Re: ALS/Lyme (was) OT: Psych Ward (was: How Lymies see themselves)

[Guest guest]

Hi Marie,

ALS is a very devastating disease, some believe it is end stage Lyme...

http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm

>>>Infectious diseases such as human immunodeficiency virus (HIV), human T-cell

leukemia virus (HTLV), and Lyme disease can in some cases cause ALS-like

symptoms.<<<

http://www.aldf.com/ALS-Lyme.pdf

The goal for everyone with Lyme is to stop its progression to what may become

ALS...

Take care,

Jim

> > >

> > > Hi Barbara,

> > >

> > > >>>>>all good info and advice. have done most of it, but i think they have

> > > heard it all and are done. so, best i just keep a lot of it too myself or

> > > to 'you all' as it just seems to add to their 'mom's illness'. i think

> > > they understand and care. they are good, loving kids. it's just a lot of

> > > crazy health history that i think they are tired of coping with. not

> > > making excuses for them, just the way it is. with them, i need to focus on

> > > living and not the illness. which is probably best for me anyway.

> > > actually moving forward. <<<<<<<

> > >

> > > I understand where you are coming from, but never give up a chance to

> > > educate without pestering... If you don't communicate some things, they

> > > will never truly understand.. And you should focus on LIVING all the time,

> > > after all Lyme is NOT you, right????!!!!!

> > >

> > >

> > > >>>>>>when you mentioned that gal who was in the e.r. and sent to the

psych

> > > ward i got sick to my stomach. it brought back memories of last april when

> > > they classified me as a psych patient with the benzo drug. in my delirium

> > > i guess i was talking a lot about my health history, some of which was

lyme

> > > and the rife machine that they documented i treated my liver with. i'm

> > > sure i meant lyme, not liver, but who knows. so, if she went to the psych

> > > ward for lyme, and i talked about lyme and rife, they must have thought i

> > > was nuts also. the e.r. dr. told my husband he didn't know what was wrong

> > > with me and walked off. hmmm. <<<<<<

> > >

> > > Sadly, this is the first time I have heard of a Lymie being admitted to

the

> > > psych ward all because they claimed to live with chronic Lyme. I am sorry

> > > to hear of your classification also... Makes me wonder why they prescribe

> > > these drugs to begin with.. When I am educating a doctor about Lyme, I

> > > never talk about any natural treatments unless I know I can as he/she is

> > > receptive... Talking about a rife machine is most likely talking about

> > > something they are clueless about.. When I talk about Lyme, I always

> > > include my major symptoms and how long they've been with me.. I would

think

> > > most ER docs are not very knowledgeable

> > > about natural treatments.. Sometimes it is best to just say nothing other

> > > than your symptoms and how you feel.. AND, try to stay out of those places

> > > if you can... :-) I don't find ER's are good places for people with Lyme

> > > as they don't know much about this disease nor even the allopathic

> > > treatments.. AND, not knowing what is wrong is what I found was the case

> > > each time I went to the ER!! They never once came up with a dx that was

> > > correct... I would only go there for a life or death situation today..

> > > You'd probably get better advice from someone here on the group! At least

> > > we know what Lyme is and how others respond to it..

> > >

> > > >>>>i read somewhere that in someplace the dr. doesn't get paid until they

> > > cure (or at least properly dx. ) a patient. should be that way here. a

> > > person may not agree with obama's health care plan, but one thing we could

> > > probably all agree with is that for medicare, e.r. depts. don't get paid

> > > for the second and subsequent visits for the same condition if within a

> > > month. that may change how they look at some conditions and treatments.

> > > or they may just dx more as psych patients to get their money.<<<<

> > >

> > > I believe Lena posted this about Chinese medicine and doctors, actually a

> > > good policy.. Trust me, medical establishments will figure out a way to

> > > keep the money rolling in.. I think the best policy for everyone is stay

> > > away unless it is urgent or life or death.. After my last set of steroid

> > > nerve blocks in the Fall of

> > > 2005 (didn't know I had Lyme then), I was failing very quickly and was in

> > > the ER 5 times between Sept and Dec, 23rd and NOT once did they do

anything

> > > that helped me nor did they prescribe scripts for medicines that helped..

I

> > > knew something was very wrong as I was getting worse by the day, yet not a

> > > single doctor did nor prescribed anything that helped... On Dec 26, 2005 I

> > > awoke with what I thought was the worst flu, it turned out to be my first

> > > and worst major herx... I learned that ERs know little to nothing about

> > > Lyme.

> > >

> > > --

> > > Take care,

> > > Jim

> >

>

[Guest guest]

Hi Jim,

I know so well about ALS ! My first husband dyed from ti paralyzed from head to toe . And my paralysi at osme point took the turn of an ALS ,

I brought ti back to a fast progressing MS where is was before by a 2 month of MMS1+MMS2 life threatening protocol at this time .

Thank you for the link ,

Kindly Marie

To: Lyme_and_Rife Sent: Friday, April 27, 2012 9:30 PMSubject: Re: ALS/Lyme (was) OT: Psych Ward (was: How Lymies see themselves)

Hi Marie,ALS is a very devastating disease, some believe it is end stage Lyme... http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/detail_ALS.htm>>>Infectious diseases such as human immunodeficiency virus (HIV), human T-cell leukemia virus (HTLV), and Lyme disease can in some cases cause ALS-like symptoms.<<<http://www.aldf.com/ALS-Lyme.pdfThe goal for everyone with Lyme is to stop its progression to what may become ALS...Take care,Jim> > >> > > Hi Barbara,> > > > > > >>>>>all good info and advice. have done most of it, but i think they have> > > heard it all and are done. so, best i just keep a lot of it too myself or> > > to 'you all' as it just seems to add to their 'mom's illness'. i think> > > they

understand and care. they are good, loving kids. it's just a lot of> > > crazy health history that i think they are tired of coping with. not> > > making excuses for them, just the way it is. with them, i need to focus on> > > living and not the illness. which is probably best for me anyway.> > > actually moving forward. <<<<<<<> > > > > > I understand where you are coming from, but never give up a chance to> > > educate without pestering... If you don't communicate some things, they> > > will never truly understand.. And you should focus on LIVING all the time,> > > after all Lyme is NOT you, right????!!!!!> > > > > > > > > >>>>>>when you mentioned that gal who was in the e.r. and sent to the psych> > > ward i got sick to my stomach. it brought

back memories of last april when> > > they classified me as a psych patient with the benzo drug. in my delirium> > > i guess i was talking a lot about my health history, some of which was lyme> > > and the rife machine that they documented i treated my liver with. i'm> > > sure i meant lyme, not liver, but who knows. so, if she went to the psych> > > ward for lyme, and i talked about lyme and rife, they must have thought i> > > was nuts also. the e.r. dr. told my husband he didn't know what was wrong> > > with me and walked off. hmmm. <<<<<<> > > > > > Sadly, this is the first time I have heard of a Lymie being admitted to the> > > psych ward all because they claimed to live with chronic Lyme. I am sorry> > > to hear of your classification also... Makes me wonder why they prescribe> >

> these drugs to begin with.. When I am educating a doctor about Lyme, I> > > never talk about any natural treatments unless I know I can as he/she is> > > receptive... Talking about a rife machine is most likely talking about> > > something they are clueless about.. When I talk about Lyme, I always> > > include my major symptoms and how long they've been with me.. I would think> > > most ER docs are not very knowledgeable> > > about natural treatments.. Sometimes it is best to just say nothing other> > > than your symptoms and how you feel.. AND, try to stay out of those places> > > if you can... :-) I don't find ER's are good places for people with Lyme> > > as they don't know much about this disease nor even the allopathic> > > treatments.. AND, not knowing what is wrong is what I found was the case> > >

each time I went to the ER!! They never once came up with a dx that was> > > correct... I would only go there for a life or death situation today..> > > You'd probably get better advice from someone here on the group! At least> > > we know what Lyme is and how others respond to it..> > > > > > >>>>i read somewhere that in someplace the dr. doesn't get paid until they> > > cure (or at least properly dx. ) a patient. should be that way here. a> > > person may not agree with obama's health care plan, but one thing we could> > > probably all agree with is that for medicare, e.r. depts. don't get paid> > > for the second and subsequent visits for the same condition if within a> > > month. that may change how they look at some conditions and treatments.> > > or they may just dx more as psych patients to get

their money.<<<<> > > > > > I believe Lena posted this about Chinese medicine and doctors, actually a> > > good policy.. Trust me, medical establishments will figure out a way to> > > keep the money rolling in.. I think the best policy for everyone is stay> > > away unless it is urgent or life or death.. After my last set of steroid> > > nerve blocks in the Fall of> > > 2005 (didn't know I had Lyme then), I was failing very quickly and was in> > > the ER 5 times between Sept and Dec, 23rd and NOT once did they do anything> > > that helped me nor did they prescribe scripts for medicines that helped.. I> > > knew something was very wrong as I was getting worse by the day, yet not a> > > single doctor did nor prescribed anything that helped... On Dec 26, 2005 I> > > awoke with what I thought

was the worst flu, it turned out to be my first> > > and worst major herx... I learned that ERs know little to nothing about> > > Lyme.> > > > > > -- > > > Take care,> > > Jim> >>