Topamax

[Guest guest]

Hello Tonia,

Everyone's experience is different, but Topamax is the only drug that my son

was able to attain seizure control with, he has complex partial seizures.

However, he started to have cognitive problems and word finding difficulty at

school and on the advice of the doctor and with the input of the teacher , I

made the decision to lower the dose and add another medicaton, a decision I've

come to regret.

He has been on more than 17 trials of medications and combinations of

medications and none offered the success he had with Topamax. I want to revisit

this drug as my son continues to have seizures and is on 3 AED's at this time.

Dr's don't seem to believe in revisiting meds that were tried in the past. But

I plan to pursue this option anyway as the cognitive problems are no worse than

the weekly/daily seizures that present cognitive/memory problems of their own.

My advice to you is to try to avoid changing meds that offer control but

present with these types of problems, I really wish I knew then what I know now.

Good Luck to you and your son.

" Tonia B. " <tonia_b_90806@...> wrote:

My son's dr just put him on Topamax in addition to his Tegretol. Does

anyone have any experience with Topamax.

Thanks

Tonia

[Guest guest]

Recall of two Valproic acid drugs, Depakene 500 mg and Ratio-Valproic 500 mg

Health Canada is warning patients taking the anti-epilepsy

medications Depakene 500 mg and ratio-Valproic 500 mg that

they may not be getting the full dose of the active drug,

which could result in inadequate treatment of their seizures.

http://www.hc-sc.gc.ca/ahc-asc/media/advisories-avis/2007/index_e.html

Sincerely,

Katharina

www.Auto-Thera.com

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Katharina Gutsche, M.A. Psycholinguistics, Dipl.-Psych.Clinical Psychology,

State Licensured Naturopath (Psychotherapy)

My ebook:

Non-medication and Non-surgery Method

or Add-on

for Intractable Epilepsy:

Meditative Training.

Thesis

www.lulu.com/content/842100

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to: <img src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " >

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

<a rel= " nofollow " target= " _blank "

href= " http://www.caringbridge.org/visit/Ianpaul " ><font

color= " #003399 " >http://www.caringbridge.org/visit/Ianpaul</font></a> ---- Ians

new site

<a rel= " nofollow " target= " _blank "

href= " http://www.our-sma-angels.com/Ian/ " >http://www.our-sma-angels.com/Ian/</a>

------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I'm on depakote for the sma, but would come off to try topamx for a while.

Since I am not sure at this time how much, if at all the depakote is helping,

and the weight gain is bad I wanted to try to come off. The bad thing is I will

only know if it was actually keeping me stable when I come off and perhaps lose

some strength. I hope it doesn't happen!

I really, really want to try topamax just to lose some weight and then go off.

I'm hoping the effects won't be bad in such a short time.

missy <ianpaul2@...> wrote:

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to:

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

http://www.caringbridge.org/visit/Ianpaul ---- Ians new site

http://www.our-sma-angels.com/Ian/ ------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

hi i was just wondering of someone could exsplane what topamx is and how it

works iv never heard of it

lauramechelle

Joy <j0yeuxx@...> wrote:

I'm on depakote for the sma, but would come off to try topamx for a

while.

Since I am not sure at this time how much, if at all the depakote is helping,

and the weight gain is bad I wanted to try to come off. The bad thing is I will

only know if it was actually keeping me stable when I come off and perhaps lose

some strength. I hope it doesn't happen!

I really, really want to try topamax just to lose some weight and then go off.

I'm hoping the effects won't be bad in such a short time.

missy <ianpaul2@...> wrote:

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to:

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

http://www.caringbridge.org/visit/Ianpaul ---- Ians new site

http://www.our-sma-angels.com/Ian/ ------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Here is an article about it being used on someone with Duchenne muscular

dystrophy:

http://www.mdausa.org/publications/Quest/q114pill.html

as if <xx_laura_s_xx@...> wrote:

hi i was just wondering of someone could exsplane what topamx is and how it

works iv never heard of it

lauramechelle

Joy wrote:

I'm on depakote for the sma, but would come off to try topamx for a while.

Since I am not sure at this time how much, if at all the depakote is helping,

and the weight gain is bad I wanted to try to come off. The bad thing is I will

only know if it was actually keeping me stable when I come off and perhaps lose

some strength. I hope it doesn't happen!

I really, really want to try topamax just to lose some weight and then go off.

I'm hoping the effects won't be bad in such a short time.

missy wrote:

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to:

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

http://www.caringbridge.org/visit/Ianpaul ---- Ians new site

http://www.our-sma-angels.com/Ian/ ------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

thanks

is Topamax used maily for weight loss or energy ?

dose anyone here take it and dose it work ?

lauramechelle

Joy <j0yeuxx@...> wrote:

Here is an article about it being used on someone with Duchenne

muscular dystrophy:

http://www.mdausa.org/publications/Quest/q114pill.html

as if <xx_laura_s_xx@...> wrote:

hi i was just wondering of someone could exsplane what topamx is and how it

works iv never heard of it

lauramechelle

Joy wrote:

I'm on depakote for the sma, but would come off to try topamx for a while.

Since I am not sure at this time how much, if at all the depakote is helping,

and the weight gain is bad I wanted to try to come off. The bad thing is I will

only know if it was actually keeping me stable when I come off and perhaps lose

some strength. I hope it doesn't happen!

I really, really want to try topamax just to lose some weight and then go off.

I'm hoping the effects won't be bad in such a short time.

missy wrote:

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to:

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

http://www.caringbridge.org/visit/Ianpaul ---- Ians new site

http://www.our-sma-angels.com/Ian/ ------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I had no idea that topamax was being used for weight loss! My little one,

Krystan (7 1/2) takes topamax on a daily basis in addition to another medication

to help control symptoms of early onset bipolar disorder. I have definitely seen

a reduction in her appetite but it has not caused weight loss in her. She has

not experienced the serious *dulling* that can occur with topamax use. Some in

the world of psychiatric illness affectionately call it " dopamax " because of

that dulling.

I would probably check this out a little more closely. It concerns me that it

would be prescribed to a person with a neuromuscular disorder which causes an

increased likelihood of metabolic acidosis since that is one of the possible

side effects. I would certainly want to weigh the many possible side effects

against the potential benefits, and I know that's what you're doing.

Good luck with whatever you decide to do!

Love and Hugs

Jeni

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

[Guest guest]

From what I see Topamax was made to relieve migraines and is used for seizures.

As with many drugs there will be other uses, such as bi-polar disorder.

You can do a search on it and find all kinds of information.

It is used for weight loss for people with DMD, but that is a side effect of

the drug and not what it was developed for.

as if <xx_laura_s_xx@...> wrote:

hi i was just wondering of someone could exsplane what topamx is and how it

works iv never heard of it

lauramechelle

Joy wrote:

I'm on depakote for the sma, but would come off to try topamx for a while.

Since I am not sure at this time how much, if at all the depakote is helping,

and the weight gain is bad I wanted to try to come off. The bad thing is I will

only know if it was actually keeping me stable when I come off and perhaps lose

some strength. I hope it doesn't happen!

I really, really want to try topamax just to lose some weight and then go off.

I'm hoping the effects won't be bad in such a short time.

missy wrote:

Honestly that is the only thing I have heard good about Topamax is the fact of

weight loss! I know someone that was on it for quite awhile for seizures and

that med only screwed up her mood, attitude, the whole nine yards including

memory! A lot of seizure meds can mess with the memory though.....I know!

Honestly though I myself will not try Topamax. Are you on the depekote for the

SMA or for seizures?

Missy

Mom to:

Mitch age 11 SMA free

Ian age 9 SMA typeII/III

Andy age 6 SMA free

God is our refuge and strength, an ever-present help in trouble. Psalm 46:1

http://www.caringbridge.org/visit/Ianpaul ---- Ians new site

http://www.our-sma-angels.com/Ian/ ------ finally updated, take a look!!!

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Hi Jeni-My doctor did warn that the medication could make me " slow " and I have

read it could be bad for memory too! I can just imagine how that would go over

at work! eek!

How long has your daughter been taking it and how many mg?

I do see there are a lot of cons, but my thinking is that it would only be

temporary so I hope the bad stuff wouldn't have time to happen-or that my dosage

would be too low to cause these things. Also I wouldn't want to remain on the

medication for long- just until I reach a desired weight if it really helps. The

depakote makes me hungry it seems all the time! And not just wanting a snack

here and there, but stomach growling hungry! It's so not like me and I hate it!

Jenifer Woody <mom2armybratz@...> wrote:

I had no idea that topamax was being used for weight loss! My little one,

Krystan (7 1/2) takes topamax on a daily basis in addition to another medication

to help control symptoms of early onset bipolar disorder. I have definitely seen

a reduction in her appetite but it has not caused weight loss in her. She has

not experienced the serious *dulling* that can occur with topamax use. Some in

the world of psychiatric illness affectionately call it " dopamax " because of

that dulling.

I would probably check this out a little more closely. It concerns me that it

would be prescribed to a person with a neuromuscular disorder which causes an

increased likelihood of metabolic acidosis since that is one of the possible

side effects. I would certainly want to weigh the many possible side effects

against the potential benefits, and I know that's what you're doing.

Good luck with whatever you decide to do!

Love and Hugs

Jeni

Topamax

Hi all,

I was considering trying this medication to get rid of the weight put

on by the depakote. I was reading about it and it seems to have

horrible side effects though. I wanted to know if anyone here has tried

it or if you know anyone who has that would be willing to share his or

her experience with me.

[Guest guest]

My daughter has just been perscribed topamax for seizures. Has anyone used this

before and does it work, this is our third medication.

Thanks,

Stacey