven't discussed a time frame yet, maybe I will bring it up at

the

next

> appointment. Speaking of getting done before too much snow falls, too late!!!

We

got

> 27 inches last weekend and I guarantee it will stay until April.

>

> Thanks again everyone,

>

> Mark ('s dad)

>

>

>

> For more plagio info

[Guest guest]

Hi ,

Sorry I missed your post earlier. Thanks very much for sharing your story, I

truly

appreciate it. I would absolutely love to have a copy of that letter, might help

especially when it comes time to ask the employer to overrule the insurance

company. We will be away until the 29th, should I e-mail you with a fax number?

If

so, is it your e-mail where I would send it?

Thanks again,

Mark

> > Hi all,

> >

> > Thank you very much to those who provided me with information on dealing

with

> > employers' self-funded insurance plans. I found it extremely helpful to hear

from

> > others with the same type of insurance and in the same boat as we are. We

are

> > sending a letter to the insurance company asking for the exact reason for

the

> denial

> > and we will go from there with the appeals. Even though we cannot get help

from

> the

> > state insurance bureau (they don't get involved in self-funded plans) it is

good to

> > know that in the end the employer has the final say in determining benefits.

I

guess

> if

> > the employer refuses then the only option left is to sue them. How messy

would

> that

> > be :-). I really can't imagine the employer refusing the claim, but who

knows,

they

> are

> > quite fiscally minded. Guess the next contract negotiation would have to

include

an

> > extra few thousand dollars to cover the band :-).

> >

> > : is doing extremely well thank you and has grown quite a bit (as

the

> > clinician said, " he is growing pretty well for an old man " ). He has been

banded 10

> > weeks but we haven't discussed a time frame yet, maybe I will bring it up at

the

> next

> > appointment. Speaking of getting done before too much snow falls, too

late!!! We

> got

> > 27 inches last weekend and I guarantee it will stay until April.

> >

> > Thanks again everyone,

> >

> > Mark ('s dad)

> >

> >

> >

> > For more plagio info

[Guest guest]

,

I have a letter from the Arizona State Board of Insurance stating that Cigna should be paying the DOCband under DME, I know this is not the issue for you yet but if you need a copy of the letter let me know.

Thanks,

renee_oriarte <RORIARTE@...> wrote:

THANK YOU TO EVERYONE WHO REPLIED TO MY POST. I FORGOT TO MENTION MY INS IS PACIFICARE OF ARIZONA (WERE IN TUCSON - 78 DEGREES:) I WILL CHECK OUT ALL OF YOUR SUGGESTIONS, I REALLY APPRECIATE THE ADVICE! I NEED TO APPEAL, I'M STILL PAYING ON MY CO-PAYS FROM THEIR BIRTH. THIS INSURANCE APPEAL PROCESS IS OVERWHELMING. BUT I'M TOUGH, I JUST NEED CONFIDENCE. I ALSO JUST FOUND OUT THAT STATE AID COVERS THE BANDS/HELMETS! WE PAY INSURANCE PREMIUMS EVERY PAYCHECK AND THEY DON'T COVER ANYTHING. IT'S FUSTRATING. I'LL KEEP IN TOUCH, - I STILL HAVEN'T RECEIVED THE LETTER! I THINK I'M JUST GOING TO START ON THE APPEAL. > > HI EVERYONE! MY 4 MO DAUGHTER HAS RECENTLY BEEN

DIAGNOSED WITH > > SEVERE PLAGIO. SHE IS 11CM OFF, SHE IS A TWIN, AND HER SISTER IS > > ONLY 3CM OFF. I USUALLY HANDLE SITUATIONS VERY WELL, BUT THIS HAS > ME > > A NERVOUS WRECK. I'M AWAITING MY DENIAL LETTER, IT WAS MAILED > 1/9. > > I THINK THE REASON FOR DENIAL IS "NOT A COVERED BENIFIT". HAVE ANY > > OF YOU HEARD OF ANYONE APPEALING THIS ONE, AND IS IT EVEN WORTH > IT? > > I THINK I WOULD LOSE.For more plagio info

[Guest guest]

,

Do you have a fax number?renee_oriarte <RORIARTE@...> wrote:

HI LAUREN!IF POSSIBLE I WOULD LIKE A COPY OF THAT LETTER. ANYTHING WOULD HELP.THANKS, RENEE> > > HI EVERYONE! MY 4 MO DAUGHTER HAS RECENTLY BEEN DIAGNOSED WITH > > > SEVERE PLAGIO. SHE IS 11CM OFF, SHE IS A TWIN, AND HER SISTER IS > > > ONLY 3CM OFF. I USUALLY HANDLE SITUATIONS VERY WELL, BUT THIS > HAS > >

ME > > > A NERVOUS WRECK. I'M AWAITING MY DENIAL LETTER, IT WAS MAILED > > 1/9. > > > I THINK THE REASON FOR DENIAL IS "NOT A COVERED BENIFIT". HAVE > ANY > > > OF YOU HEARD OF ANYONE APPEALING THIS ONE, AND IS IT EVEN WORTH > > IT? > > > I THINK I WOULD LOSE.> > > > For more plagio info

[Guest guest]

I sent it let me know if you got it O.K.renee_oriarte <RORIARTE@...> wrote:

HI LAUREN!SORRY IT'S TAKEN ME SO LONG TO REPLY...I DO HAVE A FAX NUMBER IT'S 520-628-7329. IT'S MY OFFICE FAX, CAN YOU ATTN IT TO RENEE. THANK YOU I REALLY APPREACIATE YOUR HELP > > > > HI EVERYONE! MY 4 MO DAUGHTER HAS RECENTLY BEEN DIAGNOSED WITH > > > > SEVERE PLAGIO. SHE IS 11CM OFF, SHE IS A TWIN, AND HER SISTER > IS > > > > ONLY 3CM OFF. I USUALLY HANDLE SITUATIONS VERY WELL, BUT THIS > > HAS > > > ME > > > > A NERVOUS WRECK. I'M AWAITING MY DENIAL LETTER, IT WAS MAILED > > > 1/9. > > > > I THINK THE REASON

FOR DENIAL IS "NOT A COVERED BENIFIT". HAVE > > ANY > > > > OF YOU HEARD OF ANYONE APPEALING THIS ONE, AND IS IT EVEN WORTH > > > IT? > > > > I THINK I WOULD LOSE.> > > > > > > > For more plagio info

[Guest guest]

- Do you have any pics posted??

-----Original Message-----From: Spring [mailto:las313@...] Sent: Monday, February 16, 2004 5:58 PMPlagiocephaly Subject: Re: To Margo: Thanks for the reply!

has pretty much hair. But it's very light and fine. His hair is getting a bit long now. It's more noticable without the band as to how long. His dad has started calling him a little hippie!

and (DOCgrad/10-7-03 to 2-13-04 @10mos/PA)Margo <mizellm@...> wrote:

- Hi! Thanks for responding! I know what you mean about thinking things look great and then looking again & wondering. I do that a lot with . Mostly right before I put him in the tub. Before his hair gets wet his head looks great, then his hair gets wet & lays flat against his head & it just looks so flat! Hair helps! Does Mathew have a lot? I guess as Mom's we tend to look a bit too closely sometimes, you know? I mean, we'll see things others would never even notice. Thanks again for responding & for giving me some hope!! :-) Margo

-----Original Message-----From: Spring [mailto:las313@...] Sent: Sunday, February 15, 2004 7:21 PMPlagiocephaly Subject: Re: To Margo: Congrats to

Hi Margo,

I actually felt Mathew had a slow start. I felt like I didn't see much progress in the first month, and I was getting discouraged then. I think it all depends on when they have their growth spurts. And at 2 months, I was still figuring we'd have to be in it for a lot longer. I was trying not to get my hopes up in case we did.

And actually, if we were going for perfection, we'd probably have to get another band. But since his assymetry went down to 3mm and that is within normal range, we decided not to. I tell you, yesterday, I thought his head looked great. However, I just looked at it now, and I thought, maybe I should keep the band on another 2 weeks. (They made one final adjustment in case we wanted to use it an additional 2 weeks). But then I felt it again, and it didn't seem bad. I guess once a member of the plagio police, always a member.

We'll be hoping for some good growth spurts for you in the next few weeks!

and (DOCgrad/10-7-03 to 2-13-04/Warrington, PA)

Margo <mizellm@...> wrote:

- Congratulations! I know you're loving that sweet little head aren't you?! I'd like to ask you a question. My son has had his band for almost 2 and a half months. I see that had his for a little over four. Did you begin to get discouraged around the two month mark? Did it seem as though his progress was slow at that point? My baby's head has seen a lot of progress since he's been wearing his band, but it seems to be slowing down. Our goal is for him to graduate by the time his first birthday gets here. That will be in April, & he will have worn it a little over 4 months then. Do you see any hope of that happening? When hit the two month mark did you imagine that he would have graduated two months later? Or did it seem as though he had a long time to go? Am I making any since? Hope you can offer me some words of encouragement. Thanks. MargoFor more plagio info

[Guest guest]

Forgot to change the subj. line. SOrry

> Yes, please keep me in the loop. It is great to hear that

is

> getting good correction. I am keeping my fingers crossed for you

> guys. We ended tx at 1mm. Maybe you guys have only a bit more to

> go. Wouldn't that be great.

> Sandy

>

>

> > Hi Sandy,

> > We got see Dr. Blecher this coming Thursday. I don't know why,

> but

> > I always get so anxious to go and see how is doing. He

> was .7

> > (hope this is written right...) ast time. I hope we get to take

> it

> > off, but after reading Ian's report on his son who had the same

> > measurement to start with as , I'm sure we'll be leaving it

> on

> > too. I'm crossing my fingers though, we're really pleased with

> the

> > rounding so far. I'll let you know what happens!

> >

> > PS..Thanks for wondering about us!

[Guest guest]

Sandy,

I posted Willow's pictures in her folder. Did Dr. Blecher do an exit

cast?

> > > > Hello everyone

> > > > Yesterday when we went for Willow's physical therapy she was

> in

> > > such

> > > > an angle to me that I could see her ears, and that they are

> off

> > by

> > > a

> > > > LOOOOOT. Also her head still seems to be in this

> parallelogram

> > > > shape. I will try to post a picture that I took this morning

> so

> > > you

> > > > can see what I am talking about. All this after we are done

> with

> > > > helmet therapy. I just wanted to start crying and screaming

> and

> > > > throw a fit that kids do. (anyone found themselves in that

> > > boat)?

> > > > Of course I did not and I was just quiet all night long and

> slept

> > > on

> > > > it. So this morning I went photo crazy and finally got the

> angle

> > > > that I saw it at. My husband keeps saying that it's me and

> that

> > I

> > > > should leave it alone now. I wonder if Willow went flat

after

> we

> > > > took the helmet off all over again even though it's said that

> > that

> > > > is very very rare. I just don't know and I'm just CRUSHED.

I

> > > want

> > > > her to be able to pick up sunglasses from a wrack and not

have

> to

> > > > special order them. My husband thinks I am crazy and that it

> is

> > > > nothing but a thing later on in life. I find myself OBSESSED

> now

> > > > and can't seem to let go. Personally I would really want a

> > second

> > > > helmet on her, but I doubt that will happen esp b/c it is

> > probably

> > > > not close to as bad as I think it is. Ok I will go and try

to

> > > post

> > > > the pic that I was talking about. Thanks for listening.

> > > > By the way I did email her doc and sent him the pictures as

> well

> > > so

> > > > I will have an answer from him soon. He is great in replying

> to

> > > > conserns. Thank goodness that we don't have to battle the

> docs

> > on

> > > > this one.

> > > > Sandy Willow's mom

[Guest guest]

You are sooo NOT alone. )

Sandy Will's Mom

> > Hello again

> > Well, our doc replied me already and said that Willow's

cartledge

> > (spelling???) is somewhat different in her ears, but that it is

no

> > problem whatsoever and that her head looks good.

> > I guess it really is ME!!! I must have stared at her head for

soo

> > long that I see every pimple and every bump. Any good

suggestions

> > on how to stop this obsession? lol

> > thanks

> > Sandy Willow's obsessed Mom

> >

> >

> >

> > For more plagio info

[Guest guest]

You described in detail our appointment today. He wasn't even

looking and pointed it out. He even pointed out that she is flat in

the back in general, but compared to the way it was this was good.

He also met a Neurosurgeon at a conference that he attended for

plagio that was absolutely against banding in every way there was

b/c there was just not enough research done on this topic and that

it was still very contraversial. Our Ped is actually pretty band

friendly. He had someone in close family that has a FLAAAAT back,

and he is grown up so he knows that not all kids round out. This

neurosurgeon got him thinking though. He is the type of doc though

that will tell you what options are out there and will make it

possible to get, BUT it is in the end the parent's decision which

way they want to go. Even if nothing happens for Willow as far as

rounding out more from here on we were lucky to have our Ped and to

have the rounding we did. I know this and I am thankful. Just

don't want people to think that I'm all misarable about her

head. ) Thank you tons for replying.

Sandy Willow's Mom

> > > > Hello all

> > > > I've posted on the Tort board as well. Willow went for her

> > > general

> > > > follow up today. Torticollis / plagiocephaly /

developmental

> > > > delay / low muscle tone / +some other issues of her being a

> > > preemie.

> > > > Her torticollis IS resolved woohoo then to the back of her

head

> > > her

> > > > ped said that it was looking soo much better, but he still

def

> > > sees

> > > > that flat that I see. )~ to my hubby when he mentioned

the

> > flat

> > > > that my husband sais is not there. My husband then had to

> admit

> > > to

> > > > it in front of someone else.. HA!!!!! SPeically sinse I was

> NOT

> > > the

> > > > one that brought up her head in the first place. It was her

> > Ped.

> > > > It felt soooo good, b/c finally my husband admited to me not

> > being

> > > > the one that imagines things. Her PT from EI was here

today

> as

> > > > well and also still sees the flat area and the asym. We go

for

> > > > follow up Neurology next month on the 5th and then sometime

> > after

> > > > the 10th we see Dr. Blecher again. It will be very

interesting

> > to

> > > > me to find out the mesurements b/c I think for sure that

> > Willow's

> > > > head looked better when she graduated in Feb. I know

> > reflattening

> > > > is rare, but I would swear it's gotton worse again. If this

is

> > > b/c

> > > > Willow has grown then it would blow the whole statement of

it

> > gets

> > > > less knowticable as they get bigger out the door.

> > > > Thank you all for the needed support. I bet most of you

kind

> of

> > > > know how it feels to be made out to be the bad guy that is

> never

> > > > happy. That is how I felt the last few days. Now I do know

> > that

> > > > her head isn't all that great yet and that I'm not the only

one

> > > that

> > > > sees it. Thanks

> > > > Sandy Willow's Mom

[Guest guest]

Hi -

I just checked my email. Thank you for emailing me. We were very busy

today, long day. I will definitely call you. When would be the best

time to talk? I am having family over tomorrow, but I can still call.

I really have several questions.

I checked your photo album of your children. They are simply

adorable!!!! Our son's have a lot in common. Not only do they have the

same head type, but they have the same activity set! ;-) I wish you had

updated photos of 's progress in your album. There is a big

difference in his May 2003 to July 2003 photos. Great improvement in

the above photo shots. Since you have a docband, do you have those

results shot photos?

I am really sorry about how you were treated by Orthomerica. When they

said they couldn't have you go to Orlando for the scan, was it because

the scan was at the Manufacturing building or an Orthotist? You see, in

Winter Park there is now an Orthotist that has a scanner. We are not

going to Orthomerica for the scan. set up an appointment with the

closest Orthotist to us that has a scanner (which is in Winter

Park-close to Orlando).

I would like to talk about your experience with the Docband and the

travel to Miami. What a great mom you are!!!! That was an amazing

commitment. I admire you for that. I would do the same, if I knew what

band would give best results. But, it seems to be more on the fitting

and the Orthotist. Is your son still wearing a band? I want to know how

he did with his band, how long he needed to wear it, and if you are

happy with the results. Did he have any side effects from the Docband?

I am so sorry he had a horrible skin problem with the Starband. Is the

material they use for each helmet that different? or was it the fit?

Dr. Carey did say , in her eyes was mild to moderate. That is why

she thought, she wouldn't band him if it was her child. She said she

sees A LOT worse. I think just charmed her so much, he was in

super sweet mode the time he saw her. ;-) (all kidding aside). She left

it to us and want us to try putting him on his side to sleep to see if

there was any change. Well, he still has the same head after a month of

side sleeping. No change at all (such a bummer). I told her I have been

repositioning him since he was 3 months, except for the sleep ( he was

always on his back because of the SIDS scare). It is exhausting to make

sure he never gets back time. A friend once said to me, the first

couple months of your child's life you are there at every whim. The

rest of their life your trying to recondition them to not need you at

every whim. I feel that way about the back thing. Three months of back

reclining (swing, car seat, bouncy) and sleep; since then I am trying

everything to make sure he doesn't go on his back ( jumper, activity

set, tummy time, booster chair). GOOD GRIEF.

Well, I hope we will be able to talk on Sunday or Monday.

Thank you again for getting in touch with me. I am looking forward in

talking to you!

Krissy

ph's mom

On Apr 24, 2004, at 8:17 PM, Billingsley wrote:

> Did you get my email regarding my phone number?  I sent it to you

> individually.  Please call me regarding the banding process and the

> brachy head.  I want to be more clear regarding what you may expect

> with going forward with the banding process.  Although all babies are

> different, our plagio/brachy story may give you some insight as to the

> " rounding " factor with a band.  My son was about 8 mos old when he got

> his first DOCBand.  He is now 15.5 mos.  You can see his pics under

> B. 

>  

> Thanks---

>

>

> For more plagio info

[Guest guest]

Hi -

I just emailed you my phone number.

I looked at your photos of Cole and he is adorable!!! He has the same

shaped head as .LOL! How old is he? Does he have Tort?

Krissy

ph's mom

On Jun 6, 2004, at 12:35 AM, twiturpated wrote:

> Thank you for the info Krissy. I would love to discuss this more

> with you sometime. I am really intrested in the scanner. It sounds

> so much easier than casting. I just want to make sure that I am

> making the right choice for my son, not jut choosing the closest

> place. We actually live in Lake Placid. I think we are like 2 or 3

> hours south of you, but I am awful at directions. I have pic's of

> Cole posted under " our Plagio kids " " Cole " . My email address is

> counslor@... I really appiciate your help.

>

>>>>> Hi Everyone-

>>>>>

>>>>> I just posted some photos of . ( ph Album). I

> have

>>>> photos of his head after

>>>>> 1 month and his new stickers on his helmet. We had a lot of fun

>>>> decorating his helmet.

>>>>> Please look when you get a chance!

>>>>>

>>>>> Thanks,

>>>>> Krissy

>>>>> ph's mom

>>>>> Starband 5/28/04

>>>

>>>

>>>

>>>

>>> For more plagio info

[Guest guest]

Hi there. I just read your post. I am very interested in this. My son started a DOC Band at 17 1/2 months. He's been in it for a month and I have noticed astonishing results. Is Dr. s in touch with CT? He sounds very knowledgeable. I will ask the CT folks about this when we go on the 16th. I would hate to have to pay for another Band, but what you said makes sense. Thanks.

, 18 mos, tort, plagio, DOC Band 5/7

On Sun, 06 Jun 2004 06:30:57 -0000 " from SC" <geodmj@...> writes:

Hi ,Those pictures of Hannah are adorable! It's like she has her ownlittle support group there!Thursday we had a really good appointment with cranial facial surgeon,Dr. s; he was terrific. Have you heard of him at any ofthe moderators' conferences? Anyway, he agreed a second DOC Band wouldbenefit Meredith. She just turned 15 months old and has been in herband for 15 weeks now. Dr. s also diagnosed slight torticollisand slight head tilt; until we saw him, we were told Mer just had alittle neck tightness, but not torticollis. We will continue with theneck exercises CT recommended and try some other things Dr. ssuggested. He also said he thinks older babies that can benefit from two bands,do better if they don't go the full 4 months in the first one beforemoving into the next one. He said perhaps wearing the band for 3months and then getting another band can be more effective thanwearing one for 4 months and then starting again with another. I thinkit has to do with keeping those holding points really holding andbecause bands lose some of that gentle pressure after awhile. Forolder babies whose head growth rate is slowing down as they approachthat 24 month mark, two rounds of shorter treatment may be better.Have you heard other specialists talk about this at any of theseminars or conferences you've attended? It makes sense to me, justwanted to know if you've heard that also.Thanks , from SCFor more plagio info

[Guest guest]

Sorry to but in here, but I couldn't help notice your comment about ear displacement. I thought and have been told that a band would not help the misalignment of my daughter's ears. They are still off at 8 mos and we are repositioning for the plagio. Angelina has tort as well - would you mind commenting on what you have been told about the ears??

in , B.C. mom to Angelina 8 mos

-----Original Message-----From: [mailto:mommy2lake@...]Sent: Tuesday, June 15, 2004 3:57 PMPlagiocephaly Subject: Re: Paige & Liz in AZHi Liz!My 3 month old son Lake and I are in AZ and new to the plagio community also. We just had our consultation with Cranial Tech, who definitely recommended he be banded due to ear displacement, and we also have a neurologist appointment on Thursday. Do you know when the channel 12 segment will air? We are also awaiting a response from United Healthcare, but from reading the boards it doesn't look too good. We are keeping our fingers crossed though! Let us all know how it goes!> Just an update on Paige..she is responding wonderfully to the > helmet. I found out that it is new and only manufactured here in > the valley. She is able to take it off for short periods (like to > clean it) and gets the "itchies" but it seems to go away after a > couple of minutes. She developed a rash on her neck from the > padding so her ortho took it out.> At her last appt. I was talking to her ortho about this group and he > thought it was great that so many are working to make plagio > noticed. Channel 12 news had just stopped by the Hanger office to > do an interview with him and some of the other orthos and to look at > the helmets they use.> I personally never knew that so many insurance companies have a > problem approving these devices. We have Community Connection and > the only sidetrack we had was that they wanted us to go to Hanger > instead of CTI. I like to "educate" people on plagio, whenever I > get asked about the helmet I give them the whole public service > announcement. Most people assume she got it from bad positioning > which isn't true.> I hope everyone's babies are doing great and thinking "round" > thoughts!> > Liz & Paige in AZFor more plagio info

[Guest guest]

Hi again!

The PT that looked at my son did tell me that the band would help

with the ear displacement. I honestly don't know if it will

completely fix it, and I had so many other questions at the time I

didn't ask. He doesn't have any up & down misalignment, one ear is

just pushed further forward than the other. She did tell me that

when everything gets moved the ears should move as a result. Anyone

else have some input?

> > Just an update on Paige..she is responding wonderfully to the

> > helmet. I found out that it is new and only manufactured here

in

> > the valley. She is able to take it off for short periods

(like to

> > clean it) and gets the " itchies " but it seems to go away after

a

> > couple of minutes. She developed a rash on her neck from the

> > padding so her ortho took it out.

> > At her last appt. I was talking to her ortho about this group

and

> he

> > thought it was great that so many are working to make plagio

> > noticed. Channel 12 news had just stopped by the Hanger

office to

> > do an interview with him and some of the other orthos and to

look

> at

> > the helmets they use.

> > I personally never knew that so many insurance companies have a

> > problem approving these devices. We have Community Connection

and

> > the only sidetrack we had was that they wanted us to go to

Hanger

> > instead of CTI. I like to " educate " people on plagio,

whenever I

> > get asked about the helmet I give them the whole public service

> > announcement. Most people assume she got it from bad

positioning

> > which isn't true.

> > I hope everyone's babies are doing great and thinking " round "

> > thoughts!

> >

> > Liz & Paige in AZ

>

>

>

> For more plagio info

[Guest guest]

Hi Ana,

I resized Ignacio's picture for you. He looks so cute!

> Hi ... I was finally able to post Ignacio's pic to the front

> page star file so that I can see his " grad pic " in the front page

> sometime... I guess most probably for X-Mas or next year since I

see

> there are a lot of beautiful babies waiting for their two weeks of

> fame... lol

>

> I noticed that most of the files are between 40 to 60kb and mine

> occupied 330kb or so. I guess I did something wrong so can you

> please check to see if you can solve the problem... or just let me

> know what I'm suppossed to do? I really don't want to be occupying

> that much space since I know there are other members that want to

> upload their files.

>

> Thank you!!

>

> Annie

> Mom to twins, Ignacio (DOC Grad 5/17/04) &

> San , PR

[Guest guest]

Annie,

Ignacio is such a cutie!

--- " Ana B. Castro " <anniecastro1971@...> wrote:

> Hi ... I was finally able to post Ignacio's pic

> to the front

> page star file so that I can see his " grad pic " in

> the front page

> sometime... I guess most probably for X-Mas or next

> year since I see

> there are a lot of beautiful babies waiting for

> their two weeks of

> fame... lol

>

> I noticed that most of the files are between 40 to

> 60kb and mine

> occupied 330kb or so. I guess I did something wrong

> so can you

> please check to see if you can solve the problem...

> or just let me

> know what I'm suppossed to do? I really don't want

> to be occupying

> that much space since I know there are other members

> that want to

> upload their files.

>

> Thank you!!

>

> Annie

> Mom to twins, Ignacio (DOC Grad 5/17/04) &

> San , PR

>

>

__________________________________________________

[Guest guest]

I agree Dara - even though we got so rudely interrupted by

dixondara <dixondara@...> wrote:

Nice chat, thank you.Dara in OK.For more plagio info