Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 There is not an official test. You can have ASO titers drawn (checks the enzyme that responds to strep) to see if they are very elevated. Then, depending on the reading, you have to determine if there has been a recent infection (which is the primary reason ASO titers can't specifically define PANDAS - they fluctuate in typical people too), whether there is a current infection (throat swab), etc. If you get the lab done, you can post the results here. HTH- ________________________________ From: Kristy Nardini <knardini@...> Sent: Friday, April 17, 2009 10:28:12 AM Subject: Test for PANDAS Is there a test for PANDAS? Kristy Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 This test is a fairly good guideline to see if strep might be causing some problems. I've had extremely high ASO titers for more than two years. I started at 2,000 (I believe 200 is the high end of normal) and Dr. G's gotten me down to 1400 with Ery-Ped (I'm on my fourth month of treatment). I had a LOT of anxiety and obsessive thoughts, which have dissipated considerably since starting the Ery-Ped. I've had this for a long time--I believe since I was young. I just thought I was a little on the wacky side. Now that I don't have as much anxiety and the obsessive stuff has eased up, I realize how much it consumed my life and how it affected me. My advice is if you suspect PANDAS, do the ASO titers test. All the best, Robyn > From: <thecolemans4@...> > Subject: Re: Test for PANDAS > > Date: Friday, April 17, 2009, 1:52 PM > There is not an official test. You can have ASO titers > drawn (checks the enzyme that responds to strep) to see if > they are very elevated. Then, depending on the reading, > you have to determine if there has been a recent infection > (which is the primary reason ASO titers can't > specifically define PANDAS - they fluctuate in typical > people too), whether there is a current infection (throat > swab), etc. > If you get the lab done, you can post the results here. > HTH- > > > > > > ________________________________ > From: Kristy Nardini <knardini@...> > > Sent: Friday, April 17, 2009 10:28:12 AM > Subject: Test for PANDAS > > > > > > Is there a test for PANDAS? > > Kristy > Sent from my Verizon Wireless BlackBerry > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Thanks, ! From: [mailto: ] On Behalf Of Sent: Friday, April 17, 2009 1:53 PM Subject: Re: Test for PANDAS There is not an official test. You can have ASO titers drawn (checks the enzyme that responds to strep) to see if they are very elevated. Then, depending on the reading, you have to determine if there has been a recent infection (which is the primary reason ASO titers can't specifically define PANDAS - they fluctuate in typical people too), whether there is a current infection (throat swab), etc. If you get the lab done, you can post the results here. HTH- ________________________________ From: Kristy Nardini <knardini@... <mailto:knardini%40roadrunner.com> > <mailto:%40> Sent: Friday, April 17, 2009 10:28:12 AM Subject: Test for PANDAS Is there a test for PANDAS? Kristy Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Will a round of amoxicillin affect the outcome of the ASO titers test? Kristy From: [mailto: ] On Behalf Of Robyn & Greg Coggins Sent: Friday, April 17, 2009 2:40 PM Subject: Re: Test for PANDAS This test is a fairly good guideline to see if strep might be causing some problems. I've had extremely high ASO titers for more than two years. I started at 2,000 (I believe 200 is the high end of normal) and Dr. G's gotten me down to 1400 with Ery-Ped (I'm on my fourth month of treatment). I had a LOT of anxiety and obsessive thoughts, which have dissipated considerably since starting the Ery-Ped. I've had this for a long time--I believe since I was young. I just thought I was a little on the wacky side. Now that I don't have as much anxiety and the obsessive stuff has eased up, I realize how much it consumed my life and how it affected me. My advice is if you suspect PANDAS, do the ASO titers test. All the best, Robyn > From: <thecolemans4@... <mailto:thecolemans4%40> > > Subject: Re: Test for PANDAS > <mailto:%40> > Date: Friday, April 17, 2009, 1:52 PM > There is not an official test. You can have ASO titers > drawn (checks the enzyme that responds to strep) to see if > they are very elevated. Then, depending on the reading, > you have to determine if there has been a recent infection > (which is the primary reason ASO titers can't > specifically define PANDAS - they fluctuate in typical > people too), whether there is a current infection (throat > swab), etc. > If you get the lab done, you can post the results here. > HTH- > > > > > > ________________________________ > From: Kristy Nardini <knardini@... <mailto:knardini%40roadrunner.com> > > <mailto:%40> > Sent: Friday, April 17, 2009 10:28:12 AM > Subject: Test for PANDAS > > > > > > Is there a test for PANDAS? > > Kristy > Sent from my Verizon Wireless BlackBerry > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 Probably not - if it were to rapidly bring down the ASO titers into normal range (I don't think it can happen that fast even in typical people), then it wouldn't likely be PANDAS. HTH ________________________________ From: Kristy Nardini <knardini@...> Sent: Friday, April 17, 2009 8:05:25 PM Subject: RE: Test for PANDAS Will a round of amoxicillin affect the outcome of the ASO titers test? Kristy From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Robyn & Greg Coggins Sent: Friday, April 17, 2009 2:40 PM groups (DOT) com Subject: Re: Test for PANDAS This test is a fairly good guideline to see if strep might be causing some problems. I've had extremely high ASO titers for more than two years. I started at 2,000 (I believe 200 is the high end of normal) and Dr. G's gotten me down to 1400 with Ery-Ped (I'm on my fourth month of treatment). I had a LOT of anxiety and obsessive thoughts, which have dissipated considerably since starting the Ery-Ped. I've had this for a long time--I believe since I was young. I just thought I was a little on the wacky side. Now that I don't have as much anxiety and the obsessive stuff has eased up, I realize how much it consumed my life and how it affected me. My advice is if you suspect PANDAS, do the ASO titers test. All the best, Robyn > From: <thecolemans4 <mailto:thecolemans 4%40. com> > > Subject: Re: Test for PANDAS > groups (DOT) com <mailto:% 40groups. com> > Date: Friday, April 17, 2009, 1:52 PM > There is not an official test. You can have ASO titers > drawn (checks the enzyme that responds to strep) to see if > they are very elevated. Then, depending on the reading, > you have to determine if there has been a recent infection > (which is the primary reason ASO titers can't > specifically define PANDAS - they fluctuate in typical > people too), whether there is a current infection (throat > swab), etc. > If you get the lab done, you can post the results here. > HTH- > > > > > > ____________ _________ _________ __ > From: Kristy Nardini <knardini@roadrunner .com <mailto:knardini% 40roadrunner. com> > > groups (DOT) com <mailto:% 40groups. com> > Sent: Friday, April 17, 2009 10:28:12 AM > Subject: Test for PANDAS > > > > > > Is there a test for PANDAS? > > Kristy > Sent from my Verizon Wireless BlackBerry > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2009 Report Share Posted April 19, 2009 We have been working on my daughters ASO titers for 2 years and they are not normal yet. Sheri ________________________________ From: <thecolemans4@...> Sent: Sunday, April 19, 2009 8:45:18 PM Subject: Re: Test for PANDAS Probably not - if it were to rapidly bring down the ASO titers into normal range (I don't think it can happen that fast even in typical people), then it wouldn't likely be PANDAS. HTH ____________ _________ _________ __ From: Kristy Nardini <knardini@roadrunner .com> groups (DOT) com Sent: Friday, April 17, 2009 8:05:25 PM Subject: RE: Test for PANDAS Will a round of amoxicillin affect the outcome of the ASO titers test? Kristy From: groups (DOT) com [mailto:] On Behalf Of Robyn & Greg Coggins Sent: Friday, April 17, 2009 2:40 PM groups (DOT) com Subject: Re: Test for PANDAS This test is a fairly good guideline to see if strep might be causing some problems. I've had extremely high ASO titers for more than two years. I started at 2,000 (I believe 200 is the high end of normal) and Dr. G's gotten me down to 1400 with Ery-Ped (I'm on my fourth month of treatment). I had a LOT of anxiety and obsessive thoughts, which have dissipated considerably since starting the Ery-Ped. I've had this for a long time--I believe since I was young. I just thought I was a little on the wacky side. Now that I don't have as much anxiety and the obsessive stuff has eased up, I realize how much it consumed my life and how it affected me. My advice is if you suspect PANDAS, do the ASO titers test. All the best, Robyn > From: <thecolemans4 <mailto:thecolemans 4%40. com> > > Subject: Re: Test for PANDAS > groups (DOT) com <mailto:% 40groups. com> > Date: Friday, April 17, 2009, 1:52 PM > There is not an official test. You can have ASO titers > drawn (checks the enzyme that responds to strep) to see if > they are very elevated. Then, depending on the reading, > you have to determine if there has been a recent infection > (which is the primary reason ASO titers can't > specifically define PANDAS - they fluctuate in typical > people too), whether there is a current infection (throat > swab), etc. > If you get the lab done, you can post the results here. > HTH- > > > > > > ____________ _________ _________ __ > From: Kristy Nardini <knardini@roadrunne r .com <mailto:knardini% 40roadrunner. com> > > groups (DOT) com <mailto:% 40groups. com> > Sent: Friday, April 17, 2009 10:28:12 AM > Subject: Test for PANDAS > > > > > > Is there a test for PANDAS? > > Kristy > Sent from my Verizon Wireless BlackBerry > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2009 Report Share Posted April 20, 2009 Our experience reflected Cynthis¹a comment... even though we saw some immediate results from starting ERY PED, it took many months (maybe 9?) to get the titers down. Caroline G. From: <thecolemans4@...> Reply-< > Date: Sun, 19 Apr 2009 17:45:18 -0700 (PDT) < > Subject: Re: Test for PANDAS Probably not - if it were to rapidly bring down the ASO titers into normal range (I don't think it can happen that fast even in typical people), then it wouldn't likely be PANDAS. HTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 As i don´t live in the USA, is it possible to you to describe what are exactly the ASO titers in a lab. test? Thanks > > > From: <thecolemans4 > <mailto:thecolemans 4%40. com> > > > Subject: Re: Test for PANDAS > > groups (DOT) com <mailto:% 40groups. com> > > Date: Friday, April 17, 2009, 1:52 PM > > There is not an official test. You can have ASO titers > > drawn (checks the enzyme that responds to strep) to see if > > they are very elevated. Then, depending on the reading, > > you have to determine if there has been a recent infection > > (which is the primary reason ASO titers can't > > specifically define PANDAS - they fluctuate in typical > > people too), whether there is a current infection (throat > > swab), etc. > > If you get the lab done, you can post the results here. > > HTH- > > > > > > > > > > > > ____________ _________ _________ __ > > From: Kristy Nardini <knardini@roadrunner .com > <mailto:knardini% 40roadrunner. com> > > > groups (DOT) com <mailto:% 40groups. com> > > Sent: Friday, April 17, 2009 10:28:12 AM > > Subject: Test for PANDAS > > > > > > > > > > > > Is there a test for PANDAS? > > > > Kristy > > Sent from my Verizon Wireless BlackBerry > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 , An ³ASO titer² is a blood test to measure anti-streptolysin O (ASO) antibodies which have been made by the body to fight strep. Caroline From: vanessagamarrac1 <vanessagamarrac1@...> Reply-< > Date: Wed, 22 Apr 2009 17:40:37 +0000 < > Subject: Re: Test for PANDAS As i don´t live in the USA, is it possible to you to describe what are exactly the ASO titers in a lab. test? Thanks Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.