TMJ

[Guest guest]

Thanks . I'm also starting to wonder about CFS with my son. He's

been sick and resting on the couch for two months and hurts all over. We

seem to be going from bad to worse.

wrote:

>

>

> Hey -

> My ears really hurt when my TMJ flares - stabbing piercing pains in

> my ear and into my head. There are not any abnormalities, it just flares

> from inflammation. I get toradol shots (non-steroid anti-inflammatory)

> and that helps dramatically for at least a month, and sometimes it

> doesn't come back for a while. Kids can't get toradol as far as I know,

> but another oral NSAID should be helpful if TMJ is correct... Also,

> teaching them to " jut out " their jaw to stretch the muscles and try to

> prevent clenching teeth helps a little. If you could find a D.O.

> (doctor of osteopathy like an MD but for pain), especially one who has a

> physiatrist on board (a specialized little known field that does

> miracles on pain), they might be able to help w/out all the meds.

>

> If you're dealing with facial muscle spasms or facial nerve pain, those

> things above can still help. I didn't have dystonia, but I did

> frequently have some of the pain associated with it - a deep jaw pain,

> muscle spasms, etc. There can be a lot of causes (as I'm sure you've

> studied), inflammation being a big one. Since is trying to address

> inflammation, you're targeting that area too.

>

> Good luck,

>

> HTH-

>

>

> ________________________________

> From: Thomson <michelle@...

> <mailto:michelle%40originalcode.com>>

> <mailto:%40>

> Sent: Saturday, March 7, 2009 9:25:41 AM

> Subject: To

>

> Hi ,

>

> Thanks for your reply. I'm glad your son is starting to feel better.

>

> We're just trying to get well enough to go back to school (before

> I lose my mind!). We'll have to wait on any plans for California until

> he's well enough to get off the couch!

>

> You mention your son being on an anti-viral. It's probably just a

> coincidence, but last year my son got a really bad case of the flu and

> ended up in the ER with trouble breathing. He took Tamiflu and had the

> best week of his life after taking it. That is what actually led me to

> the site.

>

> Does your insurance cover all the lab work you need here in Colorado? We

> have a big deductible before anything is covered, but has been so

> sick that we'll probably be through the deductible in another month.

> There goes the budget!

>

> By the way, our ENT thinks my son's ear pain is due to TMJ. His

> neurologist and I think it might be facial dystonia (he also has some

> weird posturing in his feet).

>

> Good luck with your son. I hope you keep seeing improvement.

>

>

>

> Bekele wrote:

> >

> >

> > Hi ,

> > We live in Centennial,CO and started seeing Dr.G. in mid January. Our

> > son is almost 10 and was diagnosed w/pdd-nos etc...at about 2yrs of

> > age. He also suffers from an unknown ear pain for the past 2yrs.

> > We've taken him to 6 ENT's including Children's(by the way I work at

> > Children's Hospital in Aurora) & they have found nothing either.

> >

> > After discussing with Dr.G. it's convincing that the viral issue in his

> > brain is what is causing the pain in his ear. It's making sense to me

> > because he's never had ear infections or any other issues that an ENT

> > could see. So, your son's issue with his ear may be the same, viral

> > caused. My son has been on an anti-viral for about 6wks now. In the

> > begnning was really bad with die offs. But the past 2 days we're seeing

> > more calmness & less holding ears. It looks like his ear pain is

> > reducing slowly. I don't want to say this too soon but it's looking

> > positive. His ear pain has been a nightmare for him & for the whole

> > family. We've always told his syblings to keep it quiet or play in

> > another room etc etc. so it'll be a " miracle " for us if that goes away.

> >

> > You should really make an appointment to see Dr.Goldberg in CA. We

> > only flew once for the 1st visit & we're doing phone consult once a

> > month. We do all the lab work from here too.

> > Good luck and God bless

> >

> >

>

>