Re: Re: [CHARGECanada] Susie Update

[Guest guest]

Debbie,

What do you mean by " second set of rods put in her eyes " ? I remember my basic

science (rods and cones etc.)

but I didn't realize there was a procedure to improve such things...

Thanks,

Anne

Debbie Cachia wrote:

> Hi everyone,

> We had some bad news about Susie and I wanted to share it with all of

> you. It seems that Susie is blind in her left eye, she used to have

> quite a bit of vision in it, but it was gone when we saw her doctor on

> thursday. It`s the same eye that is always infected because of her

> having no tear duct.

> When Susie has the second set of rods put in her eyes they will look at

> her macula and see what they can find.

> Debbie Cachia.

>

>

> Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

>

>

[Guest guest]

Hi Anne, Susie has no tear ducts, so they decided to insert plastic

rods (not tubes) in her eyes where the tear ducts should be. They stay

in place by a stich and in 3 months come out and hopefully the holes

will stay open. It didn`t work for Susie so she is having it done again,

if it doesn`t work this time she will have the reconstructive surgery

done to drill out tear ducts.

Debbie.

Anne Bernstein wrote:

> Debbie,

>

> What do you mean by " second set of rods put in her eyes " ? I remember

> my basic science (rods and cones etc.)

> but I didn't realize there was a procedure to improve such things...

>

> Thanks,

>

> Anne

>

>

>

> Debbie Cachia wrote:

>

> > Hi everyone,

> > We had some bad news about Susie and I wanted to share it with all

> of

> > you. It seems that Susie is blind in her left eye, she used to have

> > quite a bit of vision in it, but it was gone when we saw her doctor

> on

> > thursday. It`s the same eye that is always infected because of her

> > having no tear duct.

> > When Susie has the second set of rods put in her eyes they will look

> at

> > her macula and see what they can find.

> > Debbie Cachia.

> >

> >

> > Membership of this email support groups does not constitute

> membership in the CHARGE Syndrome Foundation.

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> > 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> > July 25-27, 2003. Information will be available at our website

> > www.chargesyndrome.org or by calling 1-.

> >

> >

> >