OT: Herx reactions (was) Re: OT: MMS irritating the bladder...or annoying the spirochetes in

[Guest guest]

hi khaya,construction stuff is very disrupting.  we've been building for years. but now you can clean behind the furniture. this is the second time i've filed for disability.  in 1995 i was awarded ssi (for those who haven't worked and have no/little income) for fms.  when i remairried i lost it because of husbands income.  this time  i filed, at the suggestion of s.s. because i had worked just enough to acquire the needed credits to qualify for ssid.  i still have the fms and also cfids, which we all know is probably lyme, but they recognize fms and cfids, so ok, i have dx of those.

i did the first 2 filings myself and then got an attorney.  you can't get it without one at this stage.  so will see how it goes.thanks for your support.barbara

 

Good luck with your hearing! Some people have to use an attorney in order to get SSDI--it can be really hard. If you are not successful, your local LD association might now an attorney with SS experience.

Khaya

>

> thanks so much for understanding my crazy ups and downs. it is hard to see

> myself as this 'crazy flake', as we often see ourselves as we wish we were

> instead of who/how we are right now. the trick is to see ourselves beyond

> what the disease and/or drugs have made us by their symptoms. i guess it

> is good we tend to see the better part of us, otherwise it would be too

> discouraging. i try to see me through god's eyes and that helps.

>

> most of my family is trying to see that it is the drug that makes me weird.

> but it is still hard for some of them. what is nice here is that everyone

> not only sees, but KNOWS it is the disease/drugs. there is a lot of grace

> there that is very comforting.

>

> i have my ssid hearing in late june. i think i will still be on the drug

> by then, so thought i would plan a drop in dose a couple days before the

> hearing. then they can see what a disabled flake i really am. wouldn't

> want to risk having one of those rare good days and blow the hearing. not

> trying to 'rig' my hearing and be dishonest, just want them to be able to

> see the real, everyday me. will see.

>

> barbara